Qualitative exploration of the barriers to, and facilitators of, screening children for autism spectrum disorder in Oman

References

• Al Ali, N. M., Alqurneh, M. K., Dalky, H., & Al-Omari, H. (2017). Factors affecting help-seeking attitudes regarding mental health services among attendance of primary health care centers in Jordan. International Journal of Mental Health, 46(1), 38–51.
   Web of Science ®Google Scholar
• Al-Farsi, Y. M., Al Shafaee, M. A., Al-Lawati, K. S., Al-Sharbati, M. M., Al-Tamimi, M. F., Al-Farsi, O. A., … Al-Adawi, S. S. (2016). Awareness about autism among primary healthcare providers in Oman: A cross-sectional study. Global Journal of Health Science, 9(6), 65–75.
   Google Scholar
• Al-Farsi, Y. M., Al-Sharbati, M. M., Al-Farsi, O. A., Al-Shafaee, M. S., Brooks, D. R., & Waly, M. I. (2011). Brief report: Prevalence of autistic spectrum disorders in the sultanate of Oman. Journal of Autism and Developmental Disorders, 41(6), 821–825.
   PubMed Web of Science ®Google Scholar
• Al-Farsi, Y. M., Waly, M. I., Al-Sharbati, M. M., Al-Shafaee, M., Al-Farsi, O., Al-Fahdi, S., & Ouhtit, A. (2013). Variation in socio-economic burden for caring of children with autism spectrum disorder in oman: caregiver perspectives. Journal of autism and developmental disorders, 43, 1214–1221.
   PubMed Web of Science ®Google Scholar
• Al-Sharbati, M. M., Al-Farsi, Y. M., Ouhtit, A., Waly, M. I., Al-Shafaee, M., Al-Farsi, O., … Al-Adawi, S. (2015). Awareness about autism among school teachers in Oman: A cross-sectional study. Autism, 19(1), 6–13.
   PubMed Web of Science ®Google Scholar
• Barbaro, J., & Halder, S. (2016). Early identification of autism spectrum disorder: Current challenges and future global directions. Current Developmental Disorders Reports, 3(1), 67–74.
   Google Scholar
• Barry, K. L., Blow, F. C., Willenbring, M., McCormick, R., Brockmann, L. M., & Visnic, S. (2004). Use of alcohol screening and brief interventions in primary care settings: Implementation and barriers. Substance Abuse, 25(1), 27–36.
   PubMedGoogle Scholar
• Barton, M. L., Dumont-Mathieu, T., & Fein, D. (2012). Screening young children for autism spectrum disorders in primary practice. Journal of Autism & Developmental Disorders, 42(6), 1165–1174.
   PubMed Web of Science ®Google Scholar
• Baxter, A., Brugha, T., Erskine, H., Scheurer, R., Vos, T., & Scott, J. (2015). The epidemiology and global burden of autism spectrum disorders. Psychological medicine, 45, 601613.
   Web of Science ®Google Scholar
• Bener, A., Abdulmalik, M., Al-Kazaz, M., Sanya, R., Buhmaid, S., Al-Harthy, M., & Mohammad A.-G. (2012). Does good clinical practice at the primary care improve the outcome care for diabetic patients? Gender differences. Primary Care Diabetes, 6, 285–292.
   PubMed Web of Science ®Google Scholar
• Boynton, P. M., & Greenhalgh, T. (2004). Selecting, designing, and developing your questionnaire. BMJ, 328(7451), 1312–1315.
   PubMed Web of Science ®Google Scholar
• Brett, D., Warnell, F., McConachie, H., & Parr, J. R. (2016). Factors affecting age at ASD diagnosis in UK: No evidence that diagnosis age has decreased between 2004 and 2014. Journal of Autism and Developmental Disorders, 46(6), 1974–1984.
   PubMed Web of Science ®Google Scholar
• Daley, E., Alio, A., Anstey, E. H., Chandler, R., Dyer, K., & Helmy, H. (2011). Examining barriers to cervical cancer screening and treatment in florida through a socio-ecological lens. Journal of Community Health, 36(1), 121–131.
   PubMed Web of Science ®Google Scholar
• David, M. C., & Ware, R. S. (2014). Meta-analysis of randomized controlled trials supports the use of incentives for inducing response to electronic health surveys. Journal of Clinical Epidemiology, 67(11), 1210–1221. doi: 10.1016/j.jclinepi.2014.08.001
   PubMed Web of Science ®Google Scholar
• De Marco, P., Dain, C., Lockwood, T., & Roland, M. (1993). How valuable is feedback of information on hospital referral patterns? BMJ, 307(6917), 1465–1466.
   PubMed Web of Science ®Google Scholar
• Diem, K. (2004). A step-by-step guide to developing effective questionnaires and survey procedures for program evaluation & research. Rutgers Cooperative Research & Extension, NJAES, Rutgers, The State University of New Jersey. Retrieved from University of Canberra E-reserve.
   Google Scholar
• Dosreis, S., Weiner, C. L., Johnson, L., & Newschaffer, C. J. (2006). Autism spectrum disorder screening and management practices among general pediatric providers. Journal of Developmental & Behavioral Pediatrics, 27(2), S88–S94.
   PubMed Web of Science ®Google Scholar
• Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31(7), 1011–1027.
   PubMed Web of Science ®Google Scholar
• Fenikile, T. S., Ellerbeck, K., Filippi, M. K., & Daley, C. M. (2015). Barriers to autism screening in family medicine practice: A qualitative study. Primary Health Care Research & Development, 16(4), 356–366.
   PubMed Web of Science ®Google Scholar
• Filipek, P. A., Accardo, P., Ashwal, S., Baranek, G., Cook, E., Dawson, G., … Kallen, R. (2000). Practice parameter: Screening and diagnosis of autism report of the quality standards subcommittee of the American academy of neurology and the child neurology society. Neurology, 55(4), 468–479.
   PubMed Web of Science ®Google Scholar
• Gray, D. E. (1993). Perceptions of stigma: The parents of autistic children. Sociology of Health & Illness, 15(1), 102–120.
   Web of Science ®Google Scholar
• Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24(6), 734–749.
   Web of Science ®Google Scholar
• Hill, S. K. (2013). Perceived barriers and facilitators to mental and behavioral health screening and treatment in primary care for women in Northeast Tennessee.
   Google Scholar
• Hussein, H., Shaker, N., El-Sheikh, M., & Ramy, H. A. (2012). Pathways to child mental health services among patients in an urban clinical setting in Egypt. Psychiatric Services, 63(12), 1225–1230.
   PubMed Web of Science ®Google Scholar
• Iarossi, G. (2006). The power of survey design: A user's guide for managing surveys, interpreting results, and influencing respondents. Washington, DC: World Bank Publications.
   Google Scholar
• Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183–1215.
   PubMed Web of Science ®Google Scholar
• Kang-Yi, C. D., Grinker, R. R., & Mandell, D. S. (2013). Korean culture and autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(3), 503–520.
   PubMed Web of Science ®Google Scholar
• Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13(3), 317–336.
   PubMed Web of Science ®Google Scholar
• Kopetz, P., & Endowed, E. (2012). Autism worldwide: Prevalence, perceptions, acceptance, action. Journal of Social Sciences, 8(2), 196–201.
   Google Scholar
• Krueger, R. A., & Casey, M. A. (2014). Focus groups: A practical guide for applied research. Thousand Oaks, California: Sage publications.
   Google Scholar
• Long, Choi Sang, Ajagbe, Musibau Akintunde, & Kowang, Tan Owee. (2014). Addressing the issues on employees’ turnover intention in the perspective of HRM practices in SME. Procedia - Social and Behavioral Sciences, 129, 99–104. doi: 10.1016/j.sbspro.2014.03.653
   Google Scholar
• MacLeod, A., Lewis, A., & Robertson, C. (2013). ‘Why should I be like bloody rain man?!’Navigating the autistic identity. British Journal of Special Education, 40(1), 41–49.
   Google Scholar
• Matson, J. L., Worley, J. A., Fodstad, J. C., Chung, K.-M., Suh, D., Jhin, H. K., … Furniss, F. (2011). A multinational study examining the cross cultural differences in reported symptoms of autism spectrum disorders: Israel, South Korea, the United Kingdom, and the United States of America. Research in Autism Spectrum Disorders, 5(4), 1598–1604.
   Web of Science ®Google Scholar
• Mattila, M. L., Jussila, K., Kuusikko, S., Kielinen, M., Linna, S. L., Ebeling, H., … Moilanen, I. (2009). When does the autism spectrum screening questionnaire (ASSQ) predict autism spectrum disorders in primary school-aged children? European Child & Adolescent Psychiatry, 18(8), 499–509.
   PubMed Web of Science ®Google Scholar
• Ministry of Health. (2011). Manual for the Management of Mental Illness in Primary Health Care (Second Edition). Muscat , Oman: Department Of Non Communicable Diseases Surveillance &Control Ibn-Sina Hospital Department of Primary Health Care. http://www.who.int/mental_health/who_aims_oman_report.pdf
   Google Scholar
• Ministry of Health, & Department of Health information and Statistics. (2015). Annual Health Report 2015 (Chapter Four: Human Resources for Health). Muscat: Ministry of Health. https://www.moh.gov.om/documents/274609/1136023/%D8%A7%D9%84%D9%81%D8%B5%D9%84+%D8%A7%D9%84%D8%B1%D8%A7%D8%A8%D8%B9/ca03c172-64b3-4065-aabf-d07a8a51b424
   Google Scholar
• Ministry of Health. (2015). Health Vision 2050. Synopsis of Strategic Studies Volume 1. Retrieved from https://www.moh.gov.om/documents/16506/119833/Health+Vision+2050/7b6f40f3-8f93-4397-9fde-34e04026b829
   Google Scholar
• Ministry of Health. (2017). Child health nursing course syllabus (In: DEVELOPMENT, D. G. O. H. R. (ed.). Oman: MoH.
   Google Scholar
• Nickel, R. E., & Huang-Storms, L. (2017). Early identification of young children with autism spectrum disorder. The Indian Journal of Pediatrics, 84(1), 53–60. doi: 10.1007/s12098-015-1894-0
   PubMed Web of Science ®Google Scholar
• Oelke, N. D., Besner, J., & Carter, R. (2014). The evolving role of nurses in primary care medical settings. International Journal of Nursing Practice, 20(6), 629–635.
   PubMed Web of Science ®Google Scholar
• Pierce, K., Carter, C., Weinfeld, M., Desmond, J., Hazin, R., Bjork, R., & Gallagher, N. (2011). Detecting, studying, and treating autism early: The one-year well-baby check-up approach. The Journal of Pediatrics, 159(3), 458–465.e6.
   PubMed Web of Science ®Google Scholar
• Polit, D. F., & Beck, C. T. (2004). Nursing research: Principles and methods. London: Lippincott Williams & Wilkins.
   Google Scholar
• Price, B. (2002). Laddered questions and qualitative data research interviews. Journal of Advanced Nursing, 37(3), 273–281.
   PubMed Web of Science ®Google Scholar
• Ritchie, J., & Lewis, J. (2003). A guide for social science students and researchers. In C. Nicholls & R. Ormston (Eds.), Qualitative research practice. London: sage.
   Google Scholar
• Ritchie, J., Lewis, J., Nicholls, C. M., & Ormston, R. (2014). Qualitative research practice: A guide for social science students and researchers. London: Sage.
   Google Scholar
• Ritchie, J., & Spenser, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & R. G. Burgess (Eds.), Analyzing Qualitative Data. London: Routledge.
   Google Scholar
• Saleh, S., Alameddine, M., Mourad, Y., & Natafgi, N. (2015). Quality of care in primary health care settings in the eastern Mediterranean region: A systematic review of the literature. International Journal for Quality in Health Care, 27(2), 79–88.
   PubMed Web of Science ®Google Scholar
• Salhia, H. O., Al-Nasser, L. A., Taher, L. S., Al-Khathaami, A. M., & El-Metwally, A. A. (2014). Systemic review of the epidemiology of autism in Arab Gulf countries. Neurosciences, 19, 291.
   PubMed Web of Science ®Google Scholar
• Saraceno, B., van Ommeren, M., Batniji, R., Cohen, A., Gureje, O., Mahoney, J., … Underhill, C. (2007). Barriers to improvement of mental health services in low-income and middle-income countries. The Lancet, 370(9593), 1164–1174.
   PubMed Web of Science ®Google Scholar
• Simon, G. E., & VonKorff, M. (1997). Prevalence, burden, and treatment of insomnia in primary care. The American Journal of Psychiatry, 154(10), 1417–1423.
   PubMed Web of Science ®Google Scholar
• Singer, E., Van Hoewyk, J., & Maher, M. P. (2000). Experiments with incentives in telephone surveys. Public Opinion Quarterly, 64(2), 171–188.
   PubMed Web of Science ®Google Scholar
• Siu, A. L., Force, U. S. P. S. T., Bibbins-Domingo, K., Grossman, D. C., Baumann, L. C., Davidson, K. W., … Pignone, M. P. (2016). Screening for autism spectrum disorder in young children: US preventive services task force recommendation statement.[summary for patients in JAMA. 2016 Feb 16;315(7):718; PMID: 26881385]. JAMA, 315(7), 691–696.
   PubMed Web of Science ®Google Scholar
• UK National Screening Committee. (2012). The UK NSC recommendation on Autism screening in children. Retrieved from http://www.screening.nhs.uk/autism
   Google Scholar
• Wallis, K. E., & Pinto-Martin, J. (2008). The challenge of screening for autism spectrum disorder in a culturally diverse society. Acta Paediatrica, 97(5), 539–540.
   PubMed Web of Science ®Google Scholar
• Warren, Z., Stone, W., & Humberd, Q. (2009). A training model for the diagnosis of autism in community pediatric practice. Journal of Developmental and Behavioral Pediatrics: JDBP, 30(5), 442–446.
   PubMed Web of Science ®Google Scholar
• Williams, A. (2015). How to … write and analyse a questionnaire. Journal of Orthodontics, 245–252. doi:10.1093/ortho/30.3.245
   Google Scholar
• Williams, A., Erb-Downward, J., Bruzelius, E., O’Hara-Cicero, E., Maling, A., Machin, L., … Weiss, E. S. (2013). Exploring cancer screening in the context of unmet mental health needs: A participatory pilot study. Progress in Community Health Partnerships: Research, Education, and Action, 7(2), 123–134. doi:10.1353/cpr.2013.0027
   PubMedGoogle Scholar
• Winslow, W. W., Honein, G., & Elzubeir, M. A. (2002). Seeking Emirati women’s voices: The use of focus groups with an arab population. Qualitative Health Research, 12(4), 566–575.
   PubMed Web of Science ®Google Scholar
• Zachor, D., Yang, J.-W., Itzchak, E. B., Furniss, F., Pegg, E., Matson, J. L., … Jung, W. (2011). Cross-cultural differences in comorbid symptoms of children with autism spectrum disorders: An international examination between Israel, South Korea, the United Kingdom and the United States of america. Developmental Neurorehabilitation, 14(4), 215–220.
   PubMed Web of Science ®Google Scholar
• Zwaigenbaum, L., Bauman, M. L., Fein, D., Pierce, K., Buie, T., Davis, P. A., … Wagner, S. (2015). Early screening of autism spectrum disorder: Recommendations for practice and research. Pediatrics, 136(Suppl 1), S41–59.
   PubMed Web of Science ®Google Scholar
• Zwaigenbaum, L., Bryson, S., & Garon, N. (2013). Early identification of autism spectrum disorders. Behavioural Brain Research, 251, 133–146.
   PubMed Web of Science ®Google Scholar