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Research Article

Written news media coverage of aphasia: an update

Pages 1756-1777 | Received 02 Jun 2022, Accepted 05 Sep 2022, Published online: 27 Sep 2022

References

  • Aljenaie, K., & Simmons-Mackie, N. (2021). Public awareness of aphasia in Kuwait. Aphasiology, 1–10. https://doi.org/10.1080/02687038.2021.1942773
  • Baig, M. I. (2011). Aphasia awareness training for first responders. University of Nebraska at Kearney.
  • Beck, C. S., Chapman, S. M., & Simmons, N. (2015). Celebrity health narratives and the public health. McFarland.
  • Bennett, W. L. (2016). News: The politics of illusion. University of Chicago Press.
  • Blackstone, S., & Hunt-Berg, M. (2020). Social networks: a communication inventory for individuals with complex communication needs and their communication partners (manual): Attainment Company; 2003. Monterey, CA: Augmentative Communication, Inc.
  • Borsatto, J., Buchanan, L., & Pineault, L. (2022, 2022/02/01). Aphasia friendly Canada: The aphasia friendly business campaign. Aphasiology, 36(2), 198–217. https://doi.org/10.1080/02687038.2020.1856328
  • Brigo, F. (2014). Impact of news of celebrity illness on online search behavior: the ‘Robin Williams’ phenomenon’. Journal of Public Health, 37(3), 555–556. https://doi.org/10.1093/pubmed/fdu083
  • Brower, V. (2005). The squeaky wheel gets the grease. EMBO Reports, 6(11), 1014–1017. https://doi.org/10.1038/sj.embor.7400564
  • Bullier, B., Cassoudesalle, H., Villain, M., Cogné, M., Mollo, C., De Gabory, I., Dehail, P., Joseph, P.-A., Sibon, I., & Glize, B. (2020). New factors that affect quality of life in patients with aphasia. Annals of Physical and Rehabilitation Medicine, 63(1), 33–37. https://doi.org/10.1016/j.rehab.2019.06.015
  • Bureau of Labor Statistics. (2020). Occupational Outlook Handbook. U.S. Department of Labor. https://www.bls.gov/ooh/healthcare/speech-language-pathologists.htm
  • Christiano, A., & Neimand, A. (2017). Stop raising awareness already. Stanford Social Innovation Review, 15(2), 34–41.
  • Code, C. (2020). The implications of public awareness and knowledge of aphasia around the world. Annals of Indian Academy of Neurology, 23(Suppl 2), S95. https://doi.org/10.4103/%2Faian.AIAN_460_20
  • Code, C., Papathanasiou, I., Rubio‐Bruno, S., de la Paz Cabana, M., Villanueva, M. M., Haaland‐Johansen, L., Prizl‐Jakovac, T., Leko, A., Zemva, N., & Patterson, R. (2016). International patterns of the public awareness of aphasia. International Journal of Language & Communication Disorders, 51(3), 276–284. https://doi.org/10.1111/1460-6984.12204
  • Code, C., Simmons-Mackie, N., Armstrong, E., Stiegler, L., Armstrong, J., Bushby, E., Carew-Price, P., Curtis, H., Haynes, P., McLeod, E., Muhleisen, V., Neate, J., Nikolas, A., Rolfe, D., Rubly, C., Simpson, R., & Webber, A. (2001). The public awareness of aphasia: An international survey. International Journal of Language and Communication Disorders, 36( Supplement), 1–6. https://doi.org/10.3109/13682820109177849
  • Corbett, J. B., & Mori, M. (1999). Medicine, media, and celebrities: News coverage of breast cancer, 1960–1995. Journalism & mass communication quarterly, 76(2), 229–249. https://doi.org/10.1177/%2F107769909907600204
  • Elman, R. J., Ogar, J., & Elman, S. H. (2000). Aphasia: Awareness, advocacy, and activism. Aphasiology, 14(5/6), 455–459. https://doi.org/10.1080/026870300401234
  • Fierberg, R. (2022). Tony-award winning playwright Christopher Durang diagnosed with aphasia; Sigourney Weaver and more share why the writer has faded from public view. Broadway News. https://broadwaynews.com/2022/07/19/tony-winning-playwright-christopher-durang-diagnosed-with-aphasia-sigourney-weaver-and-more-share-why-the-writer-has-faded-from-public-view/
  • Flynn, L., Cumberland, A., & Marshall, J. (2009). Public knowledge about aphasia: A survey with comparative data. Aphasiology, 23(3), 393–401. https://doi.org/10.1080/02687030701828942
  • Fotiadou, D., Northcott, S., Chatzidaki, A., & Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships? Aphasiology, 28(11), 1281–1300. https://doi.org/10.1080/02687038.2014.928664
  • Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. University of Chicago Press.
  • Fridriksson, J., & Hillis, A. E. (2021). Current Approaches to the Treatment of Post-Stroke Aphasia. Journal of stroke, 23(2), 183–201. https://doi.org/10.5853/jos.2020.05015
  • Giving USA Foundation. (2020). Giving USA 2020: The Annual Report on Philanthropy for the Year 2019.
  • Gollust, S. E., & Lantz, P. M. (2009). Communicating population health: Print news media coverage of type 2 diabetes. Social Science and Medicine, 69(7), 1091–1098. https://doi.org/10.1016/j.socscimed.2009.07.009
  • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
  • Guo, Y. E., & Lim, M. S. (2018, 2018/07/26). Aphasia awareness in Singapore. Aphasiology, 32(sup1), 79–80. https://doi.org/10.1080/02687038.2018.1485867
  • Harrington, S. (2008). Popular news in the 21sts century: Time for a new critical approach? Journalism, 9, 266–284. https://doi.org/10.1177/%2F1464884907089008
  • Henriksson, I., Hjertén, A., Zackariasson, J., Davidsson, L., Damberg, A. A., Saldert, C., Ball, M. J., & Müller, N. (2019). Public awareness of aphasia–Results of a Swedish sample. Aphasiology, 33(1), 94–104. https://doi.org/10.1080/02687038.2018.1444136
  • Hilari, K., Cruice, M., Sorin-Peters, R., & Worrall, L. (2015). Quality of life in aphasia: State of the art. Folia Phoniatrica et Logopaedica, 67(3), 114–118. https://doi.org/10.1159/000440997
  • Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J., & Ames, D. (2010, February 1, 2010). Psychological distress after stroke and aphasia: the first six months. Clinical Rehabilitation, 24, 181–190. https://doi.org/10.1177/0269215509346090
  • Hill, A., Blevins, R., & Code, C. (2019, 2019/09/03). Revisiting the public awareness of aphasia in Exeter: 16 years on. International Journal of Speech-Language Pathology, 21(5), 504–512. https://doi.org/10.1080/17549507.2018.1485742
  • Howe, T., Davidson, B., Worrall, L., Hersh, D., Ferguson, A., Sherratt, S., & Gilbert, J. (2012). ‘You needed to rehab … families as well’: family members’ own goals for aphasia rehabilitation International Journal of Language & Communication Disorders, 47(5), 511–521. https://doi.org/10.1111/j.1460-6984.2012.00159.x
  • Huws, J. C., & Jones, R. S. P. (2011). Missing voices: representations of autism in British newspapers, 1999–2008. British Journal of Learning Disabilities, 39(2), 98–104. https://doi.org/10.1111/j.1468-3156.2010.00624.x
  • Jensen, J. D., Moriarty, C. M., Hurley, R. J., & Stryker, J. E. (2010). Making sense of cancer news coverage trends: A comparison of three comprehensive content analyses. Journal of Health Communication: International Perspectives, 15(2), 136–151. https://doi.org/10.1080/10810730903528025
  • Jensen, L. R., Løvholt, A. P., Sørensen, I. R., Blüdnikow, A. M., Iversen, H. K., Hougaard, A., Mathiesen, L. L., & Forchhammer, H. B. (2015). Implementation of supported conversation for communication between nursing staff and in-hospital patients with aphasia. Aphasiology, 29(1), 57–80. https://doi.org/10.1080/02687038.2014.955708
  • Kagan, A. (1998). Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology, 12(9), 816–830. https://doi.org/10.1080/02687039808249575
  • Kaleem, T., Malouff, T. D., Stross, W. C., Waddle, M. R., Miller, D. H., Seymour, A. L., Zaorsky, N. G., Miller, R. C., Trifiletti, D. M., & Vallow, L. (2019). Google search trends in oncology and the impact of celebrity cancer awareness. Cureus, 11(8). https://doi.org/10.7759/cureus.5360
  • Klin, A., & Lemish, D. (2008, 2008/07/23). Mental Disorders Stigma in the Media: Review of Studies on Production, Content, and Influences. Journal of Health Communication, 13(5), 434–449. https://doi.org/10.1080/10810730802198813
  • Lam, J., & Wodchis, W. (2010). The relationship of 60 disease diagnoses and 15 conditions to preference-based health-related quality of life in Ontario hospital-based long-term care residents. Medical Care, 48, 380–387. https://doi.org/10.1097/mlr.0b013e3181ca2647
  • Larkin, M. (2002). Celebrity appeals for research dollars “intensifying” in USA. The Lancet Neurology, 1(6), 339. https://doi.org/10.1016/S1474-4422(02)001862)001862
  • Legg, C., Young, L., & Bryer, A. (2005). Training sixth-year medical students in obtaining case-history information from adults with aphasia. Aphasiology, 19(6), 559–575. https://doi.org/10.1080/02687030544000029
  • Manning, M., MacFarlane, A., Hickey, A., & Franklin, S. (2019). Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis. PLoS ONE, 14(3), e0214200. https://doi.org/10.1371/journal.pone.0214200
  • Matthews, K. R., & Ho, V. (2008). The grand impact of the Gates Foundation: Sixty billion dollars and one famous person can affect the spending and research focus of public agencies. EMBO Reports, 9(5), 409–412. https://doi.org/10.1038/embor.2008.52
  • McCann, C., Tunnicliffe, K., & Anderson, R. (2013, 2013/05/01). Public awareness of aphasia in New Zealand. Aphasiology, 27(5), 568–580. https://doi.org/10.1080/02687038.2012.740553
  • McMenamin, R., Faherty, K., Larkin, M., & Loftus, L. (2021, 2021/11/02). An investigation of public awareness and knowledge of aphasia in the West of Ireland. Aphasiology, 35(11), 1415–1431. https://doi.org/10.1080/02687038.2020.1812047
  • Moeller, J., & de Vreese, C. (2019). Spiral of Political Learning: The Reciprocal Relationship of News Media Use and Political Knowledge Among Adolescents. Communication Research, 46(8), 1078–1094. https://doi.org/10.1177/0093650215605148
  • National Aphasia Association. (2016). Aphasia awareness survey. https://www.aphasia.org/2016-aphasia-awareness-survey/
  • National Institute of Neurological Disorders and Stroke. (2021). Disorders A-Z. http://www.ninds.nih.gov/disorders/disorder_index.htm
  • Patterson, R., Robert, A., Berry, R., Cain, M., Iqbal, M., Code, C., Rochon, E., & Leonard, C. (2015, 2015/03/04). Raising public awareness of aphasia in southern Ontario, Canada: A survey. International Journal of Speech-Language Pathology, 17(2), 121–126. https://doi.org/10.3109/17549507.2014.927923
  • Purtle, J., Lynn, K., & Malik, M. (2016). “Calculating The Toll Of Trauma” in the headlines: Portrayals of posttraumatic stress disorder in the New York Times (1980–2015). American journal of orthopsychiatry, 86(6), 632.
  • QSR International Pty Ltd. (2020). NVivo qualitative data analysis software (12 ed.). QSR International Pty Ltd.
  • Randolph, W., & Viswanath, K. (2004). Lessons learned from public health mass media campaigns: marketing health in a crowded media world. Annu. Rev. Public Health, 25, 419–437. https://doi.org/10.1146/annurev.publhealth.25.101802.123046
  • Rose, T. A., Balse, A., Osmond, S., Poon, A., Simons, N., & Wallace, S. J. (2018). Aphasia education: Speech-language pathologists’ perspectives regarding current and optimal practice. Aphasiology, 32(8), 967–988. https://doi.org/10.1080/02687038.2018.1472366
  • Schäfer, S. (2020, 2020/02/01/). Illusion of knowledge through Facebook news? Effects of snack news in a news feed on perceived knowledge, attitude strength, and willingness for discussions. Computers in Human Behavior, 103, 1–12. https://doi.org/10.1016/j.chb.2019.08.031
  • Sherratt, S. (2011). Written media coverage of aphasia: A review. Aphasiology, 25(10), 1132–1152 https://doi.org/10.1080/02687038.2011.577285
  • Sherratt, S. (2019). Changing and growing: an exploration of posttraumatic growth narratives in aphasia. 1-25. https://www.researchgate.net/publication/332266393_Changing_and_growing_an_exploration_of_posttraumatic_growth_narratives_in_aphasia
  • Sherratt, S. (2021). Aphasia and dysphasia on the internet. Aphasiology, 35(9), 1227–1237. https://doi.org/10.1080/02687038.2020.1819699
  • Sieff, E. (2003, 2003/01/01). Media frames of mental illnesses: The potential impact of negative frames. Journal of Mental Health, 12(3), 259–269. https://doi.org/10.1080/0963823031000118249
  • Simmons-Mackie, N., Code, C., Armstrong, E., Stiegler, L., & Elman, R. J. (2002). What is aphasia? Results of an international survey. Aphasiology, 16(8), 837–848. https://doi.org/10.1080/02687030244000185
  • Simmons-Mackie, N., Worrall, L., Shiggins, C., Isaksen, J., McMenamin, R., Rose, T., Guo, Y. E., & Wallace, S. J. (2020, 2020/04/02). Beyond the statistics: a research agenda in aphasia awareness. Aphasiology, 34(4), 458–471. https://doi.org/10.1080/02687038.2019.1702847
  • Speakability. (2000). Phonebus survey. http://psychology.exeter.ac.uk/research/centres/ccnr/aphasia/professionals/public/
  • Stefaniak, J. D., Geranmayeh, F., & Lambon Ralph, M. A. (2022). The multidimensional nature of aphasia recovery post-stroke. Brain, 145(4), 1354–1367. https://doi.org/10.1093/brain/awab377
  • Sylvan, L. (2019). How to teach concern: Inspiring speech-language pathology graduate students to develop empathy and advocacy with the power of personal stories. Teaching and Learning in Communication Sciences & Disorders, 3(2), 9. https://doi.org/10.30707/TLCSD3.2Sylvan
  • Taubner, H., & Hallén, M. (2021). Success stories: Narrative types in Swedish journalistic newspaper articles about living with aphasia. European Journal of Health Communication, 2(1), 56–76. https://doi.org/10.47368/ejhc.2021.103
  • Wallace, S. J., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., Kong, A. P. H., Simmons-Mackie, N., Scarinci, N., & Gauvreau, C. A. (2017). Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disability and Rehabilitation, 39(14), 1364–1379. https://doi.org/10.1080/09638288.2016.1194899
  • Whitehead, L. C. (2006). Quest, chaos and restitution: Living with chronic fatigue syndrome/myalgic encephalomyelitis. Social Science and Medicine, 62(9), 2236–2245. https://doi.org/10.1016/j.socscimed.2005.09.008
  • Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25, 309–322. https://doi.org/10.1080/02687038.2010.508530
  • Worrall, L., Simmons-Mackie, N., Wallace, S. J., Rose, T., Brady, M. C., Kong, A. P. H., Murray, L., & Hallowell, B. (2016). Let’s call it “aphasia”: Rationales for eliminating the term “dysphasia”. International Journal of Stroke, 11(8), 848–851. https://doi.org/10.1177/%2F1747493016654487
  • Yilmaz Altuntas, E., & Öney Doğanyiğit, S. (2021). Social determinants of autism spectrum disorder in the print media news: A qualitative framing analysis of coverage in national newspapers in Turkey. Cogent Social Sciences, 7(1), 1947607.

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