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Review

The experience of close personal relationships from the perspective of people with aphasia: thematic analysis of the literature

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Pages 367-393 | Received 04 Jul 2017, Accepted 01 Dec 2017, Published online: 14 Dec 2017

References

  • Aneshensel, C. S., & Frerichs, R. R. (1982). Stress, support, and depression: A longitudinal causal model. Journal of Community Psychology, 10, 363–376. doi:10.1002/(ISSN)1520-6629
  • Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8, 19–32. doi:10.1080/1364557032000119616
  • Armstrong, E., Hersh, D., Hayward, C., Fraser, J., & Brown, M. (2012). Living with aphasia: Three indigenous Australian stories. International Journal of Speech-Language Pathology, 14, 271–280. doi:10.3109/17549507.2011.663790
  • Astrom, M., Adolfson, R., & Asplund, K. (1993). Major depression in stroke patients: A 3-year longitudinal study. Stroke, 24, 976–982. doi:10.1161/01.STR.24.7.976
  • Barry, S. S., & Douglas, J. M. (2000). The social integration of individuals with aphasia. Advances in Speech Language Pathology, 2, 77–91. doi:10.3109/14417040008996793
  • Boles, L. (2006). Success stories in aphasia. Topics in Stroke Rehabilitation, 13, 37–43. doi:10.1310/29WX-32LE-A21H-3JQJ
  • Bolger, N., Zuckermman, A., & Kessler, R. C. (2000). Invisible support and adjustment to stress. Journal of Personality and Social Psychology, 79, 953–961. doi:10.1037/0022-3514.79.6.953
  • Boxer, D. (2002). Applying sociolinguistics: Domains and face-to-face interaction. Amsterdam: John Benjamins.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp063oa
  • Brown, K., Davidson, B., Worrall, L. E., & Howe, T. (2013). “Making a good time”: The role of friendship in living successfully with aphasia. International Journal of Speech-Language Pathology, 15, 165–175. doi:10.3109/17549507.2012.692814
  • Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24, 1267–1295. doi:10.1080/02687031003755429
  • Brown, K., Worrall, L. E., Davidson, B., & Howe, T. (2012). Living successfully with aphasia: A qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists. International Journal of Speech Language Pathology, 14, 141–155. doi:10.3109/17549507.2011.632026
  • Burton, C. R. (2000). Living with stroke: A Phenomenological study. Journal of Advanced Nursing, 32, 301–309. doi:10.1046/j.1365-2648.2000.01477.x
  • Chapey, R., Duchan, J. F., Elman, R. J., Garcia, L. J., Kagan, A., Lyon, J. G., & Simmons-Mackie, N. (2000). Life participation approach to aphasia: A statement of values for the future. ASHA Leader, 5, 4. doi:10.1044/leader.FTR.05032000.4
  • Code, C., Hemsley, G., & Herrmann, M. (1999). The emotional impact of aphasia. Seminars in Speech & Language, 20, 5–31. doi:10.1055/s-2008-1064006
  • Code, C., & Herrmann, M. (2003). The relevance of emotional and psychosocial factors in aphasia to rehabilitation. Neuropsychological Rehabilitation, 13, 109–132. doi:10.1080/09602010244000291
  • Cohen, S., Doyle, W. J., Skoner, D. P., Rabin, B. S., & Gwaltney, J. M. (1997). Social ties and susceptibility to the common cold. Journal of the American Medical Association, 277, 1940–1944. doi:10.1001/jama.1997.03540480040036
  • Cohen, S., & Janicki-Deverts, I. (2009). Can we improve our physical health by altering our social networks? Perspectives on Psychological Science, 4, 375–378. doi:10.1111/j.1745-6924.2009.01141.x
  • Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98(2), 310–357.
  • Cruice, M., Worrall, L., & Hickson, L. (2006a). Quantifying aphasic people’s social lives in the context of non-aphasic peers. Aphasiology, 20, 1210–1225. doi:10.1080/02687030600790136
  • Cruice, M., Worrall, L., & Hickson, L. (2006b). Perspectives of quality of life by people with aphasia and their family: Suggestions for successful living. Topics in Stroke Rehabilitation, 13, 14–24. doi:10.1310/4JW5-7VG8-G6X3-1QVJ
  • Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being. Aphasiology, 17, 333–353. doi:10.1080/02687030244000707
  • Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2005). Measuring quality of life: Comparing family members’ and friends ratings with those of their aphasic partners. Aphasiology, 19, 111–129. doi:10.1080/02687030444000651
  • Dalemans, R. J., De Witte, L. P., Beurskens, A. J., Van Den Heuvel, W. J., & Wade, D. T. (2010b). An investigation into the social participation of stroke survivors with aphasia. Disability & Rehabilitation, 32, 1678–1685. doi:10.3109/09638281003649938
  • Dalemans, R. J., De Witte, L. P., Wade, D. T., & Van Den Heuvel, W. J. (2010). Social participation through the eyes of people with aphasia. International Journal of Language & Communication Disorders, 45, 537–550. doi:10.3109/13682820903223633
  • Dalemans, R. J. P., De Witte, L., Van Den Heuvel, W., & Wade, D. (2008). A description of social participation in working age people with aphasia: A review of the literature. Aphasiology, 22, 1071–1091. doi:10.1080/02687030701632179
  • Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15, 325–340. doi:10.1310/tsr1504-325
  • Davidson, B., Worrall, L., & Hickson, L. (2006). Social communication in older age: Lessons from people with aphasia. Topics in Stroke Rehabilitation, 13, 1–13. doi:10.1310/0GGQ-CJDX-N2BR-W7W4
  • Davidson, B., Worrall, L. E., & Hickson, L. M. (2008). Exploring the interactional dimension of social communication: A collective case study of older people with aphasia. Aphasiology, 22, 235–257. doi:10.1080/02687030701268024
  • Denzin, N. K., & Lincoln, Y. S. (Eds.). (1994). Handbook of qualitative research. California: Sage.
  • Douglas, J. (2013). Conceptualising self and maintaining social connection following severe traumatic brain injury. Brain Injury, 27, 60–74. doi:10.3109/02699052.2012.722254
  • Douglas, J. (2012). Social linkage, self-concept and well-being after severe traumatic brain injury. In J. Jetten, C. Haslam, & S. A. Haslam (Eds.), The social cure: Identity, health and wellbeing. Hove, UK: Psychology Press.
  • Douglas, J. M., & Spellacy, F. J. (2000). Correlates of depression in adults with severe traumatic brain injury and their carers. Brain Injury, 14, 71–88. doi:10.1080/026990500120943
  • Dowswell, G., Lawler, J., Dowswell, T., Young, J., Forster, A., & Hearn, J. (2000). Investigating recovery from stroke: A qualitative study. Journal of Clinical Nursing, 9, 507–515. doi:10.1046/j.1365-2702.2000.00411.x
  • Fotiadou, D., Northcott, S., Chatzidaki, A., & Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships? Aphasiology, 28, 1281–1300. doi:10.1080/02687038.2014.928664
  • Fratiglioni, L., Pallard-Borg, S., & Winblad, B. (2004). An active and socially integrated lifestyle in late life might protect against dementia. Lancet Neurology, 3, 343–353. doi:10.1016/S1474-4422(04)00767-7
  • Gillespie, A., Murphy, J., & Place, M. (2010). Divergences of perspective between people with aphasia and their family members. Aphasiology, 24, 1559–1575. doi:10.1080/02687038.2010.500810
  • Glass, R., & Maddox, G. (1992). The quantity and quality of social support: Stroke recovery as a psychosocial transition. Social Science & Medicine, 34, 1249–1261. doi:10.1016/0277-9536(92)90317-J
  • Grawburg, M., Howe, T., Worrall, L., & Scarinci, N. (2013). A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia. Aphasiology, 27, 828–848. doi:10.1080/02687038.2013.768330
  • Grohn, B., Worrall, L., Simmons-Mackie, N., & Hudson, K. (2014). Living successfully with aphasia during the first year post-stroke: A longitudinal qualitative study. Aphasiology, 28, 1405–1425. doi:10.1080/02687038.2014.935118
  • Haun, J., Rittman, M. R., & Sberna, M. (2008). The continnum of connectedness and social isolation during post stroke recovery. Journal of Aging Studies, 22, 54–64. doi:10.1016/j.jaging.2007.03.001
  • Hilari, K. (2011). The impact of stroke: Are people with aphasia different to those without? Disability and Rehabilitation, 33, 211–218. doi:10.3109/09638288.2010.508829
  • Hilari, K., & Northcott, S. (2006). Social support in people with chronic aphasia. Aphasiology, 20, 17–36. doi:10.1080/02687030500279982
  • Hilari, K., Northcott, S., Roy, P., & Marshall, J. (2010). Psychological distress after stroke and aphasia: The first six months. Clinical Rehabilitation, 24, 181–190. doi:10.1177/0269215509346090
  • Hinckley, J. J. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13, 25–36. doi:10.1310/FLJ3-04DQ-MG8W-89EU
  • Johansson, M. B., Carlsson, M., & Sonnander, K. (2012). Communication difficulties and the use of communication strategies: From the perspective of individuals with aphasia. International Journal of Language & Communication Disorders, 47, 144–155. doi:10.1111/j.1460-6984.2011.00089.x
  • Johnson, H., Douglas, J., Bigby, C., & Iacono, T. (2012). A model of processes that underpin positive relationships for adults with severe intellectual disability. Journal of Intellectual & Developmental Disability, 37, 324–336. doi:10.3109/13668250.2012.732221
  • Kagan, A. (1995). Revealing the competence of aphasic adults through conversation. A challenge to health professionals. Topics in Stroke Rehabilitation, 2, 1–15. doi:10.1080/10749357.1995.11754051
  • Kop, W. J., Berman, D. S., Gransar, H., Wong, N. D., Miranda-Peats, R., White, M. D., … Rozanski, A. (2005). Social network and coronary artery calcification in asymptomatic individuals. Psychosomatic Medicine, 67, 343–352. doi:10.1097/01.psy.0000161201.45643.8d
  • Lapkiewicz, E., Grochmal-Bach, B., Pufal, A., & Tlokinski, W. (2008). Aphasia and changes in the quality of marital relations. Acta Neuropsychologica, 6, 237–246. Retrieved from https://pdfs.semanticscholar.org/0bea/31fd3b7cc9dfa5e94f736f455870ce80f1c4.pdf
  • LeDorze, G., & Brassard, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9, 239–255. doi:10.1080/02687039508248198
  • LeDorze, G., Salois-Bellerose, E., Alepins, M., Croteau, C., & Halle, M.-C. (2014). A description of the personal and enrivonmental determinants of participation several years post-stroke according to the views of people who have aphasia. Aphasiology, 28, 421–439. doi:10.1080/02687038.2013.869305
  • LeDorze, G., & Signori, F. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability and Rehabilitation, 32, 1073–1087. doi:10.3109/09638280903374121
  • LeDorze, G., Tremblay, V., & Croteau, C. (2009). A qualitative longitudinal case study of a daughter’s adaptation process to her father’s aphasia and stroke. Aphasiology, 23, 483–502. doi:10.1080/02687030801890909
  • Lemieux, L., Cohen-Schneider, R., & Holzapfel, S. (2001). Aphasia and Sexuality. Sexuality and Disability, 19, 253–266. doi:10.1023/A:1017953308761
  • Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5, 69. doi:10.1186/1748-5908-5-69
  • Lyon, J. G. (1997). Coping with Aphasia. London: Singular Publishing Group Pty Ltd.
  • Matos, M., Jesus, L. M., & Cruice, M. (2014). Consequences of stroke and aphasia according to the ICF domains: Views of Portuguese people with aphasia, family members and professionals. Aphasiology, 28, 771–796. doi:10.1080/02687038.2014.906561
  • McMenamin, R., Tierney, E., & MacFarlane, A. (2015). Addressing the long term impacts of aphasia: How far does the conversation partner program go? Aphasiology, 29, 889–913. doi:10.1080/02687038.2015.1004155
  • Michallet, B., Tetreault, S., & Le Dorze, G. (2003). The consequences of severe aphasia on the spouses of aphasic people: A description of the adaptation process. Aphasiology, 17, 835–859. doi:10.1080/02687030344000238
  • Natterlund, B. S. (2010). A new life with aphasia: Everyday activities and social support. Scandinavian Journal of Occupational Therapy, 17, 117–129. doi:10.3109/11038120902814416
  • Niemi, T., & Johansson, U. (2013). The lived experience of engaging in everyday occupations in persons with mild to moderate aphasia. Disability & Rehabilitation, 35, 1828–1834. doi:10.3109/09638288.2012.759628
  • Northcott, S., & Hilari, K. (2011). Why do people lose their friends after stroke? International Journal of Language & Communication Disorders, 46, 524–534. doi:10.1111/j.1460-6984.2011.00079.x
  • Northcott, S., Marshall, J., & Hilari, K. (2016). What factors predict who will have a strong social network following a stroke? Journal of Speech, Language & Hearing Research, 59, 772–783. doi:10.1044/2016_JSLHR-L-15-0201
  • Northcott, S., Moss, B., Harrison, K., & Hilari, K. (2016). A systematic review of the impact of stroke on social support and social networks: Associated factors and patterns of change. Clinical Rehabilitation, 30, 811–831. doi:10.1177/0269215515602136
  • Nystrom, M. (2006). Aphasia - An existential loneliness: A study on the loss of the world of symbols. International Journal of Qualitative Studies on Health and Wellbeing, 1, 38–49. doi:10.1080/17482620500501883
  • Parr, S. (2001). Psychosocial aspects of aphasia: Whose perspectives? Folia Phoniatrica Et Logopaedica, 53, 266–288. doi:10.1159/000052681
  • Parr, S., Byng, S., Gilpin, S., & Ireland, C. (1997). Talking about aphasia: Living with loss of language after stroke. Buckingham, UK: Open University Press.
  • Peters, M., Godfrey, C. M., Khalil, H., McInerney, P., Parker, D., & Baldini Soares, C. (2015). Guidance for conducting systematic scoping reviews. International Journal of Evidence Based Healthcare, 13, 141–146. doi:10.1097/XEB.0000000000000050
  • Pham, M. T., Rajic, A., Greig, J. D., Sargeant, J. M., Papadopoulos, A., & McEwin, S. (2014). A scoping review of scoping reviews: advancing the approach and enhancing consistency. Research Synthesis Methods, 5(4), 371–385.
  • Pinquart, M., & Sorensen, S. (2000). Influences of socioeconomic status, social network, and competence on subjective well-being in later life: A meta-analysis. Psychology & Aging, 15, 187–224. doi:10.1037/0882-7974.15.2.187
  • Piskur, B., Daniels, R., Jongmans, M. J., Ketelaar, M., Smeets, R., Norton, M., & Beurskens, A. (2014). Participation and social participation: Are they distinct concepts? Clinical Rehabilitation, 28, 211–220. doi:10.1177/0269215513499029
  • Pound, C. (2011). Reciprocity, resources, and relationships: New discourses in healthcare, personal, and social relationships. International Journal of Speech-Language Pathology, 13, 197–206. doi:10.3109/17549507.2011.530692
  • Pound, C., Parr, S., Lindsay, J., & Woolf, C. (2000). Beyond Aphasia: Therapies for living with communication disability. Bicester: Speechmark Publishing Ltd.
  • Robitaille, A. (2011). Understanding the role of social support on psychological distress among older canadians: An investigation of National Health Survey. Ottawa: These de doctorat,Universite d’Ottawa.
  • Ross, K., & Wertz, R. (2003). Quality of life with and without aphasia. Aphasiology, 17, 355–364. doi:10.1080/02687030244000716
  • Rutledge, T., Linke, S. E., Olson, M. B., Francis, J., Johnson, D., Bittner, V., … Merz, N. (2008). Social networks and incident stroke among women with suspected myocardial ischemia. Psychosomatic Medicine, 70, 282–287. doi:10.1097/PSY.0b013e3181656e09
  • Santos, M. E., Farrajota, M., Castro-Caldas, A., & De Sousa, L. (1999). Problems of patients with chronic aphasia: Different perspectives of husbands and wives? Brain Injury, 13, 23–29. doi:10.1080/026990599121845
  • Sarno, J. E., & Gainotti, G. (1998). The psychological and social sequelae of aphasia. In M. T. Sarno (Ed.), Acquired Aphasia (2nd ed., pp. 583–584). New York: Academic Press.
  • Sarno, M. T. (1993). Aphasia rehabilitation: Psychosocial and ethical considerations. Aphasiology, 7, 321–334. doi:10.1080/02687039308249514
  • Sarre, S., Redlich, C., Tinker, A., Sadler, E., Bhalla, A., & McKevitt, C. (2014). A systematic review of qualitative studies on adjusting after stroke: Lessons for the study of resilience. Disability and Rehabilitation, 36, 716–726. doi:10.3109/09638288.2013.814724
  • Schaefer, C., Coyne, J. C., & Lazarus, R. S. (1981). The health-related functions of social support. Journal of behavioural Medicine, 4(4), 381–406.
  • Simmons-Mackie, N., & Damico, J. (1995). Communicative competence in aphasia: Evidence from compensatory strategies. In M. Lemme (Ed.), Clinical aphasiology (pp. 95–105). Austin, TX: Proed.
  • Simmons-Mackie, N., & Damico, J. S. (2001). Intervention outcomes: A clinical application of qualitative methods. Topics in Language Disorders, 22, 21. doi:10.1097/00011363-200111000-00004
  • Simmons-Mackie, N., & Kagan, A. (2007). Application of the ICF in aphasia. Seminars in Speech and Language, 28, 244–253. doi:10.1055/s-2007-986521
  • Simmons-Mackie, N. (2000). Social approaches to the management of aphasia. In L. Worrall & C. Frattali (Eds.), Neurogenic communication disorders (pp. 162–187). New York: Thieme.
  • Sorin-Peters, R., & Patterson, R. (2014). The implementation of learner-centred conversation training programme for spouses of adults with aphasia in the community. Aphasiology, 28, 731–749. doi:10.1080/02687038.2014.891094
  • Tahiri-Mechakra, S., Sunsunegui, M. V., Preville, M., & Dube, M. (2009). Social relationships and depression among people 65 years and over living in rural and urban areas of Quebec. Geriatric Psychiatry, 24, 1226–1236. doi:10.1002/gps.2250
  • Trudel, G., Dargis-Damphousse, L., Villeneuve, L., Boyer, R., & Preville, M. (2016). Marital support, psychological distress, and disability among community-dwelling older couples: A longitudinal study. Sexual and Relationship Therapy, 28, 350–363. doi:10.1080/14681994.2013.828154
  • Umberson, D., & Montez, J. (2010). Social relationships and health: A flashpoint for health policy. Journal of Health and Social Behavior, 51, 554–566. doi:10.1177/0022146510383501
  • Umberson, D., Williams, K., Powers, D. A., Liu, H., & Needham, B. (2006). You make me sick: Marital quality and health over the life course. Journal of Health Social Behavior, 47, 1–16. doi:10.1177/002214650604700101
  • Williams, S. E. (1993). The impact of aphasia on marital satisfaction. Archives of Physical Medicine and Rehabilitation, 74, 361–367. Retrieved from http://europepmc.org/abstract/med/7682057
  • World Health Organization. (2001). International classification of functioning, disability and health: ICF. Geneva: Author.
  • Worrall, L., & Brown, K. (2010). The evidence for a life-coaching approach to aphasia. Aphasiology, 24, 497–514. doi:10.1080/02687030802698152
  • Zak, M. L. (2000). The impact of post-stroke aphasia and accompanying neuropsychological deficits on caregiving spouses and marriage. Dissertation Abstracts International: Section B: the Sciences and Engineering, 60, 5799. Retrieved from https://elibrary.ru/item.asp?id=5360970
  • Zemva, N. (1999). Aphasic patients and their families: Wishes and limits. Aphasiology, 13, 219–224. doi:10.1080/026870399402190

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