References
- Sung H, Ferlay J, Siegel RL, et al. Global Cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin. 2021;71(3):209–249.
- NORDCAN. Association of the Nordic Cancer Registries; [cited 2022 October 31]. Available from: https://nordcan.airc.fr/.
- Engholm G, Ferlay J, Christensen N, et al. NORDCAN – a nordic tool for cancer information, planning, quality control and research. Acta Oncol. 2010;49(5):725–736.
- Jakobsen E, Rasmussen TR, green A. Mortality and survival of lung cancer in Denmark: results from the danish lung cancer group 2000–2012. Acta Oncologica. 2016;55(sup2):2–9.
- Hakulinen T, Engholm G, Gislum M, et al. Trends in the survival of patients diagnosed with cancers in the respiratory system in the nordic countries 1964–2003 followed up to the end of 2006. Acta Oncol. 2010;49(5):608–623.
- Christensen NL, Jekunen A, Heinonen S, et al. Lung cancer guidelines in Sweden, Denmark, Norway and Finland: a comparison. Acta Oncol. 2017;56(7):943–948.
- Neal RD, Din NU, Hamilton W, et al. Comparison of cancer diagnostic intervals before and after implementation of NICE guidelines: analysis of data from the UK general practice research database. Br J Cancer. 2014;110(3):584–592.
- Olsen J, Brønnum-Hansen H, Gissler M, et al. High-throughput epidemiology: combining existing data from the nordic countries in health-related collaborative research. Scand J Public Health. 2010;38(7):777–779.
- Laugesen K, Ludvigsson JF, Schmidt M, et al. Nordic health registry-based research: a review of health care systems and key registries. Clin Epidemiol. 2021;13:533–554.
- Pukkala E, Engholm G, Højsgaard Schmidt LK, et al. Nordic Cancer registries–an overview of their procedures and data comparability. Acta Oncol. 2018;57(4):440–455.
- Jakobsen E, rasmussen T. The Danish lung cancer registry. Clin Epidemiol. 2016;8:537–541.
- Walters S, Maringe C, Coleman MP, et al. Lung cancer survival and stage at diagnosis in Australia, Canada, Denmark, Norway, Sweden and the UK: a population-based study, 2004–2007. Thorax. 2013;68(6):551–564.
- Coleman MP, Forman D, Bryant H, et al. Cancer survival in Australia, Canada, Denmark, Norway, Sweden, and the UK, 1995–2007 (the international cancer benchmarking partnership): an analysis of population-based cancer registry data. Lancet. 2011;377(9760):127–138.
- Reitsma MB, Kendrick PJ, Ababneh E, et al. Spatial, temporal, and demographic patterns in prevalence of smoking tobacco use and attributable disease burden in 204 countries and territories, 1990–2019: a systematic analysis from the global burden of disease study 2019. Lancet. 2021;397(10292):2337–2360.
- Degenhardt L, Charlson F, Ferrari A, et al. The global burden of disease attributable to alcohol and drug use in 195 countries and territories, 1990–2016: a systematic analysis for the global burden of disease study 2016. Lancet Psychiat. 2018;5(12):987–1012.
- Robinson D, Sankila R, Hakulinen T, et al. Interpreting international comparisons of cancer survival: the effects of incomplete registration and the presence of death certificate only cases on survival estimates. Eur J Cancer. 2007;43(5):909–913.
- Nilbert M, Thomsen L, Ursin G, et al. The power of empirical data; lessons from the clinical registry initiatives in Scandinavian cancer care. Acta Oncol. 2020;59(11):1343–1356.
- Parkin DM, bray F. Evaluation of data quality in the cancer registry: principles and methods part II. Completeness. Eur J Cancer. 2009;45(5):756–764.
- Gjerstorff ML. The Danish cancer registry. Scand J Public Health. 2011;39(7 Suppl):42–45.
- Storm HH, Michelsen EV, Clemmensen IH, et al. The Danish cancer registry – history, content, quality and use. Danish medical Bulletin. 1997;44(5):535–539.
- The Danish Cancer registry; [cited 2021 Dec 10]. Available from: https://www.esundhed.dk/Registre/Cancerregisteret.
- Jakobsen E, Green A, Oesterlind K, et al. Nationwide quality improvement in lung cancer care: the role of the Danish lung cancer group and registry. J Thorac Oncol. 2013;8(10):1238–1247.
- Lynge E, Sandegaard JL, rebolj M. The Danish national patient register. Scand J Public Health. 2011;39(7 Suppl):30–33.
- The Danish Lung Cancer Registry annual report 2021; [cited 2022 Oct 13]. Available from: https://www.lungecancer.dk/wp-content/uploads/2022/09/%C3%85rsrapport-2021offentlig.pdf.
- Pedersen CB. The Danish civil registration system. Scand J Public Health. 2011;39(7 Suppl):22–25.
- Christensen J, Mette A, Kejs T, et al. Agreement between the Danish cancer registry and the Danish lung cancer registry. Danish Med J. 2020;67(8):A04190257.
- The Danish Clinical Quality Program– National Clinical Registries; [cited 2022 Oct14]. Available from: https://www.rkkp.dk/in-english/.
- The Finnish Cancer Registry; [cited 2021 Dec 02]. Available from: https://cancerregistry.fi/.
- The Finnish Cancer Registry annual report 2019; [cited 2021 Dec 02]. Available from: https://syoparekisteri.fi/assets/files/2021/07/Cancer_in_Finland_2019.pdf.
- Leinonen MK, Miettinen J, Heikkinen S, et al. Quality measures of the population-based Finnish cancer registry indicate sound data quality for solid malignant tumours. Eur J Cancer. 2017;77:31–39.
- Finnish Social and Health Data Permit Authority Findata. Available from: https://findata.fi/en/what-is-findata/.
- The Cancer Registry of Norway; [cited 2021 Nov 25]. Available from: www.kreftregistret.no.
- The Cancer Registry of Norway annual report 2021; [cited 2021 Nov 16]. Available from: https://www.kreftregisteret.no/Generelt/Rapporter/Arsrapport-fra-kvalitetsregistrene/Arsrapport-for-lungekreft/arsrapport-for-lungekreft-2021/.
- Larsen IK, Småstuen M, Johannesen TB, et al. Data quality at the cancer registry of Norway: an overview of comparability, completeness, validity and timeliness. Eur J Cancer. 2009;45(7):1218–1231.
- The Norwegian national quality registry of lung cancer (Nasjonalt kvalitetsregister for lungekreft) annual report 2021; [cited 2022 Oct 31]. Available from: https://www.kreftregisteret.no/Generelt/Rapporter/Arsrapport-fra-kvalitetsregistrene/Arsrapport-for-lungekreft/arsrapport-for-lungekreft-2021/.
- The Swedish Cancer Registry; [cited 2021 Nov 20]. Available from: https://www.socialstyrelsen.se/statistik-och-data/register/alla-register/cancerregistret/.
- Barlow L, Westergren K, Holmberg L, et al. The completeness of the Swedish cancer register – a sample survey for year 1998. Acta Oncol. 2009;48(1):27–33.
- The Swedish National Lung Cancer Register; [cited 2022 Nov 3]. Available from: https://cancercentrum.se/globalassets/cancerdiagnoser/lunga-och-lungsack/kvalitetsregister/rapport/20220923_nlcr_nationell_rapport2021.pdf.
- Löfling L, Karimi A, Sandin F, et al. Clinical characteristics and survival in non-small cell lung cancer patients by smoking history: a population-based cohort study. Acta Oncol. 2019;58(11):1618–1627.
- Willén L, Berglund A, Bergström S, et al. Educational level and management and outcomes in non-small cell lung cancer. A nationwide population-based study. Lung Cancer. 2019;131:40–46.
- Löfling L, Bahmanyar S, Kieler H, et al. Temporal trends in lung cancer survival: a population-based study. Acta Oncologica. 2022;61(5):625–631.
- Socialstyrrelsen Sweden; [cited 2022 Nov 01]. Available from: https:bestilladtata.socialstyrelsen.se/data-for-forskning/.
- Butler CA, Darragh KM, Currie GP, et al. Variation in lung cancer survival rates between countries: do differences in data reporting contribute? Respir Med. 2006;100(9):1642–1646.
- Møller H, Richards S, Hanchett N, et al. Completeness of case ascertainment and survival time error in english cancer registries: impact on 1-year survival estimates. Br J Cancer. 2011;105(1):170–176.
- Andersson TML, Rutherford MJ, Myklebust TÅ, et al. Exploring the impact of cancer registry completeness on international cancer survival differences: a simulation study. Br J Cancer. 2021;124(5):1026–1032.
- Ederer F, Axtell LM, cutler SJ. The relative survival rate: a statistical methodology. Natl Cancer Inst Monogr. 1961;6:101–121.
- The Danish Lung Cancer Group list of publications; [cited 2022 Oct 31]. Available from: https://www.lungecancer.dk/forskning-og-udtraek/publikationer/.
- Christensen NL, Løkke A, Dalton SO, et al. Smoking, alcohol, and nutritional status in relation to one-year mortality in danish stage I lung cancer patients. Lung Cancer. 2018;124:40–44.