Exploring Dimensions of Coping in Advanced Colorectal Cancer: Implications for Patient-Centered Care

REFERENCES

• Abernethy , A. P. , Herndon , J. E. 2nd , Wheeler , J. L. , Day , J. M. , Hood , L. , Patwardhan , M. and Lyerly , H. K. 2009 . Feasibility and acceptability to patients of a longitudinal system for evaluating cancer-related symptoms and quality of life: Pilot study of an e/Tablet data-collection system in academic oncology . Journal of Pain and Symptom Management , 37 ( 6 ) : 1027 – 1038 . doi: 10.1016/j.jpainsymman.2008.07.011
   PubMed Web of Science ®Google Scholar
• Alcorn , S. R. , Balboni , M. J. , Prigerson , H. G. , Reynolds , A. , Phelps , A. C. , Wright , A. A. and Balboni , T. A. 2010 . “If God wanted me yesterday, I wouldn't be here today”: Religious and spiritual themes in patients’ experiences of advanced cancer . Journal of Palliative Medicine , 13 ( 5 ) : 581 – 588 . doi: 10.1089/jpm.2009.0343
   PubMed Web of Science ®Google Scholar
• Astrow , A. B. , Wexler , A. , Texeira , K. , He , M. K. and Sulmasy , D. P. 2007 . Is failure to meet spiritual needs associated with cancer patients’ perceptions of quality of care and their satisfaction with care? . Journal of Clinical Oncology , 25 ( 36 ) : 5753 – 5757 . doi: 10.1200/JCO.2007.12.4362
   PubMed Web of Science ®Google Scholar
• Balboni , T. A. , Paulk , M. E. , Balboni , M. J. , Phelps , A. C. , Loggers , E. T. , Wright , A. A. and Prigerson , H. G. 2010 . Provision of spiritual care to patients with advanced cancer: Associations with medical care and quality of life near death . Journal of Clinical Oncology , 28 ( 3 ) : 445 – 452 . doi: 10.1200/JCO.2009.24.8005
   PubMed Web of Science ®Google Scholar
• Balboni , T. A. , Vanderwerker , L. C. , Block , S. D. , Paulk , M. E. , Lathan , C. S. , Peteet , J. R. and Prigerson , H. G. 2007 . Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life . Journal of Clinical Oncology , 25 ( 5 ) : 555 – 560 . doi: 10.1200/JCO.2006.07.9046
   PubMed Web of Science ®Google Scholar
• Bruera , E. and Hui , D. 2010 . Integrating supportive and palliative care in the trajectory of cancer: Establishing goals and models of care . Journal of Clinical Oncology , 28 ( 25 ) : 4013 – 4017 . doi: 10.1200/JCO.2010.29.5618
   PubMed Web of Science ®Google Scholar
• Cella , D. F. 1994 . Quality of life: concepts and definition . Journal of Pain and Symptom Management , 9 ( 3 ) : 186 – 192 .
   PubMed Web of Science ®Google Scholar
• Clayton , J. M. , Butow , P. N. , Tattersall , M. H. , Devine , R. J. , Simpson , J. M. , Aggarwal , G. and Noel , M. A. 2007 . Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care . Journal of Clinical Oncology , 25 ( 6 ) : 715 – 723 . doi: 10.1200/JCO.2006.06.7827
   PubMed Web of Science ®Google Scholar
• Crabtree , B. F. and Miller , W. 1992 . “ A template approach to text analysis: Developing and using codebooks ” . In Doing qualitative research , Edited by: Crabtree , B. F. and Miller , W. 93 – 109 . Newbury Park , CA : Sage .
   Google Scholar
• deHaes , H. and Koedoot , N. N. 2003 . Patient centered decision-making in palliative cancer treatment: A world of paradoxes . Patient Education and Counseling , 50 : 43 – 49 .
   PubMed Web of Science ®Google Scholar
• Dunn , J. , Lynch , B. , Rinaldis , M. , Pakenham , K. , McPherson , L. , Owen , N. and Aitken , J. 2006 . Dimensions of quality of life and psychosocial variables most salient to colorectal cancer patients [Review] . Psycho-Oncology , 15 ( 1 ) : 20 – 30 . doi: 10.1002/pon.919
   PubMed Web of Science ®Google Scholar
• Fallowfield , L. and Jenkins , V. 1999 . Effective communication skills are the key to good cancer care [Review] . European Journal of Cancer , 35 ( 11 ) : 1592 – 1597 .
   PubMed Web of Science ®Google Scholar
• Ferrell , B. R. and Hassey Dow , K. 1997 . Quality of life among long-term cancer survivors [Review] . Oncology (Williston Park) , 11 ( 4 ) : 565 – 568 . 571; discussionn 572, 575–566
   PubMedGoogle Scholar
• Freeman , H. P. 2006 . Patient navigation: A community centered approach to reducing cancer mortality . Journal of Cancer Education , 21 ( 1 Suppl ) : S11 – 14 . doi: 10.1207/s15430154jce2101s_4
   Web of Science ®Google Scholar
• Gallagher , D. J. and Kemeny , N. 2010 . Metastatic colorectal cancer: From improved survival to potential cure . Oncology , 78 : 237 – 248 . doi: 10.1159/000315730
   PubMed Web of Science ®Google Scholar
• Given , B. A. , Given , C. W. and Sherwood , P. R. 2012 . Family and caregiver needs over the course of the cancer trajectory . Journal of Supportive Oncology , 10 ( 2 ) : 57 – 64 . doi: 10.1016/j.suponc.2011.10.003
   PubMedGoogle Scholar
• Grunfeld , E. and Earle , C. C. 2010 . The interface between primary and oncology specialty care: treatment through survivorship [Review] . Journal of the National Cancer Institute Monographs , 2010 ( 40 ) : 25 – 30 . doi: 10.1093/ jncimonographs/lgq002
   PubMedGoogle Scholar
• Gupta , D. , Lis , C. G. and Grutsch , J. F. 2007 . Perceived cancer-related financial difficulty: Implications for patient satisfaction with quality of life in advanced cancer . Supportive Care in Cancer , 15 ( 9 ) : 1051 – 1056 . doi: 10.1007/s00520-007-0214-2
   PubMed Web of Science ®Google Scholar
• Hagerty , R. G. , Butow , P. N. , Ellis , P. M. , Dimitry , S. and Tattersall , M. H. 2005 . Communicating prognosis in cancer care: A systematic review of the literature . Annals of Oncology , 16 ( 7 ) : 1005 – 1053 . doi: 10.1093/annonc/mdi211
   PubMed Web of Science ®Google Scholar
• Hagerty , R. G. , Butow , P. N. , Ellis , P. M. , Lobb , E. A. , Pendlebury , S. C. , Leighl , N. and Tattersall , M. H. 2005 . Communicating with realism and hope: Incurable cancer patients’ views on the disclosure of prognosis . Journal of Clinical Oncology , 23 ( 6 ) : 1278 – 1288 . doi: 10.1200/JCO.2005.11.138
   PubMed Web of Science ®Google Scholar
• Han , P. K. and Rayson , D. 2010 . The coordination of primary and oncology specialty care at the end of life [Review] . Journal of the National Cancer Institute Monographs , 2010 ( 40 ) : 31 – 37 . doi: 10.1093/jncimonographs/lgq003
   PubMedGoogle Scholar
• Hewitt , M. E. , Greenfield , S. and Stovall , E. , eds. 2006 . From cancer patient to cancer survivor: Lost in transition , Washington , DC : National Academies Press .
   Google Scholar
• Houldin , A. and Lewis , F. M. 2006 . Salvaging their normal lives: A qualitative study of patients with recently diagnosed advanced colorectal cancer . Oncology Nursing Forum , 33 ( 4 ) : 719 – 725 . doi: 10.1188/06.ONF.719-725
   PubMed Web of Science ®Google Scholar
• Hudson , P. L. , Aranda , S. and Kristjanson , L. J. 2004 . Meeting the supportive needs of family caregivers in palliative care: challenges for health professionals . Journal of Palliative Medicine , 7 ( 1 ) : 19 – 25 .
   PubMedGoogle Scholar
• Hudson , P. and Payne , S. 2011 . Family caregivers and palliative care: Current status and agenda for the future [Review] . Journal of Palliative Medicine , 14 ( 7 ) : 864 – 869 . doi: 10.1089/jpm.2010.0413
   PubMed Web of Science ®Google Scholar
• Hudson , P. L. , Remedios , C. and Thomas , K. 2010 . A systematic review of psychosocial interventions for family carers of palliative care patients . BMC Palliative Care , 9 : 17 – 22 . doi: 10.1186/1472-684X-9-17
   PubMedGoogle Scholar
• Jemal , A. , Siegel , R. , Xu , J. and Ward , E. 2010 . Cancer statistics, 2010 . CA: A Cancer Journal for Clinicians , 60 ( 5 ) : 277 – 300 . doi: 10.3322/caac.20073
   PubMed Web of Science ®Google Scholar
• Kopetz , S. , Chang , G. J. , Overman , M. J. , Eng , C. , Sargent , D. J. , Larson , D. W. and McWilliams , R. R. 2009 . Improved survival in metastatic colorectal cancer is associated with adoption of hepatic resection and improved chemotherapy . Journal of Clinical Oncology , 27 ( 22 ) : 3677 – 3683 . doi: 10.1200/JCO.2008.20.5278
   PubMed Web of Science ®Google Scholar
• Lautrette , A. , Ciroldi , M. , Ksibi , H. and Azoulay , E. 2006 . End-of-life family conferences: Rooted in the evidence [Review] . Critical Care in Medicine , 34 ( 11 Suppl ) : S364 – 372 . doi: 10.1097/01.CCM.0000237049.44246.8C
   PubMed Web of Science ®Google Scholar
• Leighl , N. B. , Shepherd , H. L. , Butow , P. N. , Clarke , S. J. , McJannett , M. , Beale , P. J. and Tattersall , M. H. 2011 . Supporting treatment decision making in advanced cancer: A randomized trial of a decision aid for patients with advanced colorectal cancer considering chemotherapy . Journal of Clinical Oncology , 29 ( 15 ) : 2077 – 2084 . doi: 10.1200/JCO.2010.32.0754
   PubMed Web of Science ®Google Scholar
• McCorkle , R. , Ercolano , E. , Lazenby , M. , Schulman-Green , D. , Schilling , L. S. , Lorig , K. and Wagner , E. H. 2011 . Self-management: Enabling and empowering patients living with cancer as a chronic illness . CA: A Cancer Journal for Clinicians , 61 ( 1 ) : 50 – 62 . doi: 10.3322/caac.20093
   PubMed Web of Science ®Google Scholar
• McLean , L. M. and Jones , J. M. 2007 . A review of distress and its management in couples facing end-of-life cancer [Review] . Psycho-Oncology , 16 ( 7 ) : 603 – 616 . doi: 10.1002/pon.1196
   PubMed Web of Science ®Google Scholar
• Mishel , M. H. 1988 . Uncertainty in illness . Image Journal of Nursing Scholarship , 20 ( 4 ) : 225 – 232 .
   PubMedGoogle Scholar
• Mishel , M. H. 1990 . Reconceptualization of the uncertainty in illness theory . Image Journal of Nursing Scholarship , 22 ( 4 ) : 256 – 262 .
   PubMedGoogle Scholar
• Moneymaker , K. 2005 . The family conference . Journal of Palliative Medicine , 8 ( 1 ) : 157 doi: 10.1089/jpm.2005.8.157
   PubMedGoogle Scholar
• Parker , S. M. , Clayton , J. M. , Hancock , K. , Walder , S. , Butow , P. N. , Carrick , S. and Tattersall , M. H. 2007 . A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: Patient/caregiver preferences for the content, style, and timing of information . Journal of Pain and Symptom Management , 34 ( 1 ) : 81 – 93 . doi: 10.1016/j.jpainsymman.2006.09.035
   PubMed Web of Science ®Google Scholar
• Paul , C. L. , Clinton-McHarg , T. , Sanson-Fisher , R. W. , Douglas , H. and Webb , G. 2009 . Are we there yet? The state of the evidence base for guidelines on breaking bad news to cancer patients . European Journal of Cancer , 45 ( 17 ) : 2960 – 2966 . doi: 10.1016/j.ejca.2009.08.013
   PubMed Web of Science ®Google Scholar
• Peppercorn , J. M. , Smith , T. J. , Helft , P. R. , Debono , D. J. , Berry , S. R. , Wollins , D. S. and Schnipper , L. E. 2011 . American Society of Clinical Oncology statement: Toward individualized care for patients with advanced cancer . Journal of Clinical Oncology , 29 ( 6 ) : 755 – 760 . doi: 10.1200/JCO.2010.33.1744
   PubMed Web of Science ®Google Scholar
• Phelps , A. C. , Maciejewski , P. K. , Nilsson , M. , Balboni , T. A. , Wright , A. A. , Paulk , M. E. and Prigerson , H. G. 2009 . Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer . Journal of the American Medical Association , 301 ( 11 ) : 1140 – 1147 . doi: 10.1001/jama.2009.341
   PubMed Web of Science ®Google Scholar
• Polite , B. N. , Sing , A. , Sargent , D. J. , Grothey , A. , Berlin , J. , Kozloff , M. and Feng , S. 2012 . Exploring racial differences in outcome and treatment for metastatic colorectal cancer: Results from a large prospective observational cohort study (BRiTE) . Cancer , 118 ( 4 ) : 1083 – 1090 . doi: 10.1002/cncr.26394
   PubMed Web of Science ®Google Scholar
• Puchalski , C. , Ferrell , B. , Virani , R. , Otis-Green , S. , Baird , P. , Bull , J. and Sulmasy , D. 2009 . Improving the quality of spiritual care as a dimension of palliative care: The report of the Consensus Conference . Journal of Palliative Medicine , 12 ( 10 ) : 885 – 904 . doi: 10.1089/jpm.2009.0142
   PubMed Web of Science ®Google Scholar
• Robinson , T. M. , Alexander , S. C. , Hays , M. , Jeffreys , A. S. , Olsen , M. K. , Rodriguez , K. L. and Tulsky , J. A. 2008 . Patient-oncologist communication in advanced cancer: Predictors of patient perception of prognosis . Supportive Care in Cancer , 16 ( 9 ) : 1049 – 1057 . doi: 10.1007/s00520-007-0372-2
   PubMed Web of Science ®Google Scholar
• Rose , C. , Stovall , E. , Ganz , P. A. , Desch , C. and Hewitt , M. 2008 . Cancer Quality Alliance: Blueprint for a better cancer care system . CA: A Cancer Journal for Clinicians , 58 ( 5 ) : 266 – 292 . doi: 10.3322/CA.2008.0012
   PubMed Web of Science ®Google Scholar
• Rowland , J. H. and Bellizzi , K. M. 2008 . Cancer survivors and survivorship research: A reflection on today's successes and tomorrow's challenges [Review] . Hematology/Oncology Clinics of North America , 22 ( 2 ) : 181 – 200 . v. doi:10.1016/j.hoc.2008.01.008
   PubMed Web of Science ®Google Scholar
• Scandrett , K. G. , Reitschuler-Cross , E. B. , Nelson , L. , Sanger , J. A. , Feigon , M. , Boyd , E. and Emanuel , L. L. 2010 . Feasibility and effectiveness of the NEST13+ as a screening tool for advanced illness care needs . Journal of Palliative Medicine , 13 ( 2 ) : 161 – 169 . doi: 10.1089/jpm.2009.0170
   PubMed Web of Science ®Google Scholar
• Sherwood , P. , Given , B. A. , Given , C. W. , Champion , V. L. , Doorenbos , A. Z. , Azzouz , F. and Monahan , P. O. 2005 . A cognitive behavioral intervention for symptom management in patients with advanced cancer . Oncology Nursing Forum , 32 ( 6 ) : 1190 – 1198 . doi: 10.1188/05.ONF.1190-1198
   PubMed Web of Science ®Google Scholar
• Stapleton , R. D. , Engelberg , R. A. , Wenrich , M. D. , Goss , C. H. and Curtis , J. R. 2006 . Clinician statements and family satisfaction with family conferences in the intensive care unit . Critical Care in Medicine , 34 ( 6 ) : 1679 – 1685 . doi: 10.1097/01.CCM.0000218409.58256.AA
   PubMed Web of Science ®Google Scholar
• Steinhauser , K. E. , Christakis , N. A. , Clipp , E. C. , McNeilly , M. , McIntyre , L. and Tulsky , J. A. 2000 . Factors considered important at the end of life by patients, family, physicians, and other care providers . Journal of the American Medical Association , 284 ( 19 ) : 2476 – 2482 .
   PubMed Web of Science ®Google Scholar
• Stokols , D. 1992 . Establishing and maintaining healthy environments. Toward a social ecology of health promotion . American Psychologist , 47 ( 1 ) : 6 – 22 .
   PubMed Web of Science ®Google Scholar
• Suinn , R. M. and Vandenbos , G. R. 1999 . Cancer patients and their families , New York , NY : American Psychological Association .
   Google Scholar
• Taplin , S. H. , Clauser , S. , Rodgers , A. B. , Breslau , E. and Rayson , D. 2010 . Interfaces across the cancer continuum offer opportunities to improve the process of care . Journal of the National Cancer Institute Monographs , 2010 ( 40 ) : 104 – 110 . doi: 10.1093/jncimonographs/lgq012
   PubMedGoogle Scholar
• Taplin , S. H. and Rodgers , A. B. 2010 . Toward improving the quality of cancer care: Addressing the interfaces of primary and oncology-related subspecialty care [Review] . Journal of the National Cancer Institute Monographs , 2010 ( 40 ) : 3 – 10 . doi: 10.1093/jncimonographs/lgq006
   PubMedGoogle Scholar
• Temel , J. S. , Greer , J. A. , Muzikansky , A. , Gallagher , E. R. , Admane , S. , Jackson , V. A. and Lynch , T. J. 2010 . Early palliative care for patients with metastatic non-small-cell lung cancer . New England Journal of Medicine , 363 ( 8 ) : 733 – 742 . doi: 10.1056/NEJMoa1000678
   PubMed Web of Science ®Google Scholar
• Wagner , E. H. , Austin , B. T. , Davis , C. , Hindmarsh , M. , Schaefer , J. and Bonomi , A. 2001 . Improving chronic illness care: Translating evidence into action . Health Affairs (Millwood) , 20 ( 6 ) : 64 – 78 .
   PubMed Web of Science ®Google Scholar
• Weeks , J. C. , Cook , E. F. , O’Day , S. J. , Peterson , L. M. , Wenger , N. , Reding , D. and Phillips , R. S. 1998 . Relationship between cancer patients’ predictions of prognosis and their treatment preferences . Journal of the American Medical Association , 279 ( 21 ) : 1709 – 1714 .
   PubMed Web of Science ®Google Scholar
• Wentlandt , K. , Burman , D. , Swami , N. , Hales , S. , Rydall , A. , Rodin , G. and Zimmermann , C. 2012 . Preparation for the end of life in patients with advanced cancer and association with communication with professional caregivers . Psycho-Oncology , 21 ( 8 ) : 868 – 876 . doi: 10.1002/pon.1995
   PubMed Web of Science ®Google Scholar
• Zafar , S. Y. , Alexander , S. C. , Weinfurt , K. P. , Schulman , K. A. and Abernethy , A. P. 2009 . Decision making and quality of life in the treatment of cancer: A review [Review] . Supportive Care in Cancer , 17 ( 2 ) : 117 – 127 . doi: 10.1007/s00520-008-0505-2
   PubMed Web of Science ®Google Scholar
• Zimmermann , C. 2007 . Death denial: Obstacle or instrument for palliative care? An analysis of clinical literature . Sociology of Health and Illness , 29 ( 2 ) : 297 – 314 . doi: 10.1111/j.1467-9566.2007.00495.x
   PubMed Web of Science ®Google Scholar