Dementia Caregivers' Most Pressing Concerns

REFERENCES

• Alzheimer's Association . 2001 . Alzheimer's disease study: Communication gaps between primary care physicians and caregivers , Chicago : Alzheimer's Association .
   Google Scholar
• Belle , S. H. , Burgio , L. , Burns , R. , Coon , D. , Czaja , S J. , Gallagher-Thompson , D. , Gitlin , L. , Klinger , J. , Koepke , K. , Lee , C. , Martindale-Adams , J. , Nichols , L. , Schulz , R. , Stahl , S. , Stevens , A. , Winter , L. , Zhang , S. and for the REACH II Investigators . 2006 . Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized controlled trial . Annals of Internal Medicine , 145 ( 10 ) : 727 – 738 .
   PubMed Web of Science ®Google Scholar
• Burns , R. , Nichols , L. , Martindale-Adams , J. , Coon , D. , Maslow , K. and Selstad , J. 2003 . “ Primary care: Partnering with health care providers ” . In Innovative interventions to reduce caregiver stress: A source book and clinical guide , Edited by: Coon , D. 161 – 188 . New York : Springer .
   Google Scholar
• Burns , R. , Nichols , L. , Martindale-Adams , J. and Graney , M. 2003 . Primary care interventions for dementia caregivers: Two year outcomes from the REACH study . The Gerontologist , 43 : 547 – 555 .
   PubMed Web of Science ®Google Scholar
• Caron , C. D. and Bowers , B. J. 2003 . Deciding whether to continue, share or relinquish caregiving: Caregiver views . Qualitative Health Research , 13 ( 9 ) : 1252 – 1271 .
   PubMed Web of Science ®Google Scholar
• Caron , W. , Pattee , J. and Otteson , O. 2000 . Alzheimer's Disease: The family journey , Cambridge, MA : Alzheimer's Association Massachusetts Chapter Publications .
   Google Scholar
• Connell , C. M. and Gibson , G. B. 1997 . Racial, ethnic, and cultural differences in dementia caregiving: Review and analysis . The Gerontologist , 37 ( 3 ) : 355 – 364 .
   PubMed Web of Science ®Google Scholar
• Donaldson , C. and Burns , A. 1999 . Burden of Alzheimer's disease: Helping the patient and caregiver . Journal of Geriatric Psychiatry and Neurology , 12 ( 1 ) : 21 – 28 .
   PubMed Web of Science ®Google Scholar
• Farran , C. J. , Loukissa , D. , Perraud , S. and Paun , O. 2003 . Alzheimer's disease caregiving information and skills. Part I: Care recipient issues and concerns . Research in Nursing and Health , 26 ( 5 ) : 366 – 375 .
   PubMed Web of Science ®Google Scholar
• Farran , C. J. , Loukissa , D. , Perraud , S. and Paun , O. 2004 . Alzheimer's disease caregiving information and skills. Part II: Family caregiver issues and concerns . Research in Nursing and Health , 27 ( 1 ) : 40 – 51 .
   PubMed Web of Science ®Google Scholar
• Fillit , H. , Knopman , D. , Cummings , J. and Appel , F. 1999a . Opportunities for improving managed care for individuals with dementia: Part 1—The issues . American Journal of Managed Care , 5 ( 3 ) : 309 – 315 .
   PubMed Web of Science ®Google Scholar
• Fillit , H. , Knopman , D. , Cummings , J. and Appel , F. 1999b . Opportunities for improving managed care for individuals with dementia: Part 2—A framework for care . American Journal of Managed Care , 5 ( 3 ) : 317 – 324 .
   PubMed Web of Science ®Google Scholar
• Folstein , M. F. , Folstein , S. E. and McHugh , P. R. 1975 . ‘Mini-Mental State’: A practical method for grading the cognitive state of patients by the clinician . Journal of Psychiatric Research , 12 : 189 – 198 .
   PubMed Web of Science ®Google Scholar
• Fortinsky , R. H. and Hathaway , T. J. 1990 . Information and service needs among active and former family caregivers of persons with Alzheimer's disease . The Gerontologist , 30 : 604 – 609 .
   PubMed Web of Science ®Google Scholar
• Katz , S. , Ford , A. B. , Moskowitz , R. W. , Jackson , B. A. and Jaffee , M. W. 1963 . The index of ADL: A standardized measure of biological and psychosocial function . Journal of the American Medical Association , 185 : 914 – 919 .
   PubMed Web of Science ®Google Scholar
• Lawton , M. P. and Brody , E. M. 1969 . Assessment of older people self-maintaining and instrumental activities of daily living . The Gerontologist , 9 : 170 – 186 .
   PubMed Web of Science ®Google Scholar
• Lazarus , E. B. and Launier , R. 1978 . “ Stress-related transactions between persons and environment ” . In Perspectives in International Psychology , Edited by: Pervin , L. and Lewis , M. 287 – 325 . New York : Plenum Press .
   Google Scholar
• Mittelman , M. S. , Ferris , S. H. , Shulman , E. , Steinberg , M. S. and Levin , B. 1996 . A family intervention to delay nursing home placement of patients with Alzheimer's disease . Journal of the American Medical Association , 276 : 1725 – 1731 .
   PubMed Web of Science ®Google Scholar
• Mittelman , M. , Ferris , S. H. , Steinberg , G. , Shulman , E. , Mackell , J. , Ambinder , A. and Cohen , J. 1993 . An intervention that delays institutionalization of Alzheimer's disease patients: Treatment of spouse-caregivers . The Gerontologist , 33 ( 6 ) : 730 – 740 .
   PubMed Web of Science ®Google Scholar
• Montgomery , R. and Kosloski , K. 2000 . “ Family caregiving: Change, continuity and diversity ” . In Interventions in dementia care: Toward improving quality of life , Edited by: Lawton , M. and Rubinstein , R. 143 – 172 . New York : Springer .
   Google Scholar
• Ory , M. , Yee , J. , Tennstedt , S. and Schulz , R. 2000 . “ The extent and impact of dementia care: Unique challenges experienced by family caregivers ” . In Handbook on dementia caregiving: Evidence-based interventions for family caregivers , Edited by: Schulz , R. 1 – 32 . New York : Springer .
   Google Scholar
• Peacock , S. C. and Forbes , D. A. 2003 . Interventions for caregivers of persons with dementia: A systematic review . Canadian Journal of Nursing Research , 35 ( 4 ) : 88 – 107 .
   PubMedGoogle Scholar
• Quinn , D. 1996 . Using patient feedback for creating and improving innovative programs . Journal of Healthcare Quality , 18 ( 4 ) : 26 – 32 .
   PubMedGoogle Scholar
• Radloff , L. S. 1977 . The CES-D scale: A self-report depression scale for research in the general population . Applied Psychological Measures , 1 : 385 – 401 .
   Web of Science ®Google Scholar
• Radloff , L. S. and Teri , L. 1986 . Use of the Center for Epidemiological Studies- Depression Scale with older adults . Clinical Gerontologist , 5 ( 1–2 ) : 119 – 136 .
   Google Scholar
• Wackerbarth , S. B. and Johnson , M. M. 2002 . Essential information and support needs of family caregivers . Patient Education and Counseling , 47 ( 2 ) : 95 – 100 .
   PubMed Web of Science ®Google Scholar
• Wald , C. , Fahy , M. , Walker , Z. and Livingston , G. 2003 . What to tell dementia caregivers–the rule of threes . International Journal of Geriatric Psychiatry , 18 ( 4 ) : 313 – 317 .
   PubMed Web of Science ®Google Scholar