The Experience of Relocation for Specialist Treatment for Indigenous Women Diagnosed with Vulvar Cancer in East Arnhem Land

REFERENCES

• Barnes , E. and Thomas , G. 2006 . Integrating radiation into the management of vulvar cancer . Seminars in Radiation Oncology , 16 ( 3 ) : 168 – 176 .
   PubMed Web of Science ®Google Scholar
• Condon , J. R. , McGrath , P. , Stankovich , J. , Patterson , B. , Rumbold , A. , Dickinson , J. and McWhirter , R. 2011–2012 . A vulvar cancer cluster in young Indigenous women in Arnhem Land: Investigation of community knowledge, genetic susceptibility and supportive care , Australia: National Health and Medical Research Council Project Grant .
   Google Scholar
• Condon , J. R. , Rumbold , A. R. , Thorn , J. C. , O’Brien , M. M. , Davy , M. and Zardawi , I. 2009 . A cluster of vulvar cancer and vulvar intraepithelial neoplasia in young Australian Indigenous women . Cancer Causes & Control , 20 ( 1 ) : 67 – 74 .
   PubMed Web of Science ®Google Scholar
• Crombie , I. 1996 . Research in health care. , New York , NY : John Wiley & Sons .
   Google Scholar
• Holloway , I. 2008 . A-Z of qualitative research in healthcare (2nd ed.) , Oxford , , UK : Blackwell .
   Google Scholar
• Hunt , J. and Geia , L. 2002 . Can we better meet the healthcare needs of Aboriginal and Torres Strait Islander women? . Medical Journal of Australia , 177 ( 10 ) : 533 – 534 .
   PubMed Web of Science ®Google Scholar
• Joura , E. 2002 . Epidemiology and precursors of vulvar cancer: Review article . Journal of Women's Imaging , 4 ( 3 ) : 126 – 129 . 148–149
   Google Scholar
• Likes , W. 2009 . Vulvar cancer in the wake of increasing incidence . Nurse Practitioner , 34 ( 2 ) : 45 – 47 . 49–50
   PubMedGoogle Scholar
• Mackenzie , G. and Currie , B. 1999 . Communication between hospitals and isolated Aboriginal community health clinics . Australian and New Zealand Journal of Public Health , 23 ( 2 ) : 204 – 206 .
   PubMed Web of Science ®Google Scholar
• Manderson , L. and Hoban , E. 2006 . Cervical cancer services for Indigenous women: Advocacy, community-based research and policy change in Australia . Women & Health , 43 ( 4 ) : 69 – 88 .
   PubMed Web of Science ®Google Scholar
• Marolt , N. and Malnarsic , R. 2009 . Women's knowledge of vulvar self-examination . Obzornik Zdravstvene Nege , 43 ( 2 ) : 103 – 109 .
   Google Scholar
• McGrath , P. 1999 . The Patient Transit Assistance Scheme: The clerks’ perspective . Australian Journal of Rural Health , 7 ( 3 ) : 140 – 147 .
   PubMedGoogle Scholar
• McGrath , P. 2001 . “It's horrendous—but really, what can you do?” Preliminary findings on the financial impact of relocation for specialist treatment . Australian Health Review , 23 ( 3 ) : 94 – 103 .
   Google Scholar
• McGrath , P. 2006 . Exploring Aboriginal peoples’ experience of relocation for treatment during end-of-life care . International Journal of Palliative Nursing , 12 ( 2 ) : 75 – 82 .
   PubMedGoogle Scholar
• McGrath , P. and Holewa , H. 2006 . The living model: Indigenous palliative care service delivery , Trivandrum , , India : Researchman Ltd .
   Google Scholar
• McGrath , P. , Holewa , H. and Munro , A. 2011 . Government funded travel and accommodation assistance: Learning from inter-country research . Journal of Rural and Tropical Public Health , 10 : 87 – 94 .
   Google Scholar
• McGrath , P. and Patton , M. A. 2006 . Relocation for specialist treatment for Indigenous people: Escort issues . Journal of Rural and Tropical Public Health , 5 : 16 – 26 .
   Google Scholar
• McGrath , P. , Rawson-Huff , N. and Addidi , L. 2012 . “ Vulvar cancer experience for Indigenous women in East Arnhem Land: Insights from patients, Aboriginal health workers and health professionals (DVD) ” . Brisbane , , Australia : National Health and Medical Research Council .
   Google Scholar
• McGrath , P. and Rawson , N. press). Key factors impacting on diagnosis and treatment for vulvar cancer for Indigenous women: Findings from Australia . Supportive Care in Cancer ,
   Google Scholar
• McGrath , P. and Seguerra , J. 2000 . The Patient Transit Assistance Scheme: A consumer's perspective . Australian Journal of Rural Health , 8 : 232 – 238 .
   PubMedGoogle Scholar
• McMichael , C. and Kirk , M. 2000 . Indigenous women's perceptions of breast cancer diagnosis and treatment in Queensland . Australian & New Zealand Journal of Public Health , 24 ( 5 ) : 515 – 520 .
   PubMed Web of Science ®Google Scholar
• National Health and Medical Research Council . 2003 . Values and ethics—Guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research Retrieved from http://www.nhmrc.gov.au/guidelines/publications/e52
   Google Scholar
• Noggle , B. 1995 . Identifying and meeting the needs of ethnic minority patients . Hospice Journal , 10 : 85 – 95 .
   PubMedGoogle Scholar
• Northern Territory Department of Health . 2012 . What is the Patient Assistance Travel Scheme? Retrieved from http://www.health.nt.gov.au/Hospitals/Patient_Assistance_Travel_Scheme/
   Google Scholar
• Prior , D. 2009 . The meaning of cancer for Australian Aboriginal women: Changing the focus of cancer nursing . European Journal of Oncology Nursing , 13 ( 4 ) : 280 – 286 .
   Google Scholar
• Rothe , J. , Ozegovic , D. and Carroll , L. 2009 . Innovation in qualitative interviews: “Sharing Circles” in a First Nations community . Injury Prevention , 15 : 334 – 340 .
   PubMed Web of Science ®Google Scholar
• Shahid , S. , Finn , L. , Bessarab , D. and Thompson , S. 2011 . ‘Nowhere to room … nobody told them’: Logistical and cultural impediments to Aboriginal peoples’ participation in cancer treatment . Australian Health Review , 35 ( 2 ) : 235 – 241 .
   PubMed Web of Science ®Google Scholar
• Sharma , D. 2012 . Radiation in vulvar cancer . Current Opinion in Obstetrics & Gynecology , 24 ( 1 ) : 24 – 30 .
   PubMed Web of Science ®Google Scholar
• Thompson , S. , Shahid , S. , Greville , H. and Bessarab , D. 2011 . “A whispered sort of stuff”: A community report on research around Aboriginal people's beliefs about cancer and experience of cancer care in Western Australia , Perth , , Australia : Cancer Council of Western Australia .
   Google Scholar
• Willis , E. , Dwyer , J. , Owada , K. , Couzner , L. , King , D. and Wainer , J. 2011 . Indigenous women's expectations of clinical care during treatment for a gynaecological cancer: Rural and remote differences in expectations . Australian Health Review , 35 ( 1 ) : 99 – 103 .
   PubMed Web of Science ®Google Scholar
• Woelber , L. , Kock , L. , Gieseking , F. , Petersen , C. , Trillsch , F. , Choschzick , M. and Mahner , S. 2011 . Clinical management of primary vulvar cancer . European Journal of Cancer , 47 ( 15 ) : 2315 – 2321 .
   PubMed Web of Science ®Google Scholar