References
- ATTARD, M. C., LANYON, L., TOGHER, L., & ROSE, M. L. (2015). Consumer perspectives on community aphasia groups: A narrative literature review in the context of psychological well-being. Aphasiology, 29(8), 983–1019. https://doi.org/10.1080/02687038.2015.1016888.
- BABBITT, E. M., HEINEMANN, A. W., SEMIK, P., & CHERNEY, L. R. (2011). Psychometric properties of the communication confidence rating scale for aphasia (CCRSA): phase 2. Aphasiology, 25(6–7), 727–735. https://doi.org/10.1080/02687038.2010.537347.
- BABBITT, E. M., WORRALL, L., & CHERNEY, L. R. (2015). Structure, processes, and retrospective outcomes from an intensive comprehensive aphasia program. American Journal Of Speech-language Pathology / American Speech-Language-Hearing Association, 24(4), S854–63. https://doi.org/10.1044/2015_AJSLP-14-0164.
- BABBITT, E. M., WORRALL, L., & CHERNEY, L. R. (2016). Who benefits from an intensive comprehensive aphasia program? Topics in Language Disorders, 36(2), 168–184. https://doi.org/10.1097/TLD.0000000000000089.
- BABBITT, E. M., WORRALL, L. E., & CHERNEY, L. R. (2013). Clinician perspectives of an intensive comprehensive aphasia program. Topics in Stroke Rehabilitation, 20(5), 398–408. https://doi.org/10.1310/tsr2005-398.
- BARNETT, E., & CASPER, M. (2001). A definition of “social environment”. American Journal of Public Health, 91(3), 465a–465. https://doi.org/https://doi.org/10.2105/AJPH.91.3.465a
- BRAND, C., BARRY, L., & GALLAGHER, S. (2016). Social support mediates the association between benefit finding and quality of life in caregivers. Journal of Health Psychology, 21(6), 1126–1136. https://doi.org/10.1177/1359105314547244.
- BRIGHT, F. A., KAYES, N. M., WORRALL, L., & MCPHERSON, K. M. (2015). A conceptual review of engagement in healthcare and rehabilitation. Disability and Rehabilitation, 37(8), 643–654. https://doi.org/10.3109/09638288.2014.933899.
- BROWN, K., WORRALL, L., DAVIDSON, B., & HOWE, T. (2010). Snapshots of success: an insider perspective on living successfully with aphasia. Aphasiology, 24(10), 1267–1295. https://doi.org/10.1080/02687031003755429.
- BROWN, K., WORRALL, L., DAVIDSON, B., & HOWE, T. (2011). Living successfully with aphasia: Family members share their views. Topics in Stroke Rehabilitation, 18(5), 536–548. https://doi.org/10.1310/tsr1805-536.
- CHERNEY, L. R., BABBITT, E. M., SEMIK, P., & HEINEMANN, A. W. (2011). Psychometric properties of the communication confidence rating scale for aphasia (CCRSA): phase 1. Topics in Stroke Rehabilitation, 18(4), 352–360. https://doi.org/10.1310/tsr1804-352.
- CRESWELL, J. (2007). Qualitative inquiry and research method: Choosing among five approaches. Sage.
- DAVIDSON, B., HOWE, T., WORRALL, L., HICKSON, L., & TOGHER, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15(4), 325–340. https://doi.org/10.1310/tsr1504-325.
- Merriam-Webster. (n.d.). Milieu. In Merriam-Webster.com dictionary. Retrieved Septemb 12, 2016, from http://www.merriam-webster.com/dictionary/milieu.
- DIGNAM, J., COPLAND, D., MCKINNON, E., BURFEIN, P., O’BRIEN, K., FARRELL, A., & RODRIGUEZ, A. D. (2015). Intensive versus distributed aphasia therapy: a nonrandomized, parallel-group, dosage-controlled study. Stroke, 46(8), 2206-11. https://doi.org/10.1161/STROKEAHA.115.009522.
- DONABEDIAN. (1988). The quality of care. how can it be assessed? Jama, 260(12), 1743–1748. https://doi.org/10.1001/jama.1988.03410120089033.
- Donabedian, A. (1966). Evaluating the quality of medical care. The Milbank Memorial Fund Quarterly, 44(3), 166–203. https://doi.org/https://doi.org/10.1111/j.1468-0009.2005.00397.x
- FEINBERG, L., REINHARD, S. C., HOUSER, A., & CHOULA, R. (2011). Valuing the invaluable: 2011 update, the growing contributions and costs of family caregiving. Washington, DC: AARP Public Policy Institute, 32. https://assets.aarp.org/rgcenter/ppi/ltc/i51-caregiving.pdf
- FOX, L., POULSEN, S., Clark Bawden, K., & PACKARD, D. (2004). Critical elements and outcomes of a residential family-based intervention for aphasia caregivers. Aphasiology, 18(12), 1177–1199. https://doi.org/10.1080/02687030444000525.
- GIORGI, A. (2005). The phenomenological movement and research in the human sciences. Nursing Science Quarterly, 18(1), 75–82. https://doi.org/10.1177/0894318404272112.
- GOODGLASS, H., KAPLAN, E., WEINTRAUB, S., & SEGAL, O. (2001). Boston naming test. Lippincott Williams & Wilkins.
- GRANEHEIM, U. H., & LUNDMAN, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001.
- GRAWBURG, M., HOWE, T., WORRALL, L., & SCARINCI, N. (2014). Describing the impact of aphasia on close family members using the ICF framework. Disability and Rehabilitation, 36(14), 1184–1195. https://doi.org/10.3109/09638288.2013.834984.
- GRAWBURG, M., HOWE, T., WORRALL, L., & SCARINCI, N. (2019). Family-centered care in aphasia: assessment of third-party disability in family members with the family aphasia measure of life impact. Topics in Language Disorders, 39(1), 29–54. https://doi.org/10.1097/TLD.0000000000000176.
- HALLE, M. C., & LE Dorze, G. (2014). Understanding significant others’ experience of aphasia and rehabilitation following stroke. Disability and Rehabilitation, 36(21), 1774–1782. https://doi.org/10.3109/09638288.2013.870608.
- HAROLD, M. (2019). The Research Translation Problem: A Modest Proposal: Enough with the EBP blame game. Effectively putting research into practice requires empathy from all those involved.
- HOUGHTON, C., CASEY, D., SHAW, D., & MURPHY, K. (2013). Rigour in qualitative case-study research. Nurse Researcher, 20(4), 12–17. https://doi.org/10.7748/nr2013.03.20.4.12.e326.
- HOWE, T., DAVIDSON, B., WORRALL, L., HERSH, D., FERGUSON, A., SHERRATT, S., & GILBERT, J. (2012). ‘You needed to rehab … families as well’: Family members’ own goals for aphasia rehabilitation. International Journal Of Language & Communication Disorders / Royal College of Speech & Language Therapists, 47(5), 511–521. https://doi.org/10.1111/j.1460-6984.2012.00159.x.
- KAGAN, A. (1998). Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology, 12(9), 816–830. https://doi.org/10.1080/02687039808249575.
- KERTESZ, A. (2007). Western Aphasia Battery –Revised. PsychCorp.
- KING, R. B., SHADE-ZELDOW, Y., CARLSON, C. E., FELDMAN, J. L., & PHILIP, M. (2002). Adaptation to stroke: A longitudinal study of depressive symptoms, physical health, and coping process. Topics in Stroke Rehabilitation, 9(1), 46–66. https://doi.org/10.1310/KDTA-WELC-T2WR-X51W.
- LE Dorze, G., & BRASSARD, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9(3), 239–255. https://doi.org/10.1080/02687039508248198.
- LLOYD, A., BANNIGAN, K., SUGAVANAM, T., & FREEMAN, J. (2018). Experiences of stroke survivors, their families and unpaid carers in goal setting within stroke rehabilitation: A systematic review of qualitative evidence. JBI Database System Rev Implement Rep, 16(6), 1418–1453. https://doi.org/10.11124/JBISRIR-2017-003499.
- LLOYD, V., GATHERER, A., & KALSY, S. (2006). Conducting qualitative interview research with people with expressive language difficulties. Qualitative Health Research, 16(10), 1386–1404. https://doi.org/10.1177/1049732306293846.
- LOMAS, J., PICKARD, L., BESTER, S., ELBARD, H., FINLAYSON, A., & ZOGHAIB, C. (1989). The communicative effectiveness index: Development and psychometric evaluation of a functional communication measure for adult aphasia. Journal of Speech and Hearing Disorders, 54(1), 113. https://doi.org/10.1044/jshd.5401.113.
- LUKER, J., MURRAY, C., LYNCH, E., BERNHARDSSON, S., SHANNON, M., & BERNHARDT, J. (2017). Carers’ experiences, needs, and preferences during inpatient stroke rehabilitation: A systematic review of qualitative studies. Archives of Physical Medicine and Rehabilitation, 98(9), e13. https://doi.org/10.1016/j.apmr.2017.02.024.
- MACKENZIE, C. (1991). An aphasia group intensive efficacy study. International Journal of Language & Communication Disorders, 26(3), 275–291. https://doi.org/10.3109/13682829109012015.
- MULLEN, R. (2016). How Long Will Treatment for Aphasia Last?ASHA’s outcomes-data collection system links patient variables to the amount of aphasia treatment needed to meet functional goals. The ASHA Leader, 21(10), 38–39. https://doi.org/10.1044/leader.OTP.21102016.38.
- PAUL, D. R. (2004). Quality of Communication Life Scale: Manual. American Speech-Language-Hearing Association.
- PERSAD, C., WOZNIAK, L., & KOSTOPOULOS, E. (2013). Retrospective analysis of outcomes from two intensive comprehensive aphasia programs. Topics in Stroke Rehabilitation, 20(5), 388–397. https://doi.org/10.1310/tsr2005-388.
- QUINN, K., MURRAY, C., & MALONE, C. (2013). Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: A meta-synthesis of qualitative research. Disability and Rehabilitation, 36(3), 185–198. https://doi.org/10.3109/09638288.2013.783630.
- REINHARD, S. C., FEINBERG, L. F., CHOULA, R., & HOUSER, A. (2015). Valuing the invaluable: 2015 update. Undeniable progress, but big gaps remain. Insight on the Issues (AARP Public Policy Institute Report). 104, 89–98. https://www.aarp.org/content/dam/aarp/ppi/2015/valuing-the-invaluable-2015-update-new.pdf
- RITCHIE, J., & SPENCER, L. (2002). Qualitative data analysis for applied policy research. The Qualitative Researcher’s Companion, 6(4), 305–329.
- ROBERTS, M. Y., SONE, B. J., ZANZINGER, K. E., BLOEM, M. E., KULBA, K., SCHAFF, A., DAVIS, K. C., REISFELD, N., & GOLDSTEIN, H. (2020). Trends in Clinical Practice Research in ASHA journals: 2008–2018. American Journal of Speech-language Pathology, 29(3), 1629–1639. https://doi.org/10.1044/2020_AJSLP-19-00011.
- RODRIGUEZ, A. D., WORRALL, L., BROWN, K., GROHN, B., MCKINNON, E., PEARSON, C., HEES, V. A. N., ROXBURY, S., CORNWELL, T., & MACDONALD, A. (2013). Aphasia LIFT: exploratory investigation of an intensive comprehensive aphasia programme. Aphasiology, 27(11), 1339–1361. https://doi.org/10.1080/02687038.2013.825759.
- ROHDE, A., TOWNLEY, O. N. E. I. L. L., TRENDALL, K., WORRALL, L., K., & CORNWELL, P. (2012). A comparison of client and therapist goals for people with aphasia: A qualitative exploratory study. Aphasiology, 26(10), 1298–1315. https://doi.org/10.1080/02687038.2012.706799.
- ROMBOUGH, R. E., HOWSE, E. L., & BARTFAY, W. J. (2006). Caregiver strain and caregiver burden of primary caregivers of stroke survivors with and without aphasia. Rehabilitation Nursing : The Official Journal of the Association of Rehabilitation Nurses, 31(5), 199–209. https://doi.org/10.1002/j.2048-7940.2006.tb00136.x.
- ROSE, M. L., CHERNEY, L. R., & WORRALL, L. E. (2013). Intensive comprehensive aphasia programs: an international survey of practice. Topics in Stroke Rehabilitation, 20(5), 379–387. https://doi.org/10.1310/tsr2005-379.
- RUNDELL, S. D., GOODE, A. P., FRIEDLY, J. L., JARVIK, J. G., SULLIVAN, S. D., & BRESNAHAN, B. W. (2015). Role of health services research in producing high-value rehabilitation care. Physical Therapy, 95(12), 1703–1711. https://doi.org/10.2522/ptj.20150033.
- SIT, J. W., WONG, T. K., CLINTON, M., LI, L. S., & FONG, Y. M. (2004). Stroke care in the home: The impact of social support on the general health of family caregivers. Journal of Clinical Nursing, 13(7), 816–824. https://doi.org/10.1111/j.1365-2702.2004.00943.x.
- THOME, E. K., LOVEALL, S. J., & HENDERSON, D. E. (2020). A survey of speech-language pathologists’ understanding and reported use of evidence-based practice. Perspectives of the ASHA Special Interest Groups, 5(4), 984–999. https://doi.org/10.1044/2020_PERSP-20-00008.
- TOMKINS, B., SIYAMBALAPITIYA, S., & WORRALL, L. (2013). What do people with aphasia think about their health care? factors influencing satisfaction and dissatisfaction. Aphasiology, 27(8), 972–991. https://doi.org/10.1080/02687038.2013.811211.
- WALLACE, S. J., WORRALL, L., ROSE, T., DORZE, L. E., CRUICE, G., ISAKSEN, M., KONG, J., SIMMONS-MACKIE, A. P., Scarinci, N., N., & GAUVREAU, C. A. (2016). Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF. Disability and Rehabilitation, 39(14), 1364–1379. https://doi.org/https://doi.org/10.1080/09638288.2016.1194899
- WENKE, R., LAWRIE, M., HOBSON, T., COMBEN, W., ROMANO, M., WARD, E., & CARDELL, E. (2014). Feasibility and cost analysis of implementing high intensity aphasia clinics within a sub-acute setting. International Journal of Speech-language Pathology, 16(3), 250–259. https://doi.org/10.3109/17549507.2014.887777.
- WINANS-MITRIK, R. L., HULA, W. D., DICKEY, M. W., SCHUMACHER, J. G., SWOYER, B., & DOYLE, P. J. (2014). Description of an intensive residential aphasia treatment program: rationale, clinical processes, and outcomes. American Journal of Speech-Language Pathology, 23(2), S330–S342. https://doi.org/10.1044/2014_AJSLP-13-0102.
- WORRALL, L., DAVIDSON, B., HERSH, D., HOWE, T., SHERRATT, S., & FERGUSON, A. (2010). The evidence for relationship-centred practice in aphasia rehabilitation. Journal of Interactional Research in Communication Disorders, 1(2), 277–300. https://doi.org/https://doi.org/10.1558/jircd.v1i2.277
- WORRALL, L., SHERRATT, S., ROGERS, P., HOWE, T., HERSH, D., FERGUSON, A., & DAVIDSON, B. (2011). What people with aphasia want: their goals according to the ICF. Aphasiology, 25(3), 309–322. https://doi.org/10.1080/02687038.2010.508530.