2,144
Views
1
CrossRef citations to date
0
Altmetric
Research Article

Caregiver Thrive, Learn, & Connect: Testing the Efficacy of an Online Psychoeducational Program for Family Caregivers

, PhDORCID Icon, , PhD, , PhD, , M.Sc, , PhD, ABPP & , PhD, ABPPORCID Icon

References

  • Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O’Donnell, M. (2001). The Zarit burden interview: A new short version and screening version. The Gerontologist, 41(5), 652–657. https://doi.org/10.1093/geront/41.5.652
  • Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S. J., & Gallagher-Thompson, D., … Martindale-Adams, J. (2006). Enhancing quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Annals of Internal Medicine. 145(10), 727–738. https://doi.org/10.7326/0003-4819-145-10-200611210-00005
  • Biliunaite, I., Kazlauskas, E., Sanderman, R., Truskauskaite-Kuneviciene, I., Dumarkaite, A., & Andersson, G. (2021). Internet-based cognitive behavioral therapy for informal caregivers: Randomized controlled pilot trial. Journal of Medical Internet Research, 23(4), e21466. https://doi.org/10.2196/21466
  • Cheng, S.-T., Li, K.-K., Losada, A., Zhang, F., Au, A., Thompson, L. W., & Gallagher- Thompson, D. (2020). The effectiveness of nonpharmacological interventions for informal dementia caregivers: An updated systematic review and meta-analysis. Psychology and Aging, 35(1), 55–77. https://doi.org/10.1037/pag0000401
  • Gallagher‐Thompson, D., Lovett, S., Rose, J., McKibbin, C., Coon, D., Futterman, A., & Thompson, L. W. (2000). Impact of psychoeducational interventions on distressed family caregivers. Journal of Clinical Geropsychology, 6(2), 91–110. https://doi.org/10.1023/A:1009584427018
  • Gallagher-Thompson, D., Bilbrey, A. C., Apesoa-Varano, E. C., Ghatak, R., Kim, K. K., Cothran, F., & Siegel, E. O. (2020). Conceptual framework to guide intervention research across the trajectory of dementia caregiving. The Gerontologist, 60(Supplement_1), S29–S40. https://doi.org/10.1093/geront/gnz157
  • Gallagher-Thompson, D., Coon, D. W., Solano, N., Ambler, C., Rabinowitz, Y., & Thompson, L. W. (2003). Change in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: Site-specific results from the REACH national collaborative study. The Gerontologist, 43(4), 580–591. https://doi.org/10.1093/geront/43.4.580
  • Gallagher-Thompson, D., & DeVries, H. M. (1994). “Coping with Frustration” classes: Development and preliminary outcomes with women who care for relatives with dementia. The Gerontologist, 34(4), 548–552. https://doi.org/10.1093/geront/34.4.548
  • Gallagher-Thompson, D., Tzuang, M., Au, A., Brodaty, H., Charlesworth, G., Gupta, R., Lee, S. E., Losada, A., & Shyu, Y.-I. (2012). International perspectives on nonpharmacological best practices for dementia family caregivers: A review. Clinical Gerontologist, 35(4), 316–355. https://doi.org/10.1080/07317115.2012.678190
  • Hepburn, K. W., Lewis, M., Tornatore, J., Sherman, C. W., & Dolloff, J. (2007). The savvy caregiver. Journal of Gerontological Nursing, 33(3), 30–36. https://doi.org/10.3928/00989134-20070301-06
  • Hepburn, K., Nocera, J., Higgins, M., Epps, F., Brewster, G. S., Lindauer, A., Morhardt, D., Shah, R., Bonds, K., Nash, R., Griffiths, P. C., & Meeks, S. (2022). Results of a randomized trial testing the efficacy of Tele-Savvy, an online synchronous/asynchronous psychoeducation program for family caregivers of persons living with dementia. The Gerontologist, 62(4), 616–628. https://doi.org/10.1093/geront/gnab029
  • Kroenke, K., & Spitzer, R. L. (2002). The PHQ-9: A new depression diagnostic and severity measure. Psychiatric Annals, 32(9), 509–521. https://doi.org/10.3928/0048-5713-20020901-06
  • Mehta, R., & Nafus, D. (2016). Atlas of caregiving pilot study report. San Francisco: Family Caregiver Alliance.
  • Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
  • Rabinowitz, Y. G., Saenz, E. C., Thompson, L. W., & Gallagher-Thompson, D. (2011). Understanding caregiver health behaviors: Depressive symptoms mediate caregiver self- efficacy and health behavior patterns. American Journal of Alzheimer’s Disease & Other Dementias®, 26(4), 310–316. https://doi.org/10.1177/1533317511410557
  • Recognize, Assist, Include, Support, and Engage (RAISE) Act Family Caregiving Advisory Council & The Advisory Council to Support Grandparents Raising Grandchildren. (2022). 2022 National Strategy to Support Family Caregivers. Administration for Community Living. https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf
  • Ritter, P. L., Sheth, K., Stewart, A. L., Gallagher-Thompson, D., Lorig, K., & Meeks, S. (2022). Development and evaluation of the eight-item Caregiver Self-Efficacy Scale (CSES-8). The Gerontologist, 62(3), e140–e149. https://doi.org/10.1093/geront/gnaa174
  • Rouch, S. A., Fields, B. E., Alibrahim, H. A., Rodakowski, J., & Leland, N. E. (2021). Evidence for the effectiveness of interventions for caregivers of people with chronic conditions: A systematic review. The American Journal of Occupational Therapy, 75(4). https://doi.org/10.5014/ajot.2021.042838
  • Schulz, R., Beach, S. R., Czaja, S. J., Martire, L. M., & Monin, J. K. (2020). Family caregiving for older adults. Annual Review of Psychology, 71(1), 635. https://doi.org/10.1146/annurev-psych-010419-050754
  • Seligman, M. E. P., Steen, T. A., Park, N., & Peterson, C. (2005). Positive psychology progress: empirical validation of interventions. The American Psychologist, 60(5), 410–421. https://doi.org/10.1037/0003-066X.60.5.410
  • Spitzer, R. L., Kroenke, K., Williams, J. B., & Patient Health Questionnaire Primary Care Study Group, & Patient Health Questionnaire Primary Care Study Group. (1999). Validation and utility of a self-report version of PRIME-MD: The PHQ primary care study. Jama, 282(18), 1737–1744.
  • Spitzer, R. L., Kroenke, K., Williams, J. B., & Löwe, B. (2006). A brief measure for assessing generalized anxiety disorder: The GAD-7. Archives of Internal Medicine, 166(10), 1092–1097. https://doi.org/10.1001/archinte.166.10.1092
  • Sun, Y., Ji, M., Leng, M., Li, X., Zhang, X., & Wang, Z. (2022). Comparative efficacy of 11 non-pharmacological interventions on depression, anxiety, quality of life, and caregiver burden for informal caregivers of people with dementia: A systematic review and network meta-analysis. International Journal of Nursing Studies, 129, 104204. https://doi.org/10.1016/j.ijnurstu.2022.104204
  • Walter, E., Pinquart, M., & Heyn, P. C. (2020). How effective are dementia caregiver interventions? An updated comprehensive meta-analysis. The Gerontologist, 60(8), e609–e619. https://doi.org/10.1093/geront/gnz118
  • Yap, P., Luo, N., Ng, W. Y., Chionh, H. L., Lim, J., & Goh, J. (2010). Gain in Alzheimer care Instrument–a new scale to measure caregiving gains in dementia. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 18(1), 68–76. https://doi.org/10.1097/JGP.0b013e3181bd1dcd