“Who decides what criteria are important to consider in exploring the outcomes of conversation approaches? A participatory health research study”

References

• Barnes, S. E., Candlin, C. N., & Ferguson, A. (2013). Aphasia and topic initiation in conversation: A case study. International Journal of Language & Communication Disorders, 48, 102–114. doi:10.1111/j.1460-6984.2012.00186.x
   PubMed Web of Science ®Google Scholar
• Basso, A. (2010). “Natural” conversation: A treatment for severe aphasia. Aphasiology, 24, 466–479. doi:10.1080/02687030802714165
   Web of Science ®Google Scholar
• Booth, S., & Swabey, D. (1999). Group training in communication skills for carers of adults with aphasia. International Journal of Language & Communication Disorders 34, 291–310.
   PubMed Web of Science ®Google Scholar
• Brett, J., Staniszewska, S., Mockford, C., Seers, K., Herron-Marx, S., & Bayliss, H. (2010). The PIRICOM study: A systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research (pp. 1–292). Coventry: Royal College of Nursing Research Institute (RCNRI).
   Google Scholar
• Bronken, B., Kirkevold, M., Martinsen, R., & Kvigne, K. (2012). The aphasic storyteller: Coconstructing stories to promote psychosocial well-being after stroke. Qualitative Health Research, 22, 1303–1316. doi:10.1177/1049732312450366
   PubMed Web of Science ®Google Scholar
• Byng, S., & Duchan, J. (2005). Social model philosophies and principles: Their applications to therapies for aphasia. Aphasiology, 19, 906–922. doi:10.1080/02687030544000128
   Web of Science ®Google Scholar
• Chambers, R. (1994). Participatory rural appraisal (PRA): Analysis of experience. World Development, 22, 1253–1268. doi:10.1016/0305-750X(94)90003-5
   Web of Science ®Google Scholar
• Chambers, R. (2004). Participatory workshops a sourcebook of 21 sets of ideas and activities. London: Earthscan.
   Google Scholar
• Connect (the communication disability network). Retrieved January 20, 2015, from www.ukconnect.org
   Google Scholar
• Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). Los Angeles, CA: Sage Publications.
   Google Scholar
• Cunningham, R., & Ward, C. (2003). Evaluation of a training programme to facilitate conversation between people with aphasia and their partners. Aphasiology, 17, 687–707. doi:10.1080/02687030344000184
   Web of Science ®Google Scholar
• Department of Health. (2001). Involving patients and the public in healthcare: Response to the listening exercise. London: Author.
   Google Scholar
• Department of Health and Children (DoHC) Health Service Executive (HSE). (2008). National strategy for service user involvement in the Irish health service (2008–2013). Dublin: Author.
   Google Scholar
• Dewar, B. (2005). Beyond tokenistic involvement of older people in research – A framework for future development and understanding. International Journal of Older People Nursing in Association with Journal of Clinical Nursing, 14, 48–53.
   PubMed Web of Science ®Google Scholar
• Fox, S., Armstrong, E., & Boles, L. (2009). Conversational treatment in mild aphasia: A case study. Aphasiology, 23, 951–964. doi:10.1080/02687030802669526
   Web of Science ®Google Scholar
• Gibson, A., Britten, N., & Lynch, J. (2012). Theoretical directions for an emancipatory concept of patient and public involvement. Health (London), 16, 531–547. doi:10.1177/1363459312438563
   PubMed Web of Science ®Google Scholar
• Hickey, E., Bourgeois, M., & Olswang, L. (2004). Effects of training volunteers to converse with nursing home residents with aphasia. Aphasiology, 18, 625–637. doi:10.1080/02687030444000093
   Web of Science ®Google Scholar
• International Collaboration for Participatory Health Research (ICPHR). (2013). Position paper 1:What is participatory health research? Version: May 2013. Berlin International Collaboration of Participatory Health Research. Retrieved January 20, 2015, from www.ICPHR.org
   Google Scholar
• INVOLVE. (2014). What is public involvement in research?. Retrieved August 9, 2014, from www.involve.org.uk
   Google Scholar
• Jagoe, C., & Roseingrave, R. (2011). “If This is What I’m ‘Meant to be’…”: The journeys of students participating in a conversation partner scheme for people with aphasia. Journal of Academic Ethics, 9, 127–148. doi:10.1007/s10805-011-9140-5
   Google Scholar
• Jagosh, J., MacAulay, A., Pluye, P., Salsberg, J., Bush, P., Henderson, J., & Greenhalgh, T. (2012). Uncovering the benefits of participatory research: Implications of a realist review for health research and practice. Milbank Quarterly, 90, 311–346. doi:10.1111/j.1468-0009.2012.00665.x
   PubMed Web of Science ®Google Scholar
• Johansson, M., Carlsson, M., & Sonnander, K. (2012). Communication difficulties and the use of communication strategies: From the perspective of individuals with aphasia. International Journal of Language & Communication Disorders, 47, 144–155. doi:10.1111/j.1460-6984.2011.00089.x
   PubMed Web of Science ®Google Scholar
• Kagan, A. (1995). Revealing the competence of aphasic adults through conversation: A challenge to health professionals. Topics in Stroke Rehabilitation, 2, 15–28.
   PubMedGoogle Scholar
• Kagan, A., Black, S., Duchan, J., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversation partners using “supported conversation for adults with aphasia” (SCA): A controlled trial. Journal of Speech, Language and Hearing Research, 44, 624–638. doi:10.1044/1092-4388(2001/051)
   PubMed Web of Science ®Google Scholar
• Kagan, A., Simmons‐Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., McEwen, S., & Sharp, S. (2008). Counting what counts: A framework for capturing real‐life outcomes of aphasia intervention. Aphasiology, 22, 258–280. doi:10.1080/02687030701282595
   Web of Science ®Google Scholar
• Kagan, A., Winckel, J., Black, S., Duchan, J., Simmons-Mackie, N., & Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation, 11, 67–83. doi:10.1310/CL3V-A94A-DE5C-CVBE
   PubMedGoogle Scholar
• Lock, S., Wilkinson, R., & Bryan, K. (2001). Supporting Partners of People with Aphasia in Relationships and Conversation (SPPARC): Resource pack. Bicester: Speechmark Publishing.
   Google Scholar
• MacFarlane, A., Dzebisova, Z., Karapish, D., Kovacevic, B., Ogbebor, F., & Okonkwo, E. (2009). Arranging and negotiating the use of informal interpreters in general practice consultations: Experiences of refugees and asylum seekers in the west of Ireland. Social Science & Medicine, 69, 210–214. doi:10.1016/j.socscimed.2009.04.022
   PubMed Web of Science ®Google Scholar
• MacFarlane, A., O’Donnell, C., Mair, F., O’Reilly-de Brún, M., de Brún, T., Spiegel, W., & Dowrick, C. (2012). Research into implementation strategies to support patients of different origins and language background in a variety of European primary care settings (RESTORE): Study protocol. Implementation Science, 7. doi:10.1186/1748-5908-7-111
   PubMed Web of Science ®Google Scholar
• Mc Menamin, R., Tierney, E., & Mac Farlane, A. (2015). Addressing the long-term impacts of aphasia: How far does the Conversation Partner Programme go? Aphasiology. Advance online publication. doi:10.1080/02687038.2015.1004155
   Web of Science ®Google Scholar
• McVicker, S., Parr, S., Pound, C., & Duchan, J. (2009). The communication partner scheme: A project to develop long-term, low-cost access to conversation for people living with aphasia. Aphasiology, 23, 52–71. doi:10.1080/02687030701688783
   Web of Science ®Google Scholar
• Neuwelt, P. (2012). Community participation in primary care: What does it mean ‘in practice’? Journal of Primary Health Care, 4, 30–38.
   PubMedGoogle Scholar
• O’ Reilly-de Brun, M., & de Brún, T. (2010). The use of Participatory Learning & Action (PLA) research in intercultural health: Some examples and some questions. Translocations: Migration and Social Change: An Inter-Disciplinary Open Access E-Journal, 6. Retrieved from http://www.translocations.ie/docs/v06i01/Centre%20for%20Participatory%20Strategies.pdf
   Google Scholar
• O’Reilly-de Brún, M., & de Brún, T. (2011). Participatory Learning and Action (PLA) training manual—Internal document. Galway: Centre for Participatory Strategies (CPS) Ross Wood Clonbur.
   Google Scholar
• Oliver, S. R., Rees, R. W., Clarke-Jones, L., Milne, R., Oakley, A. R., Gabbay, J., & Gyte, G. (2008). A multidimensional conceptual framework for analysing public involvement in health services research. Health Expect, 11, 72–84. doi:10.1111/j.1369-7625.2007.00476.x
   PubMed Web of Science ®Google Scholar
• Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21, 98–123. doi:10.1080/02687030600798337
   Web of Science ®Google Scholar
• Pearson, M., Monks, T., Gibson, A., Allen, M., Komashie, A., Fordyce, A., & Stein, K. (2013). Involving patients and the public in healthcare operational research—The challenges and opportunities. Operations Research for Health Care, 2, 86–89. doi:10.1016/j.orhc.2013.09.001
   Google Scholar
• Pound, C., Duchan, J., Penman, T., Hewitt, A., & Parr, S. (2007). Communication access to organisations: Inclusionary practices for people with aphasia. Aphasiology, 21, 23–38. doi:10.1080/02687030600798212
   Web of Science ®Google Scholar
• Pound, C., Parr, S., & Duchan, J. (2001). Using partners’ autobiographical reports to develop, deliver, and evaluate services in aphasia. Aphasiology, 15, 477–493. doi:10.1080/02687040143000159
   Web of Science ®Google Scholar
• Rayner, H., & Marshall, J. (2003). Training volunteers as conversation partners for people with aphasia. International Journal of Language & Communication Disorders / Royal College of Speech & Language Therapists, 38, 149–164. doi:10.1080/1368282021000060308
   PubMed Web of Science ®Google Scholar
• Savage, M., Donovan, N., & Hoffman, P. (2014). Preliminary results from conversation therapy in two cases of aphasia. Aphasiology, 28, 616–636. doi:10.1080/02687038.2013.843153
   Web of Science ®Google Scholar
• Shale, A. (2004). Beyond common sense. Royal College of Speech and Language Therapists (RCSLT) Bulletin, January, 621, 14–15.
   Google Scholar
• Silverman, D. (2013). Doing qualitative research: A practical handbook (4th ed.). London: Sage.
   Google Scholar
• Simmons-Mackie, N., & Lynch, K. E. (2013). Qualitative research in aphasia: A review of the literature. Aphasiology, 27, 1281–1301. doi:10.1080/02687038.2013.818098
   Web of Science ®Google Scholar
• Speech and Language Therapy Department Primary Community Continuing Care (PCCC) Health Services Executive (HSE) West. (2013). Retrieved January 20, 2015, from http://hse.ie/eng/services/list/1/LHO/Galway/Therapy/
   Google Scholar
• Staniszewska, S. (2009). Patient and public involvement in health services and health research: A brief overview of evidence, policy and activity. Journal of Research in Nursing, 14, 295–298. doi:10.1177/1744987109106811
   Google Scholar
• Tierney, E., McEvoy, R., O’Reilly-de Brun, M., de Brun, T., Okonkwo, E., Rooney, M., & MacFarlane, A. (2014). A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory. Health Expect. Advance online publication. doi:10.1111/hex.12237
   PubMed Web of Science ®Google Scholar
• Turner, S., & Whitworth, A. (2006). Conversational partner training programmes in aphasia: A review of key themes and participants’ roles. Aphasiology, 20, 483–510. doi:10.1080/02687030600589991
   Web of Science ®Google Scholar