1,877
Views
12
CrossRef citations to date
0
Altmetric
ARTICLES

Participatory and Inclusive Approaches to Disability Program Evaluation

, &
Pages 495-508 | Accepted 01 Aug 2013, Published online: 13 Jun 2014

References

  • Abelló, D., Fisher, K. R., Robinson, S., & Chenoweth, L. (2004). Resident Support Program evaluation plan (Social Policy Research Centre (SPRC) Report Series 10/04). Retrieved from http://www.sprc.unsw.edu.au/media/File/FinalEvaluationPlan.pdf
  • Atkinson, D. (2004). Research and empowerment involving people with learning difficulties in oral and life history research. Disability and Society, 19, 691–702. doi:10.1080/0968759042000284187
  • Barnes, C., & Mercer, G. (2004). Implementing the social model of disability: Theory and research. Leeds: The Disability Press.
  • Baur, V. E., Abma, T. A., & Widdershoven, G. A. M. (2009). Participation of marginalised groups in evaluation: Mission impossible? Evaluation and Program Planning, 33, 238–245. doi:10.1016/j.evalprogplan.2009.09.002
  • Beresford, P. (2002). User involvement in social research and evaluation: Liberation or regulation? Social Policy and Society, 1(02), 95–105. doi:10.1017/S1474746402000222
  • Bigby, C., & Frawley, P. (2010). Reflections on doing inclusive research in the “Making Life Good in the Community” study. Journal of Intellectual & Developmental Disability, 35(2), 53–61. doi:10.3109/13668251003716425
  • Boxall, K. (2002). Individual and social models of disability and the experiences of people with learning difficulties. In D. G. Race (Ed.) Learning disability: A social approach (pp. 209–227). London: Routledge.
  • Boxall, K. (2010). Research ethics committees and the benefits of involving people with profound and multiple learning disabilities. British Journal of Learning Disabilities, 39, 173–180. doi:10.1111/j.1468-3156.2010.00645.x
  • Clarke, A., & Dawson, R. (1999). Evaluation research: An introduction to principles, methods and practice. London: Sage.
  • Cousins, J. B., & Whitmore, E. (1998). Framing participatory evaluation. In E. Whitmore, (Ed.), Understanding and practicing participatory evaluation: New directions for evaluation (p. 80). San Francisco: Jossey-Bass.
  • Daigneault, P.-M., & Jacob, S. (2009). Toward accurate measurement of participation: Rethinking the conceptualization and operationalization of participatory evaluation. American Journal of Evaluation, 30, 330–348. doi:10.1177/1098214009340580
  • Fisher, K. R., Abelló, D., Robinson, S., Siminski, P., & Chenoweth, L. (2005). Resident support evaluation: Final report (SPRC Report Series 2/05). Retrieved from http://www.sprc.unsw.edu.au/media/File/RSPFinalReport.pdf
  • Fisher, K. R., & Robinson, S. (2010). Will policy makers hear my disability experience? How participatory research contributes to managing interest conflict in policy implementation. Social Policy & Society, 9, 207–220. doi:10.1017/S1474746409990339
  • Fisher, K. R, Strike, R., Robinson, S., O'Brien, P., Kayess, R., & Campbell-McLean, C. (2011, September 1). Disability inclusive evaluation. Symposium presentation, Evaluation and Influence: Australasian Evaluation Society Conference, Sydney.
  • Goodlad, R., & Riddell, S. (2005). Social justice and disabled people: Principles and challenges. Social Policy and Society, 4(1), 45–54. doi:10.1017/S1474746404002179
  • Goodley, D. (2004). The place of people with learning difficulties in disability studies and research. British Journal of Learning Disabilities, 32(2), 49–51. doi:10.1111/j.1468-3156.2004.00279.x
  • Jacobson, M., Azzam, T., & Baez, J. G. (2012) The nature and frequency of inclusion of people with disabilities in program evaluation. American Journal of Evaluation, 43(1), 23–44.
  • Kramer, J. M., Kramer, J. C., Garcia-Iriarte, E., & Hammel, J. (2011). Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action research with individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 24, 263–273. doi:10.1111/j.1468-3148.2010.00602.x
  • McClimens, A. (2008). This is my truth, tell me yours: Exploring the internal tensions within collaborative learning disability research. British Journal of Learning Disabilities, 36, 271–276. doi:10.1111/j.1468-3156.2007.00485.x
  • Mertens, D. M. (1999). Inclusive evaluation: Implications of transformative theory for evaluation. American Journal of Evaluation, 20(1), 1–14.
  • Mertens, D. M. (2009). Transformative research and evaluation. New York: The Guilford Press.
  • Mertens, D. M. (2010). Transformative mixed methods research. Qualitative Inquiry, 16, 469–474. doi:10.1177/1077800410364612
  • Milne, C., Delaney, M., Ong, N., Maloney, J., Vej Hansen, K., Yorkston, E., & Thaler, O. (2009). Evaluation of the self managed model in the Community Participation Program. Final report to NSW Department of Ageing, Disability and Home Care. Downloaded 10/2/12. Retrieved from http://www.adhc.nsw.gov.au/__data/assets/file/0010/240886/Evaluation_of_SMM_July2009.pdf
  • Minkler, M., Hammel, J., Gill, C. J., Magasi, S., Breckwich Vásquez, V., Bristo, M., & Coleman, D. (2008). Community-based participatory research in disability and long-term care policy: A case study. Journal of Disability Policy Studies, 19(2), 114–126. doi:10.1177/1044207308315280
  • Nierse, C. J., & Abma, T. A. (2011). Developing voice and empowerment: The first step towards a broad consultation in research agenda setting. Journal of Intellectual Disability Research, 55, 411–421. doi:10.1111/j.1365-2788.2011.01388.x
  • O'Brien, P., Fisher, K. R., Robinson, S., Kayess, R., & Strike, R. (2011, March 31). Disability inclusive research practice workshop. Presented at Centre for Disability Studies, Sydney.
  • Pietilainen, V. (2012) Testing the participatory education evaluation concept in a national context. Studies in Educational Evaluation, 38(1), 9–14. doi:10.1016/j.stueduc.2012.02.003
  • Robinson, S., Fisher, K. R., Kayess, R., Strike, R., O'Brien, P., Knox, M., & Young, E. (2011, July 6–8). Walking the talk: Using disability inclusive research practice to influence policy. Symposium presented at Australian Social Policy Conference, Sydney.
  • Robinson, S., Hickson, F., & Strike, R. (2001). More than getting through the gate: The involvement of parents with disability in their children's school education in NSW. Sydney: Disability Council of NSW. Retrieved from http://www.disabilitycouncil.nsw.gov.au/archive/01/robinson.pdf
  • Robinson, S., & Walker, K. (1997). Stand up and speak! Sit up and listen! Participation of people with intellectual disability in the management of advocacy services. Sydney: Intellectual Disability Rights Service.
  • Redley, M., & Weinberg, D. (2007). Learning disability and the limits of liberal citizenship: Interactional impediments to political empowerment. Sociology of Health & Illness, 29(5), 767–786. doi:10.1111/j.1467-9566.2007.01015.x
  • Ryan, K., Greene, J., Lincoln, Y., Mathison, S., & Mertens, D. M. (1998). Advantages and challenges of using inclusive evaluation approaches in evaluation practice. American Journal of Evaluation, 19(1), 101–122.
  • Stalker, K. (1998). Some ethical and methodological issues in research with people with learning difficulties. Disability & Society, 13(1), 5–19. doi:10.1080/09687599826885
  • Walmsley, J., & Johnson, K. (2003). Inclusive research with people with learning disabilities: Past, present and future. London: Jessica Kingsley.
  • Weaver, L., & Cousins, J. B. (2004). Unpacking the participatory process. Journal of Multidisciplinary Evaluation, 1(1), 19–40.
  • Williams, V. (1999). Researching together. British Journal of Learning Disabilities, 27(2), 48–51. doi:10.1111/j.1468-3156.1999.tb00085.x
  • Williams, V., & Simons, K. (2005). More researching together: The role of nondisabled researchers in working with People First members. British Journal of Learning Disabilities, 33(1), 6–14. doi:10.1111/j.1468-3156.2004.00299.x

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.