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Hemoglobin
international journal for hemoglobin research
Volume 45, 2021 - Issue 1
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Original Articles

Exploration of Barriers and Facilitators to Optimal Emergency Department Care of Sickle Cell Disease: Opportunities for Patient–Physician Partnerships to Improve Care

Zachary Liedermana Department of Medicine, University of Toronto, Toronto, ON, Canada;b Division of Medical Oncology and Haematology, University Health Network, Toronto, ON, CanadaCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-1755-1701View further author information
ORCID Icon,
Naa Kwarley Quarteyc Department of Cancer Education, Cancer Health Literacy Research Centre, Cancer Education Program, Princess Margaret Cancer Centre, Toronto, ON, CanadaView further author information
,
Richard Warda Department of Medicine, University of Toronto, Toronto, ON, Canada;b Division of Medical Oncology and Haematology, University Health Network, Toronto, ON, CanadaORCID Iconhttps://orcid.org/0000-0002-4807-8603View further author information
ORCID Icon &
Janet Papadakosc Department of Cancer Education, Cancer Health Literacy Research Centre, Cancer Education Program, Princess Margaret Cancer Centre, Toronto, ON, Canada;d Department of Patient Education, Toronto, ON, Canada;e Department of Health Services Research, Institute of Health Policy, Management and Evaluation, University of Toronto, ON, CanadaORCID Iconhttps://orcid.org/0000-0001-6320-4156View further author information
ORCID Icon
Pages 13-19 | Received 03 Jul 2020, Accepted 15 Nov 2020, Published online: 17 Dec 2020

References

  • Yusuf HR, Atrash HK, Grosse SD, et al. Emergency department visits made by patients with sickle cell disease: a descriptive study, 1999–2007. Am J Prev Med. 2010;38(4 Suppl):S536–S541.
  • State of Sickle Cell Disease: 2016 Report: American Society of Hematology; 2016. http://www.scdcoalition.org/report.html.
  • Glassberg JA. Improving emergency department-based care of sickle cell pain. Hematol Am Soc Hematol Educ Program. 2017;2017(1):412–417.
  • Kauf TL, Coates TD, Huazhi L, et al. The cost of health care for children and adults with sickle cell disease. Am J Hematol. 2009;84(6):323–327.
  • Haywood C Jr, Beach MC, Lanzkron S, et al. A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease. J Natl Med Assoc. 2009;101(10):1022–1033.
  • Payne R. Sickle cell anemia and pain: will data prevail over beliefs? Ann Emerg Med. 2009;53(5):596–597.
  • Lazio MP, Costello HH, Courtney DM, et al. A comparison of analgesic management for emergency department patients with sickle cell disease and renal colic. Clin J Pain. 2010;26(3):199–205.
  • Glassberg JA, Tanabe P, Chow A, et al. Emergency provider analgesic practices and attitudes toward patients with sickle cell disease. Ann Emerg Med. 2013;62(4):293–302.e10.
  • Po C, Colombatti R, Cirigliano A, et al. The management of sickle cell pain in the emergency department: a priority for health systems. Clin J Pain. 2013;29(1):60–63.
  • Tanabe P, Hafner JW, Martinovich Z, et al. Adult emergency department patients with sickle cell pain crisis: results from a quality improvement learning collaborative model to improve analgesic management. Acad Emerg Med. 2012;19(4):430–438.
  • Naessens V, Ward R, Kuo KHM. Effectiveness of an analgesia protocol for the treatment of painful vaso-occlusive crisis of sickle cell disease patients in emergency room: a retrospective cohort study. [Abstract] Blood. 2013;122(21):2222–2222.
  • Brennan-Cook J, Bonnabeau E, Harris-Bloom H, et al. Improving the care of individuals with sickle cell disease in the emergency department using a quality improvement framework: the emergency department sickle cell assessment of needs and strengths (ED-SCANS). Adv Emerg Nurs J. 2019;41(3):261–270.
  • Campbell AD, Ross PT, Kumagai AK, et al. Coming of age with sickle cell disease and the role of patient as teacher. J Natl Med Assoc. 2010;102(11):1073–1078.
  • Jacobson TA, Thomas DM, Morton FJ, et al. Use of a low-literacy patient education tool to enhance pneumococcal vaccination rates. A randomized controlled trial. JAMA. 1999;282(7):646–650.
  • Pazirandeh M. Does patient partnership in continuing medical education (CME) improve the outcome in osteoporosis management? J Contin Educ Health Prof. 2002;22(3):142–151.
  • Ross PT, Lypson ML. Using artistic-narrative to stimulate reflection on physician bias. Teach Learn Med. 2014;26(4):344–349.
  • Matthie N, Ross D, Sinha C, et al. A qualitative study of chronic pain and self-management in adults with sickle cell disease. J Natl Med Assoc. 2019;111(2):158–168.
  • Kuper A, Reeves S, Levinson W. An introduction to reading and appraising qualitative research. BMJ. 2008;337:a288.
  • Creswell JW. Qualitative inquiry and research design: choosing among five traditions. 2nd ed. Thousand Oaks (CA, USA): Sage Publications Inc.; 2007.
  • Ruta NS, Ballas SK. The opioid drug epidemic and sickle cell disease: guilt by association. Pain Med. 2016;17(10):1793–1798.
  • Jenerette CM, Brewer CA, Edwards LJ, et al. An intervention to decrease stigma in young adults with sickle cell disease. West J Nurs Res. 2014;36(5):599–619.
  • Panepinto JA, Owens PL, Mosso AL, et al. Concentration of hospital care for acute sickle cell disease-related visits. Pediatr Blood Cancer. 2012;59(4):685–689.
  • Kapil P, MacMillan M, Carvalho M, et al. Assessment of fever advisory cards (FACs) as an initiative to improve febrile neutropenia management in a regional cancer center emergency department. J Oncol Pract. 2016;12(9):e858–e863.
  • Doak CC, Doak LG, Friedell GH, et al. Improving comprehension for cancer patients with low literacy skills: strategies for clinicians. CA Cancer J Clin. 1998;48(3):151–162.

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