Advanced search
Publication Cover
Aphasiology Volume 36, 2022 - Issue 10
Submit an article Journal homepage
5,520
Views
12
CrossRef citations to date
0
Altmetric
Research Article

Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists

M. Cruicea Division of Language and Communication Science, School of Health Sciences, City, University of London, London, UKCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0001-7344-2262View further author information
ORCID Icon,
S. Aujlab Community Neurological Rehabilitation Service, Central London Community Healthcare Trust, Soho Centre for Health & Care, London, UKView further author information
,
J. BannisterView further author information
,
N. Bottinga Division of Language and Communication Science, School of Health Sciences, City, University of London, London, UKORCID Iconhttps://orcid.org/0000-0003-1082-9501View further author information
ORCID Icon,
M. Boylec Department of Communication Sciences and Disorders, Montclair State University, Montclair, NJ, USAORCID Iconhttps://orcid.org/0000-0001-6809-5569View further author information
ORCID Icon,
N. Charlesd Wolfson Neurorehabilitation Services, St George’s University Hospitals Foundation NHS Trust, London, UKView further author information
,
V. DhaliwalView further author information
,
S. Groblere Therapy and Rehabilitation Services , National Hospital for Neurology and Neurosurgery, London, UKView further author information
,
D. Hershf School of Medical and Health Sciences, Edith Cowan University, Joondalup, WA, Australia;g School of Allied Health Science and Practice, Adelaide University, Adelaide, SA, AustraliaORCID Iconhttps://orcid.org/0000-0003-2466-0225View further author information
ORCID Icon,
J. Marshalla Division of Language and Communication Science, School of Health Sciences, City, University of London, London, UKORCID Iconhttps://orcid.org/0000-0002-6589-221XView further author information
ORCID Icon,
S. MorrisView further author information
,
M. Pritcharda Division of Language and Communication Science, School of Health Sciences, City, University of London, London, UKORCID Iconhttps://orcid.org/0000-0002-1777-9095View further author information
ORCID Icon,
L. ScarthView further author information
,
R. Talboth Sussex Community NHS Foundation Trust, Brighton General Hospital, Elm Grove, Brighton, UKView further author information
&
L. Dippera Division of Language and Communication Science, School of Health Sciences, City, University of London, London, UKORCID Iconhttps://orcid.org/0000-0002-5918-3898View further author information
ORCID Icon show all
Pages 1159-1181 | Received 05 Dec 2020, Accepted 10 Jun 2021, Published online: 03 Jul 2021

References

  • Bowen, D. J., Kreuter, M., Spring, B., Cofia-Woerpel, L., Linnan, L., Weiner, D., Bakken, S., Kaplan, C. P., Squiers, L., Fabrizio, C., & Fernandez, M. (2009). How we design feasibility studies. American Journal of Preventive Medicine, 36(5), 452–457. https://doi.org/10.1016/j.amepre.2009.02.002
  • Boyle, M. (2010). Semantic feature analysis treatment for aphasic word retrieval impairments: What’s in a name? Topics in Stroke Rehabilitation, 17(6), 411–422. https://doi.org/10.1310/tsr1706-411
  • Boyle, M. (2014). Test-retest stability of word retrieval in aphasic discourse. Journal of Speech, Language, and Hearing Research, 57(3), 966–978. https://doi.org/10.1044/2014_JSLHR-L-13-0171
  • Brett, J., Staniszewska, S., Mockford, C., Herron-Marx, S., Hughes, J., Tysall, C., & Suleman, R. (2012). Mapping the impact of patient and public involvement on health and social care research: A systematic review. Health Expectations, 17(5), 637–650. https://doi.org/10.1111/j.1369-7625.2012.00795.x
  • Bryant, L., Ferguson, A., & Spencer, E. (2016). Linguistic analysis of discourse in aphasia: A review of the literature. Clinical Linguistics & Phonetics, 30(7), 489–518. https://doi.org/10.3109/02699206.2016.1145740
  • Bryant, L., Spencer, E., & Ferguson, A. (2017). Clinical use of linguistic discourse analysis for the assessment of language in aphasia. Aphasiology, 31(10), 1105–1126. https://doi.org/10.1080/02687038.2016.1239013
  • Charalambous, M., Kambanaros, M., & Annoni, J.-M. (2020). Are people with aphasia (PWA) involved in the creation of quality of life and aphasia impact-related questionnaires? A scoping review. Brain Sciences, 10(10), 688. https://doi.org/10.3390/brainsci10100688
  • Cook, T., Boote, J., Buckley, N., Vougioukalou, S., & Wright, M. (2017). Accessing participatory research impact and legacy: Developing the evidence base for participatory approaches in health research. Educational Action Research, 25(4), 472–488. https://doi.org/10.1080/09650792.2017.1326964
  • Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., & Petticrew, M. (2008). Developing and evaluation complex interventions: the new Medical Research Council guidance. BMJ, 337, a1655 https://doi.org/10.1136/bmj.a1655
  • Cruice, M., Botting, N., Marshall, J., Marshall, J., Hersh, D., Pritchard, M., & Dipper, L. (2020). UK speech and language therapists’ views and reported practices of discourse analysis in aphasia rehabilitation. International Journal of Language and Communication Disorders, 55(3), 417–442. Advance online publication. https://doi.org/10.1111/1460-6984.12528
  • Dimopoulos-Bick, T., Dawda, P., Maher, L., Verma, R., & Palmer, V. (2018). Experience-Based Co-Design: Tackling common challenges. Journal of Health Design, 3(1), 86–93. https://doi.org/10.21853/JHD.2018.46
  • Dipper, L., & Cruice, M. (2018). Personal storytelling in aphasia: A single case study of LUNA therapy [abstract]. Aphasiology, 32(suppl.1), 60–61. https://doi.org/10.1080/02687038.2018.1487919
  • Dipper, L., Marshall, J., Boyle, M., Botting, N., Hersh, D., Pritchard, M., & Cruice, M. (2020). Treatment for improving discourse in aphasia: A systematic review and synthesis of the evidence base. Aphasiology, 1–43. https://doi.org/10.1080/02687038.2020.1765305
  • Dipper, L., Marshall, J., Boyle, M., Hersh, D., Hersh, D., & Cruice, M. (2021). Creating a theoretical framework to underpin discourse assessment and intervention in aphasia. Brain Sciences, 11(2), 183. https://doi.org/10.3390/brainsci11020183
  • Graham, I. D., Logan, J., Harrison, M. B., Straus, S. E., Tetroe, J., Caswell, W., & Robinson, N. (2006). Lost in knowledge translation: Time for a map? The Journal of Continuing Education in the Health Professions, 26(1), 13–24. https://doi.org/10.1002/chp.47
  • Health Research Authority/INVOLVE. (2016). Public involvement in research and research ethics committee review. https://www.invo.org.uk/wp-content/uploads/2016/05/HRA-INVOLVE-updated-statement-2016.pdf
  • Herbert, D., Patrice Lindsay, M., McIntyre, A., Kirton, A., Rumney, P., Bagg, S., Bayley, M., Dowlatshahi, D., Dukelow, S., Garnhum, M., Glasser, E., Halabi, M.-L., Kang, E., MacKay-Lyons, M., Martino, R., Rochette, A., Rowe, S., Salbach, N., Semenko, B., & Teasell, R. (2016). Canadian stroke best practice recommendations: Stroke rehabilitation practice guidelines, update 2015. International Journal of Stroke, 11(4), 459–484. https://doi.org/10.1177/1747493016643553
  • Herbert, R., Gregory, E., & Haw, C. (2019). Collaborative design of accessible information with people with aphasia. Aphasiology, 33(12), 1504–1530. https://doi.org/10.1080/02687038.2018.1546822
  • Hersh, D., Israel, M., & Shiggins, C. (2021). The ethics of patient and public involvement across the research process: Towards partnership with people with aphasia. Aphasiology, 1–27. https://doi.org/10.1080/02687038.2021.1896870
  • Hersh, D., Worrall, L., Howe, T., Sherratt, S., & Davidson, B. (2012). SMARTER goal setting in aphasia rehabilitation. Aphasiology, 26/2(2), 220–233. https://doi.org/10.1080/02687038.2011.640392
  • Howe, A., Mathie, E., Munday, D., Cowe, M., Goodmanm, C., Keenan, J., Kendall, S., Poland, F., Staniszewska, S., & Wilson, P. (2017). Learning to work together – lessons from a reflective analysis of a research project on public involvement. Research Involvement and Engagement, 3(1), 1–22. https://doi.org/10.1186/s40900-016-0051-x
  • Isaksen, J., Shiggins, C., Olsen, A. M., Coath, C., & Mc Menamin, R. (in press). Involvement of people with aphasia in research: A scoping review. Aphasiology.
  • Kagan, A., Simmons-Mackie, N., Gibson, J. B., Conklin, J., & Elman, R. J. (2010). Closing the evidence, research, and practice loop: Examples of knowledge transfer and exchange from the field of aphasia. Aphasiology, 24(4), 535–548. https://doi.org/10.1080/02687030902935959
  • Lawton, M., Haddock, G., Conroy, P., Serrant, L., & Sage, K. (2018). People with aphasia’s perception of the therapeutic alliance in aphasia rehabilitation post stroke: A thematic analysis. Aphasiology, 32(12), 1397–1417. https://doi.org/10.1080/02687038.2018.1441365
  • Mc Menamin, R., Griffin, M., Gryzbowska, B., & Pound, C. (in press). Working together: Experiences of people with aphasia as co-researchers in participatory health research studies. Aphasiology. doi: 10.1080/02687038.2021.1923948
  • Mc Menamin, R., Tierney, E., & MacFarlane, A. (2015). Who decides what criteria are important to consider in exploring the outcomes of conversation approaches? A participatory health research study. Aphasiology, 29(8), 914–938. https://doi.org/10.1080/02687038.2015.1006564
  • Neate, T., Bourazeri, K., Roper, A., Stumpf, S., & Wilson, S. (2019). Co-created personas: Engaging and empowering users with diverse needs within the design process. CHI 2019 Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (pp. 650). New York, USA.
  • O’Cathain, A., Croot, L., Sworn, K., Duncan, E., Rousseau, N., Turner, K., Yardley, L., & Hoddinott, P. (2019). Taxonomy of approaches to development interventions to improve health: A systematic methods overview. Pilot and Feasibility Studies, 5(41), 1–27. https://doi.org/10.1186/s40814-019-0425-6
  • O’Malley, M.-P. (2019). Discourse. In J. S. Damico & M. J. Ball (Eds.), Encyclopaedia of human communication sciences and disorders,606–608. SAGE. https://doi.org/10.4135/9781483380810.n201
  • Phipps, D., Cummings, J., Pepler, D., Craig, W., & Cardinal, S. (2016). The co-produced pathway to impact describes knowledge mobilization processes. Journal of Community Engagement and Scholarship, 91(1), 31–40. https://digitalcommons.northgeorgia.edu/jces/vol9/iss1/5/
  • Power, E., Thomas, E., Worrall, L., Rose, M., Togher, L., Nickels, L., Hersh, D., Godecke, E., O’Halloran, R., Lamont, S., O’Conner, C., & Clark, K. (2015). The development and validation of Australian aphasia rehabilitation Best Practice Statements using the RAND/UCLA appropriateness method. BMJOpen, 5, e007641. https://doi.org/10.1136/bmjopen-2015-007641
  • Pritchard, M., Hilari, K., Cocks, N., & Dipper, L. (2017). Reviewing the quality of discourse information measures in aphasia. International Journal of Language and Communication Disorders, 52(6), 689–732. https://doi.org/10.1111/1460-6984.12318
  • Pritchard, M., Hilari, K., Cocks, N., & Dipper, L. (2018). Psychometric properties of discourse measures in aphasia: Acceptability, reliability, and validity. International Journal of Language & Communication Disorders, 53(6), 1078–1093. https://doi.org/10.1111/1460-6984.12420
  • Rose, M., Ferguson, A., Power, E., Togher, L., & Worrall, L. (2014). Aphasia rehabilitation in Australia: Current practices, challenges and future directions. International Journal of Speech-Language Pathology, 16(2), 169–180. https://doi.org/10.3109/17549507.2013.794474
  • Schanberg, L. E., & Mullins, C. D. (2019). If patients are the true north, patient-centeredness should guide research. Nature Reviews. Rheumatology, 15(1), 5–6. https://doi.org/10.1038/s41584-018-0129-y
  • Simmons‐Mackie, N., Threats, T., & Kagan, A. (2005). Outcome assessment in aphasia: A survey. Journal of Communication Disorders, 38(1), 1–27. https://doi.org/10.1016/j.jcomdis.2004.03.007
  • Staniszewska, S., Brett, J., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D., Moher, D., Barber, R., Denegri, S., Entwhistle, A., Littlejohns, P., Morriss, C., Suleman, R., Thomas, V., & Tysall, C. (2017). GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research. BMJ, 358, j3453. https://doi.org/10.1136/bmj.j3453
  • Stroke Association (2012). Accessible information guidelines. making information accessible for people with aphasia. https://www.stroke.org.uk/shop/product/accessible-information-guidelines.
  • Swinburn, K., Best, W., Cruice, M., Smith, L., Pearce Willis, E., Ledingham, K., Sweeney, J., & McVicker, S. (2019). A concise patient reported outcome measure for people with aphasia: The aphasia impact questionnaire 21. Aphasiology, 33(9), 1035–1060. https://doi.org/10.1080/02687038.2018.1517406
  • Verna, A., Davidson, B., & Rose, T. (2009). Speech‐language pathology services for people with aphasia: A survey of current practice in Australia. International Journal of Speech-Language Pathology, 11(3), 191–205. https://doi.org/10.1080/17549500902726059
  • Wallace, S., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., Kong, A., Simmons Mackie, N., Scarinci, N., & Gauvreau, C. (2017a). Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disability and Rehabilitation, 39(14), 1364–1379. https://doi.org/10.1080/09638288.2016.1194899
  • Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (2017b). Which treatment outcomes are most important to aphasia clinicians and managers? An international e-Delphi consensus study. Aphasiology, 31(6), 643–673. https://doi.org/10.1080/02687038.2016.1186265
  • Webster, J., Whitworth, A., & Morris, J. (2015). Is it time to stop “fishing”? A review of generalisation following aphasia intervention. Aphasiology, 29(11), 1240–1264. https://doi.org/10.1080/02687038.2015.1027169
  • Wilson, S., Roper, A., Marshall, J., Galliers, J. R., Devane, N., Booth, T., & Woolf, C. (2015). Codesign for people with aphasia through tangible design languages. CoDesign, 11(1), 21–34. https://doi.org/10.1080/15710882.2014.997744
  • Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25(3), 309–322. https://doi.org/10.1080/02687038.2010.508530
  • Yardley, L., Ainsworth, B., Arden-Close, E., & Muller, I. (2015). The person-based approach to enhancing the acceptability and feasibility of interventions. Pilot and Feasibility Studies, 1(37). https://doi.org/10.1186/s40814-015-0033-z

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.