Patient-reported experiences on supportive care strategies following the introduction of the first Swedish national cancer strategy and in accordance with the new patient act

References

• Statens offentliga utredningar (SOU). En nationell cancerstrategi för framtiden 2009:11 [A National Strategy for the Future 2009:11] Stockholm: Socialdepartementet; 2009. Available from: http://www.regeringen.se/rattsdokument/statens-offentliga-utredningar/2009/02/sou-200911/
   Google Scholar
• Strategic Plan. 2017. Multinational Association of Supportive Care in Cancer (MASCC). Available from: http://www.mascc.org/index.php?option=com_content&view=article&id=493:mascc-strategic-plan&catid=30:navigation
   Google Scholar
• Bell JF, Whitney RL, Reed SC, et al. Systematic review of hospital readmissions among patients with cancer in the United States. Oncol Nurs Forum. 2017;44:176–191.
   PubMed Web of Science ®Google Scholar
• Blinder VS, Norris VW, Peacock NW, et al. Patient perspectives on breast cancer treatment plan and summary documents in community oncology care: a pilot program. Cancer. 2013;119:164–172.
   PubMed Web of Science ®Google Scholar
• Brennan ME, Gormally JF, Butow P, et al. Survivorship care plans in cancer: a systematic review of care plan outcomes. Br J Cancer. 2014;111:1899–1908.
   PubMed Web of Science ®Google Scholar
• Mayer DK, Birken SA, Check DK, et al. Summing it up: an integrative review of studies of cancer survivorship care plans (2006–2013). Cancer. 2015;121:978–996.
   PubMed Web of Science ®Google Scholar
• Philip J, Gold M, Schwarz M, et al. Second medical opinions: the views of oncology patients and their physicians. Support Care Cancer. 2010;18:1199–1205.
   PubMed Web of Science ®Google Scholar
• Foster C, Breckons M, Cotterell P, et al. Cancer survivors’ self-efficacy to self-manage in the year following primary treatment. J Cancer Surviv. 2015;9:11–19.
   PubMed Web of Science ®Google Scholar
• Patient Act. 2014:821 2014. Available from: http://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/patientlag-2014821_sfs-2014-821
   Google Scholar
• Carlsson C, Nilbert M, Nilsson K. Patients’ involvement in improving cancer care: experiences in three years of collaboration between members of patient associations and health care professionals. Patient Educ Couns. 2006;61:65–71.
   PubMed Web of Science ®Google Scholar
• World Health Organisation (WHO). Definition of Palliative Care, 2005. Available from: http://www.who.int/cancer/palliative/definition/en/
   Google Scholar
• Dalal S, Palla S, Hui D, et al. Association between a name change from palliative to supportive care and the timing of patient referrals at a comprehensive cancer center. The Oncologist. 2011;16:105–111.
   PubMed Web of Science ®Google Scholar
• Barlow L, Westergren K, Holmberg L, et al. The completeness of the Swedish cancer register: a sample survey for year 1998. Acta Oncol. 2009;48:27–33.
   PubMed Web of Science ®Google Scholar
• Aaronson NK, Ahmedzai S, Bergman B, et al. The European organization for research and treatment of cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85:365–376.
   PubMed Web of Science ®Google Scholar
• Arraras JI, Greimel E, Sezer O, et al. An international validation study of the EORTC QLQ-INFO25 questionnaire: an instrument to assess the information given to cancer patients. Eur J Cancer. 2010;46:2726–2738.
   PubMed Web of Science ®Google Scholar
• Fayers P, Bottomley A, Group EQoL. Quality of life U. Quality of life research within the EORTC – the EORTC QLQ-C30. European Organisation for research and treatment of cancer. Eur J Cancer. 2002;38(Suppl 4):S125–S133.
   PubMed Web of Science ®Google Scholar
• EORTC QLQ-C30 Reference Values: European Organization for Research and Treatment of Cancer (EORTC); 2008. Available from: http://groups.eortc.be/qol/sites/default/files/img/newsletter/reference_values_manual2008.pdf
   Google Scholar
• Insatser för fler kontaktsjuksköterskor inom cancervården, Ännu bättre cancervård – delrapport 8. [Efforts for an increasing number of Contact Nurses in Cancer Care] Stockholm: Sveriges kommuner och landsting (SKL); 2013. Available from: http://www.cancercentrum.se/stockholm-gotland/patient-och-narstaende/kontaktsjukskoterska/
   Google Scholar
• Kontaktsjuksköterskefunktionen Stockholm-Gotland – Genomlysning av befintlig verksamhet och förslag till förbättringar. [Contact Nurses in Stockholm Gotland region – Analysis of existing activities and suggestions for improvements]. Regional Cancer Center Stockholm Gotland; 2013. Available from: http://www.cancercentrum.se/stockholm-gotland/patient-och-narstaende/kontaktsjukskoterska/
   Google Scholar
• Bjuresäter K, Larsson M. Patients’ views of quality of care related to different models of contact nurse in Swedish cancer care. BMC Nursing. 2017;16:3.
   PubMed Web of Science ®Google Scholar
• Tho PC, Ang E. The effectiveness of patient navigation programs for adult cancer patients undergoing treatment: a systematic review. JBI Database System Rev Implement Rep. 2016;14:295–321.
   PubMedGoogle Scholar
• Vårdanalys. Vården ur befolkningens perspektiv 2016 – en jämförelse mellan Sverige och 10 andra länder [The Care from the Populations perspective 2016 – a comparison between Sweden and ten other countries]. Stockholm; 2016.
   Google Scholar
• Nolte L, Kinnane N, Lai-Kwon J, et al. The impact of survivorship care planning on patients, general practitioners, and hospital-based staff. Cancer Nurs. 2016;39:e26–e35.
   PubMed Web of Science ®Google Scholar
• Zysman M, Clement-Duchene C, Nguyen-Thi PL, et al. Evaluation of requests for a second medical opinion by patients with lung cancer. Rev Mal Respir. 2014;31:412–420.
   Google Scholar
• Shmueli L, Shmueli E, Pliskin JS, et al. Second medical opinion: utilization rates and characteristics of seekers in a general population. Med Care. 2016;54:921–928.
   PubMed Web of Science ®Google Scholar
• Feigelson HS, McMullen CK, Madrid S, et al. Optimizing patient-reported outcome and risk factor reporting from cancer survivors: a randomized trial of four different survey methods among colorectal cancer survivors. J Cancer Surviv. 2017;11:393–400.
   PubMed Web of Science ®Google Scholar