Health of Carers of Young People with Early Psychosis: A Biopsychosocial Approach

References

• Addington, J., Coldham, E. L., Jones, B., Ko, T., & Addington, D. (2003). The first episode of psychosis: The experience of relatives. Acta Psychiatrica Scandinavica, 108(4), 285–289. doi: 10.1034/j.1600-0447.2003.00153.x
   PubMed Web of Science ®Google Scholar
• Anderson, C. M., Reiss, D. J., & Hogarty, G. E. (1986). Schizophrenia and the family. New York, NY: The Guilford Press.
   Google Scholar
• Australian Bureau of Statistics. (2015). National Health Survey: First Results, 2014–2015. Retrieved from http://www.abs.gov.au/ausstats/[email protected]/Lookup/by%20Subject/4364.0.55.001∼2014-15∼Main%20Features∼Smoking∼24
   Google Scholar
• Awad, A. G., & Voruganti, L. N. P. (2008). The burden of schizophrenia on caregivers: A review. Pharmacoeconomics, 26(2), 149–162. doi: 10.2165/00019053-200826020-00005
   PubMed Web of Science ®Google Scholar
• Bland, R., Renouf, N., & Tullgren, A. (2015). Social work practice in mental health: An introduction (2nd ed.). Sydney: Allen and Unwin.
   Google Scholar
• Chen, L., Magliano, D. J., Balkau, B., Colagiuri, S., Zimmet, P. Z., Tonkin, A. M., … Shaw, J. E. (2010). AUSDRISK: An Australian Type 2 Diabetes Risk Assessment Tool based on demographic, lifestyle and simple anthropometric measures. The Medical journal of Australia, 192(4), 197–202.
   PubMed Web of Science ®Google Scholar
• Department of Health and Ageing. (2010). The Australian Type 2 Diabetes Risk Assessment Tool (AUSDRISK). Retrieved from http://www.diabetesaustralia.com.au/PageFiles/937/AUSDRISK20Web201420July2010.pdf
   Google Scholar
• Falloon, I. R. H., Boyd, J. L., & McGill, C. W. (1984). Family care of schizophrenia: A problem-solving approach to the treatment of mental illness. New York, NY: Guilford Press.
   Google Scholar
• Garland, E. L., & Howard, M. O. (2009). Neuroplasticity, psychosocial genomics, and the biopsychosocial paradigm in the 21st century. Health and Social Work, 34(3), 191–199. doi: 10.1093/hsw/34.3.191
   PubMed Web of Science ®Google Scholar
• Hawthorne, G. (2006). Measuring social isolation in older adults: Development and initial validation of the friendship scale. Social Indicators Research, 77(3), 521–548. doi: 10.1007/s11205-005-7746-y
   Web of Science ®Google Scholar
• Hawthorne, G. (2008). Perceived social isolation in a community sample: Its prevalence and correlates with aspects of peoples’ lives. Social Psychiatry and Psychiatric Epidemiology, 43(2), 140–150. doi: 10.1007/s00127-007-0279-8
   PubMed Web of Science ®Google Scholar
• Hawthorne, G., Herrman, H., & Murphy, B. (2006). Interpreting the WHOQOL-bref: Preliminary population norms and effect sizes. Social Indicators Research, 77(1), 37–59. doi: 10.1007/s11205-005-5552-1
   Web of Science ®Google Scholar
• Hayes, L., Hawthorne, G., Farhall, J., O’Hanlon, B., & Harvey, C. (2015). Quality of life and social isolation among caregivers of adults with schizophrenia: Policy and outcomes. Community Mental Health Journal, 51(5), 591–597. doi: 10.1007/s10597-015-9848-6
   PubMed Web of Science ®Google Scholar
• Hays, R. D., & Morales, L. S. (2001). The RAND-36 measures of health-related quality of life. Annals of Medicine, 33, 350–357. doi: 10.3109/07853890109002089
   PubMed Web of Science ®Google Scholar
• Hays, R. D., Sherbourne, C. D., & Mazel, R. M. (1993). The RAND 36-item Health Survey 1.0. Health Economics, 2, 217–227. doi: 10.1002/hec.4730020305
   PubMedGoogle Scholar
• Healy, K. (2016). After the biomedical technology revolution: Where to now for a bio-psycho-social approach to social work? British Journal of Social Work, 46(5), 1446–1462. doi: 10.1093/bjsw/bcv051
   PubMed Web of Science ®Google Scholar
• Hopkins, L., Lee, S., McGrane, T., & Barbara-May, R. (2017). Single session family therapy in youth mental health: Can it help? Australasian Psychiatry, 25(2), 108–111. doi: 10.1177/1039856216658807
   PubMed Web of Science ®Google Scholar
• IBM Corp. (2012). IBM SPSS statistics for windows (version 21.0) [software]. Armonk, NK: Author.
   Google Scholar
• Jansen, J. E., Gleeson, J., & Cotton, S. (2015). Towards a better understanding of caregiver distress in early psychosis: A systematic review of the psychological factors involved. Clinical Psychology Review, 35, 56–66. doi: 10.1016/j.cpr.2014.12.002
   PubMed Web of Science ®Google Scholar
• Jansen, J. E., Haahr, U. H., Harder, S., Trauelsen, A. M., Lyse, H.-G., Pedersen, M. B., & Simonsen, E. (2015). Caregiver distress in first-episode psychosis: The role of subjective appraisal, over-involvement and symptomatology. Social Psychiatry and Psychiatric Epidemiology, 50(3), 371–378. doi: 10.1007/s00127-014-0935-8
   PubMed Web of Science ®Google Scholar
• Killackey, E., & Waghorn, G. (2008). The challenge of integrating employment services with public mental health services in Australia: Progress at the first demonstration site. Psychiatric Rehabilitation Journal, 32(1), 63–66. doi: 10.2975/32.1.2008.63.66
   PubMed Web of Science ®Google Scholar
• LaPier, T. K. (2005). Outcome measures in cardiopulmonary physical therapy: Focus on the RAND 36-item Health Survey. Cardiopulmonary Physical Therapy Journal, 16(4), 14–20. doi: 10.1097/01823246-200516040-00003
   Google Scholar
• Maynard, B. R., Boutwell, B. B., & Vaughn, M. G. (2016). Advancing the science of social work: The case for biosocial research. British Journal of Social Work, 47(5), 1572–1586. doi: 10.1093/bjsw/bcw108
   Web of Science ®Google Scholar
• McCann, T. V., Lubman, D. I., & Clark, E. (2011). First-time primary caregivers’ experience of caring for young adults with first-episode psychosis. Schizophrenia Bulletin, 37(2), 381–388. doi: 10.1093/schbul/sbp085
   PubMed Web of Science ®Google Scholar
• McFarlane, W. R. (2004). Multifamily groups in the treatment of severe psychiatric disorders. New York, NY: The Guilford Press.
   Google Scholar
• McFarlane, W. R. (2016). Family interventions for schizophrenia and the psychoses: A review. Family Process, 55(3), 460–482. doi: 10.1111/famp.12235
   PubMed Web of Science ®Google Scholar
• McGorry, P., Bates, T., & Birchwood, M. (2013). Designing youth mental health services for the 21st century: Examples from Australia, Ireland and the UK. British Journal of Psychiatry, 202(s15), s30–s35. doi: 10.1192/bjp.bp.112.119214
   Google Scholar
• McGorry, P., Edwards, J., Mihalopoulos, C., Harrigan, S. M., & Jackson, H. J. (1996). EPPIC: An evolving system of early detection and optimal management. Schizophrenia Bulletin, 22(2), 305–326. doi: 10.1093/schbul/22.2.305
   PubMed Web of Science ®Google Scholar
• Milte, C. M., Thorpe, M. G., Crawford, D., Ball, K., & McNaughton, S. A. (2015). Associations of diet quality with health-related quality of life in older Australian men and women. Experimental Gerontology, 64, 8–16. doi: 10.1016/j.exger.2015.01.047
   PubMed Web of Science ®Google Scholar
• Onwumere, J., Kuipers, E., Bebbington, P., Dunn, G., Freeman, D., Fowler, D., & Garety, P. (2011). Coping styles in carers of people with recent and long-term psychosis. The Journal of Nervous and Mental Disease, 199(6), 423–424. doi: 10.1097/NMD.0b013e31821ccb07
   PubMed Web of Science ®Google Scholar
• Poon, A. W. C., Harvey, C., Mackinnon, A., & Joubert, L. (2017). A longitudinal population-based study of carers of people with psychosis. Epidemiology and Psychiatric Sciences, 26(3), 265–275. doi: 10.1017/S2045796015001195
   PubMed Web of Science ®Google Scholar
• Rosen, A., Trauer, T., Hadzi-Pavlovic, D., & Parker, G. (2001). Development of a brief form of the life skills profile: The LSP-20. Australian and New Zealand Journal of Psychiatry, 35(5), 677–683. doi:10.1046/j.1440-1614.2001.00933.x doi: 10.1080/0004867010060518
   PubMed Web of Science ®Google Scholar
• Sadath, A., Muralidhar, D., Varambally, S., Gangadhar, B. N., & Jose, J. P. (2017). Do stress and support matter for caring? The role of perceived stress and social support on expressed emotion of carers of persons with first episode psychosis. Asian Journal of Psychiatry, 25, 163–168. doi: 10.1016/j.ajp.2016.10.023
   PubMed Web of Science ®Google Scholar
• Saharinen, T., Hintikka, J., Kylmä, J., Koivumaa-Honkanen, H., Honkalampi, K., Lehto, S. M., … Viinamäki, H. (2011). Population-based comparison of health-related quality of life between healthy subjects and those with specific psychiatric or somatic diseases. Perspectives in Psychiatric Care, 47(2), 66–73. doi: 10.1111/j.1744-6163.2010.00273.x
   PubMed Web of Science ®Google Scholar
• Saleeby, D. (1992). Biology’s challenge to social work: Embodying the person-in-environment perspective. Social Work, 37(2), 112–118.
   Web of Science ®Google Scholar
• Shibre, T., Medhin, G., Teferra, S., Wakwoya, A., Berhanu, E., Abdulahi, A., … Fekadu, A. (2012). Predictors of carer-burden in schizophrenia: A five year follow-up study in Butajira, Ethiopia. Ethiopian Medical Journal, 50(2), 125–133.
   PubMedGoogle Scholar
• Sin, J., Murrells, T., Spain, D., Norman, I., & Henderson, C. (2016). Wellbeing, mental health knowledge and caregiving experiences of siblings of people with psychosis, compared to their peers and parents: An exploratory study. Social Psychiatry and Psychiatric Epidemiology, 51(9), 1247–1255. doi: 10.1007/s00127-016-1222-7
   PubMed Web of Science ®Google Scholar
• Tanamas, S. K., Magliano, D. J., Lynch, B., Sethi, P., Willenberg, L., Polkinghorne, K. R., … Shaw, J. E. (2013). AUSDIAB 2012: The Australian diabetes, obesity and lifestyle study. Melbourne: Baker IDI Heart & Diabetes Institute.
   Google Scholar
• Thunyadee, C., Sitthimongkol, Y., Sangon, S., Chai-Aroon, T., & Hegadoren, K. M. (2015). Predictors of depressive symptoms and physical health in caregivers of individuals with schizophrenia. Nursing & Health Sciences, 17(4), 412–419. doi: 10.1111/nhs.12205
   PubMed Web of Science ®Google Scholar
• van der Sanden, R. L. M., Bos, A. E. R., Stutterheim, S. E., Pryor, J. B., & Kok, G. (2013). Experiences of stigma by association among family members of people with mental illness. Rehabilitation Psychology, 58(1), 73–80. doi:10.1037/a0031752/10.1037/a0031752.supp (Supplemental) doi: 10.1037/a0031752
   PubMed Web of Science ®Google Scholar
• VanderZee, K. I., Sanderman, R., Heyink, J. W., & de Haes, H. (1996). Psychometric qualities of the rand 36-item health survey 1.0: A multidimensional measure of general health status. International Journal of Behavioral Medicine, 3(2), 104–122. doi: 10.1207/s15327558ijbm0302_2
   PubMed Web of Science ®Google Scholar
• van Wijngaarden, B., Schene, A. H., Koeter, M., Vázquez-Barquero, J. L., Knudsen, H. C., Lasalvia, A., & McCrone, P. (2000). Caregiving in schizophrenia: Development, internal consiconsistency and reliability of the Involvement Evaluation Questionnaire-European Version. British Journal of Psychiatry, 177(39), s21–s27. doi: 10.1192/bjp.177.39.s21
   Web of Science ®Google Scholar
• World Health Organization. (1992). International classification of diseases (10th ed.). Geneva: Author.
   Google Scholar
• World Health Organization. (2004). The World Health Organization Quality of Life (WHOQOL)-BREF. Geneva: Author.
   Google Scholar
• Yumiko, H., Ohmuro, N., Katsura, M., Obara, C., Kikuchi, T., Ito, F., … Matsumoto, K. (2016). Criticism and depression among the caregivers of at-risk mental state and first-episode psychosis patients. PLoS ONE, 11(2), e0149875. doi: 10.1371/journal.pone.0149875
   PubMed Web of Science ®Google Scholar