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Research Article

Ways to improve communication and support in healthcare centres according to people with aphasia and their relatives: a Dutch perspective

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Pages 69-82 | Received 07 Dec 2020, Accepted 29 Sep 2021, Published online: 18 Oct 2021

References

  • Bakas, T., Kroenke, K., Plu, L. D., Perkins, S. M., & Williams, L. (2006). Outcomes among family aregivers of aphasic versus nonaphasic stroke survivors. Rehabilitation Nursing, 31(1), 33–42. https://doi.org/10.1002/j.2048-7940.2006.tb00008.x
  • Bartlett, G., Blais, R. T., Tamblyn, R., Clermont, R. J., & MacGobbon, B. (2008). Impact of patient communication problems on the risk of preventable adverse events in acute care settings. Canadian Medical Association Journal, 178(12), 1555–1562. https://doi.org/10.1503/cmaj.070690
  • Berns, P. E. G., Junger, N., Boxum, E., Nouwens, F., van der Staaij, M. G., Van Wessel, S., Van Dun, W., van Lonkhujzen, J. G., & CBO. (2015). Logopedische Richtlijn “Diagnostiek en behandeling van afasie bij volwassenen”. Nederlandse Verenging Voor Logopedie En Foniatrie.
  • Bersano, A., Burgio, F., Gattinoni, M., & Candelise, L. (2009). Aphasia burden to hospitalised acute stroke patients: Need for an early rehabilitation programme. International Journal of Stroke, 4(6), 443–447. https://doi.org/10.1111/j.1747-4949.2009.00349.x
  • Blackstone, S. (2016). What does the patient want? The ASHA Leader, 21(3), 38–44. https://doi.org/10.1044/leader.FTR1.21032016.38
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Brown, K., Davidson, B., Worrall, L., & Howe, T. (2013). “Making a good time”: The role of friendship in living successfully with aphasia. International Journal of Speech-Language Pathology, 15(2), 165–175. https://doi.org/10.3109/17549507.2012.692814
  • Brown, K., Worrall, L., Davidson, B., & Howe, T. (2011). Living successfully with aphasia: Family members share their views. Topics in Stroke Rehabilitation, 18(5), 536–548. https://doi.org/10.1310/tsr1805-536
  • Camicia, M., Lutz, B. J., Markoff, N., & Catlin, A. (2019). Determining the needs of family caregivers of stroke patients during inpatient rehabilitation using interview, art, and survey. Rehabilitation Nursing, 44(6), 328–337. https://doi.org/10.1097/RNJ.0000000000000129
  • Clancy, L, Povey, R & Rodham, K (2020). “Living in a foreign country”: experiences of staff–patient communication in inpatient stroke settings for people with post-stroke aphasia and those supporting them. Disability and Rehabilitation, 42:3, 324-334. https://doi.org/10.1080/09638288.2018.1497716
  • Cruice, M., Worrall, L., & Hickson, L. (2006). Quantifying aphasic people’s social lives in the context of non-aphasic peers. Aphasiology, 20(12), 1210–1225. https://doi.org/10.1080/02687030600790136
  • Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being. Aphasiology, 17(4), 333–354. https://doi.org/10.1080/02687030244000707
  • el Hachioui, H., van de Sandt-Koenderman, M. W. M. E., Dippel, D. W. J., Koudstaal, P. J., & Visch-Brink, E. G. (2012). The screeling: Occurrence of linguistic deficits in acute aphasia post-stroke. Journal of Rehabilitation Medicine, 44(5), 429–435. https://doi.org/10.2340/16501977-0955
  • Flowers, H., Skoretz, A., Silver, F., Rochon, E., Fang, J., Flamand-Roze, C., & M., R. (2016). Poststroke aphasia frequency, recovery and outcomes: A systematic review and meta-analysis. Archives of Physical Medicine and Rehabilitation, 97(12), 2188–2201. https://doi.org/10.1016/j.apmr.2016.03.006
  • Graham, J. R., Pereira, S., & Teasell, R. (2011). Aphasia and return to work in younger stroke survivors. Aphasiology, 25(8), 952–960. https://doi.org/10.1080/02687038.2011.563861
  • Grawburg, M., Howe, T., Worrall, L., & Scarinci, N. (2014). Describing the impact of aphasia on close family members using the ICF framework. Disability and Rehabilitation, 36(14), 1184–1195. https://doi.org/10.3109/09638288.2013.834984
  • Hemsley, B., Werninck, M., & Worrall, L. (2013). “That really shouldn’t have happened”: People with aphasia and their spouses narrate adverse events in hospital. Aphasiology, 27(6), 706–722. https://doi.org/10.1080/02687038.2012.748181
  • Hilari, K. (2011). The impact of stroke: Are people with aphasia different to those without? Disability and Rehabilitation, 33(3), 211–218. https://doi.org/10.3109/09638288.2010.508829
  • Hilton, R., Leenhouts, S., Webster, J., & Morris, J. (2014). Information, support and training needs of relatives of people with aphasia: Evidence from the literature. Aphasiology, 28(7), 797–822. https://doi.org/10.1080/02687038.2014.906562
  • Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners. Aphasiology, 12(9), 816–830. https://doi.org/10.1080/02687039808249575
  • Lam, J., & Wodchis, W. (2010). The relationship of 60 disease diagnoses and 15 conditions to preference-based health-related quality of life in Ontario hospital-based long-term care residents. Medical Care, 48(4), 380–387. https://doi.org/10.1097/MLR.0b013e3181ca2647
  • le Dorze, G., & Signori, F. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability and Rehabilitation, 32(13), 1073–1087. https://doi.org/10.3109/09638280903374121
  • LImburg, M., & Tuut, M. (2017). CBO guideline “Stroke” (revision) Dutch Institute for Healthcare Improvement. Nederlands Tijdschrift Voor Geneeskunde.
  • Manning, M., MacFarlane, A., Hickey, A., Franklin, S., & Federici, S. (2019). Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis. PLoS ONE, 14(3), e0214200. https://doi.org/10.1371/journal.pone.0214200
  • Michallet, B., Le Dorze, G., & Tétreault, S. (2001). The needs of spouses caring for severely aphasic persons. Aphasiology, 15(8), 731–747. https://doi.org/10.1080/02687040143000087
  • Michie, S., van Stralen, M. M., & W., R. (2011). The behaviour change wheel: A new method for characterising and designing behaviour change interventions. Implementation Science, 6(1), 42. https://doi.org/10.1186/1748-5908-6-42
  • Northcott, S., & Hilari, K. (2018). “I’ve got somebody there, someone cares”: What support is most valued following a stroke? Disability and Rehabilitation, 40(20), 2439–2448. https://doi.org/10.1080/09638288.2017.1337242
  • Rijssen, M., Veldkamp, M., Bryon, E., Remijn, L., Visser-Meily, J. M. A., Gerrits, E., & van Ewijk, L. (2021). How do healthcare professionals experience communication with people with aphasia and what content should communication partner training entail? Disability and Rehabilitation. https://doi.org/10.1080/09638288.2021.1878561
  • Sharma, N. (2017). Patient involvement in medical education: Pilot findings from primary care. Journal of Patient Experiences, 4(3), 152. doi:10.1177/2374373517706840
  • Street, R., Makoul, G., Arora, N., & Epstein, R. (2009). How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Education and Counseling, 74(3), 295–301. https://doi.org/10.1016/j.pec.2008.11.015
  • Visser-Meily, A., Post, M., Gorter, J. W., Berlekom, S. B. V., Van Den Bos, T., & Lindeman, E. (2009). Rehabilitation of stroke patients needs a family-centred approach. Disability and Rehabilitation, 28(24), 1557–1561. https://doi.org/10.1080/09638280600648215
  • Wallace, S. J., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., Pak Hin Kong, A., Simmons-Mackie, N., Scarinci, N., & Gauvreau, C. (2017). Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disability and Rehabilitation, 39(14), 1364–1379. https://doi.org/10.1080/09638288.2016.1194899
  • Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25(3), 309–322. https://doi.org/10.1080/02687038.2010.508530

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