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Articles

Investigating married adults’ communal coping with genetic health risk and perceived discrimination

ORCID Icon, , &
Pages 181-202 | Received 04 Feb 2016, Accepted 28 Feb 2017, Published online: 24 Nov 2017

References

  • Afifi, T. D., Davis, S., Merrill, A. F., Coveleski, S., Denes, A., & Afifi, W. (2015). In the wake of the great recession: Economic uncertainty, communication, and biological stress responses in families. Human Communication Research, 41, 268–302. doi: 10.1111/hcre.12048
  • Afifi, W. A., Felix, E. D., & Afifi, T. D. (2012). The impact of uncertainty and communal coping on mental health following natural disasters. Anxiety, Stress, & Coping, 25, 329–347. doi: 10.1080/10615806.2011.603048
  • Afifi, T. D., Hutchinson, S., & Krouse, S. (2006). Toward a theoretical model of communal coping in postdivorce families and other naturally occurring groups. Communication Theory, 16, 378–409. doi: 10.1111/j.1468-2885.2006.00275.x
  • Afifi, T. D., Merrill, A. F., & Davis, S. (2016). The theory of resilience and relational load. Personal Relationships, 23, 663–683. doi:101111/pere.12159 doi: 10.1111/pere.12159
  • AMOS. (Version 24.0) [Computer Program]. Chicago, IL: IBM SPSS.
  • Berg, C. A., & Upchurch, R. (2007). A developmental-contextual model of couples coping with chronic illness across the life span. Psychological Bulletin, 133, 920–954. doi: 10.1037/0033-2909.133.6.920
  • Billings, P. R., Kohn, M. A., de Cuevas, M., Beckwith, J., Alper, J. S., & Natowicz, M. R. (1992). Discrimination as a consequence of genetic testing. American Journal of Human Genetics, 50, 476–482.
  • Bombard, Y., Palin, J., Friedman, J. M., Veenstra, G., Creighton, S., Bottorff, J. L., … Canadian Respond-HD Collaborative Research Group. (2012). Beyond the patient: The broader impact of genetic discrimination among individuals at risk of Huntington’s disease. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 159B, 217–226. doi: 10.1002/ajmg.b.32016
  • Chung, W. K. (2007). Implementation of genetics to personalize medicine. Gender Medicine, 4, 248–265. doi: 10.1016/S1550-8579(07)80044-1
  • Clayton, E. W. (2015). Why the Americans with disabilities act matters for genetics. The Journal of the American Medical Association, 313, 2225–2226. doi: 10.1001/jama.2015.3419
  • Cline, R. J. W. (1999). Communication in support groups. In L. R. Frey, D. S. Gouran, & M. S. Poole (Eds.), The handbook of group communication theory and research (pp. 516–538). Thousand Oaks, CA: SAGE.
  • Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24, 385–396. doi: 10.2307/2136404
  • Cohen, S., Kessler, R. C., & Gordon, L. U. (1995). Strategies for measuring stress in psychiatric and physical disorders. In S. Cohen, R. C. Kessler, & L. U. Gordon (Eds.), Measuring stress (pp. 3–28). New York, NY: Oxford University Press.
  • Conger, R. D., Rueter, M. A., & Elder, G. H. (1999). Couple resilience to economic pressure. Journal of Personality and Social Psychology, 76, 54–71. doi: 10.1037/0022-3514.76.1.54
  • de Serres, F. J., Blanco, I., & Fernandez-Bustillo, E. (2010). Ethnic differences in alpha-1 antitrypsin deficiency in the United States of America. Therapeutic Advances in Respiratory Disease, 4, 63–70. doi: 10.1177/1753465810365158
  • Feero, W. G., Guttmacher, A. E., & Collins, F. S. (2010). Genomic medicine – an updated primer. The New England Journal of Medicine, 362, 2001–2011. doi: 10.1056/NEJMra0907175
  • Feldman, E. A. (2012). The genetic information nondiscrimination act (GINA): Public policy and medical practice in the age of personalized medicine. Journal of Genetic Internal Medicine, 27, 743–746. doi: 10.1007/s11606-012-1988-6
  • Fergus, K., & Skerrett, T. (2015). Resilient couple coping revisited: Building relationship muscle. In K. Skerrett & K. Fergus (Eds.), Couple resilience: Emerging perspectives (pp. 199–210). Dordrecht: Springer.
  • Freedman, A. N., Wideroff, L., Olson, L., Davis, W., Klabunde, C., Srinath, K. P., … Ballard-Barbash, R. (2003). U.S. physicians’ attitudes toward genetic testing for cancer susceptibility. American Journal of Medical Genetics, 120A, 63–71. doi: 10.1002/ajmg.a.10192
  • Gamarel, K., & Revenson, T. (2015). Dyadic adaptation to chronic illness: The importance of considering context in understanding couples’ resilience. In K. Skerrett & K. Fergus (Eds.), Couple resilience: Emerging perspectives (pp. 83–106). Dordrecht: Springer.
  • Gonzalez, R., & Griffin, D. (2012). Dyadic data analysis. In H. Cooper, P. M. Camic, D. L. Long, A. T. Panter, D. Rindskopf, & K. J. Sher (Eds.), APA handbook of research methods in psychology, Vol 3: Data analysis and research publication (pp. 439–450). Washington, DC: American Psychological Association. doi: 10.1037/13621-022
  • Green, S. G., Schaefer, R. A. B., MacDermid, S. M., & Weiss, H. M. (2011). Partner reactions to work-to-family conflict: Cognitive appraisal and indirect crossover in couples. Journal of Management, 37, 744–769. doi: 10.1177/0149206309349307
  • Greene, K. (2009). An integrated model of health disclosure decision-making. In T. Afifi & W. Afifi (Eds.), Uncertainty and information regulation in interpersonal contexts: Theories and applications (pp. 226–253). New York, NY: Routledge.
  • Griffin, D., & Gonzalez, R. (1995). The correlational analysis of dyad-level data: Models for the exchangeable case. Psychological Bulletin, 118, 430–439. doi: 10.1037/0033-2909.118.3.430
  • Hall, M. A., McEwen, J. E., Barton, J. C., Walker, A. P., Howe, E. G., Reiss, J. A., … Thomson, E. J. (2005). Concerns in a primary care population about genetic discrimination by insurers. Genetics in Medicine, 7, 311–316. doi: 10.1097/01.GIM.0000162874.58370.C0
  • Hayes, A. F., & Scharkow, M. (2013). The relative trustworthiness of inferential tests of the indirect effect in statistical mediation analysis: Does method really matter? Psychological Science, 24, 1918–1927. doi: 10.1177/0956797613480187
  • High, A. C., & Steuber, K. R. (2014). An examination of support (in)adequacy: Types, sources, and consequences of social support among infertile women. Communication Monographs, 81, 157–178. doi: 10.1080/03637751.2013.878868
  • Hobfoll, S. E. (1989). Conservation of resources: A new attempt at conceptualizing stress. American Psychologist, 44, 513–524. doi: 10.1037/0003-066X.44.3.513
  • Hook, E. B. (1992). Muddling genetic discrimination. American Journal of Human Genetics, 51, 899–901.
  • Hu, L., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6, 1–55. doi: 10.1080/10705519909540118
  • Jameson, J. L., & Longo, D. L. (2015). Precision medicine – personalized, problematic, and promising. The New England Journal of Medicine, 372, 2229–2234. doi: 10.1056/NEJMsb1503104
  • Jones, N. L., & Sarata, A. K. (2008). Report for Congress. Genetic information: Legal issues relating to discrimination and privacy. Retrieved from http://biotech.law.lsu.edu/crs/RL30006_20080310.pdf
  • Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York, NY: The Guilford Press.
  • Kline, R. B. (2015). Methodology in the social sciences: Principles and practice of structural equation modeling, fourth edition. New York, NY: Guilford Press.
  • Klitzman, R. (2009). The impacts of social contexts in testing for alpha-1 antitrypsin deficiency: The roles of physicians and others. Genetic Testing and Molecular Biomarkers, 13, 269–276. doi: 10.1089/gtmb.2008.0106
  • Klitzman, R. (2010). Views of discrimination among individuals confronting genetic disease. Journal of Genetic Counseling, 19, 68–83. doi: 10.1007/s10897-009-9262-8
  • Korf, B. R., & Rehm, H. L. (2013). New approaches to molecular diagnosis. The Journal of the American Medical Association, 309, 1511–1521. doi: 10.1001/jama.2013.3239
  • Kowal, J., Johnson, S. M., & Lee, A. (2003). Chronic illness in couples: A case for emotional focused therapy. Journal of Marital and Family Therapy, 29, 299–310. doi: 10.1111/j.1752-0606.2003.tb01208.x
  • Lewis, M. A., McBride, C. M., Pollak, K. I., Puleo, E., Butterfield, R. M., & Emmons, K. M. (2006). Understanding health behavior change among couples: An interdependence and communal coping approach. Social Science & Medicine, 62, 1369–1380. doi: 10.1016/j.socscimed.2005.08.006
  • Link, B. G., Cullen, F. T., Struening, E. L., Shrout, P. E., & Dohrenwend, B. P. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. American Sociological Review, 54, 400–423. doi: 10.2307/2095613
  • Lowstuter, K. J., Sand, S., Blazer, K. R., MacDonald, D. J., Banks, K. C., Lee, C. A., & Weitzel, J. N. (2008). Influence of genetic discrimination perceptions and knowledge on cancer genetics referral practice among clinicians. Genetics in Medicine, 10, 691–698. doi: 10.1097/GIM.0b013e3181837246
  • Lyons, R. F., Mickelson, K., Sullivan, J. L., & Coyne, J. C. (1998). Coping as a communal process. Journal of Social and Personal Relationships, 15, 579–605. doi: 10.1177/0265407598155001
  • McBride, C. M., Koehly, L. M., Sanderson, S. C., & Kaphingst, K. A. (2010). The behavioral response to personalized genetic information: Will genetic risk profiles motivate individuals and families to choose more healthful behaviors? Annual Review of Public Health, 31, 89–103. doi: 10.1146/annurev.publhealth.012809.103532
  • McCubbin, H. (1979). Integrating coping behavior in family stress theory. Journal of Marriage and Family, 41, 237–244. doi: 10.2307/351693
  • Minnotte, K. L., Stevens, D. P., Minnotte, M. C., & Kiger, G. (2007). Emotion-work performance among dual-earner couples: Testing four theoretical perspectives. Journal of Family Issues, 28, 773–793. doi: 10.1177/0192513X07299676
  • Ormond, K. E., & Cho, M. K. (2014). Translating personalized medicine using new genetic technologies in clinical practice: The ethical issues. Personalized Medicine, 11, 211–222. doi: 10.2217/pme.13.104
  • Otlowski, M., Taylor, S., & Bombard, Y. (2012). Genetic discrimination: International perspectives. Annual Review of Genomics and Human Genetics, 13, 433–454. doi: 10.1146/annurev-genom-090711-163800
  • Parrott, R. L., Smith, R. A., Hong, S. J., & Worthington, A. (2015). Congruence-incongruence patterns in alpha-1 antitrypsin deficiency couples’ genetic determinist beliefs and perceived control over genes: Implications for clinical and public health genomic communication. Journal of Genetic Counseling, 24, 532–540. doi: 10.1007/s10897-014-9786-4
  • Petronio, S. (2002). Boundaries of privacy: Dialectics of disclosure. Albany, NY: State University of New York Press.
  • Rahaghi, F. F., Sandhaus, R. A., Strange, C., Hogarth, D. K., Eden, E., Stocks, J. M., … Stoller, J. K. (2012). The prevalence of alpha-1 antitrypsin deficiency among patients found to have airflow obstruction. COPD: Journal of Chronic Obstructive Pulmonary Disease, 9, 352–358. doi: 10.3109/15412555.2012.669433
  • Revenson, T. A., & Lepore, S. J. (2012). Coping in social context. In A. Baum, T. A. Revenson, & J. E. Singer (Eds.), Handbook of health psychology (2nd ed., pp. 193–217). New York, NY: Psychology Press.
  • Rodriguez, A. J., & Margolin, G. (2013). Wives and husbands’ cortisol reactivity to proximal and distal dimensions of couple conflict. Family Processes, 52, 555–569. doi: 10.1111/famp.12037
  • Silvers, A., & Stein, M. A. (2002). An equality paradigm for preventing genetic discrimination. Vanderbilt Law Review, 55, 1341–1395.
  • Smith, A. C., & Pollin, T. I. (2009). Patient education. In W. R. Uhlmann, J. L. Schuette, & B. Yasher (Eds.), A guide to genetic counseling (2nd ed., pp. 177–205). Hoboken, NJ: Wiley-Blackwell.
  • Stanton, A. L., Revenson, T. A., & Tennen, H. (2007). Health psychology: Psychological adjustment to chronic disease. Annual Review of Psychology, 58, 565–592. doi: 10.1146/annurev.psych.58.110405.085615
  • Stoller, J. K., Sandhaus, R. A., Turino, G., Dickson, R., Rodgers, K., & Strange, C. (2005). Delay in diagnosis of alpha-1 antitrypsin deficiency: A continuing problem. Chest, 128, 1989–1994. doi: 10.1378/chest.128.4.1989
  • Tanash, H. A., Nilsson, P. M., Nilsson, J. A., & Piitulainen, E. (2010). Survival in severe alpha-1 antitrypsin deficiency (PiZZ). Respiratory Research, 11, 44. doi:10.1186/1465-9921-11-44.
  • Tercyak, K. P. (2009). Introduction to the special issue: Psychological aspects of genomics and child health. Journal of Pediatric Psychology, 34, 589–595. doi: 10.1093/jpepsy/jsn127
  • Wheaton, A. G., Cunningham, T. J., Ford, E. S., & Croft, J. B. (2015). Employment and activity limitations among adults with chronic obstructive pulmonary disease – United States, 2013. Morbidity and Mortality Weekly Report (MMWR), 64, 289–295.
  • Xu, Y., & Burleson, B. R. (2001). Effects of sex, culture, and support type on perceptions of spousal social support: An assessment of the “support gap” hypothesis in early marriage. Human Communication Research, 27, 535–566. doi: 10.1111/j.1468-2958.2001.tb00792.x
  • Zuo, L., Pannell, B. K., Zhou, T., & Chuang, C. (2016). Historical role of alpha-1-antitrypsin deficiency in respiratory and hepatic complications. Gene, 589, 118–122. doi: 10.1016/j.gene.2016.01.004

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