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Original Articles

The family caregiver after the institutionalization of the dependent elderly relative

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References

  • Alspaugh, M. B. L., Stephens, M. A. P., Townsend, A. L., Zarit, S. H., & Greene, R. (1999). Longitudinal patterns of risk for depression in dementia caregivers: Objective and subjective primary stress as predictors. Psychology and Aging, 14(1), 34–43. doi:10.1037/0882-7974.14.1.34
  • American Psychological Association. (2010). Publication manual of the American Psychological Association (6th ed.). Washington, DC: Author.
  • Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving. The unexpected career. San Diego, CA: Academic Press.
  • Brink, T. L., Yesavage, J. A., Lum, O., Heersema, P., Adey, M. B., & Rose, T. L. (1982). Screening tests for geriatric depression. Clinical Gerontologist, 1, 37–43. doi:10.1300/J018v01n01_06
  • Buhr, G. T., Kuchibhatla, M., & Clipp, E. C. (2006). Caregivers’ reasons for nursing home placement: Clues for improving discussions with families prior to the transition. The Gerontologist, 46(1), 52–61. doi:10.1093/geront/46.1.52
  • Carretero, S., Garcés, J., & Ródenas, F. (2006). La sobrecarga de las cuidadoras de personas dependientes. Análisis y propuestas de intervención psicosocial. Barcelona, Spain: Tirant Lo Blanch.
  • Carretero, S., Garcés, J., Ródenas, F., & Sanjosé, V. (2009). Variables related to the informal caregivers’ burden of dependent senior citizens in Spain. Archives of Gerontology Geriatrics, 48(3), 372–379. doi:10.1016/j.archger.2008.03.004
  • Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Erlbaum.
  • Chen, C. K., Sabir, M., Zimmerman, S., Suitor, J., & Pillemer, K. (2007). The importance of family relationships with nursing facility staff for family caregiver burden and depression. The Journals of Gerontology, 62(5), P253–260. doi:10.1093/geronb/62.5.P253
  • Cohen, C. A., Gold, D. P., Shulman, K. I., Wortley, J. T., McDonald, G., & Wargon, M. (1993). Factors determining the decision to institutionalize dementing individuals: A prospective study. The Gerontologist, 33, 714–720. doi:10.1093/geront/33.6.714
  • Cohen, R. F., Swanwick, G. J., O’boyle, C. A., & Coakley, D. (1998). Behaviour disturbance and other predictors of carer burden in Alzheimer’s disease. International Journal of Geriatric Psychiatry, 12(3), 331–336. doi:10.1002/(SICI)1099-1166(199703)12:3<331::AID-GPS495>3.0.CO;2-J
  • Crawford, L., Eckert, J. K., Zimmerman, S., & Schumacher, J. G. (2005). Sociocultural aspects of transitions from assisted living for residents with dementia. The Gerontologist, 45(1), 115–123. doi:10.1093/geront/45.suppl_1.115
  • Duncan, M. T., & Morgan, D. L. (1994). Sharing the caring: Family caregivers’ views of their relationships with nursing home staff. The Gerontologist, 34(2), 235–244. doi:10.1093/geront/34.2.235
  • Dunkin, J. J., & Anderson-Haley, C. (1998). Dementia caregiver burden. A review of literature and guidelines for assessment and intervention. Neurology, 51(1), S53–S60. doi:10.1212/WNL.51.1_Suppl_1.S53
  • EuroQol. (1990). EuroQol - A new facility for the measurement of health-related quality of life. Health Policy, 16(3), 199–208.
  • Garcés, J., Carretero, S., Ródenas, F., & Alemán, C. (2009). A review of programs to alleviate the burden of informal caregivers of dependent persons. Archives of Gerontology and Geriatrics, 50(3), 254–259. doi:10.1016/j.archger.2009.04.012
  • Garity, J. (2006). Caring for a family member with Alzheimer´s disease. Coping with caregiver burden post- nursing home placement. Journal of Gerontological Nursing, 32(6), 39–48.
  • Gaugler, J., Kane, R., & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 62, P38–44. doi:10.1093/geronb/62.1.P38
  • Gaugler, J. E., & Ewen, H. H. (2005). Building relationships in residential long-term care. Journal of Gerontological Nursing, 31(9), 19–26. doi:10.3928/0098-9134-20050901-06
  • Gaugler, J. E., Jarrot, S. E., Zarit, S. H., Stephens, M. A. P., Townsend, A., & Greene, R. (2003). Adult day service use and reductions in caregiving hours: Effects on stress and psychological well-being for dementia caregivers. International Journal of Geriatric Psychiatry, 18, 55–62. doi:10.1002/gps.772
  • Gaugler, J. E., Kane, R. L., Kane, R. A., Clay, T., & Newcomer, R. C. (2005). The effects of duration of caregiving on institutionalization. The Gerontologist, 45(1), 78–89. doi:10.1093/geront/45.1.78
  • Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer’s disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56(3), 421–428. doi:10.1111/(ISSN)1532-5415
  • Gaugler, J. E., Zarit, S. H. & Pearlin, L. I. (1999). Caregiving and institutionization: Perceptions of family conflict and socioemotional support. International Journal of Aging and Human Development, 49(1), 1–25.
  • George, L. K., & Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253–259. doi:10.1093/geront/26.3.253
  • Gräsel, E. (2002). When home care ends: Changes in the physical health of informal caregivers caring for dementia patients: A longitudinal study. Journal of the American Geriatrics Society, 50(5), 843–849. doi:10.1046/j.1532-5415.2002.50209.x
  • Haley, W. E., Levine, E. G., Brown, S. L. & Bartolucci A. A. (1987). Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychology of Aging, 2(4), 323–30.
  • Hamilton, M. (1960). A rating scale for depression. British Journal of Social and Clinical Psychology, 6, 278–296.
  • IMSERSO. (1995). Cuidados en la Vejez. El apoyo Informal. Madrid, Spain: Author.
  • IMSERSO. (2002). Envejecer en España. II Asamblea Mundial sobre el envejecimiento. Madrid, Spain: Author.
  • Imserso. (2008). Cuidadoras y cuidadores: el efecto del género en el cuidado no profesional de los mayores. Madrid: IMSERSO.
  • Infurna, F. J., Gerstorf, D., & Zarit, S. H. (2013). Substantial changes in mastery perceptions of dementia caregivers with the placement of a care recipient. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 68(2), 202–214. doi:10.1093/geronb/gbs063
  • Janzen, W. (2001). Long-term care for older adults: The role of the family. Journal of Gerontological Nursing, 27(2), 36–43. doi:10.3928/0098-9134-20010201-13
  • Keefe, J., & Fancey, P. (2000). The care continues: Responsibility for elderly relatives before and after admission to a long-term care facility. Family relations. Interdisciplinary Journal of Applied Family Studies, 49(3), 235–244. doi:10.1111/j.1741-3729.2000.00235.x
  • Lawton, M., Moss, M., Hoffman, C., & Perkinson, M. (2000). Two transitions in daughters’ caregiving careers. The Gerontologist, 40(4), 437–448. doi:10.1093/geront/40.4.437
  • Litwak, E., Messeri, P., & Silverstein, M. (1990). The role of formal and informal groups in providing help to older people. In D. Unger & M. Sussman (Eds.), Families in community settings: Interdisciplinary perspectives (pp. 173–193). New York: Haworth.
  • Mason, C., Auerbach, H., & LaPorte, H. (2009). From hospital to nursing facility: Factors influencing decisions. Health & Social Work, 34(1), 8–15. doi:10.1093/hsw/34.1.8
  • Mausbach, B. T., Aschbacher, K., Patterson, T. L., Von Känel, R., Dimsdale, J. E., Mills, P. J., … Grantet, I. (2007). Effects of placement and bereavement on psychological well-being and cardiovascular risk in Alzheimer’s caregivers: A longitudinal analysis. Journal of Psychosomatic Research, 62(4), 439–445. doi:10.1016/j.jpsychores.2006.10.011
  • Moyle, W., Edwards, H., & Clinton, M. (2002). Living with loss: Dementia and the family caregiver. Australian Journal of Advanced Nursing, 19(3), 25–31.
  • Munn, J. C., Dobbs, D., Meier, A., Christianna, S., Williams, C. S., Biola, H., & Zimmerman, S. (2008). The end-of-life experience in long-term care: Five themes identified from focus groups with residents, family members, and staff. The Gerontologist, 48(4), 485–494. doi:10.1093/geront/48.4.485
  • Nolan, M., & Dellasega, C. (2000). “I really feel I’ve let him down”: Supporting family carers during long term care placement for elders. Journal of Advanced Nursing, 31, 759–767. doi:10.1046/j.1365-2648.2000.01346.x
  • Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583
  • Pillemer, K., Suitor, J. J., Henderson, C. R., Meador, R., Schultz, L., Robison, J., & Hegeman, C. (2003). A cooperative communication intervention for nursing home staff and family members of residents. The Gerontologist, 43, 96–106. doi:10.1093/geront/43.suppl_2.96
  • Port, C. L., Zimmerman, S., Williams, C. S., Dobbs, D., Presisser, J. S., & Williams, S. W. (2005). Families filling the gap: Comparing family involvement for assisted living and nursing home residents with dementia. The Gerontologist, 45(1), 87–95. doi:10.1093/geront/45.suppl_1.87
  • Principado de Asturias. Consejería de Bienestar Social. (2009). La familia, contigo. El papel de los familiares en las residencias de personas mayores. Portal Mayores. Retrieved from http://www.imsersomayores.csic.es/documentos/programas/basededatos/asturias-familia-01.pdf.
  • Romero-Romero, R., Losada, A., Marquez, M., Laidlaw, K., Fernández-Fernández, V., Nogales- González, C., & López, J. (2013). Leisure, gender and kinship in dementia caregiving: Psychological vulnerability of caregiving daughters with feelings of guilt. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 69(4), 502–513. doi:10.1093/geronb/gbt027
  • Seddon, D., Jones, K., & Boyle, M. (2002). Committed to caring: Carer experiences following the admission of a relative into nursing or residential care. Quality in Ageing, 3(3), 16–26. doi:10.1108/14717794200200018
  • Shen, C., Smyer, M. A., Mahoney, K. J., Loughline, D. M., & Mahoney, D. M. (2008). Does mental illness affect consumer direction of community based care? Lessons from the Arkansas Cash and Counseling Program. The Gerontologist, 48(1), 93–104. doi:10.1093/geront/48.1.93
  • Spanish Society Of Geriatrics and Gerontology. SEGG. (2004). Criterios de calidad asistencial en servicios sociosanitarios para personas mayores. 100 recomendaciones básicas para fomentar la calidad en residencias de personas mayores. Madrid: SEGG.
  • Sun, F., Durkin, D. W., Hilgeman, M. M., Harris, G., Gaugler, J. E., Wardian, J., … Burgio, L. D. (2013). Predicting desire for institutional placement among racially diverse dementia familiy caregivers: The role of quality of care. The Gerontologist, 53(3), 418–429. doi:10.1093/geront/gns110
  • Weeks, L. (2008). Family relationship quality after admission to a long-term facility. Quality in Ageing, 9(3), 22–29. doi:10.1108/14717794200800017
  • Williams, S. W., Zimmerman, S., & Williams, C. S. (2013). Family caregiver involvement for long-term care residents at the end of life. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 67(5), 595–604. doi:10.1093/geronb/gbs065
  • Winzelberg, G. S., Williams, C. S., Preisser, J. S., Zimmerman, S., & Sloane, P. D. (2005). Factors associated with nursing assistant quality-of-life ratings for residents with dementia in long term care facilities. The Gerontologist, 45(1), 106–114. doi:10.1093/geront/45.suppl_1.106
  • Yanguas, J. J. (2007). Modelo de atención a las personas con enfermedad de Alzheimer. Madrid, Spain: IMSERSO.
  • Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Huang, V., Adey, M., & Leirer, V. (1983). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 83, 37–49.
  • Zabalegui, A., Juando, C., Izquierdo, M. D., Gual, P., González-Valentín, A., Gallart, A., ... Jones, C. (2004). Recursos y consecuencias de cuidar a las personas mayores de 65 años: Una revision sistemática. Gerokomons, 15(4), 199–208.
  • Zarit, S. H., & Zarit, J. M. (1987). The Memory and Behavior Problems Checklist. Pennsylvania State University.
  • Zarit, S. H., & Whitlatch, C. J. (1992). Institutional placement: Phases of transition. The Gerontologist, 32(5), 665–672. doi:10.1093/geront/32.5.665
  • Zarit, S. H., & Whitlatch, C. J. (1993). The effects of placement in nursing homes on family caregivers: Short and long term consequences. The Irish Journal of Psychology, 14, 25–37. doi:10.1080/03033910.1993.10557912
  • Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67, 361–370. doi:10.1111/acp.1983.67.issue-6
  • Zimmerman, S., Sloane, P. D., Williams, C. S., Reed, P. S., Preisser, J. S., Eckert, J. K., … Dobbs, D. (2005). Dementia care and quality of life in assisted living and nursing homes. The Gerontologist, 45(1), 133–146. doi:10.1093/geront/45.suppl_1.133

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