“Nobody Understands”: On a Cardinal Phenomenon of Palliative Care

REFERENCES

• American Society of Clinical Oncology. 2001a . “ Breaking bad news ” . In Optimizing Cancer Care: The Importance of Symptom Management (Chapter 3) , Dubuque : Kendall/Hunt Publishing Company .
   Google Scholar
• American Society of Clinical Oncology. 2001b . “ Communication ” . In Optimizing Cancer Care: The Importance of Symptom Management (Chapter 5) , Dubuque : Kendall/Hunt Publishing Company .
   Google Scholar
• Aries , P. 1991 . The Hour of Our Death , Oxford : Oxford University Press . (reissue edition)
   Google Scholar
• Arnold , R.M. 2002 . A rose by any other name . Journal of Palliative Medicine , 5 : 807 – 811 . [PUBMED] [INFOTRIEVE] [CSA]
   Google Scholar
• Autton , N. 1986 . Pain: An Exploration , London : Darton, Longman and Todd .
   Google Scholar
• Back , A.L. , Arnold , R.M. and Quill , T.E. 2003 . Hope for the best, and prepare for the worst . Annals of Internal Medicine , 138 : 439 – 443 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMedGoogle Scholar
• Barnard , D. , Towers , A. , Boston , P. and Lambrinidou , Y. 2000 . Crossing Over , 335 Oxford : Oxford University Press .
   Google Scholar
• Blanchot , M. 1995 . The Writing of the Disaster , Lincoln and London : University of Nebraska Press . A. Smock, (Trans.)
   Google Scholar
• Bouchard , L.D. 1999 . “ Holding fragments ” . In Pain Seeking Understanding: Suffering, Medicine, and Faith , Edited by: Mohrmann , M.E. and Hanson , M.J. 13 – 29 . Cleveland, OH : Pilgrim Press .
   Google Scholar
• Bradshaw , A. 1996 . The spiritual dimension of hospice: The secularization of an ideal . Social Science & Medicine , 43 : 409 – 419 . [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Bruera , E. , Sweeney , C. , Calder , K. , Palmer , L. and Benisch-Tolley , S. 2001 . Patient preferences versus physician perceptions of treatment decisions in cancer care . Journal of Clinical Oncology , 19 : 2883 – 2885 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Brunelli , C. , Costantini , M. , Di Giulio , P. , Gallucci , M. , Fusco , F. , Miccinesi , G. , Paci , E. , Peruselli , C. , Morino , P. , Piazza , M. , Tamburini , M. and Toscani , F. 1998 . Quality-of-life evaluation: When do terminal cancer patients and health-care providers agree? . Journal of Pain Symptom Management , 15 : 151 – 158 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Buckman , R. 2001 . Communication skills in palliative care: A practical guide . Neurologic Clinics , 19 : 989 – 1004 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Buytendijk , F.J. 1974 . Prolegomena to an Anthropological Physiology , Pittsburgh : Duquesne University Press .
   Google Scholar
• Callahan , D. 1993 . The Troubled Dream of Life: Living with Mortality , New York : Simon and Schuster .
   Google Scholar
• Capron , A.M. 1994 . Why law and the life sciences? . The Hastings Center Report , 24 : 42 – 44 . [PUBMED] [INFOTRIEVE] [CSA]
   Web of Science ®Google Scholar
• Cassell , E.J. 1991 . The Nature of Suffering and the Goals of Medicine , New York : Oxford University Press .
   Google Scholar
• Cassell , E.J. 1999 . Diagnosing suffering: a perspective . Annals of Internal Medicine , 131 : 531 – 534 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Charon , R. , Banks , J.T. , Connelly , J.E. , Hawkins , A.H. , Hunter , K.M. , Jones , A.H. , Montello , M. and Poirer , S. 1995 . Literature and medicine: Contributions to clinical practice . Annals of Internal Medicine , 122 : 599 – 606 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Cherny , N.I. , Coyle , N. and Foley , K.M. 1994a . Suffering in the advanced cancer patient: A definition and taxonomy . Journal of Palliative Care , 10 : 57 – 70 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMedGoogle Scholar
• Cherny , N.I. , Coyle , N. and Foley , K.M. 1994b . The treatment of suffering when patients request elective death . Journal of Palliative Care , 10 : 71 – 79 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMedGoogle Scholar
• Chochinov , H.M. 2002 . Dignity-conserving care—a new model for palliative care: Helping the patient feel valued . The Journal of the American Medical Association , 287 : 2253 – 2260 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Cleeland , C.S. , Gonin , R. , Hatfield , A.K. , Edmonson , J.H. , Blum , R.H. , Stewart , J.A. and Pandya , K.J. 1994 . Pain and its treatment in outpatients with metastatic cancer . New England Journal of Medicine , 330 : 592 – 596 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Coulehan , J.L. , Platt , F.W. , Egener , B. , Frankel , R. , Lin , C.T. , Lown , B. and Salazar , W.H. 2001 . Let me see if I have this right … : Words that help build empathy . Annals of Internal Medicine , 135 : 221 – 227 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Council on Ethical and Judicial Affairs. 1999 . Medical futility in end-of-life care: Report of the Council on Ethical and Judicial Affairs . The Journal of the American Medical Association , 281 : 937 – 941 . [CSA] [CROSSREF]
   Web of Science ®Google Scholar
• Council on Scientific Affairs. 1996 . Good care of the dying patient. Council on Scientific Affairs, American Medical Association . The Journal of the American Medical Association , 275 : 474 – 478 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Covinsky , K.E. , Fuller , J.D. , Yaffe , K. , Johnston , C.B. , Hamel , M.B. , Lynn , J. , Teno , J.M. and Phillips , R.S. 2000 . Communication and decision-making in seriously ill patients: findings of the SUPPORT project. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments . Journal of the American Geriatrics Society , 48 : S187 – S193 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Coyle , N. and Sculco , L. 2003 . Communication and the patient/physician relationship: A phenomenological inquiry . Journal of Supportive Oncology , 1 : 206 – 215 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMedGoogle Scholar
• Cunningham , C. 2002 . Genealogy of Nihilism: Philosophies of Nothing and the Difference of Theology , New York : Routledge .
   Google Scholar
• Davis , M.P. , Walsh , D. , LeGrand , S.B. and Lagman , R. 2002 . End-of-life care: the death of palliative medicine? . Journal of Palliative Medicine , 5 : 813 – 814 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   Google Scholar
• Delvecchio Good , M-J. , Brodwin , P.E. , Good , B.J. and Keinman , A. , eds. 1992 . Pain as Human Experience: An Anthropological Perspective , Berkeley : University of California Press .
   Google Scholar
• Derrida , J. 1993 . Aporias , Stanford : Stanford University Press .
   Google Scholar
• Descartes , R. 1968 . Discourse on Method and Meditations , London : Penguin . F.E. Sutcliffe (Trans.)
   Google Scholar
• DeVries , P. 1961 . The Blood of the Lamb , Boston : Little, Brown & Company .
   Google Scholar
• Diamond , T. 1992 . Making Gray Gold: Narratives of Nursing Home Care , Chicago : University of Chicago Press .
   Google Scholar
• Doolittle , N.D. and Sauve , M.J. 1995 . Impact of aborted sudden cardiac death on survivors and their spouses: the phenomenon of different reference points . American Journal of Critical Care , 4 : 389 – 396 . [PUBMED] [INFOTRIEVE] [CSA]
   Google Scholar
• Epicurus . 1966 . “ Letter to Menoeceus. [On-line]. ” . Available: http://classics.mit.edu/Epicurus/menoec.html.
   Google Scholar
• Fine , P.G. and Jennings , B. 2003 . CPR in hospice . The Hastings Center Report , 33 : 9 [PUBMED] [INFOTRIEVE] [CSA]
   Web of Science ®Google Scholar
• Fontaine , A. , Larue , F. and Lassauniere , J.M. 1999 . Journal of Pain and Symptom Management , 18 : 263 – 270 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Foucault , M. 1994 . The Birth of the Clinic: an Archaeology of Medical Perception , New York : Vintage Books .
   Google Scholar
• Frank , A.W. 2001 . Can we research suffering? . Qualitative Health Research , 11 : 353 – 362 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Fried , T.R. , Bradley , E.H. , Towle , V.R. and Allore , H. 2002 . Understanding the treatment preferences of seriously ill patients . New England Journal of Medicine , 346 : 1061 – 1066 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Fried , T.R. , Bradley , E.H. and Towle , V.R. 2003 . Valuing the outcomes of treatment: Do patients and their caregivers agree? . Archives of Internal Medicine , 163 : 2073 – 2078 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   Google Scholar
• Gadamer , H.G. 1996 . “ The experience of death ” . In The Enigma of Health , 61 – 70 . Stanford : Stanford University Press .
   Google Scholar
• Geanellos , R. 1998 . Hermeneutic philosophy. Part II: a nursing research example of the hermeneutic imperative to address forestructures/pre-understandings . Nursing Inquiry , 5 : 238 – 247 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   Google Scholar
• Geanellos , R. 2000 . Exploring Ricoeur's hermeneutic theory of interpretation as a method of analysing research texts . Nursing Inquiry , 7 : 112 – 119 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMedGoogle Scholar
• Goold , S.D. , Williams , B. and Arnold , R.M. 2000 . Conflicts regarding decisions to limit treatment: A differential diagnosis . The Journal of the American Medical Association , 283 : 909 – 914 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Grossman , S.A. , Sheidler , V.R. , Swedeen , K. , Mucenski , J. and Piantadosi , S. 1991 . Correlation of patient and caregiver ratings of cancer pain . Journal of Pain and Symptom Management , 6 : 53 – 57 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Heidegger , M. 1971 . “ The thing ” . In Poetry, Language, Thought , Edited by: Hofstadter , A. 161 – 184 . New York : Harper & Row .
   Google Scholar
• Heidegger , M. 1977 . “ Science and reflection ” . In The Question Concerning Technology and Other Essays , Edited by: Heidegger , M. New York : Harper & Row .
   Google Scholar
• Heidegger , M. 1985 . History of the Concept of Time: Prolegomena , 308 Bloomington : Indiana University Press . T. Kisiel (Trans.)
   Google Scholar
• Heidegger , M. 1996 . Being and Time: A Translation of Sein and Zeit. (SUNY series in Contemporary Continental Philosophy) , New York : State University of New York Press . J. Stambaugh (Trans.)
   Google Scholar
• Hermsen , M.A. and ten Have , H.A. 2003 . Moral problems in palliative care practice: A qualitative study . Medicine, Health Care, and Philosophy , 6 : 263 – 272 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMedGoogle Scholar
• Higginson , I.J. and Costantini , M. 2002 . Communication in end-of-life cancer care: A comparison of team assessments in three European countries . Journal of Clinical Oncology , 20 : 3674 – 3682 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Homsi , J. , Walsh , D. and Nelson , K.A. 2001 . Symptom assessment in advanced cancer: Patient report versus systematic assessment . Proceed ASCO , 20 : 386A [CSA]
   Google Scholar
• Kearney , M. 1997 . Mortally Wounded: Stories of Soul Pain, Death and Healing , New York : Touchstone .
   Google Scholar
• Komesaroff , P. 2001 . “ The many faces of the clinic ” . In Handbook of Phenomenology and Medicine , Edited by: Toombs , S.K. 317 – 331 . Dordrecht : Kluver Academic Publishers .
   Google Scholar
• Krakauer , E. 1998 . Prescriptions: Autonomy, humanism and the purpose of health technology . Theoretical Medicine and Bioethics , 19 : 525 – 545 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   Web of Science ®Google Scholar
• Ladriere , J. 2001 . “ Is it possible to give sense to illness ” . In Analecta Husserliana Vol. LXXII , Edited by: Tymieniecka , A-T. and Agazzi , E. 153 – 181 . Dordrecht : Academic Publishers .
   Google Scholar
• Lamont , E.B. and Christakis , N.A. 2003 . Complexities in prognostication in advanced cancer: “to help them live their lives the way they want to” . The Journal of the American Medical Association , 290 : 98 – 104 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Larue , F. , Fontaine , A. and Colleau , S.M. 1997 . Underestimation and undertreatment of pain in HIV disease: multicentre study . BMJ (Clinical research ed.) , 314 : 23 – 28 . [CSA]
   PubMed Web of Science ®Google Scholar
• Layde , P.M. , Beam , C.A. , Broste , S.K. , Connors , A.F. Jr. , Desbiens , N. , Lynn , J. , Phillips , R.S. , Reding , D. , Teno , J. , Vidaillet , H. and Wenger , N. 1995 . Surrogates' predictions of seriously ill patients' resuscitation preferences . Archives of Family Medicine , 4 : 518 – 523 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMedGoogle Scholar
• LeGuin , U. 1990 . Dancing at the Edge of the World: Thoughts on Words, Women, Places , New York : Harper and Row .
   Google Scholar
• Levin , D.M. 1999 . The Philosopher's Gaze: Modernity in the Shadows of Enlightenment , Berkeley, California : University of California Press .
   Google Scholar
• Lipkin , M.J. , Putnam , S.M. and Lazare , A. 1995 . The Medical Interview: Clinical Care, Education, and Research , New York : Springer-Verlag .
   Google Scholar
• Lo , B. , Quill , T. and Tulsky , J. 1999 . Discussing palliative care with patients. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians-American Society of Internal Medicine . Annals of Internal Medicine , 130 : 744 – 749 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Lo , B. , Ruston , D. , Kates , L.W. , Arnold , R.M. , Cohen , C.B. , Faber-Langendoen , K. , Pantilat , S.Z. , Puchalski , C.M. , Quill , T.R. , Rabow , M.W. , Schreiber , S. , Sulmasy , D.P. , Tulsky , J.A. and Working Group on Religious and Spiritual Issues at the End of Life . 2002 . Discussing religious and spiritual issues at the end of life: A practical guide for physicians . The Journal of the American Medical Association , 287 : 749 – 754 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Lucretius , R.E. 1994 . On the Nature of Universe. [On-Line]. Available: http://www.gutenberg.org/dirs/etext97/natng10.txt.
   Google Scholar
• Masson , J.D. 2002 . Non-professional perceptions of “good death”: A study of the views of hospice care patients and relatives of decreased hospice care patients . Mortality , 7 : 191 – 209 . [CSA] [CROSSREF]
   Google Scholar
• Materstvedt , L.J. 2003 . Palliative care on the “slippery slope” towards euthanasia? . Palliative Medicine , 17 : 387 – 392 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   Web of Science ®Google Scholar
• Materstvedt , L.J. , Clark , D. , Ellershaw , J. , Forde , R. , Gravgaard , A.M. , Muller-Busch , H.C. , Porta i Sales , J. , Rapin , C.H. and EAPC Ethics Task Force . 2003 . Euthanasia and physician-assisted suicide: A view from an EAPC Ethics Task Force . Palliative Medicine , 17 : 97 – 101 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Mattimore , T.J. , Wenger , N.S. , Desbiens , N.A. , Teno , J.M. , Hamel , M.B. , Liu , H. , Califf , R. , Connors , A.F. Jr. , Lynn , J. and Oye , R.K. 1997 . Surrogate and physician understanding of patients preferences for living permanently in a nursing home . Journal of the American Geriatrics Society , 45 : 818 – 824 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• McWhinney , I.R. 2001 . “ Focusing on lived experience: The evolution of clinical method in Western medicine ” . In Handbook of Phenomenology and Medicine , Edited by: Toombs , S.K. 331 – 351 . Dordrecht : Kluwer Academic Publishers .
   Google Scholar
• Meier , D.E. and Morrison , R.S. 2002 . Autonomy reconsidered . New England Journal of Medicine , 346 : 1087 – 1089 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   Web of Science ®Google Scholar
• Mezzich , J.E. , Kirmayer , L.J. , Kleinman , A. , Fabrega , H. Jr. , Parron , D.L. , Good , B.J. , Lin , K.M. and Manson , S.M. 1999 . The place of culture in DSM-IV . The Journal of Nervous and Mental Disease , 187 : 457 – 464 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Milbank , J. 1995 . Can a gift be given? Prolegomena to a future Trinitarian metaphysic . Modern Theology , 11 : 119 – 161 . [CSA]
   Google Scholar
• Milbank , J. 2003 . “ Beauty and the soul ” . In Theological Perspectives on God and Beauty , Edited by: Milbank , J. , Ward , G. and Wyschogrod , E. 1 – 35 . Harrisburg : Trinity Press International .
   Google Scholar
• Morse , J.M. , Bottorff , J. , Anderson , G. , O'Brien , B. and Solberg , S. 1992 . Beyond empathy: expanding expressions of caring . Journal of Advanced Nursing , 17 : 809 – 821 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Not dead yet. (2003). [On-line]. http://www.notdeadyet.org/
   Google Scholar
• Okon , T. 2004 . On healing: the gift of being . Journal of Palliative Care , 20 : 222 (abstract)[CSA]
   Web of Science ®Google Scholar
• Paolini, J. (2003). The possibility of God: An essay in the philosophy of religion, Philosophy Pathways, 51. [On-line]. Available: http://www.shef.ac.uk/~ptpdlp/newsletter/issue51.html
   Google Scholar
• Pellegrino , E.D. 2001 . The internal morality of clinical medicine: A paradigm for the ethics of the helping and healing professions . Journal of Medicine and Philosophy , 26 : 559 – 579 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Pickstock , C. 1997 . After Writing: On the Liturgical Consummation of Philosophy Challenges in Contemporary Theology , Oxford : Blackwell Publishers .
   Google Scholar
• Platt , F.W. , Gaspar , D.L. , Coulehan , J.L. , Fox , L. , Adler , A.J. , Weston , W.W. , Smith , R.C. and Stewart , M. 2001 . Tell me about yourself: The patient-centered interview . Annals of Internal Medicine , 134 : 1079 – 1085 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Porter , R. 1997 . The Greatest Benefit to Mankind , New York : W.W. Norton & Co .
   Google Scholar
• Puchalski , C.M. and Romer , A.L. 2000 . Taking a spiritual history allows clinicians to understand patients more fully . Journal of Palliative Medicine , 3 : 129 – 137 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMedGoogle Scholar
• Quill , T.E. and Brody , H. 1996 . Physician recommendations and patient autonomy: finding a balance between physician power and patient choice . Annals of Internal Medicine , 125 : 763 – 769 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Quill , T.E. , Arnold , R.M. and Platt , F. 2001 . “I wish things were different:” expressing wishes in response to loss, futility, and unrealistic hopes . Annals of Internal Medicine , 135 : 551 – 555 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Roberts , D.K. , Thorne , S.E. and Pearson , C. 1993 . The experience of dyspnea in late-stage cancer. Patients' and nurses' perspectives . Cancer Nursing , 16 : 310 – 320 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Rose , G. 1995 . Mourning Becomes the Law: Philosophy and Representation , Cambridge, UK : Cambridge University Press .
   Google Scholar
• Roter , D.L. , Hall , J.A. , Kern , D.E. , Barker , L.R. , Cole , K.A. and Roca , R.P. 1995 . Improving physicians' interviewing skills and reducing patients emotional distress. A randomized clinical trial . Archives of Internal Medicine , 155 : 1877 – 1884 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Roter , D.L. , Stewart , M. , Putnam , S.M. , Lipkin , M. Jr. , Stiles , W. and Inui , T.S. 1997 . Communication patterns of primary care physicians . The Journal of the American Medical Association , 277 : 350 – 356 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Sacks , O. 1984 . A Leg to Stand On , 110 New York : Summit Books .
   Google Scholar
• Schweizer , H. 1997 . Suffering and the Remedy of Art , New York : State University of New York Press .
   Google Scholar
• Seckler , A.B. , Meier , D.E. , Mulvihill , M. and Paris , B.E. 1991 . Substituted judgment: how accurate are proxy predictions? . Annals of Internal Medicine , 115 : 92 – 98 . [PUBMED] [INFOTRIEVE] [CSA]
   PubMed Web of Science ®Google Scholar
• Sepulveda , C. , Marlin , A. , Yoshida , T. and Ullrich , A. 2002 . Palliative care: the World Health Organization's global perspective . Journal of Pain and Symptom Management , 24 : 91 – 96 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Shields , P.R. 1993 . Logic and Sin in the Writings of Ludwig Wittgenstein , 10 Chicago : The University of Chicago Press .
   Google Scholar
• Silvestri , G.A. , Knittig , S. , Zoller , J.S. and Nietert , P.J. 2003 . Importance of faith on medical decisions regarding cancer care . Journal of Clinical Oncology , 21 : 1379 – 1382 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Solbakk , J.H. 2004 . Therapeutic doubt and moral dialogue . Journal of Medicine and Philosophy , 29 : 93 – 118 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Sontag , S. 2003 . Regarding the Pain of Others , 125 New York : Farrar, Straus & Giroux .
   Google Scholar
• Steinhauser , K.E. , Christakis , N.A. , Clipp , E.C. , McNeilly , M. , McIntyre , L. and Tulsky , J.A. 2000 . Factors considered important at the end of life by patients, family, physicians, and other care providers . The Journal of American Medical Association , 284 : 2476 – 2482 . [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Strang , S. and Strang , P. 2002 . Questions posed to hospital chaplains by palliative care patients . Journal of Palliative Medicine , 5 : 857 – 864 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMedGoogle Scholar
• Stromgren , A.S. , Groenvold , M. , Pedersen , L. , Olsen , A.K. , Spile , M. and Sjogren , P. 2001 . Does the medical record cover the symptoms experienced by cancer patients receiving palliative care? A comparison of the record and patient self-rating . Journal of Pain and Symptom Management , 21 : 189 – 196 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Suhl , J. , Simons , P. , Reedy , T. and Garrick , T. 1994 . Myth of substituted judgment. Surrogate decision making regarding life support is unreliable . Archives of Internal Medicine , 154 : 90 – 96 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMedGoogle Scholar
• Tate , P. 1997 . The Doctor's Communication Handbook , Oxford : Radcliffe Medical Press .
   Google Scholar
• Tolstoy , L. 1981 . The Death of Ivan Ilyich. , Bantam Classic Edition , New York : Bantam Books . reissue edition
   Google Scholar
• Toombs , S.K. 2001 . “ Reflections on bodily change: the lived experience of disability ” . In Handbook of Phenomenology and Medicine , Edited by: Toombs , S.K. 247 – 261 . Dordrecht : Kluwer Academic Publishers .
   Google Scholar
• Tsevat , J. , Dawson , N.V. , Wu , A.W. , Lynn , J. , Soukup , J.R. , Cook , E.F. , Vidaillet , H. and Phillips , R.S. 1998 . Health values of hospitalized patients 80 years or older. HELP Investigators. Hospitalized Elderly Longitudinal Project . The Journal of the American Medical Association , 279 : 371 – 375 . [CSA] [CROSSREF]
   Web of Science ®Google Scholar
• Turner , D. 1999 . The darkness of God and the light of Christ: Negative theology and Eucharistic presence . Modern Theology , 15 : 143 – 158 . [CSA] [CROSSREF]
   Google Scholar
• Von Balthasar , H.U. 1999 . Mysterium Paschale: The Mystery of Easter , Colorado : Ignatius Press . A. Nichols (Trans.)
   Google Scholar
• Ward , G. 2000 . Cities of God , London and New York : Routledge .
   Google Scholar
• Wijdicks , E.F. 2001 . The diagnosis of brain death . New England Journal of Medicine , 344 : 1215 – 1221 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar
• Wittgenstein , L. 1998 . “ Zettel 314 ” . In Zettel , Edited by: Anscombe , G.E.M. and Wright , G.H. 57 Oxford : Basil Blackwell . [On-line]. Available: http://www.kfs.org/~jonathan/witt/+64en.html
   Google Scholar
• Wittgenstein , L. 2001 . Tractatus Logico Philosophicus , London : Routledge . [On-line]. Available: http://www.kfs.org/~jonathan/witt/aprefen.html
   Google Scholar
• Wolterstorff , N. 1987 . Lament for a Son , Grand Rapids : Wm. B. Eerdmans Publishing Company .
   Google Scholar
• Woolf , V. 1990 . Mrs. Dalloway , Fort Washington : Harvest Books . [On-line]. Available: http://gutenberg.net.au/ebooks02/0200991.txt
   Google Scholar
• Yeager , K.A. , Miaskowski , C. , Dibble , S.L. and Wallhagen , M. 1995 . Differences in pain knowledge and perception of the pain experience between outpatients with cancer and their family caregivers . Oncology Nursing Forum , 22 : 1235 – 1241 . [PUBMED] [INFOTRIEVE] [CSA]
   Google Scholar
• Yedidia , M.J. and MacGregor , B. 2001 . Confronting the prospect of dying. Reports of terminally ill patients . Journal of Pain and Symptom Management , 22 : 807 – 819 . [PUBMED] [INFOTRIEVE] [CSA] [CROSSREF]
   PubMed Web of Science ®Google Scholar