When a parent suffers ABI: Investigation of emotional distress in children

References

• Tagliaferri F, Compagnone C, Korsic M, Servadei F, Kraus J. A systematic review of brain injury epidemiology in Europa. Acta Neurochirurg. 2006;148:255–68.
   PubMed Web of Science ®Google Scholar
• Avesani R, Salvi L, Rigoli G, Gambini MG. Reintegration after severe brain injury: a retrospective study. Brain Inj. 2005;19:933–9.
   PubMed Web of Science ®Google Scholar
• Sander AM, Maestas KL, Sherer M, Malec JF, Nakase-Richardson R. Relationship of caregiver and family functioning to participation outcomes after postacute rehabilitation for traumatic brain injury: a multicenter investigation. Arch Phys Med Rehabil. 2012;93(5):842–8.
   PubMed Web of Science ®Google Scholar
• Vangel Jr SJ, Rapport LJ, Hanks RA. Effects of family and caregiver psychosocial functioning on outcomes in persons with traumatic brain injury. J Head Trauma Rehabil. 2011;26(1):20–9.
   PubMed Web of Science ®Google Scholar
• De Tanti A, Zampolini M, Pregno S. Recommendations for clinical practice and research in severe brain injury in intensive rehabilitation: the Italian Consensus Conference. Eur J Phys Rehabil Med. 2015;51(1):89–103.
   PubMed Web of Science ®Google Scholar
• Klonoff PS. Psychotherapy for families after brain injury. New York: Springer Science and Business; 2014.
   Google Scholar
• Kreutzer JS, Marwitz JH, Sima AP, Godwin EE. Efficacy of the brain injury family intervention: impact on family members. J Head Trauma Rehabil. 2015;30(4):249–60.
   PubMed Web of Science ®Google Scholar
• Visser-Meily A, Post M, Meije AM, Van de Port I, Maas C, Linderman E. When a parent has a stroke: clinical course and prediction of mood, behaviour problems, and health status of their young children. Stroke. 2005;36:2436–40.
   PubMed Web of Science ®Google Scholar
• Webster G, Daisley A. Including children in family-focused acquired brain injury rehabilitation: a national survey of rehabilitation staff practice. Clin Rehabil. 2007;21(12):1097–108.
   PubMed Web of Science ®Google Scholar
• Tiar AMV, Dumas JE. Impact of parental acquired brain injury on children: review of the literature and conceptual model. Brain Inj. 2015;29(9):1005–17.
   PubMed Web of Science ®Google Scholar
• Leonardi M, Giovannetti AM, Pagani M, Raggi A, Sattin D, national consortium functioning and disability in vegetative and in minimal conscious state patients. Burden and needs of 487 caregivers of patients in vegetative state and in minimally conscious state: results from a national study. Brain Inj. 2012;26(10):1201–10.
   Google Scholar
• Mosconi P, Taricco M, Bergamini M, Bosisio Fazzi L, Colombo C, Patrucco V, Corti M, Giobbe D, Guerreschi M, Magnarella MR, et al. Family burden after severe brain injury: the Italian experience with families and volunteer associations. Patient. 2011;4(1):55–65.
   PubMedGoogle Scholar
• Giovannetti AM, Leonardi M, Pagani M, Sattin D, Raggi A. Burden of caregivers of patients in vegetative state and minimally conscious state. Acta Neurol Scand. 2013;127(1):10–18.
   PubMed Web of Science ®Google Scholar
• Tramonti F, Bonfiglio L, Di Bernardo C, Ulivi C, Virgillito A, Rossi B, Carboncini MC. Family functioning in severe brain injuries: correlations with caregivers’ burden, perceived social support and quality of life. Psychol Health Med. 2015;20(8):933–9.
   PubMed Web of Science ®Google Scholar
• Mazzucchi A, Cattelani R, Gugliotta M, Brianti R, Ianelli G. Family experiences in the long-term care o severely head-injured patients. Giorn Ital Med Riabil. 1994;3(8):232–241.
   Google Scholar
• Redolfi A, Gugliotta M, Risetti M, Valiante C, Vaccaro S, Franchini C, D’Amato A, Mazzucchi A. Gravi cerebrolesioni acquisite e rientro a domicilio: studio multicentrico di valutazione del carico assistenziale, economico ed emozionale delle famiglie. Giorn Ital Med Riabil. 2013;27(3):224–35.
   Google Scholar
• Lezak M. Brain damage is a family affair. J Clin Exp Neuropsychol. 1988;10:111–23.
   PubMed Web of Science ®Google Scholar
• Armistead L, Klein L, Forehand R. Parental physical illness and child functioning. Clin Psychol Rev. 1995;15:409–22.
   Web of Science ®Google Scholar
• Kieffer-Kristensen R, Teasdale TW. Parental stress and marital relationships among patients with brain injury and their spouses. NeuroRehabilitation. 2011;28(4):321–30.
   PubMed Web of Science ®Google Scholar
• Ducharme JM, Spencer T, Davison A, Rushford N. Error compliance training: building a cooperative relationship between parents with brain injury and their oppositional children. Am J Orthopsychiatr. 2002;27(4):585–95.
   Google Scholar
• Pessar LF, Coad ML, Linn RT, Willer BS. The effects of parental traumatic brain injury on the behaviour of parents and children. Brain Inj. 1993;7:231–40.
   PubMed Web of Science ®Google Scholar
• Sieh DS, Mejier AM, Visser-Meily JMA. Risk factors for stress in children after parental stroke. Rehabil Psychol. 2010;55:391–97.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Gervasio AH, Camplair PS. Primary caregivers’ psychological status and family functioning after traumatic brain injury. Brain Inj. 1994;8:197–210.
   PubMed Web of Science ®Google Scholar
• Wallace CA, Bogner J, Corrigan JD, Clinchot D, Mysiw WJ, Fugate LP. Primary caregivers of persons with brain injury: life change 1 year after injury. Brain Inj. 1998;12(6):483–93.
   PubMed Web of Science ®Google Scholar
• Marsh NV, Kersel DA, Havill JH, Sleigh JW. Caregiver burden at one year following severe traumatic brain injury. Brain Inj. 1998;12:1045–59.
   PubMed Web of Science ®Google Scholar
• Ponsford J, Olver J, Ponsford M, Nelms R. Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Inj. 2003;17(6):453–68.
   PubMed Web of Science ®Google Scholar
• Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: a review of the literature. J Clin Nurs. 2005;14(8):1004–12.
   PubMed Web of Science ®Google Scholar
• Wells R, Dywan J, Dumas J. Life satisfaction and distress in family caregivers as related to specific behavioural changes after traumatic brain injury. Brain Inj. 2005;19(13):1105–15.
   PubMed Web of Science ®Google Scholar
• Dix T, Meunier LN. Depressive symptoms and parenting competence: an analysis of 13 regulatory processes. Dev Rev. 2009;29:45–68.
   Web of Science ®Google Scholar
• Kieffer-Kristensen R, Teasdale TW, Bilenberg N. Post-traumatic stress symptoms and psychological functioning in children of parents with acquired brain injury. Brain Inj. 2011;25:752–60.
   PubMed Web of Science ®Google Scholar
• Uysal S, Hibbard MR, Robillard D, Pappadopulos E, Jaffe M. The effect of parental traumatic brain injury on parenting and child behaviour. J Head Trauma Rehabil. 1998;13:57–71.
   PubMed Web of Science ®Google Scholar
• Godwin EE, Kreutzer JS, Arango-Lasprilla JC, Lehan, TJ. Marriage after brain injury: review, analysis, and research recommendations. J Head Trauma Rehabil. 2011;26(1):43–55.
   PubMed Web of Science ®Google Scholar
• Williams C, Wood RL. The impact of alexithymia on relationship quality and satisfaction following traumatic brain injury. J Head Trauma Rehabil. 2013;28(5):E21–E30.
   PubMed Web of Science ®Google Scholar
• Peters LC, Stambrook M, Moore AD, Zubek E, Dubo H, Blumenschein S. Differential effects of spinal cord injury and head injury on marital adjustment. Brain Inj. 1992;6(5):461–67.
   PubMedGoogle Scholar
• Urbach JR, Culbert JP. Head-injured parents and their children: psychosocial consequences of a traumatic syndrome. Psychosomatic. 1991;32:24–33.
   PubMed Web of Science ®Google Scholar
• Butera-Prinzi F, Perlesz A. Through children’s eyes: children’s experience of living with a parent with an acquired brain injury. Brain Inj. 2004;18(1):83–101.
   PubMed Web of Science ®Google Scholar
• Kieffer-Kristensen R, Johansen KLG. Hidden loss: a qualitative explorative study of children living with a parent with acquired brain injury. Brain Inj. 2013;27(13–14):1562–69.
   PubMed Web of Science ®Google Scholar
• Kieffer-Kristensen R, Siersma VD, Teasdale TW. Family matters: parental-acquired brain injury and child functioning. NeuroRehabilitation. 2013;32:59–68.
   PubMed Web of Science ®Google Scholar
• Hagen C, Malkmuss D, Durham P. Cognitive assessment and goal setting. Levels of cognitive functioning. Downey: Professional Staff Association of Rancho Los Amigos Hospital; 1979.
   Google Scholar
• Ainsworth MD, Bell SM. Attachment, exploration and separation: illustrated by behaviour of one-years-old in a strange situation. Child Dev. 1970;41:49–67.
   PubMed Web of Science ®Google Scholar
• Van der Kolk B. The complexity of adaptation to trauma: self-regulation, stimulus discrimination and characterological development. In: Van der Kolk AC, McFarlane L, Weisaeth, editors. Traumatic stress: the effects of overwelming experience on mind, body, and society. New York: Guilford; 1996. p. 182–213.
   Google Scholar
• World Health Organization. The ICD-10 classification of mental and behavioural disorders: clinical descriptions and diagnostic guidelines. Geneva: World Health Organization; 1992.
   Google Scholar
• Camuffo M, Cerutti R, Lucarelli L, Mayer R. Children’s depression inventory. Firenze: Organizzazioni Speciali; 1988.
   Google Scholar
• Apolone G, Mosconi P. The Italian SF-36 Health Survey: translation, validation and norming. J Clin Epidemiol. 1998;51(11):1025–36.
   PubMed Web of Science ®Google Scholar
• Novak M, Guest C. Application of a multidimensional caregiver burden inventory. Gerontologist. 1989;29(6):798–803.
   PubMed Web of Science ®Google Scholar
• Gentili P, Contreras L, Cassaniti M, D’Arista F. La Dyadic adjustment scale. Una misura dell’adattamento di coppia. Miner Psichiatr. 2002;43(2):107–16.
   Google Scholar
• Perrin S, Meiser-Stedman R, Smith P. The children’s revised impact of event scale (CRIES): validity as a screening instrument for PTSD. Behav Cogn Psychother. 2005;33(04):487–98.
   Web of Science ®Google Scholar
• Bibby H, McDonald S. Theory of mind after traumatic brain injury. Neuropsychologia. 2005;43(1):99–114.
   PubMed Web of Science ®Google Scholar
• Ubukata S, Tanemura R, Yoshizumi M, Sugihara G, Murai T, Ueda K. Social cognition and its relationship to functional outcomes in patients with sustained acquired brain injury. Neuropsychiatr Dis Treatm. 2014;10:2061–68.
   PubMed Web of Science ®Google Scholar
• Bivona U, Formisano R, De Laurentiis S, Accetta N, Di Cosimo MR, Massicci R, Ciurli P, Azicnuda E, Silvestro D, Sabatini U, et al. Theory of mind impairment after severe traumatic brain injury and its relationship with caregivers’ quality of life. Restorat Neurol Neurosci. 2015;33(3):335–45.
   PubMed Web of Science ®Google Scholar
• Visser A, Huizinga GA, Van der Graaf WT, Hoekstra HJ, Hoekstra-Weebers JE. The impact of parental cancer on children and the family: a review of the literature. Cancer Treatm Rev. 2004;30(8):683–94.
   PubMed Web of Science ®Google Scholar
• Budson AE, Price BH. Memory dysfunction. N Engl J Med. 2005;352(7):692–99.
   PubMed Web of Science ®Google Scholar
• Prigatano GP, Schacter DL. Introduction. In: Prigatano GP, Schacter DL, editors. Awareness of deficit after brain injury: clinical and theoretical issues. New York: Oxford University Press; 1991. p. 3–16.
   Google Scholar
• Harding R, Gao W, Jackson D, Pearson C, Murray J, Higginson IJ. Comparative analysis of informal caregiver burden in advanced cancer, dementia, and acquired brain injury. J Pain Sympt Manage. 2015;50(4):445–52.
   PubMed Web of Science ®Google Scholar
• Doser K, Norup A. Caregiver burden in Danish family members of patients with severe brain injury: the chronic phase. Brain Inj. 2016;1:1–9.
   Google Scholar
• Oddy JGM. Rearranged marriages: marital relationships after head injury. Brain Inj. 1999;13(10):785–96.
   PubMed Web of Science ®Google Scholar
• Gill CJ, Sander AM, Robins N, Mazzei D, Struchen MA. Exploring experiences of intimacy from the viewpoint of individuals with traumatic brain injury and their partners. J Head Trauma Rehabil. 2011;26(1):56–68.
   PubMed Web of Science ®Google Scholar
• Perlesz A, Kinsella G, Crowe S. Impact of traumatic brain injury on the family: a critical review. Rehabil Psychol. 1999;44:6–35.
   Web of Science ®Google Scholar