The Last Habitat: Living and Dying in Residential Care Facility

References

• Administration on Aging. (2016). Profile of Older Americans: 2015. Retrieved from https://aoa.acl.gov/Aging_Statistics/Profile/index.aspx
   Google Scholar
• Agich, G. J. (1993). Autonomy and long-term care. New York: Oxford University Press.
   Google Scholar
• Alzheimer’s Association (2005). Just the fact sheets and statistics. Chicago: Author.
   Google Scholar
• Alzheimer’s Association (2016). 2015 Alzheimer’s disease facts and figures. Alz.org,
   Google Scholar
• Anderberg, P., Lepp, M., Berglund, A. L., & Segesten, K. (2007). Preserving dignity in caring for older adults: A concept analysis. Journal of Advanced Nursing, 59(6), 635–643.
   PubMed Web of Science ®Google Scholar
• Andrews, G. J., & Phillips, D. R. (Eds.). (2005). Ageing and place: Perspectives, policy, practice. London: Routledge.
   Google Scholar
• Appell, J., Kertesz, A., & Fisman, M. (1982). A study of language functioning in Alzheimer patients. Brain and Language, 17(1), 73–91.
   PubMed Web of Science ®Google Scholar
• Aronson, M. K., & Lipkowitz, R. (1981). Senile dementia, Alzheimer’s type: The family and health care delivery system. Journal of the American Geriatrics Society, 29(12), 568–571.
   PubMed Web of Science ®Google Scholar
• Ballenger, J. F. (2006). Self, senility, and Alzheimer’s disease in Modern America: A history. Baltimore: The Johns Hopkins University Press.
   Google Scholar
• Barclay, L. (2016). In sickness and in dignity: A philosophical account of the meaning of dignity in healthcare. International Journal of Nursing Studies, 61, 136–141.
   PubMed Web of Science ®Google Scholar
• Barken, R. (2017). Reconciling tensions: Needing formal and family/friend care but feeling like a burden. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement, 36(01), 81–96.
   PubMedGoogle Scholar
• Bauer, M., & Nay, R. (2003). Family and staff partnerships in long-term care: A review of the literature. Journal of Gerontological Nursing, 29(10), 3–53.
   Google Scholar
• Bernard, M., & Rowles, G. D. (2013). Environmental Gerontology: Making Meaningful Places in Old Age. New York, NY: Springer Publishing Company.
   Google Scholar
• Blythe, R. (1979). The view in winter. New York, NY: Harcoutt Brace Jovanovich.
   Google Scholar
• Bond, J., & Corner, L. (2001). Researching dementia: are there unique methodological challenges for health service research? Aging and Society, 21(01), 95–116.
   Google Scholar
• Bondi, R. (2017). “Are you Ruth Bondi?” “Yes, I used to be”: Thoughts about the shrinking self. Ha’aretz 12/13/2017 (Translated form the Hebrew by Benyamin Schwarz).
   Google Scholar
• Breteler, M. M., Claus, J. J., van Duijn, C. M., Launer, L. J., & Hofman, A. (1992). Epidemiology of Alzheimer's disease. Epidemiologic Reviews, 14, 59–82.
   PubMed Web of Science ®Google Scholar
• Cohen, E. S. (1988). The elderly mystique: Constraints on the autonomy of elderly with disabilities. The Gerontologist, 28 (Suppl), 24–31.
   PubMed Web of Science ®Google Scholar
• Congressional Budget Office (2004). Financing long-term care for the elderly. Washington, DC: Congressional Budget Office.
   Google Scholar
• Cousineau, N., McDowell, I., Hotz, S., & Hebert, P. (2003). Measuring chronic patients’ feelings of being a burden to their caregivers: Development and preliminary validation of a scale. Medical Care, 41(1), 110–118.
   PubMed Web of Science ®Google Scholar
• Cristoforetti, A., Gennai, F., & Rodeschini, G. (2011). Home sweet home: The emotion of places. Journal of Aging Studies, 25(3), 225–232.
   Web of Science ®Google Scholar
• Eti, S. (2011). Palliative care: An evolving field in medicine. Primary Care: Clinics in Office Practice, 38(2), 159–171.
   PubMed Web of Science ®Google Scholar
• Evans, D. A., Funkenstein, H., Albert, M. S., Sherr, P. A., Cook, N. R., Chown, N. J., … Taylor, J. O. (1989). Prevalence of Alzheimer’s disease in community population of older persons. JAMA: The Journal of the American Medical Association, 262(18), 2551–2556.
   PubMed Web of Science ®Google Scholar
• Gawande, A. (2014). Being Mortal: Medicine and What Matters in the End. New York: Metropolitan Books. Henry Holt and Company.
   Google Scholar
• Gillick, M. R. (2006). The denial of aging: Perpetual youth, eternal life, and other dangerous fantasies. Cambridge, MA: Harvard University Press.
   Google Scholar
• Groger, L. (1995). A nursing home can be a home. Journal of Aging Studies, 9(2), 137–153.
   Web of Science ®Google Scholar
• Gurland, B., Copeland, J., Kuriansky, J., Kellever, M., Sharpe, L., & Dean, L. L. (1983). The mind and mood of aging. Beckenham: Croom Helm.
   Google Scholar
• Hebert, L. E., Weuve, J., Scherr, P. A., & Evans, D. A. (2013). Alzheimer disease in the United States (2010-2050) estimated using the 2010 census. Neurology, 80(19), 1778–1783.
   PubMed Web of Science ®Google Scholar
• Honneth, A. (2012). The I in we: Studies in the theory of recognition. Cambridge: Polity Press.
   Google Scholar
• Hoogland, A. I. (2015). Continuity of change: The dynamic of beliefs, values, and the aging experience. Journal of Aging Studies, 32, 32–39.
   PubMed Web of Science ®Google Scholar
• Jacelon, C. (2001). Dignity: A property of personal integrity. In Managing Personal Integrity: A Grounded Theory of Elderly People Serving Hospitalisation (pp. 252–279). Ann Arbor, MI: Doctoral dissertation, UMI, Dissertation Services.
   Google Scholar
• Kane, R. A. (2001). Long-term care and a good quality of life: Bringing them closer together. The Gerontologist, 41(3), 293–304.
   PubMed Web of Science ®Google Scholar
• Kane, R. A., & Kane, R. L. (1987). Long-term care: Principles, programs, and policies. New York: Springer.
   Google Scholar
• Kane, R. L., & Kane, R. A. (1990). The impact of long-term-care financing on personal autonomy. Generations (San Francisco, Calif.), 14 (Suppl. 1990), 86–89.
   PubMedGoogle Scholar
• Kane, R. L., & Kane, R. A. (1991). Time to rethink the nursing home. New York Times.
   Google Scholar
• Katzman, R. (1976). Editorial: The prevalence and malignancy of Alzheimer disease. A major killer. Archives of Neurology, 33(4), 217–218.
   PubMedGoogle Scholar
• Kaufman, S. R. (2005). …And time to die: How American hospitals shape the end of life. Chicago: The University of Chicago Press.
   Google Scholar
• McPherson, C. J., Wilson, K. G., & Murray, M. A. (2007). Feeling like a burden: Exploring the perspectives of patients at the end of life. Social Science & Medicine (1982), 64(2), 417–427.
   PubMed Web of Science ®Google Scholar
• Moller, D. W. (1990). On death without dignity: The human impact of technological dying. Amityville, New York: Baywood Publishing Company.
   Google Scholar
• Moody, H. R. (1998). Why dignity in old age matters. In R. Disch, R. Dobrof, & H.R. Moody (Eds.), Dignity and old age. New York: Haworth Press.
   Google Scholar
• Moore, J. (2000). Placing home in context. Journal of Environmental Psychology, 20(3), 207–217.
   Web of Science ®Google Scholar
• Nystrom, A., & Andersson-Segesten, K. (1992). Peace of mind as an important aspect of old people’s health. Scandinavian Journal of Caring Sciences, 6(4), 253–262.
   Google Scholar
• Omilion-Hodges, L. M., & Swords, N. M. (2017). The grim reaper, hounds of hell, and dr. death: The role of storytelling for palliative care in competing medical meaning systems. Health Communication, 32(10), 1272–1283.
   PubMed Web of Science ®Google Scholar
• Pauly, M. V. (1990). The rational nonpurchase of long-term care insurance. Journal of Political Economy, 98(1), 153–168.
   Web of Science ®Google Scholar
• Phillips, J., Ajrouch, K., & Hillcoat-Nalletamby, S. (2010). Key concepts in Social Gerontology. London: SAGE.
   Google Scholar
• Pirhonen, J., & Pietila, I. (2015). Patient, resident, or person: Recognition and the continuity of self in long-term care for older people. Journal of Aging Studies, 35, 95–103.
   PubMed Web of Science ®Google Scholar
• Rokach, A. (2005). Caring for those who care for the dying: Coping with the demands on palliative care workers. Palliative & Supportive Care, 3(4), 325–332.
   PubMedGoogle Scholar
• Robison, J., Shugrue, N., Porter, M., Fortinsky, R. H., & Curry, L. A. (2012). Transition from home care to nursing home: Unmet needs in a home- and community-based program for older adults . Journal of Aging & Social Policy, 24(3), 251–270.
   PubMed Web of Science ®Google Scholar
• Rowles, G. D., & Teaster, P. B. (2016). Long-term care continuum in an aging society. In G. D. Rowles & P. B. Teaster (Eds.), Long-term care in an aging society: Theory and practice. New York: Springer.
   Google Scholar
• Ryan, A. A., & Scullion, H. F. (2000). Nursing home placement: An exploration of the experiences of family carers. Journal of Advanced Nursing, 32(5), 1187–1195.
   PubMed Web of Science ®Google Scholar
• Sabat, S. R. (2001). The experience of Alzheimer’s disease: Life through a tangled veil. Oxford: Blackwell.
   Google Scholar
• Sabat, S. R. (2005). The self in dementia. In M. Johnson (Ed.), The Cambridge Handbook of Age and Ageing. New York: Cambridge University Press.
   Google Scholar
• Savishinsky, J. S. (1991). The end of time: Life and work in a nursing home. New York: Bergin & Garvey.
   Google Scholar
• Schwaber Kerson, T. (1985). Understanding chronic illness: The medical and psychosocial dimensions of nine diseases. New York: The Free Press.
   Google Scholar
• Schwarz, B. (1996). Nursing home design: Consequences of employing the medical model. New York: garland Publishing.
   Google Scholar
• Shuter, P., Beattie, W., & Edwards, H. (2014). An exploratory study of grief and health-related quality of life for caregivers of people with dementia. American Journal of Alzheimer's Disease & Other Dementiasr, 29(4), 379–385.
   PubMed Web of Science ®Google Scholar
• Sleeman, K. E. (2013). End-of-life communication: Let’s talk about death. The Journal of the Royal College of Physicians Od Edinburgh, 43(3), 197–199.
   PubMedGoogle Scholar
• Spillman, B. C., & Lubitz, J. (2002). New estimates of lifetime nursing home use: have patterns of use changed? Medical Care, 40(10), 965–975.
   PubMed Web of Science ®Google Scholar
• Spivack, M. (1984). Institutional settings: An environmental design approach. New York: Human Sciences Press.
   Google Scholar
• Stone, R. I. (2006). Emerging issues in long-term care. In R. H. Binstock and L. K. George (Eds.), Handbook of Aging and he Social Sciences (6th ed.). New York: Academic Press, Elsevier.
   Google Scholar
• Sweeting, H., & Gilhooly, M. (1997). Dementia and the phenomenon of social death. Sociology of Health & Illness, 19(1), 93–117.
   Web of Science ®Google Scholar
• Tauber-Gilmore, M., Addis, G., Zahran, Z., Black, S., Baillie, L., Procter, S., & Norton, C. (2018). The views of older people and health professionals about dignity in acute hospital care. Journal of Clinical Nursing, 27(1-2), 223–234.
   PubMed Web of Science ®Google Scholar
• Walmsley, B. D., & McCormack, L. (2016). Synthesis of meaning: Negative and positive change in family members following the adversity of dementia. Journal of Humanistic Psychology, 56(2), 122–143.
   Web of Science ®Google Scholar
• Zweibel, N. R., & Cassel, C. K. (1989). Treatment choices at the end-of-life: A comparison of decisions by older patients and their physician-selected proxies. Gerontologist, 29(5), 615–621.
   PubMed Web of Science ®Google Scholar