Discordant Parent Reports of Family Functioning Following Childhood Neuroblastoma: A Report from the Children's Oncology Group

REFERENCES

• Brodeur , G. M. and Maris , J. M. 2006 . “ Neuroblastoma ” . In Principles and practice of pediatric oncology (4th ed. , Edited by: Pizzo , P. A. and Poplack , D. G. 895 – 937 . Philadelphia , PA : Lippincott Williams & Wilkins .
   Google Scholar
• Duhig , A. M. , Renk , K. , Epstein , M. K. and Phares , V. 2000 . Interparental agreement on internalizing, externalizing, and total behavior problems: A meta-analysis . Clinical Psychology: Science and Practice , 7 : 435 – 453 .
   Web of Science ®Google Scholar
• Eiser , C. , Hill , J. J. and Vance , Y. H. 2000 . Examining the psychological consequences of surviving childhood cancer: Systematic review as a research method in pediatric psychology . Journal of Pediatric Psychology , 25 : 449 – 460 .
   PubMed Web of Science ®Google Scholar
• Epstein , N. B. , Baldwin , L. M. and Bishop , D. S. 1983 . The McMaster Family Assessment Device . Journal of Marital and Family Therapy , 9 : 171 – 180 .
   Web of Science ®Google Scholar
• Goldbeck , L. 2001 . Parental coping with the diagnosis of childhood cancer: Gender effects, dissimilarity within couples, and quality of life . Psycho-Oncology , 10 : 325 – 335 .
   PubMed Web of Science ®Google Scholar
• Gurney , J. G. , Krull , K. R. , Kadan-Lottick , N. , Nicholson , H. S. , Nathan , P. C. , Zebrack , B. and Ness , K. K. 2009 . Social outcomes in the Childhood Cancer Survivor Study cohort . Journal of Clinical Oncology , 14 : 2390 – 2395 .
   Web of Science ®Google Scholar
• Gurney , J. G. , Tersak , J. M. , Ness , K. K. , Landier , W. , Matthay , K. K. and Schmidt , M. L. 2007 . Hearing loss, quality of life, and academic problems in long-term neuroblastoma survivors: Report from the Children's Oncology Group . Pediatrics , 120 : 1229 – 1236 .
   PubMed Web of Science ®Google Scholar
• Hoekstra-Weebers , J. E. H. M. , Jaspers , J. P. C. , Kamps , W. A. and Klip , E. C. 1998 . Gender differences in psychological adaptation and coping in parents of pediatric cancer patients . Psycho-Oncology , 7 : 26 – 36 .
   PubMed Web of Science ®Google Scholar
• Kazak , A. E. , Alderfer , M. A. , Streisand , R. , Simms , S. , Rourke , M. T. , Barakat , L. P. and Cnaan , A. 2004 . Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: A randomized clinical trial . Journal of Family Psychology , 18 : 493 – 504 .
   PubMed Web of Science ®Google Scholar
• Kazak , A. E. and Meadows , A. T. 1989 . Families of young adolescents who have survived cancer: Social-emotional adjustment, adaptability, and social support . Journal of Pediatric Psychology , 14 : 175 – 191 .
   PubMed Web of Science ®Google Scholar
• Kazak , A. E. , Rourke , M. T. , Alderfer , M. A. , Pai , A. , Reilly , A. F. and Meadows , A. T. 2007 . Evidence-based assessment, intervention and psychosocial care in pediatric oncology: A blueprint for comprehensive services across treatment . Journal of Pediatric Psychology , 32 : 1099 – 1110 .
   PubMed Web of Science ®Google Scholar
• Kazak , A. E. , Simms , S. , Alderfer , M. A. , Rourke , M. T. , Crump , T. , McClure , K. and Reilly , A. 2005 . Feasibility and preliminary outcomes from a pilot study of a brief psychological intervention for families of children newly diagnosed with cancer . Journal of Pediatric Psychology , 30 : 644 – 655 .
   PubMed Web of Science ®Google Scholar
• Knight , K. R. G. , Kraemer , D. F. and Neuwelt , E. A. 2005 . Ototoxicity in children receiving platinum chemotherapy: Underestimating a commonly occurring toxicity that may influence academic and social development . Journal of Clinical Oncology , 23 : 8588 – 8596 .
   PubMed Web of Science ®Google Scholar
• Kushner , B. H. , Budnick , A. S. , Kramer , K. , Modak , S. and Cheung , N. -K. V. 2006 . Ototoxicity from high-dose use of platinum compounds in patients with neuroblastoma . Cancer , 107 : 417 – 422 .
   PubMed Web of Science ®Google Scholar
• Landis , J. R. and Koch , G. G. 1977 . The measurement of observer agreement for categorical data . Biometrics , 33 : 159 – 174 .
   PubMed Web of Science ®Google Scholar
• Matthay , K. K. , Villablanca , J. G. , Seeger , R. C. , Stram , D. O. , Harris , R. E. , Ramsay , N. K. and Reynolds , C. P. 1999 . Treatment of high-risk neuroblastoma with intensive chemotherapy, radiotherapy, autologous bone marrow transplantation, and 13-cisretinoic acid. Children's Cancer Group . New England Journal of Medicine , 141 : 1165 – 1173 .
   Web of Science ®Google Scholar
• Maurice-Stam , H. , Oort , F. J. , Last , B. F. , Brons , P. P. T. , Caron , H. N. and Grootenhuis , M. A. 2008 . Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment . Pediatric Blood & Cancer , 50 : 1047 – 1051 .
   PubMed Web of Science ®Google Scholar
• Miller , I. W. , Bishop , D. S. , Epstein , N. B. and Keitner , G. I. 1985 . The McMaster Family Assessment Device–Reliability and validity . Journal of Marital Family Therapy , 11 : 345 – 356 .
   Web of Science ®Google Scholar
• Nickerson , H. J. , Matthay , K. K. , Seeger , R. C. , Brodeur , G. M. , Shimada , H. , Perez , P. and Lukens , J. 2000 . Favorable biology and outcome of stage IV-S neuroblastoma with supportive care or minimal therapy: A Children's Cancer Group study . Journal of Clinical Oncology , 18 : 477 – 486 .
   PubMed Web of Science ®Google Scholar
• Parsons , S. K. , Neault , M. W. , Lehmann , L. E. , Brennan , L. L. , Eickhoff , C. E. , Kretschmar , C. S. and Diller , L. R. 1998 . Severe ototoxicity following carboplatin-containing conditioning regimen for autologous marrow transplantation for neuroblastoma . Bone Marrow Transplantation , 22 : 669 – 674 .
   PubMed Web of Science ®Google Scholar
• Patterson , J. M. , Holm , K. E. and Gurney , J. G. 2004 . The impact of childhood cancer on the family: A qualitative analysis of strains, resources, and coping behaviors . Psycho-Oncology , 13 : 390 – 407 .
   PubMed Web of Science ®Google Scholar
• Peterson , C. C. and Drotar , D. 2006 . Family impact of neurodevelopmental late effects in survivors of pediatric cancer: Review of research, clinical evidence, and future directions . Clinical Child Psychology and Psychiatry , 11 : 349 – 366 .
   PubMedGoogle Scholar
• Phares , V. , Lopez , E. , Fields , S. , Kamboukos , D. and Duhig , A. M. 2005 . Are fathers involved in pediatric psychology research and treatment? . Journal of Pediatric Psychology , 30 : 631 – 643 .
   PubMed Web of Science ®Google Scholar
• Schmidt , M. L. , Lukens , J. N. , Seeger , R. C. , Brodeur , G. M. , Shimada , H. , Gerbing , R. B. and Matthay , K. K. 2000 . Biologic factors determine prognosis in infants with stage IV neuroblastoma: A prospective Children's Cancer Group study . Journal of Clinical Oncology , 18 : 1260 – 1268 .
   PubMed Web of Science ®Google Scholar
• Schultz , K. A. P. , Ness , K. K. , Whitton , J. , Recklitis , C. , Zebrack , B. , Robison , L. L. and Mertens , A. C. 2007 . Behavioral and social outcomes in adolescent survivors of childhood cancer: A report from the Childhood Cancer Survivor Study . Journal of Clinical Oncology , 24 : 3649 – 3656 .
   Web of Science ®Google Scholar
• Seagull , E. A. 2000 . Beyond mothers and children: Finding the family in pediatric psychology . Journal of Pediatric Psychology , 25 : 161 – 169 .
   PubMed Web of Science ®Google Scholar
• Van Dongen-Melman , J. E. , Pruyn , J. F. , De Groot , A. , Koot , H. M. , Hahlen , K. and Verhulst , F. C. 1995 . Late psychosocial consequences for parents of children who survived cancer . Journal of Pediatric Psychology , 20 : 567 – 586 .
   PubMed Web of Science ®Google Scholar
• Varni , J. W. , Burwinkle , T. M. , Katz , E. R. , Meeske , K. and Dickinson , P. 2002 . The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module . Cancer , 94 : 2090 – 2106 .
   PubMed Web of Science ®Google Scholar
• Varni , J. W. , Seid , M. and Kurtin , P. S. 2001 . PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations . Medical Care , 39 : 800 – 812 .
   PubMed Web of Science ®Google Scholar
• Zebrack , B. J. and Chesler , M. A. 2002 . Quality of life in childhood cancer survivors . Psycho-Oncology , 11 : 132 – 141 .
   PubMed Web of Science ®Google Scholar
• Zebrack , B. J. , Gurney , J. G. , Oeffinger , K. , Whitton , J. , Packer , R. J. , Mertens , A. and Zeltzer , L. K. 2004 . Psychological outcomes in long-term survivors of childhood brain cancer: A report from the childhood cancer survivor study . Journal of Clinical Oncology , 22 : 999 – 1006 .
   PubMed Web of Science ®Google Scholar
• Zebrack , B. J. , Zevon , M. A. , Turk , N. , Nagarajan , R. , Whitton , J. , Robison , L. L. and Zeltzer , L. K. 2007 . Psychological distress in long-term survivors of solid tumors diagnosed in childhood: A report from the childhood cancer survivor study . Pediatric Blood & Cancer , 49 : 47 – 51 .
   PubMed Web of Science ®Google Scholar
• Zeltzer , L. K. , Lu , Q. , Leisenring , W. , Tsao , J. C. I. , Recklitis , C. , Armstrong , G. and Ness , K. K. 2008 . Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: A report from the Childhood Cancer Survivor Study . Cancer Epidemiology Biomarkers & Prevention , 17 : 435 – 446 .
   PubMed Web of Science ®Google Scholar