Begin with the End in Mind: A three-part workshop series to facilitate end-of-life discussions with members of the community

References

• Aging with Dignity . (n.d.). Five wishes . Retrieved October 16, 2017, from https://agingwithdignity.org/five-wishes/about-five-wishes
   Google Scholar
• Aldridge, M. D. , & Kelley, A. S. (2015). The myth regarding the high cost of end-of-life care. American Journal of Public Health , 102(12), 2411–2415. doi:10.2105/AJPH.2015.302889
   Web of Science ®Google Scholar
• Baker, D. W. , Gazmararian, J. A. , Williams, M. V. , Scott, T. , Parker, R. M. , Green, D. , … Peel, J. (2002). Functional health literacy and the risk of hospital admission among medicare managed care enrollees. American Journal of Public Health , 92(8), 1278–1283. doi:10.2105/AJPH.92.8.1278
   PubMed Web of Science ®Google Scholar
• Baker, D. W. , Parker, R. M. , Williams, M. V. , & Clark, W. S. (1997). The relationship of patient reading ability to self-reported health and use of health services. American Journal of Public Health , 87(6), 1027–1030. doi:10.2105/AJPH.87.6.1027
   PubMed Web of Science ®Google Scholar
• Baker, D. W. , Parker, R. M. , Williams, M. V. , & Clark, W. S. (1998). Health literacy and the risk of hospital admission. Journal of General Internal Medicine , 13(12), 791–798. doi:10.1046/j.1525-1497.1998.00242.x
   PubMed Web of Science ®Google Scholar
• Barnato, A. E. , McClellan, M. B. , Kagay, C. R. , & Garber, A. M. (2004). Trends in inpatient treatment intensity among medicare beneficiaries at the end of life. Health Services Research , 39(2), 363–376. doi:10.1111/hesr.2004.39.issue-2
   PubMed Web of Science ®Google Scholar
• Costello, J. (2015). Dying matters: Making death part of the conversation. British Journal of Nursing , 24(9), 476. doi:10.12968/bjon.2015.24.9.476
   PubMedGoogle Scholar
• Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Croucher, S. M. , & Cronn-Mills, D. (2015). Understanding communication research methods: A theoretical and practical approach . New York, NY: Routledge.
   Google Scholar
• Doka, K. J. (2014). The awareness of mortality: Continuing Kastenbaum’s developmental legacy. Omega , 70(1), 67–78.
   PubMed Web of Science ®Google Scholar
• Fan, J. X. , & Zick, C. D. (2004). The economic burden of health care, funeral and burial expenditures at end of life. Journal of Consumer Affairs , 38(1), 35–55. doi:10.1111/j.1745-6606.2004.tb00464.x
   Web of Science ®Google Scholar
• Friedland, R. (1998, October). New estimates of the high costs of inadequate health literacy . Proceedings of Pfizer Conference “Promoting Health Literacy: A Call to Action” (pp. 6–10). Washington, DC. Pfizer.
   Google Scholar
• Gawande, A. (2014). Being mortal . New York, NY: Metropolitan Books.
   Google Scholar
• Gordon, M. M. , Hampson, R. , Capell, H. A. , & Madhok, R. (2002). Illiteracy in rheumatoid arthritis patients as determined by the Rapid Estimate of Adult Literacy in Medicine (REALM) score. Rheumatology , 41(7), 750–754. doi:10.1093/rheumatology/41.7.750
   PubMed Web of Science ®Google Scholar
• Henry, B. , Lam, M. , Chow, R. , Chiu, L. , Chow, S. , Chow, E. , … Breanne, L. (2015). Social work in end-of-life care: A review of the most highly cited papers. Journal of Pain Management , 8(4), 331–338.
   Google Scholar
• Hess, S. G. (2009). Improving end-of-life care” a public health call to action . Baltimore, MD: Johns Hopkins Bloomberg School of Public Health.
   Google Scholar
• Howard, D. H. , Gazmararian, J. , & Parker, R. M. (2005). The impact of low health literacy on the medical costs of medicare managed care enrollees. The American Journal of Medicine , 118, 371–377. doi:10.1016/j.amjmed.2005.01.010
   PubMed Web of Science ®Google Scholar
• Kellehear, A. (2015). Death education as a public health issue. In J. M. Stillion , & T. Attig (Eds.), Death, dying, and bereavement: Contemporary perspectives, institutions, and practices (pp. 221–232). New York, NY: Springer.
   Google Scholar
• Kelly, C. M. , Masters, J. L. , & DeViney, S. (2013). End of life planning activities: An integrated process. Death Studies , 37(6), 529–551. doi:10.1080/07481187.2011.653081
   PubMed Web of Science ®Google Scholar
• Koestenbaum, P. (1971). The vitality of death. Omega: the Journal of Death and Dying , 2, 253–271.
   Web of Science ®Google Scholar
• Kramp, E. T. , Kramp, D. , & McKhann, E. P. (1998). Living with the end in mind: A practical checklist for living life to the fullest by embracing your mortality . New York, NY: Three Rivers Press.
   Google Scholar
• Kwon, S. A. , Kolomer, S. , & Alper, J. (2014). The attitudes of social work students toward end-of-life planning. Journal of Social Work in End-Of-Life & Palliative Care , 10(3), 240–256. doi:10.1080/15524256.2014.938890
   PubMedGoogle Scholar
• Logan, R. A. (2017). Seeking an expanded, multidimensional conceptual approach to health literacy and health disparities research. Information Services and Use , 37, 59–83. doi:10.3233/ISU-160809
   Google Scholar
• Lovell, G. P. , Smith, T. , & Kannis-Dymand, L. (2015). Surrogate end-of-life care decision makers’ post-bereavement grief and guilt responses. Death Studies , 39(10), 647–653. doi:10.1080/07481187.2015.1047062
   PubMed Web of Science ®Google Scholar
• Miles, L. , & Corr, C. (2015). “Death Café”: What is it and what we can learn from it? Omega , 75(2), 151–165.
   PubMed Web of Science ®Google Scholar
• Moorman, S. M. , Hauser, R. M. , & Carr, D. (2009). Do older adults know their spouses’ end of life treatment preferences? Research on Aging , 31(4), 463–491. doi:10.1177/0164027509333683
   PubMed Web of Science ®Google Scholar
• Morhaim, D. K. , & Pollack, K. M. (2013). End-of-life care issues: A personal, economic, public policy, and public health crisis. American Journal of Public Health , 103(6), e8–e10. doi:10.2105/AJPH.2013.301316
   PubMed Web of Science ®Google Scholar
• Morris, V. (2004). Talking about death . Chapel Hill, NC: Algonquin Books.
   Google Scholar
• Nouwen, H. J. M. (1994). Our greatest gift—A meditation on dying and caring . New York, NY: Harper-Collins.
   Google Scholar
• Nutbeam, D. (2000). Health literacy as a public health goal: A challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International , 15(3), 259–267. doi:10.1093/heapro/15.3.259
   Web of Science ®Google Scholar
• Nutbeam, D. (2007–2008). The evolving concept of health literacy. Social Science & Medicine , 67, 2072–2078. doi:10.1016/j.socscimed.2008.09.050
   Web of Science ®Google Scholar
• Office of Health Promotion and Literacy . (n.d.). Health literacy online. Retrieved October 16, 2017, from https://health.gov/healthliteracyonline/
   Google Scholar
• Rao, J. K. , Anderson, L. A. , & Smith, S. M. (2002). End of life as a public health issue. American Journal of Preventive Medicine , 23(3), 215–220. doi:10.1016/S0749-3797(02)00500-7
   PubMed Web of Science ®Google Scholar
• Roberto, K. A. (1999). Making critical health care decisions for older adults: Consensus among family members. Family Relations , 48, 167–175. doi:10.2307/585080
   Web of Science ®Google Scholar
• Romo, R. D. , Wallhagen, M. I. , & Smith, A. K. (2016). Viewing hospice decision making as a process. American Journal of Hospice and Palliative Care , 33, 503–510. doi:10.1177/1049909115569592
   PubMed Web of Science ®Google Scholar
• Scott, T. L. , Gazmararian, J. A. , Williams, M. V. , & Baker, D. W. (2002). Health literacy and preventive health care use among medicare enrollees in a managed care organization. Medical Care , 40(5), 395–404. doi:10.1097/00005650-200205000-00005
   PubMed Web of Science ®Google Scholar
• Silveira, M. J. , Kim, S. Y. H. , & Langa, K. M. (2010). Advance directives and outcomes of surrogate decision making before death. The New England Journal of Medicine , 362(13), 1211–1218. doi:10.1056/NEJMsa0907901
   PubMed Web of Science ®Google Scholar
• Simmons, P. (2000). Learning to fall: The blessings of an imperfect life . New York, NY: Bantam Books.
   Google Scholar
• Soper, S. (2009). ObitKit: A guide to celebrating your life . Atlanta, GA: ObitKit, LLC.
   Google Scholar
• What is Death Cafe? (n.d.). Retrieved October 16, 2017, from http://deathcafe.com/what/
   Google Scholar