Family perspectives on educational experiences, post-school needs, and quality of life of young autistic adults

References

• APA (American Psychiatric Association) 2013. Diagnostic and Statistical Manual of Mental Disorders. (5th ed.). Washington, DC: American Psychiatric Publishing.
   Google Scholar
• Atkinson, R., and J. Flint. 2001. Accessing Hidden and Hard-to-reach Populations: Snowball Research Strategies. Social Research Update, 33.
   Google Scholar
• Auger, R. W. 2013. “Autism Spectrum Disorders: A Research Review for School Counselors.” Professional School Counseling 16: 256–268. doi:https://doi.org/10.1177/2156759X12016002S02.
   Google Scholar
• Ayres, M., J. R. Parr, J. Rodgers, D. Mason, L. Avery, and D. Flynn. 2018. “A Systematic Review of Quality of Life of Adults on the Autism Spectrum.” Autism 22: 774–783. doi: https://doi.org/10.1177/1362361317714988.
   PubMed Web of Science ®Google Scholar
• Billstedt, E., I. Gillberg, and C. Gillberg. 2005. “Autism After Adolescence: Population-Based 13- to 22-Year Follow-up Study of 120 Individuals with Autism Diagnosed in Childhood.” Journal of Autism and Developmental Disorders 35: 351–360. doi:https://doi.org/10.1007/s10803-005-3302-5.
   PubMed Web of Science ®Google Scholar
• Bird, C. M. 2005. “How I Stopped Dreading and Learned to Love Transcription.” Qualitative Inquiry 11: 226–248. doi:https://doi.org/10.1177/1077800404273413.
   Web of Science ®Google Scholar
• Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3: 77–101. doi:https://doi.org/10.1191/1478088706qp063oa.
   Google Scholar
• Cappadocia, M., J. Weiss, and D. Pepler. 2012. “Bullying Experiences among Children and Youth with Autism Spectrum Disorders.” Journal of Autism and Developmental Disorders 42: 266–277. doi:https://doi.org/10.1007/s10803-011-1241-x.
   PubMed Web of Science ®Google Scholar
• Carrington, S., and L. Graham. 2001. “Perceptions of School by Two Teenage Boys with Asperger Syndrome and Their Mothers: A Qualitative Study.” Autism 5: 37–48.
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. 2020. Community Report on ASD: A snapshot of Autism Spectrum Disorder among 8-year-old Children in Multiple Communities across the United States in 2016.
   Google Scholar
• Chow, N., J. Robinson, L. Beardon, J. Downing, L. Hughes, J. Leatherland, and D. MacGregor. 2017. “Improving Research about Us, with Us: A Draft Framework for Inclusive Autism Research.” Disability and Society 32: 720–734. doi: https://doi.org/10.1080/09687599.2017.1320273.
   Web of Science ®Google Scholar
• Department of Health. 2018. Estimating Prevalence of Autism Spectrum Disorders (ASD) in the Irish Population: A Review of Data Sources and Epidemiological Studies November 2018.
   Google Scholar
• Doherty, K., M. Fitzgerald, and P. Matthews. 2000. “Services for Autism in Ireland.” The Irish Journal of Psychology 21: 50–69. doi:https://doi.org/10.1080/03033910.2000.10558239.
   Google Scholar
• Gillham, B. 2000. The Research Interview. London: Continuum International Publishing Group.
   Google Scholar
• Graetz, J. 2010. “Autism Grows Up: Opportunities for Adults with Autism.” Disability and Society 25: 33–47. doi:https://doi.org/10.1080/09687590903363324.
   Web of Science ®Google Scholar
• Griffin, M. M., E. D. Mcmillan, and R. M. Hodapp. 2010. “Family Perspectives on Post-Secondary Education for Students with Intellectual Disabilities.” Autism and Developmental Disabilities 45: 339–346.
   Google Scholar
• Gurbuz, E., M. Hanley, and D. M. Riby. 2019. “University Students with Autism: The Social and Academic Experiences of University in the UK.” Journal of Autism and Developmental Disorders 49: 617–631. doi:https://doi.org/10.1007/s10803-018-3741-4.
   PubMed Web of Science ®Google Scholar
• Hagner, D., and B. F. Cooney. 2005. “I do That for Everybody: Supervising Employees with Autism.” Focus on Autism and Other Developmental Disabilities 20: 91–97. doi:https://doi.org/10.1177/10883576050200020501.
   Google Scholar
• Health Service Authority. 2019. Health Services Performance Profile October – December 2019.
   Google Scholar
• Hees, V. V., T. Moyson, and H. Roeters. 2015. “Higher Education Experiences of Students with Autism Spectrum Disorder: Challenges, Benefits and Support Needs.” Journal of Autism and Developmental Disorders 45: 1673–1688. doi: https://doi.org/10.1007/s10803-014-2324-2.
   PubMed Web of Science ®Google Scholar
• Hendricks, D. 2010. “Employment and Adults with Autism Spectrum Disorders: Challenges and Strategies for Success.” Journal of Vocational Rehabilitation 32: 125–134. doi:https://doi.org/10.3233/JVR-2010-0502.
   Google Scholar
• Hick, P., Y. Solomon, J. Mintz, A. Matziari, F. Ó Murchú, K. Hall, K. Cahill, C. Curtin, and D. Margariti. 2018. Final Report Initial Teacher Education for Inclusion Phase 1 and 2 Report, NCSE Research Report N. 26.
   Google Scholar
• Kim, S. Y. 2019. “The Experiences of Adults with Autism Spectrum Disorder: Self-Determination and Quality of Life.” Research in Autism Spectrum Disorders 60: 1–15. doi: https://doi.org/10.1016/j.rasd.2018.12.002.
   Web of Science ®Google Scholar
• Lin, L., and P. Hunag. 2017. “QOL and Its Related Factors for Adults with Autism Spectrum Disorder.” Disability and Rehabilitation 11: 1–8. doi:https://doi.org/10.1080/09638288.2017.1414887.
   Web of Science ®Google Scholar
• Neary, P., L. Gilmore, and J. Ashburner. 2015. “Post-school Needs of Young People with High Functioning Autism Spectrum Disorder.” Research in Autism Spectrum Disorders 18: 1–11. doi:https://doi.org/10.1016/j.rasd.2015.06.010.
   Web of Science ®Google Scholar
• Oliver, D. G., J. M. Serovich, and T. L. Mason. 2005. “Constraints and Opportunities with Interview Transcription: Towards Reflection in Qualitative Research.” Social Forces 84: 1273–1289. doi: https://doi.org/10.1353/sof.2006.0023.
   PubMed Web of Science ®Google Scholar
• Ombudsman for Children’s Office. 2020. A Report by the Ombudsman for Children’s Office on the Challenges Faced By Children in Ireland Who Require an Assessment of their Needs.
   Google Scholar
• Poon, K. K., L. Koh, and I. Magiati. 2013. “Parental Perspectives on the Importance and Likelihood of Adult Outcomes for Children with Autism Spectrum Disorders, Intellectual Disabilities or Multiple Disabilities.” Research in Autism Spectrum Disorders 7: 382–390. doi: https://doi.org/10.1016/j.rasd.2012.10.006.
   Web of Science ®Google Scholar
• Roberts, K. D. 2010. “Topic Areas to Consider When Planning Transition from High School to Postsecondary Education for Students with Autism Spectrum Disorders.” Focus on Autism and Other Developmental Disabilities 25: 158–162. doi:https://doi.org/10.1177/1088357610371476.
   Web of Science ®Google Scholar
• Roddy, Á, and C. O’Neill. 2019. “Predictors of Unmet Needs and Family Debt among Children and Adolescents with an Autism Spectrum Disorder: Evidence from Ireland.” Health Policy 124: 317–325. doi:10.1016/j.healthpol.2020.01.005.
   Web of Science ®Google Scholar
• Shattuck, P. T., S. C. Narendorf, B. Cooper, P. R. Sterzing, M. Wagner, and J. L. Taylor. 2012. “Postsecondary Education and Employment among Youth with an Autism Spectrum Disorder.” Pediatrics 129: 1042–1049. doi: https://doi.org/10.1542/peds.2011-2864.
   PubMed Web of Science ®Google Scholar
• Shevlin, M., H. Kearns, M. Ranaghan, M. Twomey, R. Smith, and E. Winter. 2009. Creating Inclusive Learning Environments in Irish Schools: Teacher Perspectives. The National Council for Special Education.
   Google Scholar
• Stewart, S. 2008. I Exist. The Message from Adults with Autism in Northern Ireland: Think Differently about Autism. Belfast: The National Autistic Society Northern Ireland.
   Google Scholar
• Symes, W., and N. Humphrey. 2011. “The Deployment, Training and Teacher Relationships of Teaching Assistants Supporting Pupils with Autistic Spectrum Disorders (ASD) in Mainstream Secondary Schools.” British Journal of Special Education 38: 57–64. doi:https://doi.org/10.1111/j.1467-8578.2011.00499.x.
   Google Scholar
• Tantam, D. 2000. “Psychological Disorder in Adolescents and Adults with Asperger Syndrome.” Autism 4: 47–62. doi:https://doi.org/10.1177/1362361300004001004.
   Google Scholar
• Tantam, D. 2003. “The Challenge of Adolescents and Adults with Asperger Syndrome.” Child and Adolescent Psychiatric Clinics of North America 12: 143–163. doi:https://doi.org/10.1016/S1056-4993(02)00053-6.
   PubMed Web of Science ®Google Scholar
• Task Force on Autism. 2001. Educational Provision and Support for Persons with Autistic Spectrum Disorders: The Report of the Task Force on Autism. Dublin.
   Google Scholar
• Taylor, J. L., and M. M. Seltzer. 2011. “Employment and Post-Secondary Educational Activities for Young Adults with Autism Spectrum Disorders During the Transition to Adulthood.” Journal of Autism and Developmental Disorders 41: 566–574. doi: https://doi.org/10.1007/s10803-010-1070-3.
   PubMed Web of Science ®Google Scholar
• Tuckett, A. 2005. “Applying Thematic Analysis Theory to Practice: A Researcher’s Experience.” Contemporary Nurse 19: 75–87. doi:https://doi.org/10.5172/conu.19.1-2.75.
   PubMedGoogle Scholar
• Walsh, L., S. Lydon, and O. Healy. 2014. “Employment and Vocational Skills among Individuals with Autism Spectrum Disorder: Predictors, Impact, and Interventions.” Review Journal of Autism and Developmental Disorders 1: 266–275. doi:https://doi.org/10.1007/s40489-014-0024-7.
   Google Scholar
• WHOQOL Group. 1995. “The World Health Organization Quality of Life Assessment (WHOQOL): Position Paper from the World Health Organization.” Social Science & Medicine 41: 1403–1409. doi:https://doi.org/10.1016/0277-9536(95)00112-K.
   PubMed Web of Science ®Google Scholar