The impact of a question prompt list and video intervention on teen asthma control and quality-of-life one year later: results of a randomized trial

References

• National Academy on an Aging Society. Childhood asthma: the most common chronic disease among children. Challenges for the 21st Century: Chronic and Disabling Conditions. 2000; Number 8. Available from: http://www.civicengagement.org/agingsociety/pdf/asthma.pdf [last accessed 20 January 2019]
   Google Scholar
• Centers for Disease Control and Prevention. Vital signs: asthma prevalence, disease characteristics, and self-management education: United States, 2001–2009. MMWR Morb Mortal Wkly Rep 2011;60:547–552.
   PubMedGoogle Scholar
• Sleath B, Carpenter DM, Slota C, Williams D, Tudor G, Yeatts K, Davis S, Ayala GX. Communication during pediatric asthma visits and self-reported asthma medication adherence. Pediatrics 2012;130:627–633. doi: 10.1542/peds.2012-0913.
   PubMed Web of Science ®Google Scholar
• Sleath B, Carpenter DM, Ayala GX, Williams D, Davis S, Tudor G, Yeatts K, Gillette C. Communication during pediatric asthma visits and child asthma medication device technique 1 month later. J Asthma 2012;49:918–925. doi: 10.3109/02770903.2012.719250.
   PubMed Web of Science ®Google Scholar
• Wassmer E, Minnaar G, Abdel Aal N, Atkinson M, Gupta E, Yuen S, Rylance G. How do paediatricians communicate with children and parents?. Acta Paediatr 2007;93:1501–1506. doi: 10.1080/08035250410015079.
   Google Scholar
• National Heart Lung and Blood Institute. National Heart Lung and Blood Institute Publication Number 08-5846. Guidelines for the Diagnosis and Management of Asthma. Expert panel report 3. 2007. Available from: http://www.nhlbi.nih.gov/files/docs/guidelines/asthsumm.pdf [last accessed 11 January 2019].
   Google Scholar
• National Heart Lung and Blood Institute. National Heart Lung and Blood Institute Publication Number 97-4051. Guidelines for the Diagnosis and Management of Asthma. Expert panel report 2. 1997. Available from: http://www.nhlbi.nih.gov/files/docs/guidelines/asthgdln_archive.pdf [last accessed 11 January 2019].
   Google Scholar
• Sleath BL, Carpenter DM, Sayner R, Ayala GX, Williams D, Davis S, Tudor G, Yeatts K. Child and caregiver involvement and shared decision-making during asthma pediatric visits. J Asthma 2011;48:1022–1031. doi: 10.3109/02770903.2011.626482.
   PubMed Web of Science ®Google Scholar
• Sleath B, Carpenter DM, Beard A, Gillette C, Williams D, Tudor G, Ayala GX. Child and caregiver reported problems in using asthma medications and question-asking during paediatric asthma visits. Int J Pharm Pract 2014;22:69–75. doi: 10.1111/ijpp.12043.
   PubMedGoogle Scholar
• Sleath B, Carpenter DM, Ayala GX, Williams D, Davis S, Tudor G, Yeatts K, Gillette C. Provider discussion, education, and question-asking about control medications during pediatric asthma visits. Int J Pediatr 2011;2011:1–7. doi: 10.1155/2011/212160.
   Google Scholar
• Sleath B, Ayala GX, Gillette C, Williams D, Davis S, Tudor G, Yeatts K, Washington D. Provider demonstration and assessment of child device technique during pediatric asthma visits. Pediatrics 2011;127:642–648. doi: 10.1542/peds.2010-1206.
   PubMed Web of Science ®Google Scholar
• Sleath B, Ayala GX, Davis S, Williams D, Tudor G, Yeatts K, Washington D, Gillette C. problems and concerns in using asthma medications. J Asthma 2010;47:633–638. doi: 10.3109/02770901003692785.
   PubMed Web of Science ®Google Scholar
• Tapp H, Shade L, Mahabaleshwarkar R, Taylor YJ, Ludden T, Dulin MF. Results from a pragmatic prospective cohort study: shared decision making improves outcomes for children with asthma. J Asthma 2017;54:392–402. doi: 10.1080/02770903.2016.1227333.
   PubMed Web of Science ®Google Scholar
• Taylor YJ, Tapp H, Shade LE, Liu TL, Mowrer JL, Dulin MF. Impact of shared decision making on asthma quality of life and asthma control among children. J Asthma 2018;55:675–683. doi: 10.1080/02770903.2017.1362423.
   PubMed Web of Science ®Google Scholar
• Clark NM, Gong M, Schork MA, Evans D, Roloff D, Hurwitz M, Maiman L, Mellins RB. Impact of education for physicians on patient outcomes. Pediatrics 1998;101:831–836. doi: 10.1542/peds.101.5.831.
   PubMed Web of Science ®Google Scholar
• Clark NM, Gong M, Schork MA, Kaciroti N, Evans D, Roloff D, Hurwitz M, et al. Long-term effects of asthma education for physicians on patient satisfaction and use of health services. Eur Respir J 2000;16:15–21. doi: 10.1034/j.1399-3003.2000.16a04.x.
   PubMed Web of Science ®Google Scholar
• Dimoska A, Tattersall MH, Butow PN, Shepherd H, Kinnersley P. Can a “prompt list” empower cancer patients to ask relevant questions?. Cancer 2008;113:225–237. doi: 10.1002/cncr.23543.
   PubMed Web of Science ®Google Scholar
• Smets EM, van Heijl M, van Wijngaarden AK, Henselmans I, van Berge Henegouwen MI. Addressing patients' information needs: a first evaluation of a question prompt sheet in the pretreatment consultation for patients with esophageal cancer. Dis Esophagus 2012;25:512–519. doi: 10.1111/j.1442-2050.2011.01274.x.
   PubMed Web of Science ®Google Scholar
• Langbecker D, Janda M, Yates P. Development and piloting of a brain tumour-specific question prompt list. Eur J Cancer Care (Engl) 2012;21:517–526. doi: 10.1111/j.1365-2354.2012.01328.x.
   PubMed Web of Science ®Google Scholar
• Brown RF, Butow PN, Dunn SM, Tattersall MH. Promoting patient participation and shortening cancer consultations: a randomised trial. Br J Cancer 2001;85:1273–1279. doi: 10.1054/bjoc.2001.2073.
   PubMed Web of Science ®Google Scholar
• Sleath B, Carpenter DM, Davis SA, Watson CH, Lee C, Loughlin CE, Garcia N, Etheridge D, Rivera-Duchesne L, Reuland DS, et al. Acceptance of a pre-visit intervention to engage teens in pediatric asthma visits. Patient Educ Couns 2017;100:2005–2011. doi: 10.1016/j.pec.2017.05.013.
   PubMed Web of Science ®Google Scholar
• Sleath B, Carpenter DM, Lee C, Loughlin CE, Etheridge D, Rivera-Duchesne L, Reuland DS, Batey K, Duchesne CI, Garcia N, et al. The development of an educational video to motivate teens with asthma to be more involved during medical visits and to improve medication adherence. J Asthma 2016;53:714–719. doi: 10.3109/02770903.2015.1135945.
   PubMed Web of Science ®Google Scholar
• Rhee H, Belyea MJ, Ciurzynski S, Brasch J. Barriers to asthma self-management in adolescents: relationships to psychosocial factors. Pediatr Pulmonol 2009;44:183–191. doi: 10.1002/ppul.20972.
   PubMed Web of Science ®Google Scholar
• Rhee H, McQuillan BE, Belyea MJ. Evaluation of a peer-led asthma self-management program and benefits of the program for adolescent peer leaders. Respir Care 2012;57:2082–2089. doi: 10.4187/respcare.01488.
   PubMed Web of Science ®Google Scholar
• Clark NM, Gong M, Kaciroti N. A model of self-regulation for control of chronic disease. Health Educ Behav 2001;28:769–782. doi: 10.1177/109019810102800608.
   PubMed Web of Science ®Google Scholar
• Carpenter DM, Ayala GX, Williams DM, Yeatts KB, Davis S, Sleath B. The relationship between patient-provider communication and quality of life for children with asthma and their caregivers. J Asthma 2013;50:791–798. doi: 10.3109/02770903.2013.808347.
   PubMed Web of Science ®Google Scholar
• Sleath B, Carpenter DM, Davis SA, Watson CH, Lee C, Loughlin CE, Garcia N, et al. Improving youth question-asking and provider education during pediatric asthma visits. Patient Educ Couns 2018;101:1051–1057. doi: 10.1016/j.pec.2018.01.013.
   PubMed Web of Science ®Google Scholar
• Bursch B, Schwankovsky L, Gilbert J, Zeiger R. Construction and validation of four childhood asthma self-management scales: parent barriers, child and parent self-efficacy, and parent belief in treatment efficacy. J Asthma 1999;36:115–128. doi: 10.3109/02770909909065155.
   PubMed Web of Science ®Google Scholar
• Holden G, Wade S, Mitchell H, Ewart C, Islam S. Caretaker expectations and the management of pediatric asthma in the inner city: a scale development study. Soc Work Res 1998;22:51–59. doi: 10.1093/swr/22.1.51.
   Web of Science ®Google Scholar
• Svarstad BL, Chewning BA, Sleath BL, Claesson C. The Brief Medication Questionnaire: a tool for screening patient adherence and barriers to adherence. Patient Educ Couns 1999;37:113–124. doi: 10.1016/S0738-3991(98)00107-4.
   PubMed Web of Science ®Google Scholar
• Schatz M, Sorkness CA, Li JT, Marcus P, Murray JJ, Nathan RA, Kosinski M, et al. Asthma Control Test: reliability, validity, and responsiveness in patients not previously followed by asthma specialists. J Allergy Clin Immunol 2006;117:549–556. doi: 10.1016/j.jaci.2006.01.011.
   PubMed Web of Science ®Google Scholar
• Nathan RA, Sorkness CA, Kosinski M, Schatz M, Li JT, Marcus P, Murray JJ, Pendergraft TB. Development of the asthma control test: a survey for assessing asthma control. J Allergy Clin Immunol 2004;113:59–65. doi: 10.1016/j.jaci.2003.09.008.
   PubMed Web of Science ®Google Scholar
• Liu ZW, Yu Y, Hu M, Liu HM, Zhou L, Xiao SY. PHQ-9 and PHQ-2 for screening depression in Chinese rural elderly. PLoS One 2016;11:e0151042. doi: 10.1371/journal.pone.0151042.
   PubMed Web of Science ®Google Scholar
• Juniper EF. Quality of life in adults and children with asthma and rhinitis. Allergy 1997;52:971–977.
   PubMed Web of Science ®Google Scholar
• Chewning B, Sleath B, DeVellis B, Bell C, McKown K, Vankoningsveld R, Wilson D. Impact of pre-visit assessment of patient priorities on topics discussed in encounters and the outcome of pain. Academy of Health Annual Meeting; 2010 June 27; Boston Massachusetts.
   Google Scholar
• Diggle PJ, Liang K-Y, Zeger SL, eds. Analysis of longitudinal data. 1st ed. Oxford, UK: Oxford University Press; 1994.
   Google Scholar