Using partners' autobiographical reports to develop, deliver, and evaluate services in aphasia

References

• Anderson , C. 1992 . The aftermath of stroke: The experience of patients and their families , Cambridge, , UK : Cambridge University Press .
   Google Scholar
• Anderson , C. , Linto , J. and Stewart-Wynne , E. 1995 . A population-based assessment of the impact and burden of care giving for long-term stroke survivors . Stroke , 26 : 843 – 849 .
   PubMed Web of Science ®Google Scholar
• Becker , G. 1997 . Disrupted lives: How people create meaning in a chaotic world , Berkeley, CA : University of California Press .
   Google Scholar
• Bevington , L. 1985 . The effect of a structured education programme on relatives' knowledge of communication with stroke patients . Australian Journal of Human Communication Disorders , 13 : 117 – 121 .
   Google Scholar
• Borenstein , P. , Linell , S. and Wahrborg , P. 1987 . An innovative therapeutic program for aphasia patients and their relatives . Scandinavian Journal of Rehabilitation Medicine , 19 : 51 – 56 .
   PubMedGoogle Scholar
• Bowling , J. 1977 . Emotional problems of relatives of dysphasic patients . Australian Journal of Human Communication Disorders , 5 : 29 – 41 .
   Google Scholar
• Byng , S. , Pound , C. and Parr , S. 2000 . “ Living with aphasia: A framework for therapy interventions ” . In Acquired neurological communication disorders: A clinical perspective , Edited by: Papathanasiou , I. London : Whurr Publishers .
   Google Scholar
• Cant , R. 1999 . Aphasie stroke support-a route forward? . Aphasiology , 13 : 900 – 902 .
   Web of Science ®Google Scholar
• Carnwath , T. and Johnson , D. 1987 . Psychiatric morbidity among spouses of patients with stroke . British Medical Journal , 294 : 409 – 411 .
   PubMed Web of Science ®Google Scholar
• Crossley , M. 2000 . Introducing narrative psychology: Self, trauma and the construction of meaning , Buckingham, , UK : Open University Press .
   Google Scholar
• Damico , J. , Oelschlaeger , M. and Simmons-Mackie , N. 1999a . Qualitative methods in aphasia research: Conversation analysis . Aphasiology , 13 : 667 – 680 .
   Web of Science ®Google Scholar
• Damico , J. , Simmons-Mackie , N. , Oelschlaeger , M. , Elman , R. and Armstrong , E. 1999b . Qualitative methods in aphasia research: Basic issues . Aphasiology , 13 : 651 – 666 .
   Web of Science ®Google Scholar
• Dennis , M. , O'Rouke , S. , Lewis , S. , Sharpe , M. and Warlow , C. 2000 . Emotional outcomes after stroke: Factors associated with poor outcome . Journal of Neurological Neurosurgical Psychiatry , 68 : 47 – 52 .
   PubMed Web of Science ®Google Scholar
• Department of Health . 1999 . Patient and public involvement in the NHS , London : Author .
   Google Scholar
• Frank , A. 1995 . The wounded storyteller: Body illness and ethnics , Chicago, IL : University of Chicago Press .
   Google Scholar
• Hammell , K. 1992 . The caring wife: The experience of caring for a severely disabled husband in the community . Disability, Handicap and Society , 7 : 349 – 362 .
   Google Scholar
• Johannsen-Horback , M. , Crone , M. and Wallesch , M. 1999 . Group therapy for spouses of aphasie patients . Seminars in Speech and Language , 20 : 73 – 83 .
   PubMedGoogle Scholar
• Judge , K. and Solomon , M. 1993 . Public opinion and the National Health Service: Patterns and perspectives in consumer satisfaction . Journal of Policy Studies , 22 : 299 – 327 .
   Google Scholar
• Kagan , A. 1998 . Supported conversation for adults with aphasia: Methods and resources for training conversation partners . Aphasiology , 12 : 851 – 864 .
   Web of Science ®Google Scholar
• Kleinman , A. 1988 . The illness narratives: Suffering, healing and the human condition , New York : Basic Books .
   Google Scholar
• Knight , B. , Lutzky , S. and Macofsky-Urban , F. 1999 . A meta-analytic review of the interventions for care giver distress: Recommendations for future research . The Gerontologist , 33 : 240 – 248 .
   Google Scholar
• Le Dorze , G. , Troteau , C. , Brassard , C. and Michallet , B. 1999 . Research considerations guiding interventions for families affected by aphasia . Aphasiology , 13 : 922 – 927 .
   Web of Science ®Google Scholar
• Long , A. 1994 . “ Assessing health and social outcomes ” . In Researching the people's health , Edited by: Popay , J. and Williams , G. London : Routledge .
   Google Scholar
• Lovett , S. and Gallagher , D. 1988 . Psychoeducational interventions for family partners: Preliminary efficacy data . Behaviour Therapy , 19 : 321 – 330 .
   Web of Science ®Google Scholar
• LPAA Project Group . 2000 . Life participation approach to aphasia: A statement of values for the future . ASHA Leader , 5 : 4 – 6 .
   Google Scholar
• Lyon , J. 1995 . Drawing: Its value as a communication aid for adults with aphasia . Aphasiology , 9 : 33 – 50 .
   Web of Science ®Google Scholar
• Bryman and Burgess , R. , eds. Analysing qualitative data , London : Routledge .
   Google Scholar
• McAdams , D. 1993 . The stories we live by: Personal myths and the making of the self , New York : Morrow .
   Google Scholar
• McLeod , J. 1994 . Doing counselling research , London : Sage .
   Google Scholar
• Miner , M. 1997 . “ Making up the stories as we go along: Men, women, and narratives of disability ” . In The body and physical difference: Discourses of disability , Edited by: Metchell , D. and Snyder , S. Ann Arbor, MI : The University of Michigan Press .
   Google Scholar
• Mykyta , L. , Bowling , J. , Nelson , D. and Lloyd , E. 1976 . Caring for relatives of stroke patients . Age and Ageing , 5 : 87 – 90 .
   PubMedGoogle Scholar
• O'Rourke , S. , MacHale , S. , Signorini , D. and Dennis , M. 1998 . Detecting psychiatric morbidity after stroke: Comparison of the GHQ and the HAD Scale . Stroke , 29 : 980 – 985 .
   PubMed Web of Science ®Google Scholar
• Parr , S. , Byng , S. and Gilpin , S. 1997 . Talking about aphasia: Living with loss of language after stroke , Buckingham, , UK : Open University Press .
   Google Scholar
• Pound , C. , Parr , S. , Lindsay , J. and Woolf , C. 2000 . Beyond aphasia: Therapies for living with communication disability , Oxford, , UK : Winslow Press .
   Google Scholar
• Pring , T. 1999 . Who cares for carers? . Aphasiology , 13 : 914 – 917 .
   Web of Science ®Google Scholar
• Riessman , C. 1993 . Narrative analysis , London : Sage .
   Google Scholar
• Rice , B. , Paull , A. and Muller , D. 1987 . An evaluation of a social support group for spouses of aphasie partners . Aphasiology , 1 : 247 – 256 .
   Google Scholar
• Ritchie , J. and Spencer , L. 1994 . “ Qualitative data analysis for applied policy research ” . In Analyzing qualitative data , Edited by: Bryman , A. and Burgess , R. G. London : Routledge .
   Google Scholar
• Sacks , O. 1985 . The man who mistook his wife for a hat , New York : Summit Books .
   Google Scholar
• Servaes , P. , Draper , B. , Conroy , P. and Bowring , G. 1999 . Informal carers of aphasie stroke patients: Stresses and interventions . Aphasiology , 13 : 889 – 928 .
   Web of Science ®Google Scholar
• Simmons-Mackie , N. and Damico , J. 1999 . Qualitative methods in aphasia research: Ethnography . Aphasiology , 13 : 681 – 688 .
   Web of Science ®Google Scholar
• Snaith , R. and Zigmond , A. 1983 . Hospital Anxiety and Depression Scale . Acta Psychiatrica Scandinavica , 67 : 361 – 370 .
   PubMed Web of Science ®Google Scholar
• Tomkins , C. , Spencer , K. and Schultz , R. 1999 . Evaluating stresses and interventions for informal carers of aphasia adults: Taking a broader perspective . Aphasiology , 13 : 902 – 907 .
   Google Scholar
• Toseland , R. , Rossiter , C. and Labrecque , M. 1989 . The effectiveness of peer-led and professionally-led groups to support family partners . The Gerontologist , 29 : 465 – 471 .
   PubMed Web of Science ®Google Scholar
• Turnblom , M. and Meyers , J. 1952 . A group discussion program with the families of aphasie patients . Journal of Speech and Hearing Disorders , 17 : 393 – 396 .
   PubMedGoogle Scholar
• Wahrborg , P. and Bornstein , P. 1989 . Family therapy in families with an aphasie member . Aphasiology , 3 : 93 – 98 .
   Web of Science ®Google Scholar
• Wells , A. 1999 . Family support systems: Their role in aphasia . Aphasiology , 13 : 911 – 914 .
   Web of Science ®Google Scholar
• Wilkinson , R. , Bryan , K. , Lock , S. , Bayley , K. , Maxim , J. , Bnicek , C. , Edmundson , A. and Moir , D. 1998 . Therapy using conversation analysis: Helping couples adapt to aphasia in conversation . InternationalJournal of Langvage and Communication Disorders , 33 : 144 – 149 .
   PubMedGoogle Scholar
• Williams , S. 1993 . The impact of aphasia on marital satisfaction . Archives of Physical Medicine andRehabilitation , 74 : 361 – 367 .
   PubMed Web of Science ®Google Scholar
• Williams , S. and Freer , C. 1986 . Aphasia: Its effect on marital relationships . Archives of Physical Medicine andRehabilitation , 67 : 250 – 252 .
   PubMed Web of Science ®Google Scholar