1,049
Views
0
CrossRef citations to date
0
Altmetric
Articles

Online and Self-Help Acceptance and Commitment Therapy for Parents of Children with Chronic Conditions and Developmental Disabilities: What Happens after the Intervention?

, PhDORCID Icon, , PhDORCID Icon, , PhDORCID Icon, , MSc, , PhDORCID Icon & , PhDORCID Icon
Pages 1-26 | Received 27 Apr 2023, Accepted 03 Jul 2023, Published online: 09 Aug 2023

References

  • Ahmadi, B., Sabery, M., & Adib-Hajbaghery, M. (2021). Burnout in the primary caregivers of children with chronic conditions and its related factors. Journal of Client-Centered Nursing Care, 7(2), 139–148. https://doi.org/10.32598/JCCNC.7.2.360
  • Ahola Kohut, S., Martincevic, I., Turrell, S. L., Church, P. C., Walters, T. D., Weiser, N., & Iuliano, A. (2021). online acceptance and commitment therapy and nutrition workshop for parents of children with inflammatory bowel disease: Feasibility, acceptability, and initial effectiveness. Children, 8(5), 396. https://doi.org/10.3390/children8050396
  • Andersson, G., & Cuijpers, P. (2009). Internet-based and other computerized psychological treatments for adult depression: A meta-analysis. Cognitive Behaviour Therapy, 38(4), 196–205. https://doi.org/10.1080/16506070903318960
  • Andersson, G., Cuijpers, P., Carlbring, P., Riper, H., & Hedman, E. (2014). Guided Internet‐based vs. face‐to‐face cognitive behavior therapy for psychiatric and somatic disorders: A systematic review and meta‐analysis. World Psychiatry, 13(3), 288–295. https://doi.org/10.1002/wps.20151
  • Andersson, G., Titov, N., Dear, B. F., Rozental, A., & Carlbring, P. (2019). Internet-delivered psychological treatments: From innovation to implementation. World Psychiatry, 18(1), 20–28. https://doi.org/10.1002/wps.20610
  • Baer, R. A., Smith, G. T., Hopkins, J., Krietemeyer, J., & Toney, L. (2006). Using self-report assessment methods to explore facets of mindfulness. Assessment, 13(1), 27–45. https://doi.org/10.1177/1073191105283504
  • Basaran, A., Karadavut, K. I., Uneri, S. O., Balbaloglu, O., & Atasoy, N. (2013). The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: A comparative study. European Journal of Physical and Rehabilitation Medicine, 49(6), 815–822.
  • Bennet-Levy, J., Richards, D. A., & Farrand, P. (2010). Low-intensity CBT interventions: a revolution in mental health care. In J. Bennett-Levy, D. A. Richards, P. Farrand, H. Christensen, K. M Griffiths, D. J. Kavanagh, B. Klein, M. A. Lau, J. Proudfoot, L. Ritterband, J. White, & C. Williams (Eds.), Oxford Guide to Low Intensity CBT Interventions. Oxford University Press.
  • Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28(1), 1–18. https://doi.org/10.1300/J019v28n01_01
  • Blom, M. M., Zarit, S. H., Groot Zwaaftink, R. B., Cuijpers, P., & Pot, A. M. (2015). Effectiveness of an internet intervention for family caregivers of people with dementia: results of a randomized controlled trial. PLOS One, 10(2), e0116622. https://doi.org/10.1371/journal.pone.0116622
  • Bradshaw, S., Bem, D., Shaw, K., Taylor, B., Chiswell, C., Salama, M., Bassett, E., Kaur, G., & Cummins, C. (2019). Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity – a scoping review. BMC Pediatrics, 19(1), 301. https://doi.org/10.1186/s12887-019-1648-7
  • Byrne, G., Ghráda, Á. N., O’Mahony, T., & Brennan, E. (2021). A systematic review of the use of acceptance and commitment therapy in supporting parents. Psychology and Psychotherapy, 94(S2), 378–407. https://doi.org/10.1111/papt.12282
  • Carlbring, P., Andersson, G., Cuijpers, P., Riper, H., & Hedman-Lagerlöf, E. (2018). Internet-based vs. face-to-face cognitive behavior therapy for psychiatric and somatic disorders: An updated systematic review and meta-analysis. Cognitive Behaviour Therapy, 47(1), 1–18. https://doi.org/10.1080/16506073.2017.1401115
  • Chong, Y. Y., Mak, Y. W., Leung, S. P., Lam, S. Y., & Loke, A. Y. (2019). Acceptance and commitment therapy for parental management of childhood asthma: An RCT. Pediatrics, 143(2), 1–16. https://doi.org/10.1542/peds.2018-1723
  • Cohn, L. N., Pechlivanoglou, P., Lee, Y., Mahant, S., Orkin, J., Marson, A., & Cohen, E. (2020). Health outcomes of parents of children with chronic illness: A systematic review and meta-analysis. Journal of Pediatrics, 218, 166.e2–177.e2. https://doi.org/10.1016/j.jpeds.2019.10.068
  • Cousino, M. K., & Hazen, R. A. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of Pediatric Psychology, 38(8), 809–828. https://doi.org/10.1093/jpepsy/jst049
  • Christensen, H., Griffiths, K. M., & Farrer, L. (2009). Adherence in internet interventions for anxiety and depression. Journal of Medical Internet Research, 11(2), e13. https://doi.org/10.2196/jmir.1194
  • Cuijpers, P., Donker, T., van Straten, A., Li, J., & Andersson, G. (2010). Is guided self-help as effective as face-to-face psychotherapy for depression and anxiety disorders? A systematic review and meta-analysis of comparative outcome studies. Psychological Medicine, 40(12), 1943–1957. https://doi.org/10.1017/S0033291710000772
  • Dawson, D. L., & Golijani-Moghaddam, N. (2020). COVID-19: Psychological flexibility, coping, mental health, and wellbeing in the UK during the pandemic. Journal of Contextual Behavioral Science, 17, 126–134. https://doi.org/10.1016/j.jcbs.2020.07.010
  • De Wit, J., Beelen, A., Drossaert, C. H. C., Kolijn, R., Van Den Berg, L. H., SchrÖder, C. D., & Visser-Meily, J. M. A. (2020). Blended psychosocial support for partners of patients with ALS and PMA: Results of a randomized controlled trial. Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 21(5–6), 344–354. https://doi.org/10.1080/21678421.2020.1757114
  • De Wit, J., Vervoort, S. C., van Eerden, E., van den Berg, L. H., Visser-Meily, J. M., Beelen, A., & Schröder, C. D. (2019). User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: A qualitative study. BMC Psychology, 7(1), 1–13. https://doi.org/10.1186/s40359-019-0308-x
  • Donkin, L., Christensen, H., Naismith, S. L., Neal, B., Hickie, I. B., & Glozier, N. (2011). A systematic review of the impact of adherence on the effectiveness of e-therapies. Journal of Medical Internet Research, 13(3), e52. https://doi.org/10.2196/jmir.1772
  • Fang, Y., Luo, J., Boele, M., Windhorst, D., van Grieken, A., & Raat, H. (2022). Parent, child, and situational factors associated with parenting stress: A systematic review. European Child & Adolescent Psychiatry. Advance online publication. https://doi.org/10.1007/s00787-022-02027-1
  • Fedele, D. A., Mullins, L. L., Wolfe-Christensen, C., & Carpentier, M. Y. (2011). Longitudinal assessment of maternal parenting capacity variables and child adjustment outcomes in pediatric cancer. Journal of Pediatric Hematology/Oncology, 33(3), 199–202. https://doi.org/10.1097/mph.0b013e3182025221
  • Francis, A. W., Dawson, D. L., & Golijani-Moghaddam, N. (2016). The development and validation of the comprehensive assessment of acceptance and commitment therapy processes (CompACT). Journal of Contextual Behavioral Science, 5(3), 134–145. https://doi.org/10.1016/j.jcbs.2016.05.003
  • Gérain, P., & Zech, E. (2018). does informal caregiving lead to parental burnout? Comparing parents having (or not) children with mental and physical issues. Frontiers in Psychology, 9, 884. https://doi.org/10.3389/fpsyg.2018.00884
  • Han, A., Yuen, H. K., Hee Yun Lee, H. Y., & Zhou, X. (2020). Effects of acceptance and commitment therapy on process measures of family caregivers: A systematic review and meta-analysis. Journal of Contextual Behavioral Science, 18, 201–213. https://doi.org/10.1016/j.jcbs.2020.10.004
  • Han, A., Yuen, H. K., & Jenkins, J. (2021). Acceptance and commitment therapy for family caregivers: A systematic review and meta-analysis. Journal of Health Psychology, 26(1), 82–102. https://doi.org/10.1177/1359105320941217
  • Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (1999). Acceptance and commitment therapy: An experiential approach to behavior change. New York: Guilford Press. https://doi.org/10.1177/1359105320941217
  • Heyman, M. B., Harmatz, P., Acree, M., Wilson, L., Moskowitz, J. T., Ferrando, S., & Folkman, S. (2004). Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children. Journal of Pediatrics, 145(4), 511–516. https://doi.org/10.1016/j.jpeds.2004.06.023
  • Hilvert-Bruce, Z., Rossouw, P. J., Wong, N., Sunderland, M., & Andrews, G. (2012). Adherence as a determinant of effectiveness of Internet cognitive behavioural therapy for anxiety and depressive disorders. Behaviour Research and Therapy, 50(7–8), 463–468. https://doi.org/10.1016/j.brat.2012.04.001
  • Karyotaki, E., Furukawa, T. A., Efthimiou, O., Riper, H., & Cuijpers, P. (2019). Guided or self-guided internet-based cognitive-behavioural therapy (iCBT) for depression? Study protocol of an individual participant data network meta-analysis. BMJ Open, 9(6), e026820. https://doi.org/10.1136/bmjopen-2018-026820
  • Karyotaki, E., Riper, H., Twisk, J., Hoogendoorn, A., Kleiboer, A., Mira, A., Mackinnon, A., Meyer, B., Botella, C., Littlewood, E., Andersson, G., Christensen, H., Klein, J. P., Schröder, J., Bretón-López, J., Scheider, J., Griffiths, K., Farrer, L., Huibers, M. J. H., … Cuijpers, P. (2017). Efficacy of self-guided internet-based cognitive behavioral therapy in the treatment of depressive symptoms: A meta-analysis of individual participant data. JAMA Psychiatry, 74(4), 351–359. https://doi.org/10.1001/jamapsychiatry.2017.0044
  • Karekla, M., Kasinopoulos, O., Neto, D. D., Ebert, D. D., Van Daele, T., Nordgreen, T., Höfer, S., Oeverland, S., & Jensen, K. L. (2019). Best practices and recommendations for digital interventions to improve engagement and adherence in chronic illness sufferers. European Psychologist, 24(1), 49–67. https://doi.org/10.1027/1016-9040/a000349
  • Karekla, M., Nikolaou, P., & Merwin, R. M. (2022). Randomized clinical trial evaluating AcceptME—A digital gamified acceptance and commitment early intervention program for individuals at high risk for eating disorders. Journal of Clinical Medicine, 11(7). https://doi.org/10.3390/jcm11071775
  • Khamis, V. (2007). Psychological distress among parents of children with mental retardation in the United Arab Emirates. Social Science & Medicine, 64(4), 850–857. https://doi.org/10.1016/j.socscimed.2006.10.022
  • Kiuru, N., Puolakanaho, A., Lappalainen, P., Keinonen, K., Mauno, S., Muotka, J., & Lappalainen, R. (2021). Effectiveness of a web-based acceptance and commitment therapy program for adolescent career preparation: A randomized controlled trial. Journal of Vocational Behavior, 127, 103578. https://doi.org/10.1016/j.jvb.2021.103578
  • Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16(9), 606–613. https://doi.org/10.1046/j.1525-1497.2001.016009606.x
  • Lappalainen, P., Lappalainen, R., Keinonen, K., Kaipainen, K., Puolakanaho, A., Muotka, J., & Kiuru, N. (2023). In the shadow of COVID-19: A randomized controlled online ACT trial promoting adolescent psychological flexibility and self-compassion. Journal of Contextual Behavioral Science, 27, 34–44. https://doi.org/10.1016/j.jcbs.2022.12.001
  • Lappalainen, P., Pakkala, I., Strömmer, J., Sairanen, E., Kaipainen, K., & Lappalainen, R. (2021). Supporting parents of children with chronic conditions: A randomized controlled trial of web-based and self-help ACT interventions. Internet Interventions. 24, 100382. https://doi.org/10.1016/j.invent.2021.100382
  • Levin, M. E., Pistorello, J., Seeley, J. R., & Hayes, S. C. (2014). Feasibility of a prototype web-based acceptance and commitment therapy prevention program for college students. Journal of American College Health, 62(1), 20–30. https://doi.org/10.1080/07448481.2013.843533
  • Lindström, C., Åman, J., & Norberg, A. (2010). Increased prevalence of burnout symptoms in parents of chronically ill children. Acta Paediatrica, 99(3), 427–432. https://doi.org/10.1111/j.1651-2227.2009.01586.x
  • Lundgren-Nilsson, Å., Jonsdottir, I. H., Pallant, J., & Ahlborg, G. (2012). Internal construct validity of the Shirom-Melamed Burnout Questionnaire (SMBQ). BMC Public Health, 12(1), 1–8. https://doi.org/10.1186/1471-2458-12-1
  • Lunsky, Y., Fung, K., Lake, J., Steel, L., & Bryce, K. (2018). Evaluation of acceptance and commitment therapy (ACT) for mothers of children and youth with autism spectrum disorder. Mindfulness, 9(4), 1110–1116. https://doi.org/10.1007/s12671-017-0846-3
  • McCracken, L. M., Badinlou, F., Buhrman, M., & Brocki, K. C. (2021). The role of psychological flexibility in the context of COVID-19: Associations with depression, anxiety, and insomnia. Journal of Contextual Behavioral Science, 19, 28–35. https://doi.org/10.1016/j.jcbs.2020.11.003
  • Melamed, S., Ugarten, U., Shirom, A., Kahana, L., Lerman, Y., & Froom, P. (1999). Chronic burnout, somatic arousal and elevated salivary cortisol levels. Journal of Psychosomatic Research, 46(6), 591–598. https://doi.org/10.1016/s0022-3999(99)00007-0
  • Mikolajczak, M., Gross, J. J., & Roskam, I. (2019). Parental burnout: What is it, and why does it matter? Clinical Psychological Science, 7(6), 1319–1329. https://doi.org/10.1177/2167702619858430
  • Mikolajczak, M., & Roskam, I. (2018). A theoretical and clinical framework for parental burnout: The balance between risks and resources. Frontiers in Psychology, 9, 886. https://doi.org/10.3389/fpsyg.2018.00886
  • Mullins, L. L., Fuemmeler, B. F., Hoff, A., Chaney, J. M., Van Pelt, J., & Ewing, C. A. (2004). The relationship of parental overprotection and perceived child vulnerability to depressive symptomotology in children with type 1 diabetes mellitus: The moderating influence of parenting stress. Children’s Health Care, 33(1), 21–34. https://doi.org/10.1207/s15326888chc3301_2
  • Muthén, L. K., & Muthén, B. O. (2017). Mplus: Statistical analysis with latent variables: User’s guide (Version 8).
  • Parmar, A., Morinis, L., Barreira, L., Miller, D., Major, N., Church, P., Cohen, E., & Orkin, J. (2019). 24 acceptance and commitment therapy (ACT) for parents of children with a chronic medical condition: A systematic review. Paediatrics & Child Health, 24(Suppl 2), e10. https://doi.org/10.1093/pch/pxz066.023
  • Pinquart, M. (2018). Parenting stress in caregivers of children with chronic physical condition-A meta-analysis. Stress and Health, 34(2), 197–207. https://doi.org/10.1002/smi.2780
  • Pots, W. T., Trompetter, H. R., Schreurs, K. M., & Bohlmeijer, E. T. (2016). How and for whom does web-based acceptance and commitment therapy work? Mediation and moderation analyses of web-based ACT for depressive symptoms. BMC Psychiatry, 16(1), 158. https://doi.org/10.1186/s12888-016-0841-6
  • Rayner, M., Muscara, F., Dimovski, A., McCarthy, M. C., Yamada, J., Anderson, V. A., Burke, K., Walser, R., & Nicholson, J. M. (2016). Take a breath: Study protocol for a randomized controlled trial of an online group intervention to reduce traumatic stress in parents of children with a life threatening illness or injury. BMC Psychiatry, 16, Article 169. https://doi.org/10.1186/s12888-016-0861-2
  • Richards, D., & Richardson, T. (2012). Computer-based psychological treatments for depression: A systematic review and meta-analysis. Clinical Psychology Review, 32(4), 329–342. https://doi.org/10.1016/j.cpr.2012.02.004
  • Roskam, I., Raes, M. E., & Mikolajczak, M. (2017). Exhausted parents: Development and preliminary validation of the parental burnout inventory. Frontiers in Psychology, 8, 163. https://doi.org/10.3389/fpsyg.2017.00163
  • Ruskin, D., Young, M., Sugar, C., & Nofech-Mozes, J. (2021). Mindfulness and acceptance interventions for parents of children and adolescents diagnosed with chronic medical conditions: A systematic review. The Journal of Alternative and Complementary Medicine, 27(2), 120–135. https://doi.org/10.1089/acm.2020.0191
  • Sairanen, E., Lappalainen, R., Lappalainen, P., Kaipainen, K., Carlstedt, F., Anclair, M., & Hiltunen, A. (2019). Effectiveness of a web-based acceptance and commitment therapy intervention for wellbeing of parents whose children have chronic conditions: A randomized controlled trial. Journal of Contextual Behavioral Science, 13, 94–102. https://doi.org/10.1016/j.jcbs.2019.07.004
  • Yu, Y., McGrew, J. H., & Boloor, J. (2019). Effects of caregiver-focused programs on psychosocial outcomes in caregivers of individuals with ASD: A meta-analysis. Journal of Autism and Developmental Disorders, 49(12), 4761–4779. https://doi.org/10.1007/s10803-019-04181-z
  • Trompetter, H. R., Bohlmeijer, E. T., Veehof, M. M., & Schreurs, K. M. (2015). Internet-based guided self-help intervention for chronic pain based on Acceptance and Commitment Therapy: A randomized controlled trial. Journal of Behavioral Medicine, 38(1), 66–80. https://doi.org/10.1007/s10865-014-9579-0
  • Whittingham, K. (2014). Parents of children with disabilities, mindfulness and acceptance: A review and a call for research. Mindfulness, 5(6), 704–709. https://doi.org/10.1007/s12671-013-0224-8