Preferences for support in managing symptoms of an asthma flare-up: a pilot study of a discrete choice experiment

References

• To T, Stanojevic S, Moores G, Gershon A, Bateman E, Cruz A, Boulet L-P. Global asthma prevalence in adults: findings from the cross-sectional world health survey. BMC Public Health. 2012;12:204. doi:10.1186/1471-2458-12-204.
   PubMed Web of Science ®Google Scholar
• Vos T, Allen C, Arora M, Barber R, Bhutta Z, Brown A, Carter A, Casey D, Charlson F, Chen A, et al. Global, regional, and national incidence, prevalence, and years lived with disability for 310 diseases and injuries, 1990-2015: a systematic analysis for the Global Burden of Disease Study 2015. Lancet. 2016;388(10053):1545–1602. doi:10.1016/S0140-6736(16)31678-6.
   PubMed Web of Science ®Google Scholar
• Global Initiative for Asthma (GINA). Global strategy for asthma management and prevention, 2021. Available from: www.ginasthma.org.
   Google Scholar
• Pickles K, Eassey D, Reddel HK, Locock L, Kirkpatrick S, Smith L. "This illness diminishes me. What it does is like theft": a qualitative meta-synthesis of people’s experiences of living with asthma. Health Expect. 2018;21(1):23–40.
   PubMed Web of Science ®Google Scholar
• Jones KA, Gibson PG, Yorke J, Niven R, Smith A, McDonald VM. Attack, flare-up, or exacerbation? The terminology preferences of patients with severe asthma. J Asthma. 2021;58(2):110–141. doi:10.1080/02770903.2019.1665064.
   Web of Science ®Google Scholar
• Nguyen HV, Nadkarni NV, Sankari U, Mital S, Lye WK, Tan NC. Association between asthma control and asthma cost: Results from a longitudinal study in a primary care setting. Respirology. 2017;22(3):454–459.
   PubMed Web of Science ®Google Scholar
• Sullivan PW, Ghushchyan VH, Slejko JF, Belozeroff V, Globe DR, Lin SL. The burden of adult asthma in the United States: evidence from the Medical Expenditure Panel Survey. J Allergy Clin Immunol. 2011;127(2):363.
   PubMed Web of Science ®Google Scholar
• Mukherjee M, Stoddart A, Gupta R, Nwaru B, Farr A, Heaven M, Fitzsimmons D, Bandyopadhyay A, Aftab C, Simpson C, et al. The epidemiology, healthcare and societal burden and costs of asthma in the UK and its member nations: analyses of standalone and linked national databases. BMC Med. 2016;14(1):113.
   PubMedGoogle Scholar
• Royal College of Physicians. Why asthma still kills: the National Review of Asthma Deaths (NRAD) Confidential Enquiry report. London: RCP, 2014.
   Google Scholar
• Goeman DP, Abramson MJ, McCarthy EA, Zubrinich CM, Douglass JA. Asthma mortality in Australia in the 21st century: a case series analysis. BMJ Open. 2013;3(5):e002539. doi:10.1136/bmjopen-2012-002539.
   PubMed Web of Science ®Google Scholar
• Gatheral T, Rushton A, Evans DJ, Mulvaney C, Halcovitch N, Whiteley G, Eccles FJ, Spencer S. Personalised asthma action plans for adults with asthma. Cochrane Database Syst Rev. 2017;4(4):CD011859. doi:10.1002/14651858.CD011859.pub2.
   PubMedGoogle Scholar
• Wiener-Ogilvie S, Pinnock H, Huby G, Sheikh A, Partridge MR, Gillies J. Do practices comply with key recommendations of the British Asthma Guideline? If not, why not? Prim Care Respir J. 2007;16(6):369–377.
   PubMedGoogle Scholar
• Fleetcroft R, Noble M, Martin A, Coombes E, Ford J, Steel N. Emergency hospital admissions for asthma and access to primary care: cross-sectional analysis. Br J Gen Pract. 2016;66(650):e640–e646.
   PubMed Web of Science ®Google Scholar
• Bridges J, Hauber B, Marshall D, Lloyd A, Prosser L, Regier D, Johnson R, Mauskopf J. Conjoint analysis applications in health-a checklist: a report of the ISPOR Good Research Practices for Conjoint Analysis Task Force. Value Health. 2011;14(4):403–413.
   PubMed Web of Science ®Google Scholar
• Lancaster KJ. A new approach to consumer theory. J Political Econ. 1966;74(2):132–157. doi:10.1086/259131.
   Web of Science ®Google Scholar
• Soekhai V, de Bekker-Grob EW, Ellis AR, Vass CM. Discrete choice experiments in health economics: past, present and future. Pharmacoeconomics. 2019;37(2):201–226.
   PubMed Web of Science ®Google Scholar
• de Bekker-Grob EW, Ryan M, Gerard K. Discrete choice experiments in health economics: a review of the literature. Health Econ. 2012;21(2):145–172.
   PubMed Web of Science ®Google Scholar
• Kleij KS, Tangermann U, Amelung VE, Krauth C. Patients’ preferences for primary health care - a systematic literature review of discrete choice experiments. BMC Health Serv Res. 2017;17(1):476.
   PubMed Web of Science ®Google Scholar
• Lancsar E, Fiebig DG, Hole AR. Discrete choice experiments: a guide to model specification, estimation and software. Pharmacoeconomics. 2017;35(7):697–716.
   PubMed Web of Science ®Google Scholar
• Lagarde M, Blaauw D. A review of the application and contribution of discrete choice experiments to inform human resources policy interventions. Hum Resour Health. 2009;7:62.
   PubMed Web of Science ®Google Scholar
• Mandeville KL, Lagarde M, Hanson K. The use of discrete choice experiments to inform health workforce policy: a systematic review. BMC Health Service Research. 2014;14:367.
   PubMed Web of Science ®Google Scholar
• Naik-Panvelkar P, Armour C, Rose J, Saini B. Patients’ value of asthma services in Australian pharmacies: the way ahead for asthma care. J Asthma. 2012;49(3):310–316.
   PubMed Web of Science ®Google Scholar
• Baggott C, Hardy J, Reddel H, Sparks J, Sabbagh D, Mane S, Holliday M, Hancox R, Hansen P, Beasley R, et al. Discrete choice experiments identifying attributes influencing treatment preference in mild asthma. Eur Respir J. 2019;54(suppl 63):PA4189. doi:10.1183/13993003.congress-2019.PA4189.
   Google Scholar
• Haughney J, Fletcher M, Wolfe S, Ratcliffe J, Brice R, Partridge MR. Features of asthma management: quantifying the patient perspective. BMC Pulm Med. 2007;7:16.
   PubMedGoogle Scholar
• Vass CM, Payne K. Using discrete choice experiments to inform the benefit-risk assessment of medicines: are we ready yet? Pharmacoeconomics. 2017;35(9):859–866.
   PubMed Web of Science ®Google Scholar
• de Bekker-Grob EW, Donkers B, Jonker MF, Stolk EA. Sample size requirements for discrete-choice experiments in healthcare: a practical guide. Patient. 2015;8(5):373–384.
   PubMedGoogle Scholar
• O’Connell S, McCarthy VJC, Savage E. Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: a systematic review and meta-synthesis of qualitative studies. Chronic Illness. 2021;17(3):283–305. doi:10.1177/1742395319869443.
   PubMed Web of Science ®Google Scholar
• O’Connell S, McCarthy VJC, Queally M, Savage E. The preferences of people with asthma or chronic obstructive pulmonary disease for self-management support: a qualitative descriptive study. J Clin Nurs. 2021;30(19–20):2832–2841. doi:10.1111/jocn.15790.
   PubMed Web of Science ®Google Scholar
• Helter TM, Boehler CE. Developing attributes for discrete choice experiments in health: a systematic literature review and case study of alcohol misuse interventions. J Subst Use. 2016;21(6):662–668.
   PubMed Web of Science ®Google Scholar
• Veldwijk J, Lambooij MS, de Bekker-Grob EW, Smit HA, de Wit GA. The effect of including an opt-out option in discrete choice experiments. PLoS One. 2014;9(11):e111805.
   PubMed Web of Science ®Google Scholar
• Kessels R, Jones B, Goos P. Bayesian optimal designs for discrete choice experiments with partial profiles. J Choice Modell. 2011;4(3):52–74. doi:10.1016/S1755-5345(13)70042-3.
   Web of Science ®Google Scholar
• Jonker MF, Donkers B, de Bekker-Grob E, Stolk EA. Attribute level overlap (and color coding) can reduce task complexity, improve choice consistency, and decrease the dropout rate in discrete choice experiments. Health Econ. 2019;28(3):350–363.
   PubMed Web of Science ®Google Scholar
• Juniper EF, O-byrne PM, Guyatt G, Ferrie P, King D. Development and validation of a questionnaire to measure asthma control. Eur Respir J. 1999;14(4):902–907. doi:10.1034/j.1399-3003.1999.14d29.x.
   PubMed Web of Science ®Google Scholar
• Juniper EF, Bousquet J, Abetz L, Bateman ED. Identifying ‘well-controlled’ and ‘not well-controlled’ asthma using the Asthma Control Questionnaire. Respir Med. 2006;100(4):616–621.
   PubMed Web of Science ®Google Scholar
• McFadden D. Conditional logit analysis of qualitative choice behavior. Berkeley: University of California; 1974.
   Google Scholar
• Hauber B, González JM, Groothuis-Oudshoorn C, Prior T, Marshall D, Cunningham C, IJzerman M, Bridges J. Statistical methods for the analysis of discrete choice experiments: a report of the ISPOR conjoint analysis good research practices task force. Value Health. 2016;19(4):300–315.
   PubMed Web of Science ®Google Scholar
• Campbell D, Erdem S. Including opt-out options in discrete choice experiments: issues to consider. Patient. 2019;12(1):1–14.
   PubMedGoogle Scholar
• Janssen EM, Marshall DA, Hauber AB, Bridges JFP. Improving the quality of discrete-choice experiments in health: how can we assess validity and reliability? Expert Rev Pharmacoecon Outcomes Res. 2017;17(6):531–542.
   PubMed Web of Science ®Google Scholar
• Langer S, Chew-Graham C, Hunter C, Guthrie EA, Salmon P. Why do patients with long-term conditions use unscheduled care? A qualitative literature review. Health Soc Care Community. 2013;21(4):339–351.
   PubMed Web of Science ®Google Scholar
• Johnston R, Boyle K, Adamowicz W (, Bennett J, Brouwer R, Cameron TA, Hanemann M, Hanley N, Ryan M, Scarpa R, et al. Contemporary guidance for stated preference studies. J Assoc Environ Resour Econ. 2017;4(2):319–405. doi:10.1086/691697.
   Web of Science ®Google Scholar
• Lingner H, Burger B, Kardos P, Criée CP, Worth H, Hummers-Pradier E. What patients really think about asthma guidelines: barriers to guideline implementation from the patients’ perspective. BMC Pulm Med. 2017;17(1):13.
   PubMedGoogle Scholar
• Hannane A, Misane L, Devouassoux G, Colin C, Letrilliart L. Asthma patients’ perception on their care pathway: a qualitative study. NPJ Prim Care Respir Med. 2019;29(1):9.
   PubMedGoogle Scholar
• Wilson S, Strub P, Buist S, Knowles S, Lavori P, Lapidus J, Vollmer W. Shared treatment decision making improves adherence and outcomes in poorly controlled asthma. Am J Respir Crit Care Med. 2010;181(6):566–577. doi:10.1164/rccm.200906-0907OC.
   PubMed Web of Science ®Google Scholar
• Hutchinson A, Barclay-Klingle N, Galvin K, Johnson MJ. Living with breathlessness: a systematic literature review and qualitative synthesis. Eur Respir J. 2018;51(2):1701477. doi:10.1183/13993003.01477-2017.
   PubMed Web of Science ®Google Scholar
• Ng J, Ntoumanis N, Thøgersen-Ntoumani C, Deci E, Ryan R, Duda J, Williams G. Self-determination theory applied to health contexts: a meta-analysis. Perspect Psychol Sci. 2012;7(4):325–340.
   PubMedGoogle Scholar
• Jagosh J, Donald Boudreau J, Steinert Y, Macdonald ME, Ingram L. The importance of physician listening from the patients’ perspective: enhancing diagnosis, healing, and the doctor-patient relationship. Patient Educ Couns. 2011;85(3):369–374.
   PubMed Web of Science ®Google Scholar
• Haggerty JL, Reid RJ, Freeman GK, Starfield BH, Adair CE, McKendry R. Continuity of care: a multidisciplinary review. BMJ. 2003;327(7425):1219–1221.
   PubMed Web of Science ®Google Scholar
• Hurst J, Fitzgerald-Khan F, Quint J, Goldring JJ, Mikelsons C, Dilworth P, Wedzicha J. Use and utility of a 24-hour Telephone Support Service for ‘high risk’ patients with COPD. Prim Care Respir J. 2010;19(3):260–265.
   PubMedGoogle Scholar
• Kielmann T, Powell A, Huby G, Pinnock H. A 24-hour telephone support service: can it really replace a relationship built over time? Prim Care Respir J. 2010;19(4):405.
   PubMedGoogle Scholar
• Health Service Executive. Knowledge and information strategy: delivering the benefits of eHealth in Ireland. 2015. [accessed 2017 May 5]. https://www.ehealthireland.ie/Knowledge-Information-Plan/Knowledge-and-Information-Plan.pdf.
   Google Scholar
• Savage E, Hegarty J, Weathers E, Mulligan L, Bradley C, Condon C, Cronly J, Lehane E, O Reilly A, Hartigan I, et al. Transforming chronic illness management through integrated care: a systematic review of what works best and why. Int J Integr Care. 2016;16(6):392–394. doi:10.5334/ijic.2942.
   Google Scholar
• Greenhalgh T, Koh GCH, Car J. Covid-19: a remote assessment in primary care. BMJ. 2020;368:m1182.
   PubMed Web of Science ®Google Scholar
• Shaw S, Seuren LM, Wherton J, Cameron D, A’Court C, Vijayaraghavan S, Morris J, Bhattacharya S, Greenhalgh T. Video consultations between patients and clinicians in diabetes, cancer, and heart failure services: linguistic ethnographic study of video-mediated interaction. J Med Internet Res. 2020;22(5):e18378.
   PubMed Web of Science ®Google Scholar
• Chronic Conditions Working Group. Living Well with a Chronic Condition: Framework for Self-management Support National Framework and Implementation Plan for Self-management Support for Chronic Conditions: COPD, Asthma, Diabetes and Cardiovascular disease. Ireland: Health Service Executive (HSE); 2017. [accessed 2017 May 12]. http://hdl.handle.net/10147/622639.
   Google Scholar
• Villa-Roel C, Voaklander B, Ospina MB, Nikel T, Campbell S, Rowe BH. Effectiveness of written action plans for acute asthma: a systematic review. J Asthma. 2018;55(2):188–195.
   PubMed Web of Science ®Google Scholar
• Ring N, Booth H, Wilson C, Hoskins G, Pinnock H, Sheikh A, Jepson R. The ‘vicious cycle’ of personalised asthma action plan implementation in primary care: a qualitative study of patients and health professionals’ views. BMC Fam Pract. 2015;16(1):12. doi:10.1186/s12875-015-0352-4.
   PubMedGoogle Scholar
• Kessels R. Homogeneous versus heterogeneous designs for stated choice experiments: Ain’t homogeneous designs all bad? J Choice Modell. 2016;21:2–9. doi:10.1016/j.jocm.2016.08.001.
   Web of Science ®Google Scholar
• Determann D, Gyrd-Hansen D, de Wit A, de Bekker-Grob E, Steyerberg E, Lambooij M, Bjørnskov Pedersen L. Designing unforced choice experiments to inform health care decision making: implications of using opt-out, neither, or status quo alternatives in discrete choice experiments. Med Decis Making. 2019;39(6):681–692.
   PubMed Web of Science ®Google Scholar