Psychological distress in carers of head injured individuals: the provision of written information

References

• GRONWALL, D., WRIGHTSON, P., and WADDELL, P.: Head Injury: The Facts. A Guide For Families and Care Givers (Oxford: Oxford University Press), 1997.
   Google Scholar
• LEZAK, M. D.: Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychology, 10: 111–123, 1988.
   PubMed Web of Science ®Google Scholar
• THOMSEN, I. V.: Late outcome of very severe blunt head trauma: a 10-15 year second follow up. Journal of Neurology, Neurosurgery and Psychiatry, 47: 260–268, 1984.
   PubMed Web of Science ®Google Scholar
• JAcoss, H. E.: The Los Angeles head injury survey: procedures and initial findings. Archives of Physical and Medical Rehabilitation, 69: 425–431, 1988.
   PubMed Web of Science ®Google Scholar
• PANTING, A. and MERRY, P. H.: The long term rehabilitation of severe head injuries with par-ticular reference to the need for social and medical support for the patients family. Rehabilitation, 38: 33–37, 1972.
   Google Scholar
• SANDER, A., HIGH, W., HANNAY, H. et al. Predictors of pychological health in caregivers of patients with closed head injury. Brain Injury, 11: 235–249, 1997.
   PubMed Web of Science ®Google Scholar
• LIVINGSTON, M. G.: Assessment of need for co-ordinated approach in families with victims of head injury. British Medical Journal, 293: 742–744, 1986.
   PubMed Web of Science ®Google Scholar
• KREUTZER, .1. S., GERVASIO, A. H., and CAMPLAIR, P. S.: Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Injury, 8: 211–230, 1994.
   Google Scholar
• SERIO, C. D., KREUTZER, .1. S., and WITOL, A.: Family needs after traumatic brain injury: A factor analytic study of the family needs questionnaire. Brain Injury, 11, 1–9, 1997.
   Google Scholar
• OD DY, M., HUMPHREY, M., and UTTLEY, D.: Stresses upon relatives of head injured patients. British Journal of Psychiatry, 133: 507–513, 1978.
   PubMedGoogle Scholar
• LEATHEM,J., HEATH, E., and WOLLEY, C.: Relatives' perceptions of role change, social support and stress after traumatic brain injury. Brain Injury, 10: 27–38, 1996.
   PubMed Web of Science ®Google Scholar
• OD DY M.: He's no longer the same person: how families adjust to personality change after head injury. In: M. Chamberlain, V. Neumann and A. Tennant (editors) Traumatic Brain Injury Rehabilitation: Services, Treatments and Outcomes (London: Chapman and Hall Medical), pp. 167–179, 1995.
   Google Scholar
• HALL, K. M., KARZ MARK, P., STEVENS, M., et al. Family stressors in traumatic brain injury: a two year follow up. Archives of Physical and Medical Rehabilitation, 75: 876–884, 1994.
   PubMed Web of Science ®Google Scholar
• LEAF, L. E.: Traumatic brain injury: affecting family recovery. Brain Injury, 7: 543–546, 1993.
   PubMed Web of Science ®Google Scholar
• FROSCH, S., GRUBER, A., andJoivEs, C., et al. The long term effects of traumatic brain injury on the role of caregivers. Brain Injury, 11, 891–906, 1997.
   PubMed Web of Science ®Google Scholar
• PONSFORD, .1., SLOAN, S., and SNOW, P.: Traumatic Brain Injury. Rehabilitation for Everyday Adaptive Living (Hove: Psychology Press), 1996.
   Google Scholar
• PEARLIN, L. I., MULLEN, j. T., and SEMPLE, S. .1.: Caregiving and the stress process: an overview of concepts and their measures. Gerontology, 30, 583–594, 1990.
   Google Scholar
• MCKINLAY, W. W., BROOKS, D. N., andBOND, M. R. et al.: The short term outcome of severe blunt head injury as reported by relatives of the injured person. Journal of Neurology, Neurosurgery and Psychiatry, 44, 527–533, 1981.
   PubMed Web of Science ®Google Scholar
• BROOKS, N., CAMPSIE, L., and SYMINGTON, C., et al. The five year outcome of severe blunt head injury; a relatives view. Journal of Neurology, Neurosurgery and Psychiatry, 49: 764–770, 1986.
   PubMed Web of Science ®Google Scholar
• LIVINGSTON, M. G.: Head injury: the relatives' response. Brain Injury, 1, 33–39, 1987.
   PubMedGoogle Scholar
• LEY, P.: Communicating With Patients: Improving Communication Satisfaction and Compliance (London: Chapman and Hall), 1990.
   Google Scholar
• WALLACE, L. M.: Communication variables in the design of pre-surgical preparatory information. British Journal of Clinical Psychology, 25: 111–118, 1986.
   PubMed Web of Science ®Google Scholar
• BRUMFITT, S., ATKINSON, J. A., and GREATED, C.: The carer's response to written information about acquired communication problems. Aphasiology, 8: 583–590, 1994
   Web of Science ®Google Scholar
• WILES, R., PAIN, H., BUCKLAND, S. et al.: Providing appropriate information to patients and carers following a stroke. Journal of Advanced Nursing, 28: 794–801, 1998.
   PubMed Web of Science ®Google Scholar
• TONER, H. L.: Effectiveness of a written guide for carers of dementia sufferers. British Journal of Clinical and Social Psychiatry, 5: 24–26, 1987.
   Google Scholar
• LIVINGSTON, M., BROOKS, N., and BOND, M.: Patient outcome in the year following severe head injury and relatives' psychiatric and social functioning. Journal of Neurology, Neurosurgery and Psychiatry, 48: 876–881, 1985.
   PubMed Web of Science ®Google Scholar
• EISNER, j. and KREUTZER, J. S.: A family information system for education following traumatic brain injury. Brain Injury, 3: 79–90, 1989.
   PubMedGoogle Scholar
• NOVACK, T. A., BEGQUIST, T. F., BENNETT, G. et al.: Primary caregiver distress following severe head injury. Journal of Head Trauma Rehabilitation, 6: 69–77, 1991.
   Google Scholar
• MERRITT, K. L. and EVANS, R. L.: Family satisfaction with medical care after traumatic brian injury. Psychological Reports, 67: 129–130, 1990.
   PubMedGoogle Scholar
• SERI, C. D., KREUTZER, J. S., and GERVASIO, A. M.: Predicting family needs after brain injury: implications for intervention. Journal of Head Trauma Rehabilitation, 10, 32–45, 1995.
   Google Scholar
• JUNQUE, C., BRUNA, 0., and MATARO, M.: Information needs of the traumatic brain injury patient's family members regarding the consequences of the injury and associated perception of physical, cognitive, emotional and quality of life changes. Brain Injury, 11: 251–258, 1997.
   Google Scholar
• KREUTZER, J. S., SERIO, C. D., BERGQUIST, S.: Family needs after brain injury: a qualitative analysis. Journal of Head Trauma Rehabilitation, 9: 104–115, 1994.
   Web of Science ®Google Scholar
• GENTLEMAN, D., GILCHRIST, J., NEILSON, C.: A multidisciplinary follow-up clinic for brain injured patients within a regional neurosurgical service. European Journal of Neurology, 3 (Supp. 2): 52, 1996.
   Google Scholar
• TURVEY, T.: Treatment manuals. In: F. Watts (editor) New Developments in Clinical Psychology (British Psychological Society), pp. 234–245, 1985.
   Google Scholar
• GOLDBERG, D. P. and HILLIER, V. F.: A scaled version of the general health questionnaire. Psychological Medicine, 9: 139–145, 1979.
   PubMed Web of Science ®Google Scholar
• ZIGMO ND, A. S. and SNAITH, R. P.: The hospital anxiety and depression scale. Acta Scandanavica, 67: 361–370, 1983.
   Google Scholar
• MCKINLAY, W., BROOKS, N., and HICKOX, A.: Questionnaire for Relatives/Post Head Injury Progress Assessment (C) Authors and Case Management Services Ltd.), 1990.
   Google Scholar
• TEASDALE, G. andJENNETT, B.: Assessment of coma and impaired consciousness. Lancet,81-84, 1974.
   Google Scholar
• ROSE, F. D. and JOHNSON, P. A. (editors): Brain Injury and After. Towards an Improved Outcome (Chichester: Wiley), 1996.
   Google Scholar
• ALLEN, K., LINN, R. T., and GUTIERREZ, H.: Family burden following traumatic brain injury. Rehabilitation Psychology, 39:29–48, 1994.
   Web of Science ®Google Scholar
• ELLIS, D. A., HOPKIN, J. M., LEITCH, A. G. et al. 'Doctor's orders': controlled trial of supple-mentary, written information for patients. British Medical Journal, 1: 456, 1979.
   PubMed Web of Science ®Google Scholar
• SINGER, G. H. S., GLANG, A., NIXON, C. et al. A comparison of two psychosocial interventions for parents of children with acquired brain injury: an exploratory study. Journal of Head Trauma Rehabilitation, 9: 38–49, 1994.
   Google Scholar