407
Views
3
CrossRef citations to date
0
Altmetric
Articles

Volunteering and its association with participation and life satisfaction following traumatic brain injury

ORCID Icon, , , &
Pages 52-61 | Received 29 Apr 2019, Accepted 09 Oct 2019, Published online: 16 Oct 2019

References

  • Whiteneck G, Dijkers MP. 2009. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil. 90(11 Suppl):S22–35. doi:10.1016/j.apmr.2009.06.009.
  • Bogner JA, Whiteneck GG, Corrigan JD, Lai JS, Dijkers MP, Heinemann AW. 2011. Comparison of scoring methods for the participation assessment with recombined tools-objective. Arch Phys Med Rehabil. 92(4):552–63. doi:10.1016/j.apmr.2010.11.014.
  • Arciniegas DB, Held K, Wagner P. Cognitive impairment following traumatic brain injury. Curr Treat Options Neurol. 2002;4(1):43–57.
  • Corrigan JD, Cuthbert JP, Harrison-Felix C, Whiteneck GG, Bell JM, Miller AC, Coronado VG, Pretz CR. 2014. US population estimates of health and social outcomes 5 years after rehabilitation for traumatic brain injury. J Head Trauma Rehabil. 29(6):E1–9. doi:10.1097/HTR.0000000000000020.
  • Doig E, Fleming J, Tooth L. 2001. Patterns of community integration 2-5 years post-discharge from brain injury rehabilitation. Brain Inj. 15(9):747–62. doi:10.1080/02699050110034343.
  • Dijkers MP. Quality of life after traumatic brain injury: a review of research approaches and findings. Arch Phys Med Rehabil. 2004;85:21–35. doi:10.1016/j.apmr.2003.08.119.
  • Morton MV, Wehman P. 1995. Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations. Brain Inj. 9(1):81–92. doi:10.3109/02699059509004574.
  • Diener E, Emmons RA, Larsen RJ, Griffin S. 1985. The satisfaction with life scale. J Pers Assess. 49(1):71–75. doi:10.1207/s15327752jpa4901_13.
  • Corrigan JD, Kolakowsky-Hayner S, Wright J, Bellon K, Carufel P. 2013. The satisfaction with life scale. J Head Trauma Rehabil. 28(6):489–91. doi:10.1097/HTR.0000000000000004.
  • Whiteneck GG, Cuthbert JP, Corrigan JD, Bogner JA. 2016. Risk of negative outcomes after traumatic brain injury: a statewide population-based survey. J Head Trauma Rehabil. 31(1):E43–54. doi:10.1097/HTR.0000000000000141.
  • Johansson U, Bernspang B. Life satisfaction related to work re-entry after brain injury: a longitudinal study. Brain Inj. 2003;17(11):991–1002.
  • Tsaousides T, Warshowsky A, Ashman TA, Cantor JB, Spielman L, Gordon WA. The relationship between employment-related self-efficacy and quality of life following traumatic brain injury. Rehabil Psychol. 2009;54(3):299.doi:10.1037/a0016807.
  • Juengst SB, Adams LM, Bogner JA, Arenth PM, O’Neil-Pirozzi TM, Dreer LE, Hart T, Bergquist TF, Bombardier CH, Dijkers MP, et al. Trajectories of life satisfaction after traumatic brain injury: influence of life roles, age, cognitive disability, and depressive symptoms. Rehabil Psychol. 2015;60(4):353–64. doi:10.1037/rep0000056.
  • Corrigan JD, Bogner JA, Mysiw WJ, Clinchot D, Fugate L. Life satisfaction after traumatic brain injury. J Head Trauma Rehabil. 2001;16(6):543–55.
  • Resch JA, Villarreal V, Johnson CL, Elliott TR, Kwok O-M, Berry JW, Underhill AT. 2009. Trajectories of life satisfaction in the first 5 years following traumatic brain injury. Rehabil Psychol. 54(1):51–59. doi:10.1037/a0015051.
  • Williamson ML, Elliott TR, Bogner J, Dreer LE, Arango-Lasprilla JC, Kolakowsky-Hayner SA, Pretz CR, Lequerica A, Perrin PB. 2016. Trajectories of life satisfaction over the first 10 years after traumatic brain injury: race, gender, and functional ability. J Head Trauma Rehabil. 31(3):167–79. doi:10.1097/HTR.0000000000000111.
  • McLean AM, Jarus T, Hubley AM, Jongbloed L. 2014. Associations between social participation and subjective quality of life for adults with moderate to severe traumatic brain injury. Disabil Rehabil. 36(17):1409–18. doi:10.3109/09638288.2013.834986.
  • Kalpakjian CZ, Lam CS, Toussaint LL, Hansen Merbitz NK. 2004. Describing quality of life and psychosocial outcomes after traumatic brain injury. Am J Phys Med Rehabil. 83(4):255–65. doi:10.1097/01.Phm.0000118033.07952.8c.
  • Erler KS, Juengst SB, Whiteneck GG, Locascio JJ, Bogner JA, Kaminski J, Giacino JT. 2018. The association of rehospitalization with participation 5 years after traumatic brain injury. J Head Trauma Rehabil. 33(6):E77–E84. doi:10.1097/HTR.0000000000000386.
  • Underhill AT, Lobello SG, Stroud TP, Terry KS, Devivo MJ, Fine PR. Depression and life satisfaction in patients with traumatic brain injury: a longitudinal study. Brain Inj. 2003;17(11):973–82.
  • O’Neil-Pirozzi TM, Ketchum JM, Hammond FM, Philippus A, Weber E, Dams-O’Connor K. 2018. Physical, cognitive, and psychosocial characteristics associated with mortality in chronic TBI survivors: a National Institute on disability, independent living, and rehabilitation research traumatic brain injury model systems study. J Head Trauma Rehabil. 33(4):237–45. doi:10.1097/HTR.0000000000000365.
  • United States Department of Labor. Volunteering in the United States, 2015. Bureau of Labor Statistics, Statistics BoL; 2016. Contract No.: USDL-16-0363.
  • Jenkinson CE, Dickens AP, Jones K, Thompson-Coon J, Taylor RS, Rogers M, Bambra CL, Lang I, Richards SH. 2013. Is volunteering a public health intervention? A systematic review and meta-analysis of the health and survival of volunteers. BMC Public Health. 13(1):773. doi:10.1186/1471-2458-13-773.
  • Greenfield EA, Marks NF. Formal volunteering as a protective factor for older adults’ psychological well-being. J Gerontol Ser B. 2004;59(5):S258–S64.doi:10.1093/geronb/59.5.S258.
  • Parisi JM, Kuo J, Rebok GW, Xue QL, Fried LP, Gruenewald TL, Huang J, Seeman TE, Roth DL, Tanner EK, et al. Increases in lifestyle activities as a result of experience Corps(R) participation. J Urban Health. 2015;92(1):55–66. doi:10.1007/s11524-014-9918-z.
  • Yuen HK, Burik J, Krause J. 2004. Physical and psychosocial well-being among adults with spinal cord injury: the role of volunteer activities. Top Spinal Cord Inj Rehabil. 9(4):19–25. doi:10.1310/ckwu-xnmc-c6aa-p2vm.
  • Lindsay S. 2016. A scoping review of the experiences, benefits, and challenges involved in volunteer work among youth and young adults with a disability. Disabil Rehabil. 38(16):1533–46. doi:10.3109/09638288.2015.1107634.
  • Ouellet MC, Morin CM, Lavoie A. 2009. Volunteer work and psychological health following traumatic brain injury. J Head Trauma Rehabil. 24(4):262–71. doi:10.1097/HTR.0b013e3181a68b73.
  • Payne L, Hawley L, Ketchum JM, Philippus A, Sevigny M, Harrison-Felix C, Diener E Improving well-being after traumatic brain injury through volunteering: a randomized controlled trial. Brain Injury.  Under Review.
  • Corrigan JD, Cuthbert JP, Whiteneck GG, Dijkers MP, Coronado V, Heinemann AW, Harrison-Felix C, Graham JE. 2012. Representativeness of the traumatic brain injury model systems national database. J Head Trauma Rehabil. 27(6):391–403. doi:10.1097/HTR.0b013e3182238cdd.
  • Miller KD, Schleien SJ, Bedini LA. Barriers to the inclusion of volunteers with developmental disabilities. JOVA. 2003;21(1):25–30.
  • Dijkers MP, Marwitz JH, Harrison-Felix C. 2018. Thirty years of National Institute on disability, independent living, and rehabilitation research traumatic brain injury model systems center research-an update. J Head Trauma Rehabil. 33(6):363–74. doi:10.1097/HTR.0000000000000454.
  • Traumatic Brain Injury Model Systems National Data and Statistical Center. SOP 101a: identification of subjects for the TBI model systems national database 2013. https://www.tbindsc.org/StaticFiles/SOP/101a%20-%20Identification%20of%20Subjects.pdf.
  • Teasdale G, Jennett B. Assessment and prognosis of coma after head injury. Acta Neurochir (Wien). 1976;34(1–4):45–55.doi:10.1007/bf01405862.
  • Nakase-Richardson R, Sherer M, Seel RT, Hart T, Hanks R, Arango-Lasprilla JC, Yablon SA, Sander AM, Barnett SD, Walker WC, et al. Utility of post-traumatic amnesia in predicting 1-year productivity following traumatic brain injury: comparison of the Russell and Mississippi PTA classification intervals. J Neurol Neurosurg Psychiatry. 2011;82(5):494–99. doi:10.1136/jnnp.2010.222489.
  • Granger CV, Hamilton BB, Keith RA, Zielezny M, Sherwin FS. Advances in functional assessment for medical rehabilitation. Top Geriatr Rehabil. 1986;1(3):59–74.doi:10.1097/00013614-198604000-00007.
  • Boake C. Supervision rating scale: a measure of functional outcome from brain injury. Arch Phys Med Rehabil. 1996;77(8):765–72.doi:10.1016/s0003-9993(96)90254-3.
  • Wilson JT, Pettigrew LE, Teasdale GM. 1998. Structured interviews for the glasgow outcome scale and the extended glasgow outcome scale: guidelines for their use. J Neurotrauma. 15(8):573–85. doi:10.1089/neu.1998.15.573.
  • Corrigan JD, Smith-Knapp K, Granger CV. 1997. Validity of the functional independence measure for persons with traumatic brain injury. Arch Phys Med Rehabil. 78(8):828–34. doi:10.1016/S0003-9993(97)90195-7.
  • Wilde EA, Whiteneck GG, Bogner J, Bushnik T, Cifu DX, Dikmen S, French L, Giacino JT, Hart T, Malec JF, et al. Recommendations for the use of common outcome measures in traumatic brain injury research. Arch Phys Med Rehabil. 2010;91(11):1650–60 e17. doi:10.1016/j.apmr.2010.06.033.
  • Weir J, Steyerberg EW, Butcher I, Lu J, Lingsma HF, McHugh GS, Roozenbeek B, Maas AI, Murray GD. 2012. Does the extended glasgow outcome scale add value to the conventional glasgow outcome scale? J Neurotrauma. 29(1):53–58. doi:10.1089/neu.2011.2137.
  • Whiteneck GG, Dijkers MP, Heinemann AW, Bogner JA, Bushnik T, Cicerone KD, Corrigan JD, Hart T, Malec JF, Millis SR. 2011. Development of the participation assessment with recombined tools-objective for use after traumatic brain injury. Arch Phys Med Rehabil. 92(4):542–51. doi:10.1016/j.apmr.2010.08.002.
  • Dijkers MP. Correlates of life satisfaction among persons with spinal cord injry. Arch Phys Med Rehabil. 1999;80(8):867–76.doi:10.1016/s0003-9993(99)90076-x.
  • Philippus A, Whiteneck GG. Participation assessment with recombined tools-objective. In: Kreutzer JS, Deluca J, Caplan B, editors. Encyclopedia of clinical neuropsychology. 2nded. New York: Springer International Publishing; 2017. doi:10.1007/978-3-319-56782-2_9126-1.
  • JMP®, Version 14. SAS Institute Inc., Cary, NC, 1989–2019.
  • Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, NJ: Lawrence Erlbaum Associates; 1988.
  • Cuthbert JP, Harrison-Felix C, Corrigan JD, Bell JM, Haarbauer-Krupa JK, Miller AC. 2015. Unemployment in the United States after traumatic brain injury for working-age individuals: prevalence and associated factors 2 years postinjury. J Head Trauma Rehabil. 30(3):160–74. doi:10.1097/HTR.0000000000000090.
  • Borgonovi F. 2008. Doing well by doing good. The relationship between formal volunteering and self-reported health and happiness. Soc Sci Med. 66(11):2321–34. doi:10.1016/j.socscimed.2008.01.011.
  • Hoofien D, Gilboa A, Vakil E, Donovick PJ. 2001. Traumatic brain injury (TBI) 10–20 years later: a comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Inj. 15(3):189–209. doi:10.1080/026990501300005659.
  • Franulic A, Carbonell CG, Pinto P, Sepulveda I. 2004. Psychosocial adjustment and employment outcome 2, 5 and 10 years after TBI. Brain Inj. 18(2):119–29. doi:10.1080/0269905031000149515.
  • Anson K, Ponsford J. Coping and emotional adjustment following traumatic brain injury. J Head Trauma Rehabil. 2006;21(3):248–59.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.