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Articles

“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

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Pages 216-231 | Published online: 08 Jun 2009

References

  • Ashman , A. , Suttie , J. and Bramley , J. 1995 . Employment, retirement and elderly persons with developmental disabilities . Journal of Intellectual Disability Research , 39 : 107 – 115 .
  • Australian Institute of Health and Welfare (AIHW) . 2006 . National evaluation of the Aged Care Innovative Pool Disability Aged Care Interface Pilot: Final report Aged Care Series no. 12, catalogue no. AGE50 . Canberra : AIHW .
  • Baldock , J. and Evers , A. 1991 . Innovations and care of the elderly: The front line of change for social welfare services Ageing International , XVIII : 8 – 21 .
  • Bigby , C. 1992 . Access and linkage: Two critical issues for older people with an intellectual disability . Australia and New Zealand Journal of Developmental Disabilities , 18 : 95 – 110 .
  • Bigby , C. 1997a . Later life for adults with intellectual disability: A time of opportunity and vulnerability . Journal of Intellectual and Developmental Disability , 22 : 97 – 108 .
  • Bigby , C. 1997b . When parents relinquish care. The informal support networks of older people with intellectual disability . Journal of Applied Intellectual Disability Research , 10 : 333 – 344 .
  • Bigby , C. 2000 . Moving on without parents: Planning, transitions and sources of support for older adults with intellectual disabilities . Baltimore : P. H. Brookes, Baltimore .
  • Bigby , C. 2004 . Aging with a lifelong disability: Policy, program and practice issues for professionals , London : Jessica Kingsley .
  • Bigby , C. 2007 . The challenge of implementing state disability policy to achieve second generation rights for people with disabilities . Just Policy , 43 : 68 – 75 .
  • Bigby , C. 2008 . Beset by obstacles: Aging in place for people with intellectual disability . Journal of Intellectual and Developmental Disabilities , 33 : 1 – 11 .
  • Bigby , C. and Ozanne , E. 2001 . Shifts in the model of service delivery in intellectual disability in Victoria . Journal of Intellectual and Developmental Disability , 26 : 177 – 190 .
  • Bigby , C. , Fyffe , C. , Balandin , S. , Gordo , M. and McCubbery , J. 2001 . Day support services options for older adults with a disability , Melbourne : National Disability Administrators Group .
  • Bigby , C. , Webber , R. , McKenzie-Green , B. and Bowes , B. 2008 . A survey of people with intellectual disabilities living in residential aged care facilities in Victoria . Journal of Intellectual Disability Research , 52 : 404 – 414 .
  • Brown , I. and Brown , R. 2003 . Quality of life and disability: An approach for community practitioners , London : Jessica Kingsley Publishers .
  • Carter , G. and Jancar , J. 1983 . Mortality in the mentally handicapped: A 50 year survey at the Stoke Park group of hospitals (1930–1980) . Journal of Mental Deficiency Research , 27 : 143 – 156 .
  • Cooper , S. 1997 . Deficient health and social services for elderly people with learning disabilities . Journal of Intellectual Disability Research , 41 : 331 – 338 .
  • Creswell , J. 1998 . Qualitative inquiry and research design: Choosing among five traditions , Thousand Oaks, CA : Sage Publications .
  • Crotty , M. 1998 . The foundations of social research: Meaning and perspective in the research process , St Leonards : Allen & Unwin .
  • Davey , V. , Fernández , J.-L. , Knapp , M. , Vick , N. , Jolly , D. Swift , P. 2007 . Direct payments: A national survey of direct payments policy and practice , London : Personal Social Services Research Unit .
  • Department of Health 2001 . Valuing people: A new strategy for learning disability for the 21st Century (CM 5068) . London : The Stationery Office .
  • Department of Human Services, Disability Services 2002 . Victorian state disability plan . Melbourne : Department of Human Services .
  • Disability Act, s.52, Government of Victoria 2006 .
  • Disability Services Act, s.25, Government of Queensland 2006 .
  • Disability Services Queensland 2006 . Strategic plan, 2007–2011 . Brisbane : Disability Services Queensland .
  • Edgerton , R. and Gaston , M. 1991 . “I've seen it all”: Lives of older persons with mental retardation in the community , Baltimore : Paul H. Brookes .
  • Erickson , M. , Krauss , M. and Seltzer , M. 1989 . Perceptions of old age among a sample of mentally retarded persons . Journal of Applied Gerontology , 8 : 251 – 260 .
  • Etmanski , A. 2000 . A good life for you and your relative with a disability , British Columbia, , Canada : Orwell Cove and Planned Lifetime Advocacy Network .
  • Felce , D. and Perry , J. 1995 . Quality of life: Its definition and measurement . Research in Developmental Disabilities , 16 : 51 – 74 .
  • Gething , L. 1999 . We're growing older, too: Quality of life and service provision issues for people with long standing disabilities who are ageing , Sydney : The Community Disability and Ageing Program, The University of Sydney .
  • Grant , C. , McGrath , M. and Ramcharan , P. 1995 . Community inclusion of older adults with learning disabilities. Care in place . International Journal of Network and Community , 2 : 29 – 44 .
  • Hand , J. and Reid , P. 1989 . Views and recollections of older people with intellectual handicaps in New Zealand . Australia and New Zealand Journal of Developmental Disabilities , 15 : 231 – 240 .
  • Hatton , C. 1998 . Whose quality of life is it anyway? Some problems with the emerging quality of life consensus . Mental Retardation , 36 : 104 – 115 .
  • Hesse-Biber , S. and Leavy , P. 2006 . The practice of qualitative research , Thousand Oaks : Sage Publications .
  • Janicki , M. , Dalton , A. , Henderson , M. and Davidson , P. 1999 . Mortality and morbidity among older adults with intellectual disability: Health services considerations . Disability and Rehabilitation , 21 : 284 – 294 .
  • Knox , M. , Mok , M. and Parmenter , T. 2000 . Working with the experts: Collaborative research with people with an intellectual disability . Disability & Society , 15 : 49 – 61 .
  • Lifshitz , H. 2000 . Conceptualisation of age and ageing by adolescents, adult and elderly people with mental retardation . Education and Training in Mental Retardation and Developmental Disabilities , 35 : 374 – 383 .
  • Lincoln , Y. and Guba , E. 1985 . Naturalistic inquiry , Beverly Hills : Sage .
  • Mahon , M. and Mactavish , J. 2000 . “ A sense of belonging ” . In Community supports for aging adults with lifelong disabilities , Edited by: Janicki , M. and Ansello , E. 41 – 53 . Baltimore : Brookes .
  • Mansell , J. and Beadle-Brown , J. 2006 . Person-centred planning or person-centred action? Policy and practice in intellectual disability services . Journal of Applied Research in Intellectual Disabilities , 17 : 1 – 9 .
  • Mansell , J. and Ericsson , K. 1996 . Deinstitutionalisation and community living: Intellectual disability services in Britain, Scandinavia and United States , London : Chapman and Hall .
  • Miles , M. and Huberman , A. 1994 . Qualitative data analysis: An expanded sourcebook , 2nd ed. , Thousand Oaks : Sage Publications .
  • Minichiello , V. , Aroni , R. , Timewell , E. and Alexander , L. 1995 . In-depth interviewing: Principles, techniques, analysis , 2nd edn , Melbourne : Longman .
  • Moss , S. and Hogg , J. 1989 . A cluster analysis of support networks of older people with severe intellectual impairment . Australia and New Zealand Journal of Developmental Disabilities , 15 : 169 – 188 .
  • Moxley , D. 1989 . The practice of case management , Newbury Park : Sage Publications .
  • Nolan , M. , Davies , S. and Brown , J. 2006 . Transitions in care homes: Towards relationship-centred care using the Senses Framework . Quality in Aging , 7 : 5 – 14 .
  • Nolan , M. , Davies , S. , & Grant , G 2001 . Working with older people and their families: Key issues in policy and practice . Buckingham : Open University Press .
  • O'Brien , C. and O'Brien , J. 2000 . “ The origins of person-centred planning: A community of practice perspective ” . In Implementing person-centred planning: Voices of experience , Edited by: O'Brien , J. Vol. 2 , 25 – 27 . Toronto, Ontario : Inclusion Press .
  • Payne , M. 1995 . Social work and community care , Basingstoke : MacMillan .
  • Rogers , N. , Hawkins , B. and Eklund , S. 1998 . The nature of lesiure in the lives of older adults with intellectual disability . Journal of Intellectual Disability Research , 42 : 122 – 130 .
  • Schalock , R. and Alonso , M. 2002 . Handbook on quality of life for human services practitioners , Washington, DC : American Association on Mental Retandation .
  • Senate Community Affairs Reference Committee 2007 . The Commonwealth State/Territory Disability Agreement . Canberra : Commonwealth of Australia .
  • Shakespeare , T. 2006 . Disability, rights and wrongs , Abingdon : Routledge .
  • Stainton , T . 2009 . Individualised funding: An international review of approaches, outcomes and challenges . In C. Bigby & Fyffe , C. Proceedings of the Roundtable on Intellectual Disability Policy: Implementing individualised funding , pp. 14 – 21 . Melbourne : LaTrobe University .
  • Stainton , T. and Boyce , S. 2004 . “I have got my life back”: User's experience of direct payments . Disability and Society , 19 : 443 – 454 .
  • Thompson , D. J. , Ryrie , I. and Wright , S. 2004 . People with intellectual disabilities living in generic residential services for older people in the UK . Journal of Applied Research in Intellectual Disabilities , 17 : 101 – 108 .
  • Todd , S. , Evans , G. and Beyer , S. 1990 . More recognised than known: The social visibility and attachment of people with developmental disabilities . Australia and New Zealand Journal of Developmental Disabilities , 16 : 207 – 218 .
  • Torr , J. and Chiu , E. 2002 . The elderly with intellectual disability and mental disorder: A challenge for old age psychiatry . Current Opinion in Psychiatry , 15 : 383 – 386 .
  • Walker , A. and Walker , C. 1998 . Age or disability? Age based disparities in service provision for older people with intellectual disabilities in Great Britain . Journal of Intellectual and Developmental Disability , 23 : 25 – 40 .
  • Yang , Q. , Rasmussen , S. and Friedman , J. 2002 . Mortality associated with Down's syndrome in the USA from 1983 to 1997: A population based study . The Lancet , 359 : 1019

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