Acquired brain injury and dementia: A comparison of carer experiences

References

• Singleton N, Aye Maung N, Cowie A, Sparks J, Bumpstead R, Meltzer H. Mental health of carers. The Stationery Office: Office for National Statistics, London 2002
   Google Scholar
• Maher J, Green H. Carers 2000. The Stationery Office: Office for National Statistics, London 2002
   Google Scholar
• Perring C, Twigg J, Atkin K. Families caring for people diagnosed as mentally ill: The literature re-examined. HMSO, London 1990
   Google Scholar
• Livingston G, Manela M, Katona C. Depression and other psychiatric morbidity in carers of elderly people living at home. British Medical Journal 1996; 312: 153–156
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Gervasio AH, Camplair PS. Patient correlates of caregivers distress and family functioning after traumatic brain injury. Brain Injury 1994; 8: 211–230
   PubMed Web of Science ®Google Scholar
• Schneider J, Murray J, Banerjee S, Mann A. EUROCARE: A cross-national study of co-resident spouse carers for people with Alzheimer's disease: I—Factors associated with carer burden. International Journal of Geriatric Psychiatry 1999; 14: 651–661
   PubMed Web of Science ®Google Scholar
• McPherson KM, Pentland B, McNaughton HK. Brain injury—the perceived health of carers. Disability and Rehabilitation 2000; 22: 683–689
   PubMed Web of Science ®Google Scholar
• van den Heuvel ETP, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clinical Rehabilitation 2001; 15: 669–677
   PubMed Web of Science ®Google Scholar
• Clark PC, King KB. Comparison of family caregivers: Stroke survivors vs. persons with Alzheimer's disease. Journal of Gerontological Nursing 2003; 29: 45–53
   PubMedGoogle Scholar
• Harris JKJ, Godfrey HPD, Partridge FM, Knight RG. Caregiver depression following traumatic brain injury: A consequence of adverse effects on family members?. Brain Injury 2001; 15: 223–238
   PubMed Web of Science ®Google Scholar
• Kneafsey R, Gawthorpe D. Head injury: Long-term consequences for patients and families and implications for nurses. Journal of Clinical Nursing 2004; 13: 601–608
   PubMed Web of Science ®Google Scholar
• Sörensen S, Duberstein P, Gill D, Pinquart M. Dementia care: Mental health effects, intervention strategies and clinical implications. Lancet Neurology 2006; 5: 961–973
   PubMed Web of Science ®Google Scholar
• Black W, Almeida OP. A systematic review of the association between the behavioural and psychological symptoms of dementia and burden of care. International Psychogeriatrics 2004; 16: 295–315
   PubMed Web of Science ®Google Scholar
• Sinnakaruppan I, Williams DM. Family carers and the adult head-injured: A critical review of carers’ needs. Brain Injury 2001; 15: 653–672
   PubMed Web of Science ®Google Scholar
• Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: A review of the literature. Journal of Clinical Nursing 2005; 14: 1004–1012
   PubMed Web of Science ®Google Scholar
• Low TS, Payne S, Roderick P. The impact of stroke on informal carers: A literature review. Social Science and Medicine 1999; 49: 711–725
   PubMed Web of Science ®Google Scholar
• Greenwood N, Mackenzie A, Cloud G, Wilson N. Informal carers of stroke survivors—factors influencing carers: A systematic review of quantitative studies. Disability and Rehabilitation 2008; 30: 1329–1349
   PubMed Web of Science ®Google Scholar
• Department of Health. Carers (Recognition and Services) Act 1995. The Stationery Office, London 1995
   Google Scholar
• Department of Health. Carers (Equal Opportunities) Act 2004. The Stationery Office, London 2004
   Google Scholar
• NSF Editorial Group. National service framework for older people. Department of Health, London 2001
   Google Scholar
• DH Long-term Conditions NSF Team. The national service framework for long-term conditions. Department of Health, London 2005
   Google Scholar
• Hubert J. Life after head injury: The experiences of twenty young people and their families. Avebury, Aldershot 1995
   Google Scholar
• Kosciulek JF, Pichette EF. Adaptation concerns of families of people with head injuries. Journal of Applied Rehabilitation Counseling 1996; 27: 8–13
   Google Scholar
• Nickson G. Services for people with traumatic brain injury and their carers. Headway, London 2003
   Google Scholar
• Royal College of Physicians and British Society of Rehabilitation Medicine. National clinical guidelines for rehabilitation following acquired brain injury (working party consensus). RCP, BSRM, London 2003; 23
   Google Scholar
• Marwit SJ, Kaye PN. Measuring grief in caregivers of persons with acquired brain injury. Brain Injury 2006; 20: 1419–1429
   PubMed Web of Science ®Google Scholar
• Murray J, Banerjee S, Schneider J, Foley B, Atkins L, Hallam A. A longitudinal study of carer burden and comprehensive costs in dementia. Department of Health, London 2000
   Google Scholar
• Schneider J, Hallam A, Murray J, Foley B, Atkin L, Banerjee S, Islam MK, Mann A. Formal and informal care for people with dementia: Factors associated with service receipt. Aging & Mental Health 2002; 6: 255–265
   PubMed Web of Science ®Google Scholar
• Schneider J, Hallam A, Islam MK, Murray J, Foley B, Atkin L, Banerjee S, Mann A. Formal and informal care for people with dementia: Variations in costs over time. Ageing and Society 2003; 23: 303–326
   Web of Science ®Google Scholar
• Banerjee S, Murray J, Foley B, Atkin L, Schneider J, Mann A. Predictors of institutionalisation in people with dementia. Journal of Neurology, Neurosurgery and Psychiatry 2003; 74: 1315–1316
   PubMed Web of Science ®Google Scholar
• Turner-Stokes L, Disler PB, Nair A, Wade DT. Multi-disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database of Systematic Reviews 2005; 3, Art. No.: CD004170. DOI: 10.1002/14651858.CD004170.pub2
   Web of Science ®Google Scholar
• Gompertz P, Pound P, Ebrahim S. A postal version of the Barthel Index. Clinical Rehabilitation 1994; 8: 233–239
   Google Scholar
• Skilbeck CE, Wade DT, Langton Hewer R, Wood VA. Recovery after stroke. Journal of Neurology, Neurosurgery and Psychiatry 1983; 46: 5–8
   PubMed Web of Science ®Google Scholar
• Turner-Stokes L, Tonge P, Hunter M, Nielson S, Robinson I. The Northwick Park Dependency Score—a measure of nursing dependency in rehabilitation. Clinical Rehabilitation 1998; 12: 304–316
   PubMed Web of Science ®Google Scholar
• Turner-Stokes L, Nyein K, Halliwell D. Care needs assessment—a directly costable outcome measure for rehabilitation. Clinical Rehabilitation 1999; 13: 253–268
   PubMed Web of Science ®Google Scholar
• Katz S, Ford AB, Moskowitz RW. Studies of illness in the aged. The index of ADL: A standardised measure of biological and psychosocial function. Journal of the American Medical Association 1963; 185: 914–919
   PubMed Web of Science ®Google Scholar
• Zarit SH, Zarit JM. The Memory and Behavior Problems Checklist: Gerontology Reprints. Gerontology Center, Pennsylvania State University, University Park, , PA 1990
   Google Scholar
• Jackson D, Turner-Stokes L, Murray J, Leese M. Validation of the Memory and Behavior Problems Checklist-1990R for use in acquired brain injury. Brain Injury 2007; 21: 817–824
   PubMed Web of Science ®Google Scholar
• Davis KL, Marin DB, Kane R, Patrick D, Peskind KR, Raskind MA, Puder KL. The caregiver activity survey (CAS): Development and validation of a new measure for caregivers of persons with Alzheimer's disease. International Journal of Geriatric Psychiatry 1997; 12: 978–988
   PubMed Web of Science ®Google Scholar
• Rosenblatt A, Samus QM, Steele CD, Baker AS, Harper MG, Brandt J, Rabins PV, Lyketsos CG. The Maryland assisted living study: Prevalance, recognition and treatment of dementia and other psychiatric disorders in the assisted living population of Central Maryland. Journal of the American Geriatrics Society 2004; 52: 1618–1625
   PubMed Web of Science ®Google Scholar
• Zarit SH, Zarit JM. The burden interview. Gerontology Reprints: Gerontology Centre, Pennsylvania State University. 1990
   Google Scholar
• Visser-Meily JMA, Post MWM, Riphagen II, Lindeman E. Measures used to assess burden among caregivers of stroke patients: A review. Clinical Rehabilitation 2004; 18: 601–623
   PubMed Web of Science ®Google Scholar
• WHOQOLGroup. WHOQOL-BREF. Introduction, administration, scoring and generic version of the assessment. WHO, Geneva 1996
   Google Scholar
• Goldberg D, Williams P. A user's guide to the General Health Questionnaire. nferNelson, London 1988
   Google Scholar
• SPSS Inc., Release 10.0, Headquarters, 233 S. Wacker Drive, 11th floor, Chicago, IL 60606 [program]; 2000
   Google Scholar
• Stata Statistical Software. Release 7.0. College Station, TX 2001, [program]: Stata Corporation
   Google Scholar
• Harris J, Piper S, Morgan H, McClimens A, Shah S, Reynolds H, Baldwin S, Arksey H, Qureshi H. Experiences of providing care to people with long term conditions. SPRU, University of York. 2003
   Google Scholar
• Butera-Prinzi F, Perlesz A. Through children's eyes: Children's experience of living with a parent with an acquired brain injury. Brain Injury 2004; 18: 83–101
   PubMed Web of Science ®Google Scholar
• Brooks DN. The head injured family. Journal of Clinical and Experimental Neuropsychology 1991; 13: 155–188
   Web of Science ®Google Scholar
• Wood R, Yurdakul L. Change in relationship status following traumatic brain injury. Brain Injury 1997; 11: 491–502
   PubMed Web of Science ®Google Scholar
• Mason A, Weatherly H, Spilsbury K, et al. The effectiveness and cost-effectiveness of respite for caregivers of frail older people. Journal of the American Geriatrics Society 2007; 55: 290–299
   PubMed Web of Science ®Google Scholar
• van Exel J, Morée M, Koopmanschap MA, et al. Respite care—an explorative study of demand and use in Dutch informal caregivers. Health Policy 2006; 78: 194–208
   PubMed Web of Science ®Google Scholar
• Oddy M, Herbert C. Intervention with families following brain injury: Evidence-based practice. Neurological Rehabilitation 2003; 13: 259–273
   PubMed Web of Science ®Google Scholar