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Articles

Interventions to address burden among family caregivers of persons aging with TBI: A scoping review

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Pages 255-265 | Received 08 Mar 2018, Accepted 25 Nov 2018, Published online: 30 Nov 2018

References

  • Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist. 1986;26(3):260–66.
  • Ponsford J, Olver J, Ponsford M, Nelms R. Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Inj. 2003;17(6):453–68. doi:10.1080/0269905031000070143.
  • Kolakowsky-Hayner SA, Miner KD, Kreutzer JS. Long‐term life quality and family needs after traumatic brain injury. J Head Trauma Rehabil. 2001;16(4):374–85.
  • Manskow US, Friborg O, Røe C, Braine M, Damsgard E, Anke A. Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study. Neuro Rehabilitation. 2016;40(2):1–12.
  • Vogler J, Klein AM, Bender A. Long-term health-related quality-of-life in patients with acquired brain injury and their caregivers. Brain Inj. 2014;28(11):1381–88. doi:10.3109/02699052.2014.919536.
  • Sayed N, Culver C, Dams-O’Connor K, Hammond F, Diaz-Arrastia R. Clinical phenotype of dementia after traumatic brain injury. J Neurotrauma. 2013;30(13):1117–22. doi:10.1089/neu.2012.2638.
  • Wang HK, Lin SH, Sung PS, Wu MH, Hung KW, Wang LC, Tsai KJ. Population based study on patients with traumatic brain injury suggests increased risk of dementia. J Neurol Neurosurg. 2012;83(11):1080–85. doi:10.1136/jnnp-2012-302633.
  • Nemetz PN, Leibson C, Naessens JM, Beard M, Kokmen E, Annegers JF, Kurland LT. Traumatic brain injury and time to onset of Alzheimer’s disease: a population-based study. Am J Epidemiol. 1999;149(1):32–40.
  • Hibbard MR, Uysal S, Sliwinski M, Gordon W. Undiagnosed health issues in individuals with traumatic brain injury living in the community. J Head Trauma Rehabil. 1998;13(4):47–57.
  • Baker A, Barker S, Sampson A, Martin C. Caregiver outcomes and interventions: a systematic scoping review of the traumatic brain injury and spinal cord injury literature. Clin Rehabil. 2016;31(1):45–60. doi:10.1177/0269215516639357.
  • Arksey H, O’Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32. doi:10.1080/1364557032000119616.
  • Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69–78. doi:10.1186/1748-5908-5-69.
  • Moher D, Liberati A, Tetzlaff J, Altman DG, PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Int J Surg. 2010;8(5):336–41. doi:10.1016/j.ijsu.2010.02.007.
  • Deeks JJ, Higgins JP, Altman DG, Green S. Cochrane handbook for systematic reviews of interventions. Version 5.1. 0 [updated March 2011]. The Cochrane Collaboration, London, UK; 2011.
  • Veritas Health Innovation. Covidence systematic review software. Melbourne, Australia; 2016. www.covidence.org
  • Ackley BJ, Swan BA, Ladwig G, Tucker S. Evidence-based nursing care guidelines: medical-surgical interventions. St. Louis, MO: Mosby Elsevier; 2008. p. 7.
  • Qualtrics. Version February 2018 [online survey platform]. Provo, Utah: Qualtrics; 2005. http://www.qualtrics.com.
  • QSR International. NVivo Qualitative Data Analysis Software. Version 10; 2012.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–12. doi:10.1016/j.nedt.2003.10.001.
  • Altman DG. Practical statistics for medical research. London: Chapman and Hall; 1991.
  • Kreutzer J, Kolakowsky-Hayner S, Demm S, Meade M. A structured approach to family intervention after brain injury. J Head Trauma Rehabil. 2002;14(4):349–67. doi:10.1097/00001199-200208000-00008.
  • Minnes P, Woodford L, Carlson P, Johnston J, McColl MA. The needs of aging parents caring for an adult with acquired brain injury. Can J Aging. 2010;29(02):185–92. doi:10.1017/S0714980810000103.
  • Tam S, McKay A, Sloan S, Ponsford J. The experience of challenging behaviours following severe TBI: a family perspective. Brain Inj. 2015;29(7–8):813–21. doi:10.3109/02699052.2015.1005134.
  • Smith J, Smith DL. No map, no guide: family caregivers’ perspectives on their journeys through the system. Care Manag J. 2000;2(1):27–33.
  • Stebbins P, Leung P. Changing family needs after brain injury. J Rehabil. 1998;64(4):15–22.
  • Stejskal TM. Removing barriers to rehabilitation: theory-based family intervention in community settings after brain injury. Neuro Rehabilitation. 2012;31(1):75–83. doi:10.3233/NRE-2012-0776.
  • Suzuki Y. Mental health services and related factors in health care of traumatic brain injury survivors. Cogent Med. 2017;4:1. doi:10.1080/2331205X.2016.1273568.
  • Fujii D, Hanes SS, Kokuni Y. Family intervention in the rehabilitation and community reintegration of individuals with brain injury. J Cogn Rehabilitation. 1996;14(2):6–10.
  • Palmisano B, Arco L. Changes in functional behaviour of adults with brain injury and spouse-caregiver burden with in-home neurobehavioural intervention. Behav Change. 2007;24(01):36–49. doi:10.1375/bech.24.1.36.
  • Hernandez H, Scholten J, Moore E. Home clinical video telehealth promotes education and communication with caregivers of veterans with TBI. Telemed e-Health. 2015;21(9):761–66. doi:10.1089/tmj.2014.0155.
  • Tramonti F, Bongioanni P, Bonfiglio L, Rossi B, Carboncini MC. Systemic-oriented psychological counselling for caregivers of people with severe brain injury: reflections on a clinical case. Contemp Fam Ther. 2017;39(2):73–79. doi:10.1007/s10591-017-9405-2.
  • Jones SL. The association between objective and subjective caregiver burden. Arch Psychiatr Nurs. 1996;10(2):77–84.
  • Degeneffe CE, Boot D, Kuehne J, Kuraishi A, Maristela FD, Noyes J, … Will H. Community-based interventions for persons with traumatic brain injury: a primer for rehabilitation counselors. J Appl Rehab Couns. 2008;39(1):42–52.
  • Jacobs HE, DeMello C. The clubhouse model and employment following brain injury. J Vocat Rehabil. 1996;7(3):169–79. doi:10.1016/1052-2263(96)00219-X.
  • Shields C, Ownsworth T, O’Donovan A, Fleming J. A transdiagnostic investigation of emotional distress after traumatic brain injury. Neuropsychol Rehabil. 2016 May 3;26(3):410–45. doi:10.1080/09602011.2015.1037772.

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