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Articles

Access to health services for moderate to severe TBI in Indiana: patient and caregiver perspectives

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Pages 1510-1517 | Received 11 Aug 2017, Accepted 09 Jul 2018, Published online: 23 Jul 2018

References

  • deGuise E, leBlanc J, Feyz M, Meyer K, Duplantie J, Thomas H, Abouassaly M, Champoux M, Couturier C, Lin H, et al. Long-term outcomes after severe traumatic brain injury: the Mcgill interdisciplinary prospective study. J Head Trauma Rehabil. 2008; 23: 294–393.
  • Pugh MJ, Finley EP, Wang CP, Copeland LA, Jaramillo CA, Swan AA, Elnitsky CA, Leykum LK, Mortensen EM, Eapen BA, et al. A retrospective cohort study of comorbidity trajectories associated with traumatic brain injury in veterans of the Iraq and Afghanistan wars. Brain Inj. 2016; 30: 1481–90.
  • Brooks JC, Shavelle RM, Strauss DJ, Hammond FM, Harrison-Felix CL. Long-term survival after traumatic brain injury part II: life expectancy. Arch Phys Med Rehabil. 2015; 96: 1000–05.
  • Grauwmeijer E, Heijenbrok-Kal MH, Haitsma IK, Ribbers GM. A prospective study on employment outcome 3 years after moderate to severe traumatic brain injury. Arch Phys Med Rehabil. 2012; 93: 993–99.
  • Andelic N, Sigurdardottir S, Arango-Lasprilla JC, Godbolt AK. Long term functional and psychological consequences and health care provisions after traumatic brain injury. Behav Neurol. 2016. 1–3.
  • Reis C, Wang Y, Akyol O, Ho WM, Li RA, Stier G, Martin R, Zhang JH. What’s new in traumatic brain injury: update on tracking, monitoring and treatment. Int J Mol Sci. 2015; 16: 11903–65.
  • Stocchetti N, Zanier ER. Chronic impact of traumatic brain injury on outcome and quality of life: A narrative review. Crit Care. 2016; 20: 148.
  • Callender L, Brown R, Driver S, Dahdah M, Collinsworth A, Shafi S. Process for developing rehabilitation practice recommendations for individuals with traumatic brain injury. BMC Neurol. 2017; 17: 54.
  • Dismuke CE, Walker RJ, Egede LE. Utilization and cost of health services in individuals with traumatic brain injury. Glob J Health Sci. 2015; 7: 156–69.
  • Schatz P, Hughes LJ, Chute DL. Underutilization of neuropsychology in traumatic brain injury rehabilitation: is managed care to blame? NeuroRehabilitation. 2001; 16: 281–87.
  • Selassie AW, Pickelsimer EE, Frazier L, Ferguson PL. The effect of insurance status, race, and gender on ed disposition of persons with traumatic brain injury. Am J Emerg Med. 2004; 22: 465–73.
  • Shigaki CL, Johnstone B, Schopp LH. Financial and vocational outcomes 2 years after traumatic brain injury. Disabil Rehabil. 2009; 31: 484–89.
  • Taylor CA, Bell JM, Breiding MJ, Xu L. Traumatic brain injury-related emergency department visits, hospitalizations, and deaths-United States, 2007 and 2013. MMWR Surveill Summ. 2017; 66: 1–16.
  • related emergency department visits, hospitalizations, and deaths-United States. and 2013. MMWR Surveill Summ. 2007. 2017(66): 1–16.
  • Solovieva TI, Walls RT. Barriers to traumatic brain injury services and supports in rural settings. J Rehabil. 2014; 80: 10–18.
  • Harrison AL, Hunter EG, Thomas H, Brody P, Stokes E, Kitzman P. Living with traumatic brain injury in a rural setting: supports and barriers across the continuum of care. Disabil Rehabil. 2017. 2071–2080.
  • Johnstone B, Nossaman LD, Schopp LH, Holmquist L, Rupright SJ. Distribution of services and supports for people with traumatic brain injury in rural and urban Missouri. J Rural Health. 2002; 18: 109–17.
  • Jennekens N, deCasterle BD, Dobbels F. A systematic review of care needs of people with traumatic brain injury (TBI) on a cognitive, emotional and behavioral level. J Clin Nurs. 2010; 19: 1198–206.
  • Coffey NT, Cassese J. Identifying and understanding the health information experiences and preferences of caregivers of individuals with either traumatic brain injury, spinal cord injury, or brain injury: A qualitative investigation. J Med Internet Res. 2017; 19(5): e159.
  • Dillahunt-Asprillaga C, Jorgensen-Smith T, Ehlke S, Sosinski M, Monroe D, Thor J. Traumatic brain injury: unmet support needs of caregivers and families in Florida. PLoS One. 2013; 8(12): e82896.
  • Kirk S, Fallon D, Fraser C, Robinson G, Vassallo G. Supporting parents following childhood traumatic brain injury: A qualitative study to examine information and emotinal support needs across key care transitions. Child Care Health Dev. 2015; 41(2): 303–13.
  • Corrigan JD, Hammond FM. Traumatic brain injury as a chronic health condition. Arch Phys Med Rehabil. 2013; 94: 1199–201.
  • Masel BE, DeWitt DS. Traumatic brain injury: A disease process, not an event. J Neurotrauma. 2010; 27: 1529–40.
  • Bernard HR. Research methods in anthropology: qualitative and quantitative approaches. Fifth Edition. UK: Alta Mira Press; 2011.
  • Kadushin C. Power, influence and social circles: A new methodology for studying opinion makers. American Sociological Review. 1968; 33(5): 685–99. http://www.jstor.org/stable/2092880
  • Corrigan JD, Bogner J. Initial reliability and validity of the Ohio State University TBI identification method. J Head Trauma Rehabil. 2007; 22: 318–29.
  • Atlas.ti Scientific Software Development GmbH. Atlas.ti (Version 6) [Computer software]. Berlin. 2010.
  • Clandinin DJ, Connelly FM. Narrative inquiry: experience and story in qualitative research. San Francisco; Jossey-Bass. Google Scholar: 2000.
  • Charmaz K. Constructing ground theory. London; Sage: 2006.
  • Mills J, Bonner A, Francis K. Adopting a constructivist approach to ground theory: implications for research design. Int J Nurs Pract. 2006; 12: 8–13.
  • Auerbach C, Silverstein LB. Qualitative data: an introduction to coding and analysis. (qualitative studies in psychology) New York: New York University Press. Google Scholar; 2003.
  • Saldana J. The coding manual for qualitative researchers. Thousand Oaks, CA; SAGE: 2009.
  • Guest G, MacQueen KM, Namey EE. Applied thematic analysis. Thousand Oaks, CA; SAGE: 2012.
  • Briks M. Mills. Grounded theory: A practical guide. Los Angeles; SAGE. Google Scholar: 2001.
  • Suter WN. Introduction to educational research: A critical thinking approach. 2nd. Thousand Oaks, CA: Sage; 2012.
  • Indiana State Department of Health (ISDH). Web Site. http://www.in.gov.isdh/24972.htm. Accessed April 21, 2017
  • Trexler L Brain injury services in Indiana: Bringing Hoosiers home. Presentation. https://www.in.gov.isdh/files/Brain_Injury_Services_in_Indiana-Presentation_to_Legislative_Committee-August_2011.pdf. Published 2011. Accessed April 21, 2017.
  • McLean AM, Koopang J. Behavioral caregiving for adults with traumatic brain injury living in nursing homes: developing a practice model. JTCT. 2010; 14(1): 17–22.
  • Hamilton County Express Rider’s Guide. Hamilton County Express. 2016; Web Site. http://www.janus-inc.org/system/spud_media/246/original/hamilton_county_express_riders_guide_version_2016-10-07.pdf?14761213129 Accessed April 21,2017
  • Murphy J. Care of patients with traumtaic brain injury. Urban versus rural challenges. Topics in Emergency Management. 2004; 26(3): 231–36.
  • Spearman RC, Stamm BH, Tivis LJ. Traumatic brain injury state planning grant: preparing for change in a rural state. Brain Injury. 2007; 21(8): 837–49.
  • Corrigan JD. Conducting statewide needs assessments for persons with traumatic brain injury. J Head Trauma Rehabil. 2001; 16(1): 1–19.
  • Honeybul S, Woods P. Initial management of traumatic brain injury in the rural setting. J Neurosci Rural Pract. 2013; 4: 33–38.
  • M S J, Helmick KM, Girard PD, Meyer KS, Dinegar K, George K. Acute clinical care and care coordination for traumatic brain injury within Department of Defense. J Rehabil Res & Dev. 2009; 46(6): 655–65.

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