Prevalence, Severity, and Determinants of Pain in Thalassemia

References

• Cappellini MD, Cohen A, Porter J, et al. Guidelines for the management of transfusion dependent thalassaemia. 3rd ed. Nicosia, Cyprus: Thalassemia International Federation; 2014.
   Google Scholar
• Kolnagou A, Kontoghiorghes GJ. Advances in the prevention and treatment are changing thalassemia from a fatal to chronic disease. experience from a Cyprus model and its use as a paradigm for future applications. Hemoglobin. 2009;33(5):287–295. doi: 10.3109/03630260903212043.
   PubMed Web of Science ®Google Scholar
• Cohen AR, Galanello R, Pennell DJ, et al. Thalassemia. Hematology Am Soc Hematol Educ Program. 2004;2004(1):14–34. doi: 10.1182/asheducation-2004.1.14.
   Google Scholar
• Taher AT, Cappellini MD. How I manage medical complications of β-thalassemia in adults. Blood. 2018;132(17):1781–1791. doi: 10.1182/blood-2018-06-818187.
   PubMed Web of Science ®Google Scholar
• Pakbaz Z, Treadwell M, Yamashita R, et al. Quality of life in patients with thalassemia intermedia compared to thalassemia major. Ann N Y Acad Sci. 2005;1054(1):457–461. doi: 10.1196/annals.1345.0596.
   PubMedGoogle Scholar
• Borgna-Pignatti C, Cappellini MD, De Stefano P, et al. Survival and complications in thalassemia. Ann N Y Acad Sci. 2005;1054(1):40–47. doi: 10.1196/annals.1345.006.
   PubMedGoogle Scholar
• Oliveros O, Trachtenberg F, Haines D, et al. Pain over time and its effects on life in thalassemia. Am J Hematol. 2013;88(11):939–943. doi: 10.1002/ajh.23565.
   PubMed Web of Science ®Google Scholar
• Haines D, Martin M, Carson S, et al. Pain in thalassaemia: the effects of age on pain frequency and severity. Br J Haematol. 2013;160(5):680–687. doi: 10.1111/bjh.12177.
   PubMed Web of Science ®Google Scholar
• Trachtenberg F, Foote D, Martin M, et al. Pain as an emergent issue in thalassemia. Am J Hematol. 2010;85(5):367–370. doi: 10.1002/ajh.21670.
   PubMed Web of Science ®Google Scholar
• Lal A. Assessment and treatment of pain in thalassemia. Ann N Y Acad Sci. 2016;1368(1):65–72. doi: 10.1111/nyas.13061.
   PubMedGoogle Scholar
• Scalone L, Mantovani LG, Krol M, et al. Costs, quality of life, treatment satisfaction and compliance in patients with β-thalassemia major undergoing iron chelation therapy: the ITHACA study. Curr Med Res Opin. 2008;24(7):1905–1917. doi: 10.1185/03007990802160834.
   PubMed Web of Science ®Google Scholar
• Vogiatzi MG, Macklin EA, Fung EB, et al. Bone disease in thalassemia: a frequent and still unresolved problem. J Bone Miner Res. 2009;24(3):543–557. N. doi: 10.1359/jbmr.080505.
   PubMed Web of Science ®Google Scholar
• Finsterbush A, Ferber I, Mogle P. Lower limb pain in thalassemia. J Rheumatol. 1985;12:529–532.
   PubMed Web of Science ®Google Scholar
• Choudhry VP. Quality of life in thalassemia major. Indian J Pediatr. 2018;85(11):957–958. doi: 10.1007/s12098-018-2792-z.
   PubMed Web of Science ®Google Scholar
• Sharma S, Seth B, Jawade P, et al. Quality of life in children with thalassemia and their caregivers in India. Indian J Pediatr. 2017;84(3):188–194. doi: 10.1007/s12098-016-2267-z.
   PubMed Web of Science ®Google Scholar
• Chordiya K, Katewa V, Sharma P, et al. Quality of life (QoL) and the factors affecting it in transfusion dependent thalassemic children. Indian J Pediatr. 2018;85(11):978–983. doi: 10.1007/s12098-018-2697-x.
   PubMed Web of Science ®Google Scholar
• Khurana A, Katyal S, Marwaha RK. Psychosocial burden in thalassemia. Indian J Pediatr. 2006;73(10):877–880. doi: 10.1007/BF02859278.
   PubMedGoogle Scholar
• Soni S, Thawani R, Idhate T, et al. Health-related quality of life in patients with transfusion-dependent thalassemia. Indian Pediatr. 2016;53(8):741–742. doi: 10.1007/s13312-016-0923-z.
   PubMed Web of Science ®Google Scholar
• Shaligram D, Girimaji SC, Chaturvedi SK. Psychological problems and quality of life in children with thalassemia. Indian J Pediatr. 2007;74(8):727–730. doi: 10.1007/s12098-007-0127-6.
   PubMed Web of Science ®Google Scholar
• Shuhart CR, Yeap SS, Anderson PA, et al. Executive summary of the 2019 ISCD position development conference on monitoring treatment, DXA cross-calibration and least significant change, spinal cord injury, peri-prosthetic and orthopedic bone health, transgender medicine, and pediatrics. J Clin Densitom. 2019;22(4):453–471. doi: 10.1016/j.jocd.2019.07.001.
   PubMed Web of Science ®Google Scholar
• Tubman VN, Fung EB, Vogiatzi M, et al. Guidelines for the standard monitoring of patients with thalassemia: report of the thalassemia longitudinal cohort. J Pediatr Hematol Oncol. 2015;37(3):e162–69–e169. doi: 10.1097/MPH.0000000000000307.
   Web of Science ®Google Scholar
• De Sanctis V, Soliman AT, Elsedfy H, et al. Growth and endocrine disorders in thalassemia: The international network on endocrine complications in thalassemia (I-CET) position statement and guidelines. Indian J Endocrinol Metab. 2013;17(1):8–18. doi: 10.4103/2230-8210.107808.
   PubMedGoogle Scholar
• Ochsner KN, Ludlow DH, Knierim K, et al. Neural correlates of individual differences in pain-related fear and anxiety. Pain. 2006;120(1-2):69–77. doi: 10.1016/j.pain.2005.10.014.
   PubMed Web of Science ®Google Scholar
• Merskey H, Bogduk N. Classification of chronic pain. In: Merskey H, Bogduk N, editors. IASP (International Association for the Study of Pain). Part III: pain terms, a current list with definitions and notes on usage. Seattle: IASP Press; 1994.
   Google Scholar
• Breivik H, Collett B, Ventafridda V, et al. Survey of chronic pain in Europe: Prevalence, impact on daily life, and treatment. Eur J Pain. 2006;10(4):287–333. doi: 10.1016/j.ejpain.2005.06.009.
   PubMed Web of Science ®Google Scholar
• Cleeland CS, Ryan KM. Pain assessment: global use of the brief pain inventory. Ann Acad Med Singap. 1994;23(2):129–138.
   PubMedGoogle Scholar
• Shin H, Kim K, Chee W, et al. A comparison of two pain measures for Asian American cancer patients. West J Nurs Res. 2007;29(5):545–560. doi: 10.1177/0193945906298696.
   PubMed Web of Science ®Google Scholar
• Martinez JE, Grassi DC, Marques LG. Analysis of the applicability of different pain questionnaires in three hospital settings: outpatient clinic, ward and emergency unit. Rev Bras Reumatol. 2011;51(4):299–308.
   PubMedGoogle Scholar
• Saxena AK, Jain PN, Bhatnagar S. The prevalence of chronic pain among adults in India. Indian J Palliat Care. 2018;24(4):472–477. doi: 10.4103/IJPC.IJPC_141_18.
   PubMed Web of Science ®Google Scholar
• Green ST, Martin MB, Haines D, et al. Variance of pain prevalence and associated severity during the transfusion cycle of adult thalassaemia patients. Br J Haematol. 2014;166(5):797–800. doi: 10.1111/bjh.12903.
   PubMed Web of Science ®Google Scholar
• Succar J, Musallam KM, Taher AT. Thalassemia and venous thromboembolism. Mediterr J Hematol Infect Dis. 2011;3(1):e2011025. doi: 10.4084/MJHID.2011.025.
   PubMedGoogle Scholar
• Kumaravel KS, Sampathkumar D, Punitha P, et al. Premature atherosclerosis in children with transfusion-dependent thalassemia: a twin-center cross-sectional study. Indian Pediatr. 2022;59(12):925–928. doi: 10.1007/s13312-022-2664-5.
   PubMed Web of Science ®Google Scholar
• Sherief LM, Dawood O, Ali A, et al. Premature atherosclerosis in children with β-thalassemia major: new diagnostic marker. BMC Pediatr. 2017;17(1):69. doi: 10.1186/s12887-017-0820-1.
   PubMedGoogle Scholar