Creation and validation of a citywide pediatric asthma registry for the District of Columbia

References

• Akinbami LJ, Moorman JE, Simon AE, Schoendorf KC. Trends in racial disparities for asthma outcomes among children 0 to 17 years, 2001-2010. J Allergy Clin Immunol. 2014;134(3):547–553. doi:https://doi.org/10.1016/j.jaci.2014.05.037.
   PubMed Web of Science ®Google Scholar
• Akinbami LJ, Moorman JE, Liu X. Asthma prevalence, health care use, and mortality: United States, 2005-2009. Natl Health Stat Rep. 2011;(32):1–14.
   PubMedGoogle Scholar
• Akinbami LJ, Moorman JE, Garbe PL, Sondik EJ. Status of childhood asthma in the United States, 1980-2007. Pediatrics. 2009;123(Suppl 3):S131– S145. doi:https://doi.org/10.1542/peds.2008-2233C.
   PubMed Web of Science ®Google Scholar
• Liu AH, Babineau DC, Krouse RZ, Zoratti EM, Pongracic JA, O’Connor GT, Wood RA, Khurana Hershey GK, Kercsmar CM, Gruchalla RS, et al. Pathways through which asthma risk factors contribute to asthma severity in inner-city children. J Allergy Clin Immunol. 2016;138(4):1042–1050. doi:https://doi.org/10.1016/j.jaci.2016.06.060.
   PubMed Web of Science ®Google Scholar
• 2018 Child Asthma Data. BRFSS Asthma Prevalence Data. Available from https://www.cdc.gov/asthma/brfss/2018/child/tableC1.html [last accessed 9 January 2021].
   Google Scholar
• Quint DM, Teach SJ. IMPACT DC: Reconceptualizing the role of the emergency department for urban children with asthma. Clin Pediatr Emerg Med. 2009;10(2):115–121. doi:https://doi.org/10.1016/j.cpem.2009.03.003.
   Google Scholar
• Liberman DB, Shelef DQ, He J, McCarter R, Teach SJ. Low rates of follow-up with primary care providers after pediatric emergency department visits for respiratory tract illnesses. Pediatr Emerg Care. 2012;28(10):956–961. doi:https://doi.org/10.1097/PEC.0b013e31826c6dde.
   PubMed Web of Science ®Google Scholar
• Teach SJ, Crain EF, Quint DM, Hylan ML, Joseph JG. Improved asthma outcomes in a high-morbidity pediatric population: results of an emergency department-based randomized clinical trial. Arch Pediatr Adolesc Med. 2006;160(5):535–541. doi:https://doi.org/10.1001/archpedi.160.5.535.
   PubMedGoogle Scholar
• Teach SJ, Shelef DQ, Fousheé N, Horn IB, Yadav K, Wang Y, Rand CS, Streisand R. Randomized clinical trial of parental psychosocial stress management to improve asthma outcomes. J Asthma. 2021;58(1):121–132. doi:https://doi.org/10.1080/02770903.2019.1665063.
   PubMed Web of Science ®Google Scholar
• Harrington CB, Langhans E, Shelef DQ, Savitz M, Whitmore C, Teach SJ. A pilot randomized trial of school-based administration of inhaled corticosteroids for at-risk children with asthma. J Asthma. 2018;55(2):145–151. doi:https://doi.org/10.1080/02770903.2017.1323915.
   PubMed Web of Science ®Google Scholar
• Parikh K, Richmond M, Lee M, Fu L, McCarter R, Hinds P, Teach SJ. Outcomes from a pilot patient-centered hospital-to-home transition program for children hospitalized with asthma. J Asthma. 2020;:1–11. doi:https://doi.org/10.1080/02770903.2020.1795877.
   Google Scholar
• District of Columbia Community Health Needs Assessment. Published online February 2014. Available from https://dchealth.dc.gov/page/dc-community-health-needs-assessment.
   Google Scholar
• Hatoun J, Trudell EK, Vernacchio L. Identifying children at risk of asthma exacerbations: beyond HEDIS. Am J Manag Care. 2018;24(6):e170–e174.
   PubMed Web of Science ®Google Scholar
• Bates DW, Saria S, Ohno-Machado L, Shah A, Escobar G. Big data in health care: using analytics to identify and manage high-risk and high-cost patients. Health Aff (Millwood)). 2014;33(7):1123–1131. doi:https://doi.org/10.1377/hlthaff.2014.0041.
   PubMed Web of Science ®Google Scholar
• Stockwell MS, Natarajan K, Ramakrishnan R, Holleran S, Forney K, Aponte A, Vawdrey DK. Immunization data exchange with electronic health records. Pediatrics. 2016;137(6):e20154335–e20154335. doi:https://doi.org/10.1542/peds.2015-4335.
   PubMed Web of Science ®Google Scholar
• Casey JA, Schwartz BS, Stewart WF, Adler NE. Using electronic health records for population health research: a review of methods and applications. Annu Rev Public Health. 2016;37:61–81. doi:https://doi.org/10.1146/annurev-publhealth-032315-021353.
   PubMed Web of Science ®Google Scholar
• Merrill C, Cottrell L, Searcy K. District of Columbia Community Health Needs Assessment. 2016. Available from http://www.dchealthmatters.org/content/sites/washingtondc/2016_DC_CHNA_062416_FINAL.pdf.
   Google Scholar
• United States Census Bureau. QuickFacts District of Columbia. July 1, 2019. Available from https://www.census.gov/quickfacts/DC [lase accessed 9 January 2021].
   Google Scholar
• National Asthma Education and Prevention Program. Expert Panel Report 3 (EPR-3): guidelines for the diagnosis and management of asthma-summary report 2007. J Allergy Clin Immunol. 2007;120(5 Suppl):S94–S138. doi:https://doi.org/10.1016/j.jaci.2007.09.043.
   PubMed Web of Science ®Google Scholar
• Arno C. Health Equity Report for the District of Columbia 2018. DC Health; 2019. Available from https://dchealth.dc.gov/publication/health-equity-report-district-columbia-2018.
   Google Scholar
• O’Hare W, Griffin D, Konicki S. Investigating the 2010 Undercount of Young Children – Summary of Recent Research. United States Census Bureau. Published online February 14, 2019. Available from https://www2.census.gov/programs-surveys/decennial/2020/program-management/final-analysis-reports/2020-report-2010-undercount-children-summary-recent-research.pdf.
   Google Scholar
• O’Hare WP, Jacobsen LA, Mather M, VanOrman A. Predicting Tract-Level Net Undercount Risk for Young Children. Population Reference Bureau; 2020. Available from https://www.prb.org/wp-content/uploads/2020/02/us-census-undercount-of-children.pdf.
   Google Scholar
• Teach SJ, Gergen PJ, Szefler SJ, Mitchell HE, Calatroni A, Wildfire J, Bloomberg GR, Kercsmar CM, Liu AH, Makhija MM, et al. Seasonal risk factors for asthma exacerbations among inner-city children. J Allergy Clin Immunol. 2015;135(6):1465–1473.e5. doi:https://doi.org/10.1016/j.jaci.2014.12.1942.
   PubMed Web of Science ®Google Scholar
• Taquechel K, Diwadkar AR, Sayed S, Dudley JW, Grundmeier RW, Kenyon CC, Henrickson SE, Himes BE, Hill DA. Pediatric asthma health care utilization, viral testing, and air pollution changes during the COVID-19 pandemic. J Allergy Clin Immunol Pract. 2020;8(10):3378–3387. doi:https://doi.org/10.1016/j.jaip.2020.07.057.
   PubMed Web of Science ®Google Scholar
• Kenyon CC, Hill DA, Henrickson SE, Bryant-Stephens TC, Zorc JJ. Initial effects of the COVID-19 pandemic on pediatric asthma emergency department utilization. J Allergy Clin Immunol Pract. 2020;8(8):2774–2776. doi:https://doi.org/10.1016/j.jaip.2020.05.045.
   PubMed Web of Science ®Google Scholar
• Simoneau T, Greco KF, Hammond A, Nelson K, Gaffin JM. Impact of the COVID-19 pandemic on pediatric emergency department utilization for asthma. Ann Am Thorac Soc. 2020; doi:https://doi.org/10.1513/AnnalsATS.202007-765RL.
   Google Scholar
• Bose S, Henderson RJ, Rogers L, Casale T, Skloot G, Soler X, Wise RA, Que LG. Identifying an at-risk population for poor asthma outcomes: Data from the American Lung Association Asthma Clinical Trials Registry. J Allergy Clin Immunol Pract. 2019;7(8):2872–2874. doi:https://doi.org/10.1016/j.jaip.2019.04.024.
   Google Scholar
• Bulathsinhala L, Eleangovan N, Heaney LG, Menzies-Gow A, Gibson PG, Peters M, Hew M, van Boven JFM, Lehtimäki L, van Ganse E, et al. Development of the International Severe Asthma Registry (ISAR): a modified Delphi study. J Allergy Clin Immunol Pract. 2019;7(2):578–588. doi:https://doi.org/10.1016/j.jaip.2018.08.016.
   PubMed Web of Science ®Google Scholar