Perceived Benefits and Barriers of mHealth Mindfulness Use for Caregivers of Older Adults with Cognitive Impairment: A Qualitative Exploration

References

• Alzheimer’s Association & National Alliance for Caregiving. (2020). Families care: Alzheimer’s caregiving in the United States.
   Google Scholar
• Berk, L., Warmenhoven, F., van Os, J., & van Boxtel, M. (2018). Mindfulness training for people with dementia and their caregivers: Rationale, current research, and future directions. Frontiers in Psychology, 9, 982. https://doi.org/10.3389/fpsyg.2018.00982
   PubMed Web of Science ®Google Scholar
• Borghouts, J., Eikey, E., Mark, G., De Leon, C., Schueller, S. M., Schneider, M., Stadnick, N., Zheng, K., Mukamel, D., & Sorkin, D. H. (2021). Barriers to and facilitators of user engagement with digital mental health interventions: Systematic review. Journal of Medical Internet Research, 23(3), e24387. https://doi.org/10.2196/24387
   PubMed Web of Science ®Google Scholar
• Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228. https://doi.org/10.31887/DCNS.2009.11.2/hbrodaty
   PubMedGoogle Scholar
• Brown, E. L., Ruggiano, N., Page, T. F., Roberts, L., Hristidis, V., Whiteman, K. L., & Castro, J. (2016). CareHeroes web and android TM apps for dementia caregivers: A feasibility study. Research in Gerontological Nursing, 9(4), 193–203. https://doi.org/10.3928/19404921-20160229-02
   PubMed Web of Science ®Google Scholar
• Callan, J. A., Siegle, G. J., Abebe, K., Black, B., Martire, L., Schulz, R., Reynolds, C., & Hall, M. H. (2016). Feasibility of a pocket-PC based cognitive control intervention in dementia spousal caregivers. Aging & Mental Health, 20(6), 575–582. https://doi.org/10.1080/13607863.2015.1031635
   PubMed Web of Science ®Google Scholar
• Coombs, N. C., Meriwether, W. E., Caringi, J., & Newcomer, S. R. (2021). Barriers to healthcare access among U.S. adults with mental health challenges: A population-based study. SSM - Population Health, 15, 100847. https://doi.org/10.1016/j.ssmph.2021.100847
   PubMed Web of Science ®Google Scholar
• Covinsky, K. E., Newcomer, R., Fox, P., Wood, J., Sands, L., Dane, K., & Yaffe, K. (2003). Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. Journal of General Internal Medicine, 18(12), 1006–1014. https://doi.org/10.1111/j.1525-1497.2003.30103.x
   PubMed Web of Science ®Google Scholar
• Creswell, J. W. (2013). Qualitative inquiry & research design: Choosing among five approaches (3rd ed.). SAGE.
   Google Scholar
• Creswell, J. W., & Poth, C. N. (2016). Qualitative inquiry and research design: choosing among five approaches. Sage publications.
   Google Scholar
• Department of Health and Human Services. (2018). A profile of older adults with dementia and their caregivers. Older Adults with Dementia and Their Caregivers: Key Indicators from the National Health and Aging Trends Study. https://aspe.hhs.gov/reports/profile-older-adults-dementia-their-caregivers-issue-brief-0
   Google Scholar
• Feng, X. L., & Campbell, A. (2011). Understanding E-mental health resources: Personality, awareness, utilization, and effectiveness of E-mental health resources amongst youth. Journal of Technology in Human Services, 29(2), 101–119. https://doi.org/10.1080/15228835.2011.595276
   Google Scholar
• Friedman, E. M., Shih, R. A., Langa, K. M., & Hurd, M. D. (2015). US prevalence and predictors of informal caregiving for dementia. Health Affairs, 34(10), 1637–1641. https://doi.org/10.1377/hlthaff.2015.0510
   PubMed Web of Science ®Google Scholar
• Fuller-Tyszkiewicz, M., Richardson, B., Little, K., Teague, S., Hartley-Clark, L., Capic, T., Khor, S., Cummins, R. A., Olsson, C. A., & Hutchinson, D. (2020). Efficacy of a smartphone app intervention for reducing caregiver stress: Randomized controlled trial. JMIR Mental Health, 7(7), e17541. https://doi.org/10.2196/17541
   PubMed Web of Science ®Google Scholar
• Grossman, M. R., Zak, D. K., & Zelinski, E. M. (2018). Mobile apps for caregivers of older adults: Quantitative content analysis. JMIR MHealth and UHealth, 6(7), e162. https://doi.org/10.2196/mhealth.9345
   PubMed Web of Science ®Google Scholar
• Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough? An experiment with data saturation and variability. Field Methods, 18(1), 59–82. https://doi.org/10.1177/1525822X05279903
   Web of Science ®Google Scholar
• Health Resources & Services Administration. (2022). Behavioral Health Workforce Projections, 2017-2030. https://bhw.hrsa.gov/sites/default/files/bureau-health-workforce/data-research/bh-workforce-projections-fact-sheet.pdf
   Google Scholar
• Hoet, A. C., Burgin, C. J., Eddington, K. M., & Silvia, P. J. (2018). Reports of therapy skill use and their efficacy in daily life in the short-term treatment of depression. Cognitive Therapy and Research, 42(2), 184–192. https://doi.org/10.1007/s10608-017-9852-y
   PubMed Web of Science ®Google Scholar
• Hofmann, S. G., Asnaani, A., Vonk, I. J. J., Sawyer, A. T., & Fang, A. (2012). The efficacy of cognitive behavioral therapy: A review of meta-analyses. Cognitive Therapy and Research, 36(5), 427–440. https://doi.org/10.1007/s10608-012-9476-1
   PubMed Web of Science ®Google Scholar
• Huckvale, K., Nicholas, J., Torous, J., & Larsen, M. E. (2020). Smartphone apps for the treatment of mental health conditions: Status and considerations. Current Opinion in Psychology, 36, 65–70. https://doi.org/10.1016/j.copsyc.2020.04.008
   PubMed Web of Science ®Google Scholar
• Huerta-Ramos, E., Escobar-Villegas, M. S., Rubinstein, K., Unoka, Z. S., Grasa, E., Hospedales, M., Jääskeläinen, E., Rubio-Abadal, E., Caspi, A., Bitter, I., Berdun, J., Seppälä, J., Ochoa, S., Fazekas, K., Group, M.-R. E. S. I. S. T., Corripio, I., & Usall, J. (2016). Measuring users’ receptivity toward an integral intervention model based on mHealth solutions for patients with treatment-resistant schizophrenia (m-RESIST): A qualitative study. JMIR MHealth and UHealth, 4(3), e112. https://doi.org/10.2196/mhealth.5716
   PubMed Web of Science ®Google Scholar
• Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: Past, present, and future. Clinical Psychology: Science and Practice, 10(2), 144–156. https://doi.org/10.1093/clipsy.bpg016
   Web of Science ®Google Scholar
• Kasper, J. D., Freedman, V. A., Spillman, B. C., & Wolff, J. L. (2015). The disproportionate impact of dementia on family and unpaid caregiving to older adults. Health Affairs, 34(10), 1642–1649. https://doi.org/10.1377/hlthaff.2015.0536
   PubMed Web of Science ®Google Scholar
• Kozlov, E., Bantum, E., Pagano, I., Walser, R., Ramsey, K., Taylor, K., Jaworski, B., & Owen, J. (2020). The reach, use, and impact of a free mHealth mindfulness app in the general population: Mobile data analysis. JMIR Mental Health, 7(11), e23377. https://doi.org/10.2196/23377
   PubMed Web of Science ®Google Scholar
• Kozlov, E., McDarby, M., Pagano, I., Llaneza, D., Owen, J., & Duberstein, P. (2021). The feasibility, acceptability, and preliminary efficacy of an mHealth mindfulness therapy for caregivers of adults with cognitive impairment. Aging & Mental Health, 1–8. https://doi.org/10.1080/13607863.2021.1963949
   PubMed Web of Science ®Google Scholar
• Kubo, A., Kurtovich, E., McGinnis, M., Aghaee, S., Altschuler, A., Quesenberry, C., Kolevska, T., & Avins, A. L. (2019). A randomized controlled trial of mHealth mindfulness intervention for cancer patients and informal cancer caregivers: A feasibility study within an. Integrated Health Care Delivery System. Integrative Cancer Therapies, 18, 153473541985063. https://doi.org/10.1177/1534735419850634
   Web of Science ®Google Scholar
• Li, Q., Zhang, H., Zhang, M., Li, T., Ma, W., An, C., Chen, Y., Liu, S., Kuang, W., Yu, X., & Wang, H. (2021). Mental health multimorbidity among caregivers of older adults during the COVID-19 epidemic. The American Journal of Geriatric Psychiatry, 29(7), 687–697. https://doi.org/10.1016/j.jagp.2021.01.006
   PubMed Web of Science ®Google Scholar
• Mahlo, L., & Windsor, T. D. (2021). State mindfulness and affective well-being in the daily lives of middle-aged and older adults. Psychology and Aging, 36(5), 642–659. https://doi.org/10.1037/pag0000596
   PubMed Web of Science ®Google Scholar
• Mayo Clinic. (2020). Mild cognitive impairment (MCI). https://www.mayoclinic.org/diseases-conditions/mild-cognitive-impairment/symptoms-causes/syc-20354578
   Google Scholar
• Petrovic, M., & Gaggioli, A. (2020). Digital mental health tools for caregivers of older adults—A scoping review. Frontiers in Public Health, 8, 128. https://doi.org/10.3389/fpubh.2020.00128
   PubMed Web of Science ®Google Scholar
• QSR International Pty Ltd. (2020). NVivo. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
   Google Scholar
• Rev. (2019). Rev Call recorder app. https://www.rev.com/blog/phone-recorder-how-to-record-call-iphone
   Google Scholar
• Sala-González, M., Pérez-Jover, V., Guilabert, M., & Mira, J. J. (2021). Mobile apps for helping informal caregivers: A systematic review. International Journal of Environmental Research and Public Health, 18(4), 1702. https://doi.org/10.3390/ijerph18041702
   PubMed Web of Science ®Google Scholar
• Slaboda, J., Fail, R., Norman, G., & Meier, D. E. (2018). A study of family caregiver burden and the imperative of practice change to address family caregivers. Unmet Needs Jill Slaboda Robin Fail Gregory Norman Diane E. Meier. Health Affairs. https://doi.org/10.1377/hblog20180105.914873
   Google Scholar
• Spillman, B. C., Freedman, V. A., Kasper, J. D., & Wolff, J. L. (2020). Change over time in caregiving networks for older adults with and without dementia. The Journals of Gerontology: Series B, 75(7), 1563–1572. https://doi.org/10.1093/geronb/gbz065
   Google Scholar
• Stiles-Shields, C., Montague, E., Lattie, E. G., Kwasny, M. J., & Mohr, D. C. (2017). What might get in the way: Barriers to the use of apps for depression. Digital Health, 3, 205520761771382. https://doi.org/10.1177/2055207617713827
   Web of Science ®Google Scholar
• Teherani, A., Martimianakis, T., Stenfors-Hayes, T., Wadhwa, A., & Varpio, L. (2015). Choosing a qualitative research approach. Journal of Graduate Medical Education, 7(4), 669–670. https://doi.org/10.4300/JGME-D-15-00414.1
   PubMedGoogle Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Yousaf, K., Mehmood, Z., Saba, T., Rehman, A., Munshi, A. M., Alharbey, R., & Rashid, M. (2019). Mobile-health applications for the efficient delivery of health care facility to people with dementia (PwD) and support to their carers: A survey. BioMed Research International, 2019, 1–26. https://doi.org/10.1155/2019/7151475
   Web of Science ®Google Scholar