The lived experience of adherence to asthma medication in young adults (18–34 years)

References

• Edward K-L, Welch T. The extension of Colaizzi’s method of phenomenological enquiry. Contemp Nurse. 2011;39(2):163–171.
   PubMed Web of Science ®Google Scholar
• WHO. World Health Organization: WHO; 2020. [updated 20/5/2020. Available from: https://www.who.int/news-room/fact-sheets/detail/asthma.
   Google Scholar
• McDonald VM, Maltby S, Reddel HK, King GG, Wark PAB, Smith L, Upham JW, James AL, Marks GB, Gibson PG, et al. Severe asthma: current management, targeted therapies and future directions-A roundtable report. Respirology. 2017;22(1):53–60. doi:10.1111/resp.12957.
   PubMed Web of Science ®Google Scholar
• Nunes C, Pereira AM, Morais-Almeida M. Asthma costs and social impact. Asthma Res Pract. 2017;3(1):1–1. doi:10.1186/s40733-016-0029-3.
   PubMedGoogle Scholar
• Vos T, Abajobir AA, Abate KH, Abbafati C, Abbas KM, Abd-Allah F, Abdulkader RS, Abdulle AM, Abebo TA, Abera SF, et al. Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet. 2017;390(10100):1211–1259. doi:10.1016/S0140-6736(17)32154-2.
   PubMed Web of Science ®Google Scholar
• CDC CfDCaP. Most Recent National Asthma Data US: Centers for Disease Control and Prevention (CDC). 2019. [updated 30/3/2021; cited 2021 26/11]. Available from: https://www.cdc.gov/asthma/most_recent_national_asthma_data.htm.
   Google Scholar
• AANAC. Asthma Australia and National Asthma Council Canberra: Deloitte Access Economics: Hidden Cost of Asthma Report 2015. [cited 2020. Available from: https://www2.deloitte.com/au/en/pages/economics/articles/hidden-cost-asthma.html.
   Google Scholar
• AIHW. Asthma Canberra: Australian Institute of Health and Welfare; 2019. [updated 30/8/2019; cited 2020 23/4]. Available from: https://www.aihw.gov.au/reports/chronic-respiratory-conditions/asthma/contents/asthma.
   Google Scholar
• ABS. Australian Bureau of Statistics: National Health Survey; 2018. [updated 12/12. Available from: https://www.abs.gov.au/ausstats/[email protected]/Lookup/by%20Subject/4364.0.55.001∼2017-18∼Main%20Features∼Asthma∼35.
   Google Scholar
• Petrie KJ, Perry K, Broadbent E, Weinman J. A text message programme designed to modify patients’ illness and treatment beliefs improves self-reported adherence to asthma preventer medication. Br J Health Psychol. 2012;17(1):74–84. doi:10.1111/j.2044-8287.2011.02033.x.
   PubMed Web of Science ®Google Scholar
• Saini B. Health promotion: Good control is a puff away. Austral Pharm. 2014;33(8):49.
   Google Scholar
• Barnes PJ. Inhaled corticosteroids. Pharmaceuticals (Basel). 2010;3(3):514–540. doi:10.3390/ph3030514.
   PubMedGoogle Scholar
• WHO. World Health Organization 2003. [Available from: https://www.who.int/chp/knowledge/publications/adherence_full_report.pdf?ua=1.
   Google Scholar
• George M. Adherence in asthma and COPD: new strategies for an old problem. Respir Care. 2018;63(6):818–831. doi:10.4187/respcare.05905.
   PubMed Web of Science ®Google Scholar
• Mäkelä MJ, Backer V, Hedegaard M, Larsson K. Adherence to inhaled therapies, health outcomes and costs in patients with asthma and COPD. Respir Med. 2013;107(10):1481–1490. doi:10.1016/j.rmed.2013.04.005.
   PubMed Web of Science ®Google Scholar
• Bousquet J, Mantzouranis E, Cruz AA, Aït-Khaled N, Baena-Cagnani CE, Bleecker ER, Brightling CE, Burney P, Bush A, Busse WW, et al. Uniform definition of asthma severity, control, and exacerbations: document presented for the World Health Organization Consultation on Severe Asthma. J Allergy Clin Immunol. 2010;126(5):926–938. doi:10.1016/j.jaci.2010.07.019.
   PubMed Web of Science ®Google Scholar
• Zhang J, Chang VW, Giannis A, Wang J-Y. Removal of cytostatic drugs from aquatic environment: a review. Sci Total Environ. 2013;445-446:281–298. doi:10.1016/j.scitotenv.2012.12.061.
   PubMed Web of Science ®Google Scholar
• Custovic A, Johnston SL, Pavord I, Gaga M, Fabbri L, Bel EH, Le Souëf P, Lötvall J, Demoly P, Akdis CA, et al. EAACI position statement on asthma exacerbations and severe asthma. Allergy. 2013;68(12):1520–1531. doi:10.1111/all.12275.
   PubMed Web of Science ®Google Scholar
• AIHW AIoHaW. Asthma Cannbra 2020. [updated 25/8/2020; cited 2021 22/3]. Available from: https://www.aihw.gov.au/reports/chronic-respiratory-conditions/asthma.
   Google Scholar
• ABS. Australian Bureau of Statistics: Australian Social Trends, Young adults; 2013. [Available from: http://www.abs.gov.au/AUSSTATS/[email protected]/Lookup/4102.0Main+Features40April+2013.
   Google Scholar
• 2011. pp 165.
   Google Scholar
• Noble H, Smith J. Issues of validity and reliability in qualitative research. Evid Based Nurs. 2015;18(2):34–35. doi:10.1136/eb-2015-102054.
   PubMedGoogle Scholar
• Sandelowski M. Rigor or rigor mortis: the problem of rigor in qualitative research revisited. ANS Adv Nurs Sci. 1993;16(2):1–8. doi:10.1097/00012272-199312000-00002.
   PubMed Web of Science ®Google Scholar
• Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Directions Prog Eval. 1986;1986(30):73–84. doi:10.1002/ev.1427.
   Google Scholar
• Morse JM. Determining sample size. Sage Publications Sage CA: Thousand Oaks, CA; 2000.
   Google Scholar
• Cain A, Reznik M. Asthma management in New York City schools: a classroom teacher perspective. J Asthma. 2016;53(7):744–750. doi:10.3109/02770903.2015.1135946.
   PubMed Web of Science ®Google Scholar
• Edward KL. The phenomenon of resilience in crisis care mental health clinicians. Int J Ment Health Nurs. 2005;14(2):142–148. doi:10.1111/j.1440-0979.2005.00371.x.
   PubMed Web of Science ®Google Scholar
• Colaizzi PF. Psychological research as the phenomenologist views it 1978. [Available from: https://scholar.google.com/scholar?hl=en&as_sdt=0%2C5&as_ylo=1978&q=Psychological+research+as+the+phenomenologist+views+it&btnG=.
   Google Scholar
• Arias SJ, Neffen H, Bossio JC, Calabrese CA, Videla AJ, Armando GA, Antó JM. Prevalence and features of asthma in young adults in urban areas of Argentina. Archiv Bronconeumol (English Edn). 2018;54(3):134–139. doi:10.1016/j.arbr.2018.01.014.
   PubMed Web of Science ®Google Scholar
• George M, Bender B. New insights to improve treatment adherence in asthma and COPD. Patient Prefer Adher. 2019;13:1325–1334. doi:10.2147/PPA.S209532.
   PubMed Web of Science ®Google Scholar
• Janson SL, McGrath KW, Covington JK, Cheng S-C, Boushey HA. Individualized asthma self-management improves medication adherence and markers of asthma control. J Allergy Clin Immunol. 2009;123(4):840–846. doi:10.1016/j.jaci.2009.01.053.
   PubMed Web of Science ®Google Scholar
• Breivik G. Trends in adventure sports in a post-modern society. J Sport Soc. 2010;13(2):260–273. doi:10.1080/17430430903522970.
   Google Scholar
• Ducharme FM, Zemek RL, Chalut D, McGillivray D, Noya FJD, Resendes S, Khomenko L, Rouleau R, Zhang X. Written action plan in pediatric emergency room improves asthma prescribing, adherence, and control. Am J Respir Crit Care Med. 2011;183(2):195–203. doi:10.1164/rccm.201001-0115OC.
   PubMed Web of Science ®Google Scholar
• Khan R, Maharaj R, Seerattan N, Babwah F. Effectiveness of personalized written asthma action plans in the management of children with partly controlled asthma in Trinidad: a randomized controlled trial. J Trop Pediatr. 2014;60(1):17–26. doi:10.1093/tropej/fmt063.
   PubMed Web of Science ®Google Scholar
• Gaude GS, Hattiholi J, Chaudhury A. Role of health education and self-action plan in improving the drug compliance in bronchial asthma. J Family Med Prim Care. 2014;3(1):33–38. doi:10.4103/2249-4863.130269.
   PubMedGoogle Scholar
• Eakin MN, Rand CS. Improving patient adherence with asthma self-management practices: what works? Ann Allergy Asthma Immunol. 2012;109(2):90–92. doi:10.1016/j.anai.2012.06.009.
   PubMed Web of Science ®Google Scholar
• Axelsson M, Lötvall J. Recent educational interventions for improvement of asthma medication adherence. Asia Pac Allergy. 2012;2(1):67–75. doi:10.5415/apallergy.2012.2.1.67.
   PubMedGoogle Scholar
• Boulet L-P, Boulay M-È, Gauthier G, Battisti L, Chabot V, Beauchesne M-F, Villeneuve D, Côté P. Benefits of an asthma education program provided at primary care sites on asthma outcomes. J Respiratory Med. 2015;109(8):991–1000. doi:10.1016/j.rmed.2015.05.004.
   PubMed Web of Science ®Google Scholar
• Prabhakaran L, Lim G, Abisheganaden J, Chee C, Choo Y. Impact of an asthma education programme on patients’ knowledge, inhaler technique and compliance to treatment. Singapore Med J. 2006;47(3):225–231.
   PubMedGoogle Scholar
• Boulet L-P, Vervloet D, Magar Y, Foster JM. Adherence: the goal to control asthma. Clin Chest Med. 2012;33(3):405–417. doi:10.1016/j.ccm.2012.06.002.
   PubMed Web of Science ®Google Scholar
• Koster ES, Philbert D, Winters NA, Bouvy ML. Adolescents’ inhaled corticosteroid adherence: the importance of treatment perceptions and medication knowledge. J Asthma. 2015;52(4):431–436. doi:10.3109/02770903.2014.979366.
   PubMed Web of Science ®Google Scholar
• Van Steenis MN, Driesenaar JA, Bensing JM, Van Hulten R, Souverein PC, Van Dijk L, et al. Relationship between medication beliefs, self-reported and refill adherence, and symptoms in patients with asthma using inhaled corticosteroids. Patient Prefer Adher. 2014;8:83.
   PubMed Web of Science ®Google Scholar
• Reddel H. Rational prescribing for asthma in adults–written asthma action plans. Aust Prescr. 2012;35(3):78–81. doi:10.18773/austprescr.2012.035.
   Web of Science ®Google Scholar
• Zainol AH, Ismail AF, Taib F, Norsa’adah B. Treatment adherence, knowledge, attitude and quality of life of adolescents with asthma in northeastern Malaysia. Bangladesh J Med Sci. 2020;19(1):73–82. doi:10.3329/bjms.v19i1.43875.
   Web of Science ®Google Scholar
• Zeiger RS, Schatz M, Dalal AA, Qian L, Chen W, Ngor EW, Suruki RY, Kawatkar AA. Utilization and costs of severe uncontrolled asthma in a managed-care setting. J Allergy Clin Immunol Pract. 2016;4(1):120–129. e3. doi:10.1016/j.jaip.2015.08.003.
   PubMed Web of Science ®Google Scholar
• Hickman M, Stokes P, Gammon S, Beard C, Inkster A. Moments like diamonds in space: savoring the ageing process through positive engagement with adventure sports. Ann Leisure Res. 2018;21(5):612–630. doi:10.1080/11745398.2016.1241151.
   Web of Science ®Google Scholar
• De Simoni A, Horne R, Fleming L, Bush A, Griffiths C. What do adolescents with asthma really think about adherence to inhalers? Insights from a qualitative analysis of a UK online forum. BMJ Open. 2017;7(6):e015245. doi:10.1136/bmjopen-2016-015245.
   PubMed Web of Science ®Google Scholar
• McCabe SE, Teter CJ, Boyd CJ, Wilens TE, Schepis TS. Sources of prescription medication misuse among young adults in the United States: the role of educational status. J Clin Psychiatry. 2018;79(2):33–40. doi:10.4088/JCP.17m11958.
   Web of Science ®Google Scholar
• Harrison JA, Mullen PD, Green L. A meta-analysis of studies of the health belief model with adults. Health Educ Res. 1992;7(1):107–116. doi:10.1093/her/7.1.107.
   PubMed Web of Science ®Google Scholar
• Maiman LA, Becker M. The health belief model: Origins and correlates in psychological theory. J Health Educ Monogr. 1974;2(4):336–353. doi:10.1177/109019817400200404.
   Google Scholar
• Apter AJ, Reisine ST, Affleck G, Barrows ERIK, Zuwallack RL. Adherence with twice-daily dosing of inhaled steroids: socioeconomic and health-belief differences. Am J Respir Crit Care Med. 1998;157(6):1810–1817. doi:10.1164/ajrccm.157.6.9712007.
   PubMed Web of Science ®Google Scholar
• Olsen S, Smith S, Oei T, Douglas J. Health belief model predicts adherence to CPAP before experience with CPAP. Eur Respir J. 2008;32(3):710–717. doi:10.1183/09031936.00127507.
   PubMed Web of Science ®Google Scholar
• Yue Z, Li C, Weilin Q, Bin W. Application of the health belief model to improve the understanding of antihypertensive medication adherence among Chinese patients. J Patient Educ Counsel. 2015;98(5):669–673. doi:10.1016/j.pec.2015.02.007.
   PubMed Web of Science ®Google Scholar
• McQuaid E. Barriers to medication adherence in asthma: the importance of culture and context. Ann Allergy Asthma Immunol. 2018;121(1):37–42. doi:10.1016/j.anai.2018.03.024.
   PubMed Web of Science ®Google Scholar
• Driesenaar J. Beliefs and Adherence regarding Inhaled Corticosteroids. Paying attention to patient-provider communication in community pharmacy practice Doctoral thesis [Sl: sn]; 2018.
   Google Scholar
• Menckeberg TT, Bouvy ML, Bracke M, Kaptein AA, Leufkens HG, Raaijmakers JAM, Horne R. Beliefs about medicines predict refill adherence to inhaled corticosteroids. J Psychosom Res. 2008;64(1):47–54. doi:10.1016/j.jpsychores.2007.07.016.
   PubMed Web of Science ®Google Scholar
• Cole S, Seale C, Griffiths C. The blue one takes a battering’why do young adults with asthma overuse bronchodilator inhalers? A qualitative study. BMJ Open. 2013;3(2):e002247. doi:10.1136/bmjopen-2012-002247.
   PubMed Web of Science ®Google Scholar
• Holley S, Walker D, Knibb R, Latter S, Liossi C, Mitchell F, Radley R, Roberts G. Barriers and facilitators to self-management of asthma in adolescents: an interview study to inform development of a novel intervention . Clin Exp Allergy. 2018;48(8):944–956. doi:10.1111/cea.13141.
   PubMed Web of Science ®Google Scholar
• Bosnic-Anticevich S, Kritikos V, Carter V, Yan KY, Armour C, Ryan D, Price D. Lack of asthma and rhinitis control in general practitioner-managed patients prescribed fixed-dose combination therapy in Australia. J Asthma. 2018;55(6):684–694. doi:10.1080/02770903.2017.1353611.
   PubMed Web of Science ®Google Scholar
• Ye Q, He X-O, D’Urzo A. A review on the safety and efficacy of inhaled corticosteroids in the management of asthma. Pulm Ther. 2017;3(1):1–18. doi:10.1007/s41030-017-0043-5.
   Google Scholar
• Yakar H, Kanbay A. Evaluation of Corticophobia in Asthmatic Patients. Niger J Clin Pract. 2020;23(8):1033–1038. doi:10.4103/njcp.njcp_341_19.
   PubMed Web of Science ®Google Scholar
• MacDonell KK, Naar S, Gibson-Scipio W, Lam P, Secord E. The Detroit Young Adult Asthma Project: pilot of a technology-based medication adherence intervention for African-American emerging adults. J Adolescent Health. 2016;59(4):465–471. doi:10.1016/j.jadohealth.2016.05.016.
   PubMed Web of Science ®Google Scholar
• Rosen LD, Whaling K, Carrier LM, Cheever NA, Rokkum J. The media and technology usage and attitudes scale: an empirical investigation. J Comput Human Behav. 2013;29(6):2501–2511. doi:10.1016/j.chb.2013.06.006.
   PubMed Web of Science ®Google Scholar
• Laba T-L, Jan S, Zwar NA, Roughead E, Marks GB, Flynn AW, Goldman MD, Heaney A, Lembke KA, Reddel HK. Cost-related underuse of medicines for asthma-opportunities for improving adherence. J Allergy Clin Immunol Pract. 2019;7(7):2298–2306. e12. doi:10.1016/j.jaip.2019.03.024.
   PubMed Web of Science ®Google Scholar
• O’Byrne PM, Pedersen S, Carlsson L-G, Radner F, Thorén A, Peterson S, Ernst P, Suissa S. Risks of pneumonia in patients with asthma taking inhaled corticosteroids. Am J Respir Crit Care Med. 2011;183(5):589–595. doi:10.1164/rccm.201005-0694OC.
   PubMed Web of Science ®Google Scholar
• Bansal V, Mangi MA, Johnson MM, Festic E. Inhaled corticosteroids and incident pneumonia in patients with asthma: Systematic review and meta-analysis. AMA. 2015;44(2):135. doi:10.5644/ama2006-124.141.
   Google Scholar
• To M, To Y, Yamada H, Ogawa C, Otomo M, Suzuki N, Sano Y. Influence of inhaled corticosteroids on community-acquired pneumonia in patients with bronchial asthma. Intern Med. 2004;43(8):674–678. doi:10.2169/internalmedicine.43.674.
   PubMed Web of Science ®Google Scholar
• McKeever T, Harrison TW, Hubbard R, Shaw D. Inhaled corticosteroids and the risk of pneumonia in people with asthma: a case-control study. J Chest. 2013;144(6):1788–1794. doi:10.1378/chest.13-0871.
   PubMed Web of Science ®Google Scholar
• Qian CJ, Coulombe J, Suissa S, Ernst P. Pneumonia risk in asthma patients using inhaled corticosteroids: a quasi-cohort study. Br J Clin Pharmacol. 2017;83(9):2077–2086. doi:10.1111/bcp.13295.
   PubMed Web of Science ®Google Scholar
• Kim MH, Rhee CK, Shim JS, Park SY, Yoo KH, Kim BY, Bae HW, Sim YS, Chang JH, Cho YJ, et al. Inhaled corticosteroids in asthma and the risk of pneumonia. Allergy Asthma Immunol Res. 2019;11(6):795–805. doi:10.4168/aair.2019.11.6.795.
   PubMed Web of Science ®Google Scholar
• The Lancet Respiratory Medicine. COVID-19 heralds a new era for chronic diseases in primary care. Lancet Respir Med. 2020;8(7):647. doi:10.1016/S2213-2600(20)30274-5.
   Google Scholar
• Kaye L, Theye B, Smeenk I, Gondalia R, Barrett MA, Stempel DA. Changes in medication adherence among patients with asthma and COPD during the COVID-19 pandemic. J Allergy Clin Immunol Pract. 2020;8(7):2384–2385. doi:10.1016/j.jaip.2020.04.053.
   PubMed Web of Science ®Google Scholar
• Srinivasan A, Chakravorty I, Srinivasan K. Does concurrent existence of asthma or COPD affect susceptibility & outcomes to novel coronavirus infections?: a short review of evidence and mechanisms. Phys. 2020;6(1). doi:10.38192/1.6.1.2.
   Google Scholar
• Cooper V, Metcalf L, Versnel J, Upton J, Walker S, Horne R. Patient-reported side effects, concerns and adherence to corticosteroid treatment for asthma, and comparison with physician estimates of side-effect prevalence: a UK-wide, cross-sectional study. NPJ Prim Care Resp Med. 2015;25(1):1–6. doi:10.1038/npjpcrm.2015.26.
   Web of Science ®Google Scholar
• Saini B, LeMay K, Emmerton L, Krass I, Smith L, Bosnic-Anticevich S, Stewart K, Burton D, Armour C. Asthma disease management—Australian pharmacists’ interventions improve patients’ asthma knowledge and this is sustained. Patient Educ Couns. 2011;83(3):295–302. doi:10.1016/j.pec.2011.05.001.
   PubMed Web of Science ®Google Scholar
• Lycett H, Wildman E, Raebel EM, Sherlock J-P, Kenny T, Chan AHY. Treatment perceptions in patients with asthma: Synthesis of factors influencing adherence. Respir Med. 2018;141:180–189. doi:10.1016/j.rmed.2018.06.032.
   PubMed Web of Science ®Google Scholar
• knoema. Australia - Male to female ratio of the total population 2020. Available from: https://knoema.com/atlas/Australia/topics/Demographics/Population/Male-to-female-ratio.
   Google Scholar