The role of primary care in the cancer care continuum: a qualitative study of cancer survivors’ experiences

References

• Sung H, Ferlay J, Siegel RL, et al. Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin. 2021;71(3):209–249.
   PubMed Web of Science ®Google Scholar
• Aziz NM. Cancer survivorship research: state of knowledge, challenges and opportunities. Acta Oncol. 2007;46(4):417–432.
   PubMed Web of Science ®Google Scholar
• Cancerfonden. Cancerfondsrapporten 2016 [The Swedish Cancer Society Report 2016]. Stockholm: Cancerfonden; 2016. Swedish.
   Google Scholar
• Survivor [Internet]. Bethesda (MD): National Cancer Institute [cited 2022 May 27]. Available from: https://www.cancer.gov/publications/dictionaries/cancer-terms/def/survivor
   Google Scholar
• Veloso AG, Sperling C, Holm LV, et al. Unmet needs in cancer rehabilitation during the early cancer trajectory – a nationwide patient survey. Acta Oncol. 2013;52(2):372–381.
   PubMed Web of Science ®Google Scholar
• Earle CC, Neville BA. Under use of necessary care among cancer survivors. Cancer. 2004;101(8):1712–1719.
   PubMed Web of Science ®Google Scholar
• Nekhlyudov L, O’malley DM, Hudson SV. Integrating primary care providers in the care of cancer survivors: gaps in evidence and future opportunities. Lancet Oncol. 2017;18(1):e30–e38.
   PubMed Web of Science ®Google Scholar
• Blane DN, Lewandowska M. Living with cancer and multimorbidity: the role of primary care. Curr Opin Support Palliat Care. 2019;13(3):213–219.
   PubMed Web of Science ®Google Scholar
• Grunfeld E, Fitzpatrick R, Mant D, et al. Comparison of breast cancer patient satisfaction with follow-up in primary care versus specialist care: results from a randomized controlled trial. Br J Gen Pract. 1999;49(446):705–710.
   PubMed Web of Science ®Google Scholar
• Cooper JM, Loeb SJ, Smith CA. The primary care nurse practitioner and cancer survivorship care. J Am Acad Nurse Pract. 2010;22(8):394–402.
   PubMedGoogle Scholar
• Heins M, Schellevis F, Rijken M, et al. Determinants of increased primary health care use in cancer survivors. J Clin Oncol. 2012;30(33):4155–4160.
   PubMed Web of Science ®Google Scholar
• DiCicco-Bloom B, Cunningham RS. The experience of information sharing among primary care with cancer survivors and their oncologists. J Cancer Surviv. 2013;7(1):124–130.
   PubMed Web of Science ®Google Scholar
• Dossett LA, Hudson JN, Morris MAM, et al. The primary care provider (PCP)-cancer specialist relationship: a systematic review and mixed methods meta-synthesis. CA Cancer J Clin. 2017;67(2):156–169.
   PubMed Web of Science ®Google Scholar
• Krok-Schoen JL, DeSalvo J, Klemanski D, et al. Primary care physicians’ perspectives of the survivorship care for older breast cancer survivors: a pilot study. Support Care Cancer. 2020;28(2):645–652.
   PubMed Web of Science ®Google Scholar
• Oeffinger KC, McCabe MS. Models for delivering survivorship care. J Clin Oncol. 2006;24(32):5117–5124.
   PubMed Web of Science ®Google Scholar
• Lisy K, Kent J, Piper A, et al. Facilitators and barriers to shared primary and specialist cancer care: a systematic review. Support Care Cancer. 2021;29(1):85–96.
   PubMed Web of Science ®Google Scholar
• Hewitt ME, Bamundo A, Day R, et al. Perspectives on post-treatment cancer care: qualitative research with survivors, nurses, and physicians. J Clin Oncol. 2007;25(16):2270–2273.
   PubMed Web of Science ®Google Scholar
• Schandl A, Lagergren J, Johar A, et al. Health-related quality of life 10 years after oesophageal cancer surgery. Eur J Cancer. 2016;69:43–50.
   PubMed Web of Science ®Google Scholar
• Åkeflo L, Dunberger G, Elmerstig E, et al. Cohort profile: an observational longitudinal data collection of health aspects in a cohort of female cancer survivors with a history of pelvic radiotherapy—a population-based cohort in the Western region of Sweden. BMJ Open. 2021;11(7):e049479.
   PubMed Web of Science ®Google Scholar
• Westman B, Kirkpatrick L, Ebrahim F, et al. Patient-reported experiences on supportive care strategies following the introduction of the first Swedish national cancer strategy and in accordance with the new patient act. Acta Oncol. 2018;57(3):382–392.
   PubMed Web of Science ®Google Scholar
• Sharp L, Westman B, Olofsson A, et al. Access to supportive care during and after cancer treatment and the impact of socioeconomic factors. Acta Oncol. 2018;57(10):1303–1310.
   PubMed Web of Science ®Google Scholar
• Anell A, Glenngård AH, Merkur S. Sweden health system review. Health Syst Transit. 2012;14(5):1–159.
   PubMedGoogle Scholar
• Regionala cancercentrum i samverkan. Cancerrehabilitering: Nationellt vårdprogram [Cancer rehabilitation: National care program]. Stockholm: Regionala cancercentrum i samverkan; 2021. Swedish.
   Google Scholar
• Kelmendi N, Klernäs P, Nilsson MI. Cancerrehabilitering i primärvården – en kartläggning av rehabiliteringsaktörer, överremittering och samverkan samt utbildningsbehov [Cancer rehabilitation in primary care: a survey of rehabilitation actors, remittal and cooperation, and educational needs]. Stockholm: Akademiskt Primärvårdscentrum; 2019. Swedish.
   Google Scholar
• Peek L, Fothergill A. Using focus groups: lessons from studying daycare centers, 9/11, and Hurricane Katrina. Qual Res. 2009;9(1):31–59.
   Web of Science ®Google Scholar
• Henage CB, Ferreri SP, Schlusser C, et al. Transitioning focus group research to a videoconferencing environment: a descriptive analysis of interactivity. Pharmacy. 2021;9(3):117.
   Web of Science ®Google Scholar
• Woodyatt CR, Finneran CA, Stephenson R. In-person versus online focus group discussions: a comparative analysis of data quality. Qual Health Res. 2016;26(6):741–749.
   PubMed Web of Science ®Google Scholar
• Rupert DJ, Poehlman JA, Hayes JJ, et al. Virtual versus in-person focus groups: comparison of costs, recruitment, and participant logistics. J Med Internet Res. 2017;19(3):e80.
   PubMed Web of Science ®Google Scholar
• Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–340.
   PubMed Web of Science ®Google Scholar
• King N. Using templates in the thematic analysis of text. In: Cassell C, Symon, G, editors. Essential guide to qualitative methods in organizational research. London: Sage Publications; 2004.
   Google Scholar
• Duineveld LAM, Molthof H, Wieldraaijer T, et al. General practitioners’ involvement during survivorship care of Colon cancer in The Netherlands: primary health care utilization during survivorship care of Colon cancer, a prospective multicentre cohort study. Fam Pract. 2019;36(6):765–770.
   PubMedGoogle Scholar
• Samordnad utveckling för god och nära vård. God och nära vård – En primärvårdsreform (SOU 2018:39). [Good quality, local health care – A primary care reform]. Stockholm: Socialdepartementet; 2018. Swedish.
   Google Scholar
• Vårdanalys. Vården ur befolkningens perspektiv 2016: En jämförelse mellan Sverige och tio andra länder (PM 2016:5) [The healthcare system from the perspective of the population: a comparison between Sweden and ten other countries]. Stockholm: Myndigheten för vård- och omsorgsanalys; 2016. Swedish.
   Google Scholar
• Ekman I, Swedberg K, Taft C, et al. Person-centered care–ready for prime time. Eur J Cardiovasc Nurs. 2011;10(4):248–251.
   PubMed Web of Science ®Google Scholar