Home-Based Behavioural Intervention across Skill Domains for a Child with Tube Dependency

References

• Alshaikh, B., Yusuf, K., Dressler-Mund, D., Mehrem, A. A., Augustine, S., Bodani, J., Yoon, E., & Shah, P. (2022). Rates and determinants of home nasogastric tube feeding in infants born very preterm. The Journal of Pediatrics, 246, 26–33.e2. https://doi.org/10.1016/j.jpeds.2022.03.012
   PubMed Web of Science ®Google Scholar
• Anderson, R., Virues-Ortega, J., Taylor, S. A., & Taylor, T. (2022). Thematic and textual analysis methods for developing social validity questionnaires in applied behavior analysis. Behavioral Interventions, 37(3), 732–753. https://doi.org/10.1002/bin.1832
   Web of Science ®Google Scholar
• Arnold-Saritepe, A., Phillips, K. J., Taylor, S. A., Gomes-Ng, S., Lo, M., & Daly, S. (2023). Generalization and maintenance. In J. L. Matson (Ed.), Handbook of applied behavior analysis for children with autism: Clinical guide to assessment and treatment. Springer Cham.
   Google Scholar
• Bachmeyer, M. H., Gulotta, C. S., & Piazza, C. C. (2013). Liquid to baby food fading in the treatment of food refusal. Behavioral Interventions, 28(4), 281–298. https://doi.org/10.1002/bin.1367
   Web of Science ®Google Scholar
• Berth, D. P., Bachmeyer, M. H., Kirkwood, C. A., Mauzy, IV. C. R., Retzlaff, B. J., & Gibson, A. L. (2019). Noncontingent and differential reinforcement in the treatment of pediatric feeding problems. Journal of Applied Behavior Analysis, 52(3), 622–641. https://doi.org/10.1002/jaba.562
   PubMed Web of Science ®Google Scholar
• Foxx, R. M. (2013). The maintenance of behavioral change: The case for long-term follow-ups. The American Psychologist, 68(8), 728–736. https://doi.org/10.1037/a0033713
   PubMed Web of Science ®Google Scholar
• Greer, A. J., Gulotta, C. S., Masler, E. A., & Laud, R. B. (2008). Caregiver stress and outcomes of children with pediatric feeding disorders treated in an intensive interdisciplinary program. Journal of Pediatric Psychology, 33(6), 612–620. https://doi.org/10.1093/jpepsy/jsm116
   PubMed Web of Science ®Google Scholar
• Hansen, B. A., & Andersen, A. S. (2020). Behavior-analytic treatment progression for a child with tube dependence: Reaching age-typical feeding. Clinical Case Studies, 19(6), 403–417. https://doi.org/10.1177/1534650120950525
   Web of Science ®Google Scholar
• Ibañez, V. F., Peterson, K. M., Crowley, J. G., Haney, S. D., Andersen, A. S., & Piazza, C. C. (2020). Pediatric prevention: Feeding disorders. Pediatric Clinics of North America, 67(3), 451–467. https://doi.org/10.1016/j.pcl.2020.02.003
   PubMed Web of Science ®Google Scholar
• Jones, E., Southwood, H., Cook, C., & Nicholson, T. (2020). Insights into paediatric tube feeding dependence: A speech-language pathology perspective. International Journal of Speech-Language Pathology, 22(3), 327–337. https://doi.org/10.1080/17549507.2020.1754910
   PubMed Web of Science ®Google Scholar
• Kempen, J. H. (2011). Appropriate use and reporting of uncontrolled case series in the medical literature. American Journal of Ophthalmology, 151(1), 7–10.e1. https://doi.org/10.1016/j.ajo.2010.08.047
   PubMed Web of Science ®Google Scholar
• Lagatta, J. M., Uhing, M., Acharya, K., Lavoie, J., Rholl, E., Malin, K., Malnory, M., Leuthner, J., & Brousseau, D. C. (2021). Actual and potential impact of a home nasogastric tube feeding program for infants whose neonatal intensive care unit discharge is affected by delayed oral feedings. The Journal of Pediatrics, 234, 38–45.e2. https://doi.org/10.1016/j.jpeds.2021.03.046
   PubMed Web of Science ®Google Scholar
• Marinschek, S., Dunitz-Scheer, M., Pahsini, K., Geher, B., & Scheer, P. (2014). Weaning children off enteral nutrition by netcoaching versus onsite treatment: A comparative study. Journal of Paediatrics and Child Health, 50(11), 902–907. https://doi.org/10.1111/jpc.12662
   PubMed Web of Science ®Google Scholar
• Martinez-Costa, C., Calderón Garrido, C., Borraz, S., Gómez-López, L., & Pedrón-Giner, C. (2013). Satisfaction with gastrostomy feeding in caregivers of children with home enteral nutrition: Application of the SAGA-8 questionnaire and analysis of involved factors. Nutricion Hospitalaria, 28, 1121–1128. https://doi.org/10.3305/nh.2013.28.4.6555
   PubMed Web of Science ®Google Scholar
• Mason, S. J., Harris, G., & Blissett, J. (2005). Tube feeding in infancy: Implications for the development of normal eating and drinking skills. Dysphagia, 20(1), 46–61. https://doi.org/10.1007/s00455-004-0025-2
   PubMed Web of Science ®Google Scholar
• Miles, N. I., & Wilder, D. A. (2009). The effects of behavioral skills training on caregiver implementation of guided compliance. Journal of Applied Behavior Analysis, 42(2), 405–410. https://doi.org/10.1901/jaba.2009.42-405
   Google Scholar
• Patel, M. R., Patel, V. Y., Andersen, A. S., & Miles, A. (2022). Evaluating outcome measure data for an intensive interdisciplinary home-based pediatric feeding disorders program. Nutrients, 14(21), 4602. https://doi.org/10.3390/nu14214602
   PubMed Web of Science ®Google Scholar
• Pedersen, S. D., Parsons, H. G., & Dewey, D. (2004). Stress levels experienced by the parents of enterally fed children. Child, 30(5), 507–513. https://doi.org/10.1111/j.1365-2214.2004.00437.x
   Google Scholar
• Peterson, K. M., Volkert, V. M., & Milnes, S. M. (2017). Evaluation of practice trials to increase self-drinking in a child with a feeding disorder. Behavior Analysis in Practice, 10(2), 167–171. https://doi.org/10.1007/s40617-016-0147-7
   PubMedGoogle Scholar
• Peterson, K. M., Volkert, V. M., & Zeleny, J. R. (2015). Increasing self-drinking for children with feeding disorders. Journal of Applied Behavior Analysis, 48(2), 436–441. https://doi.org/10.1002/jaba.210
   PubMed Web of Science ®Google Scholar
• Reddy, S., & Anitha, M. (2015). Culture and its influence on nutrition and oral health. Biomedical and Pharmacology Journal, 8(october Spl Edition), 613–620. https://doi.org/10.13005/bpj/757
   Google Scholar
• Rivas, K. M., Piazza, C. C., Roane, H. S., Volkert, V. M., Stewart, V., Kadey, H. J., & Groff, R. A. (2014). Analysis of self-feeding in children with feeding disorders. Journal of Applied Behavior Analysis, 47(4), 710–722. https://doi.org/10.1002/jaba.170
   PubMed Web of Science ®Google Scholar
• Sharp, W. G., Trumbull, A., & Lesack, R. (2015). Blending to treat expulsion in a child with food refusal. Behavioral Interventions, 30(3), 247–255. https://doi.org/10.1002/bin.1413
   Web of Science ®Google Scholar
• Sharp, W. G., Volkert, V. M., Scahill, L., McCracken, C. E., & McElhanon, B. (2017). A systematic review and meta-analysis of intensive multidisciplinary intervention for pediatric feeding disorders: How standard is the standard of care? The Journal of Pediatrics, 181, 116–124.e114. https://doi.org/10.1016/j.jpeds.2016.10.002
   PubMed Web of Science ®Google Scholar
• Simione, M., Dartley, A. N., Cooper-Vince, C., Martin, V., Hartnick, C., Taveras, E. M., & Fiechtner, L. (2020). Family-centered outcomes that matter most to parents: A pediatric feeding disorders qualitative study. Journal of Pediatric Gastroenterology and Nutrition, 71(2), 270–275. https://doi.org/10.1097/mpg.0000000000002741
   PubMed Web of Science ®Google Scholar
• Stevenson, K. (2018). A consultation journey: Developing a Kaupapa Māori research methodology to explore Māori whānau experiences of harm and loss around birth. AlterNative, 14(1), 54–62. https://doi.org/10.1177/1177180117744612
   Google Scholar
• Stokes, T. F., & Baer, D. M. (1977). An implicit technology of generalization. Journal of Applied Behavior Analysis, 10(2), 349–367. https://doi.org/10.1901/jaba.1977.10-349
   PubMed Web of Science ®Google Scholar
• Streisand, R., Braniecki, S., Tercyak, K. P., & Kazak, A. E. (2001). Childhood illness-related parenting stress: The pediatric inventory for parents. Journal of Pediatric Psychology, 26(3), 155–162. https://doi.org/10.1093/jpepsy/26.3.155
   PubMed Web of Science ®Google Scholar
• Taylor, T. (2020). Side deposit with regular texture food for clinical cases in-home. Journal of Pediatric Psychology, 45(4), 399–410. https://doi.org/10.1093/jpepsy/jsaa004
   PubMed Web of Science ®Google Scholar
• Taylor, T., Blampied, N., & Roglić, N. (2021). Consecutive controlled case series demonstrates how parents can be trained to treat paediatric feeding disorders at home. Acta Paediatrica, 110(1), 149–157. https://doi.org/10.1111/apa.15372
   PubMed Web of Science ®Google Scholar
• Taylor, B. A., LeBlanc, L. A., & Nosik, M. R. (2019). Compassionate care in behavior analytic treatment: Can outcomes be enhanced by attending to relationships with caregivers? Behavior Analysis in Practice, 12(3), 654–666. https://doi.org/10.1007/s40617-018-00289-3
   PubMed Web of Science ®Google Scholar
• Taylor, S. A., Purdy, S. C., Jackson, B., Phillips, K., & Virues-Ortega, J. (2019). Evaluation of a home-based behavioral treatment model for children with tube dependency. Journal of Pediatric Psychology, 44(6), 656–668. https://doi.org/10.1093/jpepsy/jsz014
   PubMed Web of Science ®Google Scholar
• Taylor, S. A., & Taylor, T. (2021a). The distance between empirically-supported treatment and actual practice for paediatric feeding problems: An international clinical perspective. International Journal of Child and Adolescent Health, 14(1), 3–15.
   Google Scholar
• Taylor, T., & Taylor, S. A. (2021b). Let’s not wait and see: The substantial risks of paediatric feeding problems. International Journal of Child and Adolescent Health, 14(1), 17–29.
   Google Scholar
• Taylor, T., & Taylor, S. A. (2023). Reporting treatment processes and outcomes for paediatric feeding problems: A current view of the literature. Manuscript Submitted for Publication.
   Google Scholar
• Taylor, S. A., Virues-Ortega, J., & Anderson, R. (2021). Transitioning children from tube to oral feeding: A systematic review of current treatment approaches. Speech, Language and Hearing, 24(3), 169–182. https://doi.org/10.1080/2050571X.2019.1684068
   Google Scholar
• Volkert, V. M., Peterson, K. M., Zeleny, J. R., & Piazza, C. C. (2014). A clinical protocol to increase chewing and assess mastication in children with feeding disorders. Behavior Modification, 38(5), 705–729. https://doi.org/10.1177/0145445514536575
   PubMed Web of Science ®Google Scholar
• Volkert, V. M., Piazza, C. C., & Ray-Price, R. (2016). Further manipulations in response effort or magnitude of an aversive consequence to increase self-feeding in children with feeding disorders. Behavior Analysis in Practice, 9(2), 103–113. https://doi.org/10.1007/s40617-016-0124-1
   PubMedGoogle Scholar
• Wei, Q., Machalicek, W., & Zhu, J. (2023). Treatment acceptability for interventions addressing challenging behavior among Chinese caregivers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 53(4), 1483–1494. https://doi.org/10.1007/s10803-021-05196-1
   PubMed Web of Science ®Google Scholar
• Wilken, M. (2012). The impact of child tube feeding on maternal emotional state and identity: A qualitative meta-analysis. Journal of Pediatric Nursing, 27(3), 248–255. https://doi.org/10.1016/j.pedn.2011.01.032
   PubMed Web of Science ®Google Scholar
• Wilken, M., Cremer, V., Berry, J., & Bartmann, P. (2013). Rapid home-based weaning of small children with feeding tube dependency: Positive effects on feeding behaviour without deceleration of growth. Archives of Disease in Childhood, 98(11), 856–861. https://doi.org/10.1136/archdischild-2012-303558
   PubMed Web of Science ®Google Scholar
• Wilkins, J. W., Piazza, C. C., Groff, R. A., Volkert, V. M., Kozisek, J. M., & Milnes, S. M. (2014). Utensil manipulation during initial treatment of pediatric feeding problems. Journal of Applied Behavior Analysis, 47(4), 694–709. https://doi.org/10.1002/jaba.169
   PubMed Web of Science ®Google Scholar
• Williams, K. E., Riegel, K., Gibbons, B., & Field, D. G. (2007). Intensive behavioral treatment for severe feeding problems: A cost-effective alternative to tube feeding? Journal of Developmental and Physical Disabilities, 19(3), 227–235. https://doi.org/10.1007/s10882-007-9051-y
   Web of Science ®Google Scholar
• Williams, K. E., & Seiverling, L. (2022). Behavior analytic feeding interventions: Current state of the literature. Behavior Modification, 2022, 014544552210981. https://doi.org/10.1177/01454455221098118
   Google Scholar