Therapists’ Experiences of Aggressive Behaviors among Youth with Autism Spectrum Disorder: A Qualitative Analysis

References

• Bailey, B. A., Hare, D. J., Hatton, C., & Limb, K. (2006). The response to challenging behaviour by care staff: Emotional responses, attributions of cause and observations of practice. Journal of Intellectual Disability Research, 50(Pt 3), 199–211. https://doi.org/10.1111/j.1365-2788.2005.00769.x
   PubMedGoogle Scholar
• Band-Winterstein, T., Avieli, H., & Smeloy, Y. (2016). Harmed? Harmful? Experiencing abusive adult children with mental disorder over the life course. Journal of Interpersonal Violence, 31(15), 2598–2621. https://doi.org/10.1177/0886260515579505
   PubMed Web of Science ®Google Scholar
• Butrimaviciute, R., & Grieve, A. (2014). Carers’ experiences of being exposed to challenging behaviour in services for autism spectrum disorders. Autism: The International Journal of Research and Practice, 18(8), 882–890. https://doi.org/10.1177/1362361313508022
   PubMed Web of Science ®Google Scholar
• Chlebowski, C., Magaña, S., Wright, B., & Brookman-Frazee, L. (2018). Implementing an intervention to address challenging behaviors for autism spectrum disorder in publicly-funded mental health services: Therapist and parent perceptions of delivery with Latinx families. Cultural Diversity & Ethnic Minority Psychology, 24(4), 552–563. https://doi.org/10.1037/cdp0000215
   PubMed Web of Science ®Google Scholar
• Corbin, J. M., & Strauss, A. L. (2015). Basics of qualitative research: Techniques and procedures for developing grounded theory. (Fourth edition) SAGE.
   Google Scholar
• Davies, B., Griffiths, J., Liddiard, K., Lowe, K., & Stead, L. (2015). Changes in staff confidence and attributions for challenging behaviour after training in positive behavioural support within a forensic medium secure service. The Journal of Forensic Psychiatry & Psychology, 26(6), 847–861. https://doi.org/10.1080/14789949.2015.1072574
   Web of Science ®Google Scholar
• De Giacomo, A., Craig, F., Terenzio, V., Coppola, A., Campa, M. G., & Passeri, G. (2016). Aggressive behaviors and verbal communication skills in Autism Spectrum Disorders. Global Pediatric Health, 3, 2333794X16644360. https://doi.org/10.1177/2333794X16644360
   PubMedGoogle Scholar
• Denzin, N. K., & Lincoln, Y. S. (Eds.). (2018). The SAGE handbook of qualitative research. (Fifth edition). SAGE.
   Google Scholar
• Dilworth, J. A., Phillips, N., & Rose, J. (2011). Factors relating to staff attributions of control over challenging behaviour. Journal of Applied Research in Intellectual Disabilities, 24(1), 29–38. https://doi.org/10.1111/j.1468-3148.2010.00570.x
   Web of Science ®Google Scholar
• Dowey, A., Toogood, S., Hastings, R. P., & Nash, S. (2007). Can Brief Workshop Interventions Change Care Staff Understanding of Challenging Behaviours? Journal of Applied Research in Intellectual Disabilities, 20(1), 52–57. https://doi.org/10.1111/j.1468-3148.2006.00339.x
   Web of Science ®Google Scholar
• Dyson, M. W., Chlebowski, C., & Brookman-Frazee, L. (2019). Therapists’ Adaptations to an Intervention to Reduce Challenging Behaviors in Children with Autism Spectrum Disorder in Publicly Funded Mental Health Services. Journal of Autism and Developmental Disorders, 49(3), 924–934. https://doi.org/10.1007/s10803-018-3795-3
   PubMed Web of Science ®Google Scholar
• Emerson, E. (2001). Challenging behaviour: Analysis and intervention in people with severe learning disabilities (2nd ed.). Cambridge University Press.
   Google Scholar
• Ezzy, D. (2010). Qualitative interviewing as an embodied emotional performance. Qualitative Inquiry, 16(3), 163–170. https://doi.org/10.1177/1077800409351970
   Web of Science ®Google Scholar
• Finlay, L. (2011). Phenomenology for therapists: Researching the lived world. Wiley-Blackwell.
   Google Scholar
• Fitzpatrick, S. E., Srivorakiat, L., Wink, L., Pedapati, E. V., & Erickson, C. A. (2016). Aggression in autism spectrum disorder: Presentation and treatment options. Neuropsychiatric Disease and Treatment, 12, 1525–1538. https://doi.org/10.2147/NDT.S84585
   PubMed Web of Science ®Google Scholar
• Green, J., & Thorogood, N. (2018). Qualitative methods for health research (4th ed.). SAGE.
   Google Scholar
• Griffith, G. M., & Hastings, R. P. (2014). ‘He’s hard work, but he’s worth it’. The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative. Journal of Applied Research in Intellectual Disabilities, 27(5), 401–419.
   PubMed Web of Science ®Google Scholar
• Guba, E. G., & Lincoln, Y. S. (1982). Epistemological and methodological bases of naturalistic inquiry. ECTJ, 30(4), 233–252. https://doi.org/10.1007/BF02765185
   Google Scholar
• Hastings, R. P., & Brown, T. (2002). Behavioural knowledge, causal beliefs and self-efficacy as predictors of special educators’ emotional reactions to challenging behaviours. Journal of Intellectual Disability Research, 46(Pt 2), 144–150. https://doi.org/10.1046/j.1365-2788.2002.00378.x
   PubMedGoogle Scholar
• Hastings, R. P., & Remington, B. (1994). Rules of engagement: Toward an analysis of staff responses to challenging behavior. Research in Developmental Disabilities, 15(4), 279–298. https://doi.org/10.1016/0891-4222(94)90008-6
   PubMed Web of Science ®Google Scholar
• Hastings, R. P., Remington, B., & Hopper, G. M. (1995). Experienced and inexperienced health care workers’ beliefs about challenging behaviours. Journal of Intellectual Disability Research, 39(6), 474–483. https://doi.org/10.1111/j.1365-2788.1995.tb00567.x
   PubMedGoogle Scholar
• Hensel, J. M., Lunsky, Y., & Dewa, C. S. (2012). Exposure to client aggression and burnout among community staff who support adults with intellectual disabilities in Ontario, Canada: Client aggression and burnout among community support staff. Journal of Intellectual Disability Research, 56(9), 910–915. https://doi.org/10.1111/j.1365-2788.2011.01493.x
   PubMed Web of Science ®Google Scholar
• Hill, A. P., Zuckerman, K. E., Hagen, A. D., Kriz, D. J., Duvall, S. W., van Santen, J., Nigg, J., Fair, D., & Fombonne, E. (2014). Aggressive behavior problems in children with autism spectrum disorders: Prevalence and correlates in a large clinical sample. Research in Autism Spectrum Disorders, 8(9), 1121–1133. https://doi.org/10.1016/j.rasd.2014.05.006
   PubMed Web of Science ®Google Scholar
• Hill, C., & Dagnan, D. (2002). Helping, attributions, emotions and coping style in response to people with learning disabilities and challenging behaviour. Journal of Learning Disabilities, 6(4), 363–372. https://doi.org/10.1177/146900470200600403
   Google Scholar
• Hodgetts, S., Nicholas, D., & Zwaigenbaum, L. (2013). Home sweet home? Families’ experiences with aggression in children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 28(3), 166–174. https://doi.org/10.1177/1088357612472932
   Web of Science ®Google Scholar
• Jones, C., & Hastings, R. P. (2003). Staff reactions to self-injurious behaviours in learning disability services: Attributions, emotional responses and helping. The British Journal of Clinical Psychology, 42(Pt 2), 189–203. https://doi.org/10.1348/014466503321903599
   PubMed Web of Science ®Google Scholar
• Lambrechts, G., Kuppens, S., & Maes, B. (2009). Staff variables associated with the challenging behaviour of clients with severe or profound intellectual disabilities: Staff variables and challenging behaviour. Journal of Intellectual Disability Research: JIDR, 53(7), 620–632. https://doi.org/10.1111/j.1365-2788.2009.01162.x
   PubMedGoogle Scholar
• Lambrechts, G., & Maes, B. (2012). Staff emotional reactions and experiences towards challenging behaviour: An interview study. International Journal of Developmental Disabilities, 58(2), 95–110. https://doi.org/10.1179/2047387711Y.0000000009
   Web of Science ®Google Scholar
• Lambrechts, G., Petry, K., & Maes, B. (2008). Staff variables that influence responses to challenging behaviour of clients with an intellectual disability. A review. Education and Training in Developmental Disabilities, 43(4), 454–473. https://pdfs.semanticscholar.org/b2b7/144dd43f5331a964a3bb8d38a8655bb62e57.pdf
   Web of Science ®Google Scholar
• Lambrechts, G., Van Den Noortgate, W., Eeman, L., & Maes, B. (2010). Staff reactions to challenging behaviour: An observation study. Research in Developmental Disabilities, 31(2), 525–535. https://doi.org/10.1016/j.ridd.2009.12.004
   PubMed Web of Science ®Google Scholar
• Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(Pt 3), 172–183. https://doi.org/10.1111/j.1365-2788.2005.00732.x
   PubMedGoogle Scholar
• Lembcke, H., Larsen, F. A., & Janssen, M. (2016). The influence of causal attributions on emotional and behavioral reactions of care workers towards challenging behavior among persons with deafblindness. Journal of Deafblind Studies on Communication, 2(1), 22–44. https://core.ac.uk/download/pdf/154397051.pdf
   Google Scholar
• Levy, I., & Adam, K.-M. (2018). Online commenting about a victim of female-on-male rape: The case of Shia Labeouf’s sexual victimization. Sex Roles, 79(9–10), 578–593. https://doi.org/10.1007/s11199-018-0893-9
   Web of Science ®Google Scholar
• Levy, I., & Kerschke-Risch, P. (2020). Attitudes toward food fraud in Israel and Germany. British Food Journal, 122(7), 2219–2232. https://doi.org/10.1108/BFJ-10-2019-0785
   Web of Science ®Google Scholar
• Levy, I., & Kerschke-Risch, P. (2022). Attitudes toward food fraud, food safety concerns, national culture, and self-labeling as a victim. Israel Affairs, 28(3), 501–522. https://doi.org/10.1080/13537121.2022.2066868
   Web of Science ®Google Scholar
• Lewis, S. (2015). Qualitative inquiry and research design: Choosing among five approaches. Health Promotion Practice, 16(4), 473–475. https://doi.org/10.1177/1524839915580941
   Web of Science ®Google Scholar
• Ling, C. Y. M., & Mak, W. W. S. (2012). Coping with challenging behaviours of children with autism: Effectiveness of brief training workshop for frontline staff in special education settings: Effectiveness of staff training. Journal of Intellectual Disability Research: JIDR, 56(3), 258–269. https://doi.org/10.1111/j.1365-2788.2011.01469.x
   PubMed Web of Science ®Google Scholar
• Mays, N., & Pope, C. (1995). Qualitative research: Rigour and qualitative research. BMJ (Clinical Research ed.), 311(6997), 109–112. https://doi.org/10.1136/bmj.311.6997.109
   PubMed Web of Science ®Google Scholar
• McConachie, D. A. J., McKenzie, K., Morris, P. G., & Walley, R. M. (2014). Acceptance and mindfulness-based stress management for support staff caring for individuals with intellectual disabilities. Research in Developmental Disabilities, 35(6), 1216–1227. https://doi.org/10.1016/j.ridd.2014.03.005
   PubMed Web of Science ®Google Scholar
• McDonald, D., Proctor, P., Gill, W., Heaven, S., Marr, J., & Young, J. (2015). Increasing early childhood educators’ use of communication-facilitating and language-modelling strategies: Brief speech and language therapy training. Child Language Teaching and Therapy, 31(3), 305–322. https://doi.org/10.1177/0265659015588203
   Web of Science ®Google Scholar
• Merrick, A. D., Grieve, A., & Cogan, N. (2017). Psychological impacts of challenging behaviour and motivational orientation in staff supporting individuals with autistic spectrum conditions. Autism: The International Journal of Research and Practice, 21(7), 872–880. https://doi.org/10.1177/1362361316654857
   PubMed Web of Science ®Google Scholar
• Muskat, B., Burnham Riosa, P., Nicholas, D. B., Roberts, W., Stoddart, K. P., & Zwaigenbaum, L. (2015). Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals. Autism, 19(4), 482–490. https://doi.org/10.1177/1362361314531341
   PubMed Web of Science ®Google Scholar
• Noone, S. J., & Hastings, R. P. (2010). Using acceptance and mindfulness-based workshops with support staff caring for adults with intellectual disabilities. Mindfulness, 1(2), 67–73. https://doi.org/10.1007/s12671-010-0007-4
   Google Scholar
• Noone, S. J., Jones, R. S. P., & Hastings, R. P. (2006). Care staff attributions about challenging behaviors in adults with intellectual disabilities. Research in Developmental Disabilities, 27(2), 109–120. https://doi.org/10.1016/j.ridd.2004.11.014
   PubMed Web of Science ®Google Scholar
• Oliver, C., Hall, S., Hales, J., & Head, D. (1996). Self-injurious behaviour and people with intellectual disabilities: Assessing the behavioural knowledge and causal explanations of care staff. Journal of Applied Research in Intellectual Disabilities, 9(3), 229–239. https://doi.org/10.1111/j.1468-3148.1996.tb00112.x
   Web of Science ®Google Scholar
• Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Sage Publications.
   Google Scholar
• Poppes, P., van der Putten, A. A. J., ten Brug, A., & Vlaskamp, C. (2016). Staff attributions of the causes of challenging behaviour in children and adults with profound intellectual and multiple disabilities. Research in Developmental Disabilities, 48, 95–102. https://doi.org/10.1016/j.ridd.2015.10.014
   PubMed Web of Science ®Google Scholar
• Ramsay, J. R., Brodkin, E. S., Cohen, M. R., Listerud, J., Rostain, A. L., & Ekman, E. (2005). “Better strangers”: Using the relationship in psychotherapy for adult patients with Asperger Syndrome. Psychotherapy: Theory, Research, Practice, Training, 42(4), 483–493. https://doi.org/10.1037/0033-3204.42.4.483
   Web of Science ®Google Scholar
• Rose, D., Horne, S., Rose, J. L., & Hastings, R. P. (2004). Negative emotional reactions to challenging behaviour and staff burnout: Two replication studies. Journal of Applied Research in Intellectual Disabilities, 17(3), 219–223. https://doi.org/10.1111/j.1468-3148.2004.00194.x
   Web of Science ®Google Scholar
• Rose, D., & Rose, J. (2005). Staff in services for people with intellectual disabilities: The impact of stress on attributions of challenging behaviour. Journal of Intellectual Disability Research: JIDR, 49(Pt 11), 827–838. https://doi.org/10.1111/j.1365-2788.2005.00758.x
   PubMedGoogle Scholar
• Rose, J., Mills, S., Silva, D., & Thompson, L. (2013). Client characteristics, organizational variables and burnout in care staff: The mediating role of fear of assault. Research in Developmental Disabilities, 34(3), 940–947. https://doi.org/10.1016/j.ridd.2012.11.014
   PubMed Web of Science ®Google Scholar
• Sloan, A., & Bowe, B. (2014). Phenomenology and hermeneutic phenomenology: The philosophy, the methodologies, and using hermeneutic phenomenology to investigate lecturers’ experiences of curriculum design. Quality & Quantity, 48(3), 1291–1303. https://doi.org/10.1007/s11135-013-9835-3
   Web of Science ®Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. SAGE.
   Google Scholar
• Smyth, E., Healy, O., & Lydon, S. (2015). An analysis of stress, burnout, and work commitment among disability support staff in the UK. Research in Developmental Disabilities, 47, 297–305. https://doi.org/10.1016/j.ridd.2015.09.023
   PubMed Web of Science ®Google Scholar
• Starks, H., & Brown Trinidad, S. (2007). Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory. Qualitative Health Research, 17(10), 1372–1380. https://doi.org/10.1177/1049732307307031
   PubMed Web of Science ®Google Scholar
• Tynan, H., & Allen, D. (2002). The impact of service user cognitive level on carer attributions for aggressive behaviour. Journal of Applied Research in Intellectual Disabilities, 15(3), 213–223. https://doi.org/10.1046/j.1468-3148.2002.00120.x
   Web of Science ®Google Scholar
• Weiner, B. (1985). An attributional theory of achievement motivation and emotion. Psychological Review, 92(4), 548–573. https://doi.org/10.1037/0033-295X.92.4.548
   PubMed Web of Science ®Google Scholar
• Weiner, B. (1986). Attribution, emotion, and action. In R. M. Sorrentino & E. T. Higgins (Eds.), Handbook of motivation and cognition: Foundations of social behavior (pp. 281–312). Guilford Press.
   Google Scholar
• Wilcox, E., Finlay, W. M., & Edmonds, J. (2006). His brain is totally different: An analysis of care-staff explanations of aggressive challenging behaviour and the impact of gendered discourses. The British Journal of Social Psychology, 45(Pt 1), 197–216. https://doi.org/10.1348/135910705X43589
   PubMedGoogle Scholar
• Willems, A. P. A. M., Embregts, P. J. C. M., Hendriks, L. H. C., & Bosman, A. M. T. (2012). Measuring staff behavior towards clients with ID and challenging behavior: Further psychometric evaluation of the Staff-Client Interactive Behavior Inventory (SCIBI). Research in Developmental Disabilities, 33(5), 1523–1532. https://doi.org/10.1016/j.ridd.2012.03.008
   PubMed Web of Science ®Google Scholar
• Willner, P., & Smith, M. (2008). Attribution theory applied to helping behaviour towards people with intellectual disabilities who challenge. Journal of Applied Research in Intellectual Disabilities, 21(2), 150–155. https://doi.org/10.1111/j.1468-3148.2007.00390.x
   Web of Science ®Google Scholar
• Zijlmans, L. J. M., Embregts, P. J. C. M., & Bosman, A. M. T. (2013). Emotional intelligence, emotions, and feelings of support staff working with clients with intellectual disabilities and challenging behavior: An exploratory study. Research in Developmental Disabilities, 34(11), 3916–3923. https://doi.org/10.1016/j.ridd.2013.08.027
   PubMed Web of Science ®Google Scholar