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Reviews

A scoping review of the needs of children and young people with acquired brain injuries and their families

ORCID Icon, ORCID Icon &
Pages 1117-1128 | Received 07 Nov 2018, Accepted 25 Jun 2019, Published online: 07 Jul 2019

References

  • The United Kingdom Acquired Brain Injury Forum. Life After Brain Injury - A Way Forward: manifesto for Children and Young People with Acquired Brain Injury. The United Kingdom Acquired Brain Injury Forum; 2013. [cited 2018 Apr 20]; Available from: https://www.ukabif.org.uk/campaigns/.
  • NHS England. 2013.2014 NHS Standard Contract for Paediatric Neurosciences: neurorehabilitation Section B Part 1 - Service Specifications. London: NHS England; 2013. [cited 2017 Mar 03]; Available from: https://www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurorehabilitation.pdf.
  • de Kloet A, Hilberink S, Roebroeck M, Catsman-Berrevoets C, Peeters E, Lambregts S, van Markus-Doornbosch V, Vlieland TP. Youth with acquired brain injury in The Netherlands: A multi-centre study. Brain Injury. 2013;27(7–8):843–49. doi:10.3109/02699052.2013.775496.
  • Manning J, Hemingway P, Redsell S. Long-term psychosocial impact reported by childhood critical illness survivors: a systematic review. Nurs Crit Care. 2014;19(3):145–56. doi:10.1111/nicc.12049.
  • Hayes L, Shaw S, Pearce M, Forsyth R. Requirements for and current provision of rehabilitation services for children after severe acquired brain injury in the UK: a population-based study. Arch Dis Child. 2017;102:813–20. doi:10.1136/archdischild-2016-312166.
  • Aitken ME, McCarthy ML, Slomine BS, Ding R, Durbin DR, Jaffe KM, Paidas CN, Dorsch AM, Christensen JR, Mackenzie EJ, CHAT Study Group. Family burden after traumatic brain injury in children. Pediatrics. 2009;123(1):199–206. doi:10.1542/peds.2008-0607.
  • Andersson K, Bellon M, Walker R. Parents’ experiences of their child’s return to school following acquired brain injury (ABI): A systematic review of qualitative studies. Brain Injury. 2016;30(7):829–38. doi:10.3109/02699052.2016.1146963.
  • Gordon A, Di Maggio A. Rehabilitation for Children After Acquired Brain Injury: current and Emerging Approaches. Pediatr Neurol. 2012;46:339–44. doi:10.1016/j.pediatrneurol.2012.02.029.
  • Popernack M, Gray N, Reuter-Rice K. Moderate-to-Severe Traumatic Brain Injury in Children: complications and Rehabilitation Strategies. J Pediatr Health Care. 2015;29(3):e1–e7. doi:10.1016/j.pedhc.2014.09.003.
  • Kirk S, Fallon D, Fraser C, Robinson G, Vassallo G. Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions. Child Care Health Dev. 2015;41(2):303–13. doi:10.1111/cch.12173.
  • Limond J, Dorris L, McMillan T. Quality of life in children with acquired brain injury: parent perspectives 1-5 years after injury. Brain Injury. 2009;23(7–8):617–22. doi:10.1080/02699050902997870.
  • Hamilton C, Maw A, Gill A, Brahmbhatt M, Phaal R, Pickard J. Paediatric neurorehabilitation: finding and filling the gaps through the use of the Institute for Manufacturing strategic road mapping method. BMJ Innovations. 2017;3:137–143.
  • NHS England. Commissioning Guidance for Rehabilitation. NHS England; 2016. [cited 2017 Jan 17]; Available from: www.england.nhs.uk/wp-content/uploads/2016/04/rehabilitation-comms-guid-16-17.pdf.
  • Chevignard M, Toure H, Brugel D, Poirier J, Laurent-Vannier A. A comprehensive model of care for rehabilitation of children with acquired brain injuries. Child Care Health Dev. 2009;36(1):31–43. doi:10.1111/j.1365-2214.2009.00949.x.
  • Colquhoun H, Levac D, O’Brien K, Straus S, Tricco A, Perrier L, Kastner M, Moher D. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67:1291–94. doi:10.1016/j.jclinepi.2014.03.013.
  • Peters M, Godfrey C, McInerney P, Baldini Soares C, Khalil H, Parker D. Chapter 11: Scoping Reviews. In: Aromataris E, Munn Z, editors. Joanna Briggs Institute Reviewer’s Manual. The Joanna Briggs Institute, 2017. Available from: https://reviewersmanual.joannabriggs.org/.
  • Gagnon I, Swaine B, Champagne F, Lefebvre H. Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury. Brain Injury. 2008;22(2):161–73. doi:10.1080/02699050701867381.
  • Jones S, Davis N, Tyson S. A scoping review of the needs of children and other family members after a child’s traumatic injury. Clin Rehabil. 2018;32(4):501–11. doi:10.1177/0269215517736672.
  • Slomine BS, McCarthy ML, Ding R, MacKenzie EJ, Jaffe KM, Aitken ME, Durbin DR, Christensen JR, Dorsch AM, Paidas CN; CHAT Study Group. Health care utilization and needs after pediatric traumatic brain injury. Pediatrics. 2006; 117(4):e663–74. doi:10.1542/peds.2005-1892.
  • Greenspan A, MaCkenzie E. Use and need for post-acute services following paediatric head injury. Brain Injury. 2000;14(5):417–29.
  • Hartman LR, Duncanson M, Farahat SM, Lindsay S. Clinician and educator experiences of facilitating students’ transition back to school following acquired brain injury: A qualitative systematic review. Brain Injury. 2015;29(12):1387–99. doi:10.3109/02699052.2015.1071431.
  • McKinlay A, Linden M, DePompei R, Jonsson CA, Anderson V, Braga L, Castelli E, de Koning P, Hawley CA, Hermans E, et al. Service provision for children and young people with acquired brain injury: practice recommendations. Brain Injury. 2016;30(13–14):1656–64. doi:10.1080/02699052.2016.1201592.
  • Savage R, Depompei R, Tyler J, Lash M. Paediatric traumatic brain injury: A review of pertinent issues. Pediatr Rehabil. 2005;8(2):92–103.
  • Aukema EJ, Last BF, Netteke Schouten-van Meeteren AY, Grootenhuis MA. Explorative study on the aftercare of pediatric brain tumour survivors: a parents’ perspective. Support Care Cancer. 2011;19:1637–46. doi:10.1007/s00520-010-0995-6.
  • Gfroerer SD, Wade SL, Wu M. Parent perceptions of school-based support for students with traumatic brain injuries. Brain Injury. 2008;22(9):649–56. doi:10.1080/02699050802227162.
  • Glang A, Todis B, Thomas CW, Hood D, Bedell G, Cockrell J. Return to school following childhood TBI: who gets services?. Neurorehabilitation. 2008;23(6):477–86.
  • Hawley C, Ward A, Magnay A, Mychalkiw W. Return to school after brain injury. Arch Dis Child. 2004;89:136–42. doi:10.1136/adc.2002.025577.
  • Hermans E, Winkens I, Winkel-Witlox ST, van Iperen A. Caregiver reported problems of children and families 2-4 years following rehabilitation for pediatric brain injury. Neurorehabilitation. 2012;30(3):213–17. doi:10.3233/NRE-2012-0747.
  • Jackson AC, Stewart H, O’Toole M, Tokatlian N, Enderby K, Miller J, Ashely D. Pediatric brain tumor patients: their parents’ perceptions of the hospital experience. J Pediatr Oncol Nurs. 2007;24(2):95–105. doi:10.1177/1043454206296030.
  • Karver CL, Kurowski B, Semple EA, Stancin T, Taylor HG, Yeates KO, Walz NC, Wade SL. Utilization of behavioral therapy services long-term after traumatic brain injury in young children. Arch Phys Med Rehabil. 2014;95(8):1556–63. doi:10.1016/j.apmr.2014.03.030.
  • Manning J, Hemingway P, Redsell S. Survived so what? Identifying priorities for research with children and families post-paediatric intensive care unit. Nurs Crit Care. 2017;23(2). doi:10.1111/nicc.12298
  • Massey S, Fisher K, Croker A, Smith T. Collaboration across the health care and education interface: what is it like for teachers of children with traumatic brain injury?. Aust J Prim Health. 2015;21(1):74–78. doi:10.1071/PY13035.
  • Roscigno CI, Swanson KM, Vavilala MS, Solchany J. Longing for everydayness: life after traumatic brain injury in children. Brain Injury. 2011;25(9):882–94. doi:10.3109/02699052.2011.581638.
  • Roscigno C, Swanson K. Parents’ experiences following children’s moderate to severe traumatic brain injury: A clash of cultures. Qual Health Res. 2011;21(10):1413–26. doi:10.1177/1049732311410988.
  • Roscigno CI, Fleig DK, Knafl KA. Parent management of the school reintegration needs of children and youth following moderate or severe traumatic brain injury. Disability Rehabil. 2015;37(6):523–33. doi:10.3109/09638288.2014.933896.
  • Soanes L, Hargrave D, Smith L, Gibson F. What are the experiences of the child with a brain tumour and their parents?. Eur J Oncol Nurs. 2009;13(4):255–61. doi:10.1016/j.ejon.2009.03.009.
  • Soo C, Tate RL, Williams L, Waddingham S, Waugh MC. Development and validation of the Paediatric Care and Needs Scale (PCANS) for assessing support needs of children and youth with acquired brain injury. Dev Neurorehabil. 2008;11(3):204–14. doi:10.1080/17518420802259498.
  • Swaine BR, Gagnon I, Champagne F, Lefebvre H, Friedman D, Atkinson J, Feldman D. Identifying the specific needs of adolescents after a mild traumatic brain injury: a service provider perspective. Brain Injury. 2008;22(7–8):581–88. doi:10.1080/02699050802189701.
  • Vilela T, Phillips M, Minnes P. A comparison of challenges faced by parents of children with ABI with and without access to third party funding. Dev Neurorehabil. 2008;11(2):149–58. doi:10.1080/17518420701780115.
  • World Health Organisation. Towards a Common Language for Functioning, Disability and Health - ICF. Geneva: World Health Organisation; 2002.
  • World Health Organisation. Adolescent Health 2018 [ Online]. [cited 2018 July 02]; Available from: http://www.who.int/topics/adolescent_health/en/.
  • Boylan A, Linden M, Alderdice F. Interviewing children with Acquired Brain Injury (ABI). J Early Child Res. 2009;7(3):264–82. doi:10.1177/1476718X09336970.
  • O’Reilly M, Ronzoni P, Dogra N. Research with Children: theory and Practice. London: SAGE Publications Ltd; 2013.
  • Bedell GM, Dumas HM. Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: a follow-up study. Brain Injury. 2004;18(1):65–82. doi:10.1080/0269905031000110517.
  • Galvin J, Froude E, McAleer J. Children’s participation in home, school and community life after acquired brain injury. Aust Occup Ther J. 2010;57:118–26. doi:10.1111/j.1440-1630.2009.00822.x.
  • van Heugten C, Renaud I, Resch C. The role of early intervention in improving the level of activities and participation in youths after mild traumatic brain injury: a scoping review. Concussion. 2017;2:3. doi:10.2217/cnc-2016-0030.
  • Pearson A, White H, Bath-Hextall F, Apostolo J, Salmond S, Kirkpatrick P The Joanna Briggs Institute Reviewers’ Manual 2014: methodology for JBI Mixed Methods Systematic Reviews. The Joanna Briggs Institute; 2014.

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