Thanks for hearing me: key elements of primary care according to older patients

References

• Yu AFK, Chainani N, Fontana G, et al. Patient safety 2030: NIHR patient safety translational research Centre at Imperial College London and Imperial College Healthcare NHS Trust. London, UK: NHS; 2016.
   Google Scholar
• Alidina S, Martelli PF, S JS, et al. Optimizing patient partnership in primary care improvement: a qualitative study. Health Care Manage Rev. 2021;46(2):123–134. doi:10.1097/HMR.0000000000000250.
   PubMed Web of Science ®Google Scholar
• McCarron TL, Clement F, Rasiah J, et al. Patients as partners in health research: a scoping review. Health Expect. 2021;24(4):1378–1390. doi:10.1111/hex.13272.
   PubMed Web of Science ®Google Scholar
• Howe A. Principles of patient and public involvement in primary care research, applied to mental health research. A keynote paper from the EGPRN autumn conference 2017 in Dublin. Eur J Gen Pract. 2018;24(1):167–170. doi:10.1080/13814788.2018.1470620.
   PubMed Web of Science ®Google Scholar
• Rathjen KI, Herbon C, Jilani H, et al. Older patients’ involvement in research (INVOLVE-Clin): a study protocol. Z Evid Fortbild Qual Gesundhwes. 2020;156–157:82–88. doi:10.1016/j.zefq.2020.07.009.
   PubMed Web of Science ®Google Scholar
• Miah J, Dawes P, Edwards S, et al. Patient and public involvement in dementia research in the european union: a scoping review. BMC Geriatr. 2019;19(1):220. doi:10.1186/s12877-019-1217-9.
   PubMed Web of Science ®Google Scholar
• Ellis G, Whitehead MA, O’Neill D, et al. Comprehensive geriatric assessment for older adults admitted to hospital. Cochrane Database of Systematic Reviews, 7, CD 006211. doi: 10.1002/14651858.CD006211.pub2 (published 06 July 2011)
   PubMedGoogle Scholar
• Parker SG, McCue P, Phelps K, et al. What is comprehensive geriatric assessment (CGA)? An umbrella review. Age Ageing. 2018;47(1):149–155. doi:10.1093/ageing/afx166.
   PubMed Web of Science ®Google Scholar
• Pilotto A, Cella A, Pilotto A, et al. Three decades of comprehensive geriatric assessment: evidence coming from different healthcare settings and specific clinical conditions. J Am Med Dir Assoc. 2017;18(2):192.e1–e11. doi:10.1016/j.jamda.2016.11.004.
   PubMed Web of Science ®Google Scholar
• Espinoza Suarez NR, Walker LE, Jeffery MM, et al. Validation of the elderly risk assessment index in the emergency department. Am J Emerg Med. 2020;38(7):1441–1445. doi:10.1016/j.ajem.2019.11.048.
   PubMed Web of Science ®Google Scholar
• Marcusson J, Nord M, Johansson MM, et al. Proactive healthcare for frail elderly persons: study protocol for a prospective controlled primary care intervention in Sweden. BMJ Open. 2019;9(5):e027847. doi:10.1136/bmjopen-2018-027847.
   PubMed Web of Science ®Google Scholar
• Nord M, Östgren CJ, Marcusson J, et al. Staff experiences of a new tool for comprehensive geriatric assessment in primary care (PASTEL): a focus group study. Scand J Prim Health Care. 2020;38(2):132–145. doi:10.1080/02813432.2020.1755786.
   PubMed Web of Science ®Google Scholar
• Nord M, Lyth J, Alwin J, et al. Costs and effects of comprehensive geriatric assessment in primary care for older adults with high risk for hospitalisation. BMC Geriatr. 2021;21(1):263. doi:10.1186/s12877-021-02166-1.
   PubMed Web of Science ®Google Scholar
• Marcusson J, Nord M, Dong HJ, et al. Clinically useful prediction of hospital admissions in an older population. BMC Geriatr. 2020;20(1):95. doi:10.1186/s12877-020-1475-6.
   PubMed Web of Science ®Google Scholar
• Nord M, Lyth J, Marcusson J, et al. Cost-Effectiveness of comprehensive geriatric assessment adapted to primary care. J Am Med Dir Assoc. 2022;23(12):2003–2009. doi:10.1016/j.jamda.2022.04.007.
   PubMed Web of Science ®Google Scholar
• Muth C, Blom JW, Smith SM, et al. Evidence supporting the best clinical management of patients with multimorbidity and polypharmacy: a systematic guideline review and expert consensus. J Intern Med. 2019;285(3):272–288. doi:10.1111/joim.12842.
   PubMed Web of Science ®Google Scholar
• de Labra C, Guimaraes-Pinheiro C, Maseda A, et al. Effects of physical exercise interventions in frail older adults: a systematic review of randomized controlled trials. BMC Geriatr. 2015;15(1):154. doi:10.1186/s12877-015-0155-4.
   PubMedGoogle Scholar
• Klompstra L, Ekdahl AW, Krevers B, et al. Factors related to health-related quality of life in older people with multimorbidity and high health care consumption over a two-year period. BMC Geriatr. 2019;19(1):187. doi:10.1186/s12877-019-1194-z.
   PubMed Web of Science ®Google Scholar
• Veronese N, Noale M, Cella A, et al. Multidimensional frailty and quality of life: data from the english longitudinal study of ageing. Qual Life Res. 2022;31(10):2985–2993. doi:10.1007/s11136-022-03152-9.
   PubMed Web of Science ®Google Scholar
• Kuosmanen L, Hupli M, Ahtiluoto S, et al. Patient participation in shared decision-making in palliative care - an integrative review. J Clin Nurs. 2021;30(23–24):3415–3428. doi:10.1111/jocn.15866.
   PubMed Web of Science ®Google Scholar
• Skivington K, Matthews L, Simpson SA, et al. A new framework for developing and evaluating complex interventions: update of medical research council guidance. BMJ. 2021;374:n2061. doi:10.1136/bmj.n2061.
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research & evaluation methods: integrating theory and practice. Thousand Oaks (CA): SAGE Publications, Inc; 2015.
   Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112. doi:10.1016/j.nedt.2003.10.001.
   PubMed Web of Science ®Google Scholar
• Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet. 2001;358(9280):483–488. doi:10.1016/S0140-6736(01)05627-6.
   PubMed Web of Science ®Google Scholar
• Westerling U, Hellgren M, Hermansson L, et al. In safe hands: a qualitative study on older adults’ experiences of a tailored primary health care unit. Scand J Prim Health Care. 2022;40(2):271–280. doi:10.1080/02813432.2022.2097611.
   PubMed Web of Science ®Google Scholar
• King AII, Boyd ML, Dagley L, et al. Implementation of a gerontology nurse specialist role in primary health care: health professional and older adult perspectives. J Clin Nurs. 2018;27(3–4):807–818. doi:10.1111/jocn.14110.
   PubMed Web of Science ®Google Scholar
• Johansson MM, Nätt M, Peolsson A, et al. Frail community-dwelling older persons’ everyday lives and their experiences of rehabilitation - a qualitative study. Scand J Occup Ther. 2023;30(1):65–75. doi:10.1080/11038128.2022.2093269.
   PubMed Web of Science ®Google Scholar
• Olaison A, Cedersund E, Marcusson J, et al. Maneuvering the care puzzle: experiences of participation in care by frail older persons with significant care needs living at home. Int J Qual Stud Health Well-Being. 2021;16(1):1937896. doi:10.1080/17482631.2021.1937896.
   PubMed Web of Science ®Google Scholar
• Keränen NS, Kangas M, Immonen M, et al. Use of information and communication technologies among older people with and without frailty: a population-based survey. J Med Internet Res. 2017;19(2):e29. doi:10.2196/jmir.5507.
   PubMed Web of Science ®Google Scholar
• Olaison A, Cedersund E, Marcusson J, et al. Do you have a future when you are 93?’ frail older person’s perceptions about the future and end of life - a qualitative interview study in primary care. Scand J Prim Health Care. 2022;40(4):417–425. doi:10.1080/02813432.2022.2139348.
   PubMed Web of Science ®Google Scholar
• Kastbom L, Milberg A, Karlsson M. A good death from the perspective of palliative cancer patients. Support Care Cancer. 2017;25(3):933–939. doi:10.1007/s00520-016-3483-9.
   PubMed Web of Science ®Google Scholar
• Kastbom L, Karlsson M, Falk M, et al. Elephant in the room - family members’ perspectives on advance care planning. Scand J Prim Health Care. 2020;38(4):421–429. doi:10.1080/02813432.2020.1842966.
   PubMed Web of Science ®Google Scholar
• Thoresen L, Lillemoen L. “I just think that we should be informed” a qualitative study of family involvement in advance care planning in nursing homes. BMC Med Ethics. 2016;17(1):72. doi:10.1186/s12910-016-0156-7.
   PubMedGoogle Scholar
• Oltmann S. Qualitative interviews: a methodological discussion of the interviewer and respondent contexts. In: Forum: Qualitative Social Research. Vol. 17; 2016. p. 1–16.
   Google Scholar
• Sturges JE, Hanrahan KJ. Comparing telephone and face-to-face qualitative interviewing: a research note. Qual Res. 2004;4(1):107–118. doi:10.1177/1468794104041110.
   Google Scholar
• Ebrahimi Z, Patel H, Wijk H, et al. A systematic review on implementation of person-centered care interventions for older people in out-of-hospital settings. Geriatr Nurs. 2021;42(1):213–224. doi:10.1016/j.gerinurse.2020.08.004.
   PubMed Web of Science ®Google Scholar
• Kogan AC, Wilber K, Mosqueda L. Person-centered care for older adults with chronic conditions and functional impairment: a systematic literature review. J Am Geriatr Soc. 2016;64(1):e1-7–e7. doi:10.1111/jgs.13873.
   PubMed Web of Science ®Google Scholar
• Backman WD, Levine SA, Wenger NK, et al. Shared decision-making for older adults with cardiovascular disease. Clin Cardiol. 2020;43(2):196–204. doi:10.1002/clc.23267.
   PubMed Web of Science ®Google Scholar
• Person-Centered care: a definition and essential elements. J Am Geriatr Soc. 2016;64(1):15–18.
   PubMed Web of Science ®Google Scholar
• Ranstad K, Midlöv P, Halling A. Active listing and more consultations in primary care are associated with reduced hospitalisation in a Swedish population. BMC Health Serv Res. 2018;18(1):101. doi:10.1186/s12913-018-2908-1.
   PubMedGoogle Scholar
• Liao L, Feng M, You Y, et al. Experiences of older people, healthcare providers and caregivers on implementing person-centered care for community-dwelling older people: a systematic review and qualitative meta-synthesis. BMC Geriatr. 2023;23(1):207. doi:10.1186/s12877-023-03915-0.
   PubMed Web of Science ®Google Scholar