A Look at Traumatic Brain Injury Community Programs in British Columbia: Barriers and facilitators of implementation

References

• Giugni A, Gamberini L, Carrara G, Antiga L, Brissy O, Buldini V, Calamai I, Csomos A, De Luca A, Ferri E, et al. Hospitals with and without neurosurgery: a comparative study evaluating the outcome of patients with traumatic brain injury. Scand J Trauma Resusc Emerg Med. 2021;29(1):158. doi:10.1186/s13049-021-00959-2.
   PubMed Web of Science ®Google Scholar
• Maas AIR, Menon DK, Adelson PD, Andelic N, Bell MJ, Belli A, Bragge P, Brazinova A, Büki A, Chesnut RM, et al. Traumatic brain injury: integrated approaches to improve prevention, clinical care, and research. Lancet Neurol. 2017;16(12):987–1048. doi:10.1016/S1474-4422(17)30371-X.
   PubMed Web of Science ®Google Scholar
• Public Health Agency of Canada. Injury in review, 2020 edition: spotlight on traumatic brain injuries across the life course. Government Of Canada. Augest 7, 2020. Accessed July 21, 2022.
   Google Scholar
• Kanchan A, Singh A, Khan N, Jahan M, Raman R, Sathyanarayana Rao T. Impact of neuropsychological rehabilitation on activities of daily living and community reintegration of patients with traumatic brain injury. Indian J Psychiatry. 2018;60(1):38–48. doi:10.4103/psychiatry.IndianJPsychiatry_118_17.
   PubMed Web of Science ®Google Scholar
• Ruet A, Bayen E, Jourdan C, Ghout I, Meaude L, Lalanne A, Pradat-Diehl P, Nelson G, Charanton J, Aegerter P, et al. A detailed overview of long-term outcomes in severe traumatic brain injury eight years post-injury. Front Neurol. 2019;10:120.
   PubMed Web of Science ®Google Scholar
• Brands I, Köhler S, Stapert S, Wade D, Van Heugten C. Influence of self-efficacy and coping on quality of life and social participation after acquired brain injury: a 1-year follow-up study. Arch Phys Med Rehabil. 2014;95(12):2327–34. doi:10.1016/j.apmr.2014.06.006.
   PubMed Web of Science ®Google Scholar
• Kim EH, Cui LN, Nho CR. A longitudinal study on the stability and causal relationships between disability acceptance, self‐efficacy, and interpersonal ability among Koreans with disability. Asian Soc Work Policy Rev. 2022;16(3):290–305. doi:10.1111/aswp.12269.
   Web of Science ®Google Scholar
• Larsson J, Björkdahl A, Esbjörnsson E, Sunnerhagen KS. Factors affecting participation after traumatic brain injury. J Rehabil Med. 2013;45(8):765. doi:10.2340/16501977-1184.
   PubMed Web of Science ®Google Scholar
• Tam S, McKay A, Sloan S, Ponsford J. The experience of challenging behaviours following severe TBI: a family perspective. Brain Inj. 2015;29(7–8):813–21. doi:10.3109/02699052.2015.1005134.
   PubMed Web of Science ®Google Scholar
• Beadle EJ, Ownsworth T, Fleming J, Shum D. The impact of traumatic brain injury on self-identity: a systematic review of the evidence for self-concept changes. J Head Trauma Rehabil. 2016;31(2):E12–25. doi:10.1097/HTR.0000000000000158.
   PubMed Web of Science ®Google Scholar
• Villa D, Causer H, Riley GA. Experiences that challenge self-identity following traumatic brain injury: a meta-synthesis of qualitative research. Disabil Rehabil. 2021;43(23):3298–314. doi:10.1080/09638288.2020.1743773.
   PubMed Web of Science ®Google Scholar
• Ownsworth T. Self-identity after brain injury. 1st ed. New York (NY): Psychology Press; 2014.
   Google Scholar
• Juengst SB, Kumar RG, Wagner AK. A narrative literature review of depression following traumatic brain injury: prevalence, impact, and management challenges. Psychol Res Behav Manag. 2017;10:175–86. doi:10.2147/PRBM.S113264.
   PubMed Web of Science ®Google Scholar
• Kangas M, McDonald S. Is it time to act? The potential of acceptance and commitment therapy for psychological problems following acquired brain injury. Neuropsychol Rehabil. 2011;21(2):250–76. doi:10.1080/09602011.2010.540920.
   PubMed Web of Science ®Google Scholar
• Schmidt J, Fleming J, Ownsworth T, Lannin N, Khan A. Feedback interventions for improving self-awareness after brain injury: a protocol for a pragmatic randomised controlled trial. Aust Occup Ther J. 2012;59(2):138–46. doi:10.1111/j.1440-1630.2012.00998.x.
   PubMed Web of Science ®Google Scholar
• Rodney T, Mumbower R, Nkansah J. Traumatic brain injury and the theory of meaning. J Loss Trauma. 2021;26(8):793–95. doi:10.1080/15325024.2021.1946304.
   Web of Science ®Google Scholar
• Mamman R, Mortenson WB, Fleming J, Schmidt J. Living in a reshaped reality: exploring social participation and self-identity after TBI. Neuropsychol Rehabil. 2022;32(8):2102–24. doi:10.1080/09602011.2022.2113100.
   PubMed Web of Science ®Google Scholar
• Nalder E, Hartman L, Hunt A, King G. Traumatic brain injury resiliency model: A conceptual model to guide rehabilitation research and practice. Disabil Rehabil. 2019;41(22):2708–17. doi:10.1080/09638288.2018.1474495.
   PubMed Web of Science ®Google Scholar
• Nalder E, King G, Hunt AW, Hartman LR, Szigeti Z, Drake E, Shah R, Shahzad M, Resnick M, Pereira G. Indicators of life success from the perspective of individuals with traumatic brain injury: a scoping review. Disabil Rehabil. 2023;45(2):330–43. doi:10.1080/09638288.2021.2025274.
   PubMed Web of Science ®Google Scholar
• Rapport LJ, Wong CG, Hanks RA. Resilience and well-being after traumatic brain injury. Disabil Rehabil. 2020;42(14):2049–55. doi:10.1080/09638288.2018.1552327.
   PubMed Web of Science ®Google Scholar
• King G, Seko Y, Chiarello LA, Thompson L, Hartman L. Building blocks of resiliency: a transactional framework to guide research, service design, and practice in pediatric rehabilitation. Disabil Rehabil. 2020;42(7):1031–40. doi:10.1080/09638288.2018.1515266.
   PubMed Web of Science ®Google Scholar
• Yehene E, Lichtenstern G, Harel Y, Druckman E, Sacher Y. Self-efficacy and acceptance of disability following mild traumatic brain injury: a pilot study. Appl Neuropsychol Adult. 2019 Feb 26;27(5):468–77. doi:10.1080/23279095.2019.1569523.
   PubMed Web of Science ®Google Scholar
• García-Molina A, Prigatano GG. Prigatano’s contributions to neuropsychological rehabilitation and clinical neuropsychology: a 50-year perspective. Front Psychol. 2022;13:963287. doi:10.3389/fpsyg.2022.963287.
   PubMed Web of Science ®Google Scholar
• Godwin EE, Lukow IH, Lichiello S. Promoting resilience following traumatic brain injury: application of an interdisciplinary, evidence-based model for intervention. Fam Relat. 2015;64(3):347–62. doi:10.1111/fare.12122.
   Web of Science ®Google Scholar
• White S, Foster R, Marks J, Morshead R, Goldsmith L, Barlow S, Sin J, Gillard S. The effectiveness of one-to-one peer support in mental health services: a systematic review and meta-analysis. BMC Psychiatry. 2020;20(1). doi:10.1186/s12888-020-02923-3.
   PubMed Web of Science ®Google Scholar
• May C, Bieber K, Chow D, Mortenson WB, Schmidt J. Experiences of adults with stroke attending a peer-led peer-support group. Brain Impairment. 2023; 24(3): 443–455. doi:10.1017/BrImp.2023.3.
   PubMed Web of Science ®Google Scholar
• Sathananthan N, Dimech-Betancourt B, Morris E, Vicendese D, Knox L, Gillanders D, Das Nair R, Wong D. A single-case experimental evaluation of a new group-based intervention to enhance adjustment to life with acquired brain injury: VaLiANT (valued living after neurological trauma). Neuropsychol Rehabil. 2022;32(8):2170–202. doi:10.1080/09602011.2021.1971094.
   PubMed Web of Science ®Google Scholar
• Hoepner JK, Yingst H, Harder B, Zehm C. “I never thought I would be an international speaker. But I am”: an interpretive qualitative analysis of experiences of a project-based advocacy intervention. Neuropsychol Rehabil. 2022;32(8):2077–101. doi:10.1080/09602011.2022.2050410.
   PubMed Web of Science ®Google Scholar
• Domensino AF, Verberne D, Prince L, Fish J, Winegardner J, Bateman A, Wilson B, Ponds R, van Heugten C. Client experiences with holistic neuropsychological rehabilitation: “it is an ongoing process”. Neuropsychol Rehabil. 2022;32(8):2147–69. doi:10.1080/09602011.2021.1976222.
   PubMed Web of Science ®Google Scholar
• Deber RB. Treating health care: how the Canadian system works and how it could work better. Toronto(ON): University of Toronto Press; 2017.
   Google Scholar
• Knox L, Douglas JM. A scoping review of the nature and outcomes of extended rehabilitation programmes after very severe brain injury. Brain Inj. 2018;32(8):1000–10. doi:10.1080/02699052.2018.1468924.
   PubMed Web of Science ®Google Scholar
• Salas C, Casassus M, Rowlands L, Pimm S. Developing a model of long-term social rehabilitation after traumatic brain injury: the case of the head forward centre. Disabil Rehabil. 2021;43(23):3405–16. doi:10.1080/09638288.2020.1741697.
   PubMed Web of Science ®Google Scholar
• Ibarra S, Parrott D, Waldman W, Hammond FM, Dillahunt-Aspillaga C, Trexler L. Provision of resource facilitation services for individuals with acquired brain injury across the United States: results of a 2018 resource facilitator provider survey. Brain Inj. 2020;34(6):732–40. doi:10.1080/02699052.2020.1749931.
   PubMed Web of Science ®Google Scholar
• Malec JF, Hammond FM, Flanagan S, Kean J, Sander A, Sherer M, Masel BE. Recommendations from the 2013 Galveston brain injury conference for implementation of a chronic care model in brain injury. J Head Trauma Rehabil. 2013;28(6):476–83. doi:10.1097/HTR.0000000000000003.
   PubMed Web of Science ®Google Scholar
• Alves-Stein S, George S, Lannin NA, Jolliffe L. Implementation of a leisure reintegration programme for people with acquired brain injury in a community rehabilitation programme: a feasibility study. Brain Impairment. 2022 May 30;24(3):508–20. doi:10.1017/BrImp.2022.8.
   PubMed Web of Science ®Google Scholar
• Wise EK, Mathews-Dalton C, Dikmen S, Temkin N, MacHamer J, Bell K, Powell JM. Impact of traumatic brain injury on participation in leisure activities. Arch Phys Med Rehabil. 2010;91(9):1357–62. doi:10.1016/j.apmr.2010.06.009.
   PubMed Web of Science ®Google Scholar
• Greenwood RJ, McMillan TM. Models of rehabilitation programmes for the brain-injured adult: I. Current provision, efficacy and good practice. Clin Rehabil. 1993;7(3):248–55. doi:10.1177/026921559300700311.
   Google Scholar
• Chan V, Toccalino D, Omar S, Shah R, Colantonio A. A systematic review on integrated care for traumatic brain injury, mental health, and substance use. PLoS ONE. 2022; 17(3): e0264116. doi:10.1371/journal.pone.0264116.
   PubMed Web of Science ®Google Scholar
• Downing M, Hicks A, Braaf S, Myles D, Gabbe B, Cameron P, Ameratunga S, Ponsford J. Factors facilitating recovery following severe traumatic brain injury: a qualitative study. Neuropsychol Rehabil. 2021;31(6):889–913. doi:10.1080/09602011.2020.1744453.
   PubMed Web of Science ®Google Scholar
• Fadyl JK, Theadom A, Channon A, McPherson KM. Recovery and adaptation after traumatic brain injury in New Zealand: longitudinal qualitative findings over the first two years. Neuropsychol Rehabil. 2019;29(7):1095–112. doi:10.1080/09602011.2017.1364653.
   PubMed Web of Science ®Google Scholar
• Krueger RA, Casey MA. Focus groups: a practical guide for applied research. 5th ed. Thousand Oaks, California: SAGE; 2015.
   Google Scholar
• Thorne SE. Interpretive description: qualitative research for applied practice. 2nd ed. New York (NY): Routledge; 2016.
   Google Scholar
• Visser E, Den Oudsten BL, Traa MJ, Gosens T, De Vries J. Patients’ experiences and wellbeing after injury: a focus group study. In: Soundy A, editor. PLoS one. 2021. pp. e0245198–0245198.
   Google Scholar
• Howell KE. An introduction to the philosophy of methodology. Los Angeles (CA): SAGE; 2013. pp. 88–100, 131–53, 193–210.
   Google Scholar
• Bengtsson M. How to plan and perform a qualitative study using content analysis. NursingPlus Open. 2016;2:8–14. doi:10.1016/j.npls.2016.01.001.
   Google Scholar
• Graneheim UH, Lindgren BM, Lundman B. Methodological challenges in qualitative content analysis: A discussion paper. Nurse Educ Today. 2017;56:29–34. doi:10.1016/j.nedt.2017.06.002.
   PubMed Web of Science ®Google Scholar
• Kleinheksel AJ, Rockich-Winston N, Tawfik H, Wyatt TR. Demystifying content analysis. Am J Pharm Educ. 2020;84(1):7113–37. doi:10.5688/ajpe7113.
   PubMed Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57. doi:10.1093/intqhc/mzm042.
   PubMed Web of Science ®Google Scholar
• Kitzinger J. Qualitative research: introducing focus groups. BMJ. 1995;311(7000):299–302. doi:10.1136/bmj.311.7000.299.
   PubMed Web of Science ®Google Scholar
• Trinity College of Arts & Sciences. Guidelines for conducting a focus group. Elliot & Associates. 2005. Accessed April 3, 2022.
   Google Scholar
• Kelly G How to run a focus group. West Berkshire Council. 2016 April 21. Accessed March 21, 2022.
   Google Scholar
• Burrows D, Kendall S. Focus groups: what are they and how can they be used in nursing and health care research? Social Sciences In Health. 1997;3:244–53.
   Google Scholar
• Nowell LS, Norris JM, White DE, Moules NJ. Thematic analysis: striving to meet the trustworthiness criteria. Int J Qual Methods. 2017;16(1):1–13. doi:10.1177/1609406917733847.
   Web of Science ®Google Scholar
• Noble H, Smith J. Issues of validity and reliability in qualitative research. Evid Based Nurs. 2015;18(2):34–35. doi:10.1136/eb-2015-102054.
   PubMedGoogle Scholar
• Cotner B, Nakase-Richardson R, Agtarap S, Martin A, Takagishi SC, Rabinowitz A, Ching D, DR O, Hoffman J. COVID-19 impact on delivery of rehabilitation for persons with traumatic brain injury. Arch Phys Med Rehabil. 2022;103(3):e18–9. doi:10.1016/j.apmr.2022.01.050.
   Google Scholar
• Dams-O’Connor K, Landau A, Hoffman J, St De Lore J. Patient perspectives on quality and access to healthcare after brain injury. Brain Inj. 2018;32(4):431–41. doi:10.1080/02699052.2018.1429024.
   PubMed Web of Science ®Google Scholar
• Lancman S, Sato AT, de Andrade Jardim Rodriguez T, de Oliveira Barros J. Come back to community and work after traumatic brain injury. Anghinah R, Paiva W, Battistella L, Amorim R, editors. In: Topics in cognitive rehabilitation in the TBI post-hospital phase. Cham(CH): Springer International Publishing; 2018. pp. 113–22.
   Google Scholar
• Block CK, West SE. Psychotherapeutic treatment of survivors of traumatic brain injury: review of the literature and special considerations. Brain Inj. 2013;27(7–8):775–88. doi:10.3109/02699052.2013.775487.
   PubMed Web of Science ®Google Scholar
• Abrahamson V, Jensen J, Springett K, Sakel M. Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study. Disabil Rehabil. 2017;39(17):1683–94. doi:10.1080/09638288.2016.1211755.
   PubMed Web of Science ®Google Scholar
• Jones TM, Bhanji A, Osman S, Cai XC, Garfinkel S, Weinstein AA. Experiences of caregivers and individuals living with traumatic brain injury in accessing health information: a qualitative investigation. Brain Inj. cited 2023 Feb 4;37(4):293–302. doi:10.1080/02699052.2022.2145366.
   PubMedGoogle Scholar
• Maas AIR, Menon DK, Manley GT, Abrams M, Åkerlund C, Andelic N, Aries M, Bashford T, Bell MJ, Bodien YG, et al. Traumatic brain injury: progress and challenges in prevention, clinical care, and research. Lancet Neurol. 2022;21(11):1004–60. doi:10.1016/S1474-4422(22)00309-X.
   PubMed Web of Science ®Google Scholar
• Colantonio A, Howse D, Kirsh B, Chiu T, Zulla R, Levy C. Living environments for people with moderate to severe acquired brain injury. Health Policy. 2010;5(4):e120–38. doi:10.12927/hcpol.2013.21738.
   Google Scholar
• Corrigan JD, Vuolo M, Bogner J, Botticello AL, Pinto SM, Whiteneck GG. Do state supports for persons with brain injury affect outcomes in the 5 years following acute rehabilitation? Health & Place. 2021;72:102674. doi:10.1016/j.healthplace.2021.102674.
   PubMedGoogle Scholar
• Oyesanya TO, Harris Walker G, Loflin C, Prvu Bettger J. Negotiating the transition from acute hospital care to home: perspectives of patients with traumatic brain injury, caregivers and healthcare providers. J Integr Care (Brighton). 2021;29(4):414–24. doi:10.1108/JICA-04-2021-0023.
   Google Scholar
• Andelic N, Bautz-Holter E, Ronning P, Olafsen K, Sigurdardottir S, Schanke AK, Sveen U, Tornas S, Sandhaug M, Roe C. Does an early onset and continuous chain of rehabilitation improve the long-term functional outcome of patients with severe traumatic brain injury? J Neurotrauma. 2012;29(1):66–74. doi:10.1089/neu.2011.1811.
   PubMed Web of Science ®Google Scholar
• Tverdal CB, Howe EI, Røe C, Helseth E, Lu J, Tenovuo O, Andelic N. Traumatic brain injury: patient experience and satisfaction with discharge from trauma hospital. J Rehabil Med. 2018;50(6):505–13. doi:10.2340/16501977-2332.
   PubMed Web of Science ®Google Scholar
• Sansonetti D, Nicks RJ, Unsworth C. Barriers and enablers to aligning rehabilitation goals to patient life roles following acquired brain injury. Aust Occup Ther J. 2018 Dec 1;65(6):512–22. doi:10.1111/1440-1630.12492.
   PubMed Web of Science ®Google Scholar
• Silver JM, McAllister TW, Arciniegas DB. Textbook of traumatic brain injury. 3rd ed. Washington (DC): American Psychiatric Association Publishing; 2019.
   Google Scholar
• Bogner J, Hade EM, Peng J, Beaulieu CL, Horn SD, Corrigan JD, Hammond FM, Dijkers MP, Montgomery E, Gilchrist K, et al. Family involvement in traumatic brain injury inpatient rehabilitation: a propensity score analysis of effects on outcomes during the first year after discharge. Arch Phys Med Rehabil. 2019;100(10):1801–09. doi:10.1016/j.apmr.2019.04.008.
   PubMed Web of Science ®Google Scholar
• Keenan A, Joseph L. The needs of family members of severe traumatic brain injured patients during critical and acute care: a qualitative study. Can J Neurosci Nurs. 2010;32(3):25–35.
   PubMedGoogle Scholar
• Nielsen IH, Poulsen I, Larsen K, Larsen NS. Life goals as a driving force in traumatic brain injury rehabilitation: a longitudinal dyadic perspective. Brain Inj. 2022;36(9):1158–66. doi:10.1080/02699052.2022.2109748.
   PubMed Web of Science ®Google Scholar
• Allen N, Hevey D, Carton S, O’Keeffe F. Life is about “constant evolution”: the experience of living with an acquired brain injury in individuals who report higher or lower posttraumatic growth. Disabil Rehabil. 2022;44(14):3479–92. doi:10.1080/09638288.2020.1867654.
   PubMed Web of Science ®Google Scholar
• McColl MA, Carlson P, Johnston J, Minnes P, Shue K, Davies D, Karlovits T. The definition of community integration: perspectives of people with brain injuries. Brain Inj. 1998;12(1):15–30. doi:10.1080/026990598122827.
   PubMed Web of Science ®Google Scholar
• Muldoon OT, Haslam SA, Haslam C, Cruwys T, Kearns M, Jetten J. The social psychology of responses to trauma: social identity pathways associated with divergent traumatic responses. Eur Rev Soc Psychol. 2019;30(1):311–48. doi:10.1080/10463283.2020.1711628.
   Web of Science ®Google Scholar
• Checklin M, Fernon D, Soumilas J, Stephens D. What is it like to have your loved one with a severe brain injury come to rehabilitation? The experiences of significant others. Disabil Rehabil. 2020;42(6):788–97. doi:10.1080/09638288.2018.1510042.
   PubMed Web of Science ®Google Scholar
• Kitter B, Sharman R. Caregivers’ support needs and factors promoting resiliency after brain injury. Brain Inj. 2015;29(9):1082–93. doi:10.3109/02699052.2015.1018323.
   PubMed Web of Science ®Google Scholar