1,510
Views
30
CrossRef citations to date
0
Altmetric
Original Articles

The Cancer Empowerment Questionnaire: Psychological Empowerment in Breast Cancer Survivors

, , , &
Pages 565-583 | Published online: 06 Sep 2013

REFERENCES

  • Aaronson , N. K. , Ahmedzai , S. , Bergman , B. , Bullinger , M. , Cull , A. and Duez , N. J. 1993 . The European-Organization-For-Research-And-Treatment-Of-Cancer Qlq-C30 - A quality-of-life instrument for use in international clinical-trials in oncology . Journal of the National Cancer Institute , 85 ( 5 ) : 365 – 376 .
  • Ahn , S. H. , Park , B. W. , Noh , D. Y. , Nam , S. J. , Lee , E. S. and Lee , M. K. 2007 . Health-related quality of life in disease-free survivors of breast cancer with the general population . Annals of Oncology , 18 ( 1 ) : 173 – 182 .
  • Albert , U. S. , Koller , M. , Lorenz , W. , Kopp , I. , Heitmann , C. and Stinner , B. 2002 . Quality of life profile: From measurement to clinical application . Breast , 11 ( 4 ) : 324 – 334 .
  • Alexander , S. , Palmer , C. and Stone , P. C. 2010 . Evaluation of screening instruments for depression and anxiety in breast cancer survivors . Breast Cancer Research and Treatment , 122 ( 2 ) : 573 – 578 . doi: 10.1007/s10549-009-0669-6
  • Andrykowski , M. A. , Lykins , E. and Floyd , A. 2008 . Psychological health in cancer survivors . Seminars in Oncology Nursing , 24 ( 3 ) : 193 – 201 . doi: S0749-2081(08)00031-4 [pii]10.1016/j.soncn.2008.05.007
  • Annunziata , M. A. , Muzzatti , B. and Altoe , G. 2011 . Defining Hospital Anxiety and Depression Scale (HADS) structure by confirmatory factor analysis: A contribution to validation for oncological settings . Annals of Oncology , 22 : 2330 – 2333 . doi: 10.1093/annonc/mdq750
  • Aspinwall , L. G. and MacNamara , A. 2005 . Taking positive changes seriously - Toward a positive psychology of cancer survivorship and resilience . Cancer , 104 ( 11 ) : 2549 – 2556 .
  • Boevink , W. , Kroon , H. and Giesen , F. 2008 . Empowerment - Constructie en validatie van een vragenlijst, interne rapportage. [Empowerment - Construction and validation of a questionnaire, internal report] , Utrecht, The Netherlands: Trimbos Instituut .
  • Boot , J. S. , Holcombe , C. and Salmon , P. 2010 . Positive adjustment to breast cancer: Development of a disease-specific measure and comparison of women diagnosed from 2 weeks to 5 years . Psycho-Oncology , 19 ( 11 ) : 1187 – 1194 . doi: 10.1002/pon.1672
  • Bulsara , C. , Styles , I. , Ward , A. M. and Bulsara , M. 2006 . The psychometrics of developing the patient empowerment scale . Journal of Psychosocial Oncology , 24 ( 2 ) : 1 – 16 . doi: 10.1300/J077v24n02_01
  • Carver , C. S. , Smith , R. G. , Antoni , M. H. , Petronis , V. M. , Weiss , S. and Derhagopian , R. P. 2005 . Optimistic personality and psychosocial well-being during treatment predict psychosocial well-being among long-term survivors of breast cancer . Health Psychology , 24 ( 5 ) : 508 – 516 . doi: 10.1037/0278-6133.24.5.508
  • Cohen , J. 1988 . Statistical power analysis for the behavioral sciences (2nd ed.) , Hillsdale , NJ : Lawrence Erlbaum .
  • Cohen , M. and Numa , M. 2011 . Posttraumatic growth in breast cancer survivors: A comparison of volunteers and non-volunteers . Psycho-Oncology , 20 ( 1 ) : 69 – 76 . doi: 10.1002/pon.1709
  • Cordova , M. J. , Cunningham , L. L. C. , Carlson , C. R. and Andrykowski , M. A. 2001a . Posttraumatic growth following breast cancer: A controlled comparison study . Health Psychology , 20 ( 3 ) : 176 – 185 .
  • Cordova , M. J. , Cunningham , L. L. C. , Carlson , C. R. and Andrykowski , M. A. 2001b . Social constraints, cognitive processing, and adjustment to breast cancer . Journal of Consulting and Clinical Psychology , 69 ( 4 ) : 706 – 711 .
  • Crombez , G. , Lauwerier , E. , Van Damme , S. , Goubert , L. , Vogelaers , D. and Evers , A. W. M. 2010 . The construct validity of the Illness Cognition Questionnaire: The robustness of the three-factor structure across patients with chronic pain and chronic fatigue . International Journal of Behavioral Medicine , 17 ( 2 ) : 90 – 96 . doi: 10.1007/s12529-009-9059-z
  • Dabrowski , M. , Boucher , K. , Ward , J. H. , Lovell , M. M. , Sandre , A. and Bloch , J. 2007 . Clinical experience with the NCCN Distress Thermometer in breast cancer patients . Journal of the National Comprehensive Cancer Network , 5 ( 1 ) : 104 – 111 .
  • Evers , A. W. M. , Kraaimaat , F. W. , van Lankveld , W. , Jongen , P. J. H. , Jacobs , J. W. G. and Bijlsma , J. W. J. 2001 . Beyond unfavorable thinking: The illness cognition questionnaire for chronic diseases . Journal of Consulting and Clinical Psychology , 69 ( 6 ) : 1026 – 1036 . doi: 10.1037//0022-006X.69.6.1026
  • Fisher , M. I. and Howell , D. 2010 . The power of empowerment: An ICF-based model to improve self-efficacy and upper extremity function of survivors of breast cancer . Rehabilitation Oncology , 28 ( 3 ) : 19 – 25 .
  • Hack , T. F. and Degner , L. F. 2004 . Coping responses following breast cancer diagnosis predict psychological adjustment three years later . Psycho-Oncology , 13 ( 4 ) : 235 – 247 . doi: 10.1002/pon.739
  • Harper , F. W. K. , Schmidt , J. F. , Beacham , A. O. , Salsman , J. M. , Averill , A. J. and Graves , K. D. 2007 . The role of social cognitive processing theory and optimism in positive psychosocial and physical behavior change after cancer diagnosis and treatment . Psycho-Oncology , 16 ( 1 ) : 79 – 91 .
  • Hegel , M. T. , Collins , E. D. , Kearing , S. , Gillock , K. L. , Moore , C. P. and Ahles , T. A. 2008 . Sensitivity and specificity of the Distress Thermometer for depression in newly diagnosed breast cancer patients . Psycho-Oncology , 17 ( 6 ) : 556 – 560 .
  • Helgeson , V. S. , Snyder , P. and Seltman , H. 2004 . Psychological and physical adjustment to breast cancer over 4 years: Identifying distinct trajectories of change . Health Psychology , 23 ( 1 ) : 3 – 15 .
  • Henselmans , I. , Fleer , J. , De Vries , J. , Baas , P. C. , Sanderman , R. and Ranchor , A. V. 2010 . The adaptive effect of personal control when facing breast cancer: Cognitive and behavioural mediators . Psychology & Health , 25 ( 9 ) : 1023 – 1040 .
  • Henselmans , I. , Helgeson , V. S. , Seltman , H. , De Vries , J. , Sanderman , R. and Ranchor , A. V. 2010 . Identification and Prediction of distress trajectories in the first year after a breast cancer diagnosis . Health Psychology , 29 ( 2 ) : 160 – 168 .
  • Hewitt , M. E. , Greenfield , S. and Stoval , E. 2005 . From cancer patient to cancer survivor: Lost in transition , Washington , DC : Institute of Medicine (IOM) .
  • Hood , L. and Friend , S. H. 2011 . Predictive, personalized, preventive, participatory (P4) cancer medicine . Nature Reviews Clinical Oncology , 8 ( 3 ) : 184 – 187 . doi: 10.1038/nrclinonc.2010.227
  • Jemal , A. , Bray , F. , Center , M. M. , Ferlay , J. , Ward , E. and Forman , D. 2011 . Global cancer statistics . CA: A Cancer Journal for Clinicians , 61 ( 2 ) : 69 – 90 . doi: 10.3322/caac.20107
  • Lepore , S. J. 2001 . “ A social-cognitive processing model of emotional adaptation to cancer ” . In Psychosocial interventions for cancer , Edited by: Baum , A. and Andersen , B. L. 99 – 116 . Washington , DC : American Psychological Association .
  • Lewis , J. A. , Manne , S. L. , DuHamel , K. N. , Vickburg , S. M. , Bovbjerg , D. H. and Currie , V. 2001 . Social support, intrusive thoughts, and quality of life in breast cancer survivors . Journal of Behavioral Medicine , 24 ( 3 ) : 231 – 245 .
  • Love , A. W. , Kissane , D. W. , Bloch , S. and Clarke , D. M. 2002 . Diagnostic efficiency of the Hospital Anxiety and Depression Scale in women with early stage breast cancer . Australian and New Zealand Journal of Psychiatry , 36 ( 2 ) : 246 – 250 .
  • Manne , S. L. , Ostroff , J. S. , Norton , T. R. , Fox , K. , Grana , G. and Goldstein , L. 2006 . Cancer-specific self-efficacy and psychosocial and functional adaptation to early stage breast cancer . Annals of Behavioral Medicine , 31 ( 2 ) : 145 – 154 .
  • McCorkle , R. , Ercolano , E. , Lazenby , M. , Schulman-Green , D. , Schilling , L. S. and Lorig , K. 2011 . Self-management: Enabling and empowering patients living with cancer as a chronic illness . CA-A Cancer Journal for Clinicians , 61 ( 1 ) : 50 – 62 .
  • McKemmish , S. , Manaszewicz , R. , Burstein , F. and Fisher , J. 2009 . Consumer empowerment through metadata-based information quality reporting: The breast cancer knowledge online portal . Journal of the American Society for Information Science and Technology , 60 ( 9 ) : 1792 – 1807 .
  • Osoba , D. , Aaronson , N. , Zee , B. , Sprangers , M. and Velde , A. T. 1997 . Modification of the EORTC QLQ-C30 (version 2.0) based on content validity and reliability testing in large samples of patients with cancer . Quality of Life Research , 6 ( 2 ) : 103 – 108 .
  • Payne , D. K. , Hoffman , R. G. , Theodoulou , M. , Dosik , M. and Massie , M. J. 1999 . Screening for anxiety and depression in women with breast cancer - Psychiatry and medical oncology gear up for managed care . Psychosomatics , 40 ( 1 ) : 64 – 69 .
  • Pitts , V. 2004 . Illness and Internet empowerment: Writing and reading breast cancer in cyberspace . Health , 8 ( 1 ) : 33 – 59 .
  • Pravettoni , G. and Gorini , A. 2011 . A P5 cancer medicine approach: Why personalized medicine cannot ignore psychology . Journal of Evaluation in Clinical Practice , 17 ( 4 ) : 594 – 596 . doi: 10.1111/j.1365-2753.2011.01709.x
  • Rappaport , J. 1984 . Studies in empowerment: Introduction to the issue . Prevention in Human Services , 3 : 1 – 7 .
  • Ryhanen , A. M. , Siekkinen , M. , Rankinen , S. , Korvenranta , H. and Leino-Kilpi , H. 2010 . The effects of Internet or interactive computer-based patient education in the field of breast cancer: A systematic literature review . Patient Education and Counseling , 79 ( 1 ) : 5 – 13 .
  • Schmidt , J. E. and Andrykowski , M. A. 2004 . The role of social and dispositional variables associated with emotional processing in adjustment to breast cancer: An internet-based study . Health Psychology , 23 ( 3 ) : 259 – 266 . doi: 10.1037/0278-6133.23.3.2592004-13299-005 [pii]
  • Schroevers , M. J. , Kraaij , V. and Garnefski , N. 2011 . Cancer patients’ experience of positive and negative changes due to the illness: Relationships with psychological well-being, coping, and goal reengagement . Psycho-Oncology , 20 ( 2 ) : 165 – 172 . doi: 10.1002/pon.1718
  • Sharf , B. F. 1997 . Communicating breast cancer on-line: Support and empowerment on the Internet . Women & Health , 26 ( 1 ) : 65 – 84 .
  • Silva , S. , Moreira , H. and Canavarro , M. C. 2011 . Examining the link between perceived impact of breast cancer and psychosocial adjustment: The buffering role of posttraumatic growth . Psycho-Oncology , 21 ( 4 ) : 409 – 418 . doi: 10.1002/pon.1913
  • Spinhoven , P. , Ormel , J. , Sloekers , P. P. A. , Kempen , G. I. J. M. , Speckens , A. E. M. and VanHemert , A. M. 1997 . A validation study of the Hospital Anxiety and Depression Scale (HADS) in different groups of Dutch subjects . Psychological Medicine , 27 ( 2 ) : 363 – 370 .
  • Sprangers , M. A. G. , Groenvold , M. , Arraras , J. I. , Franklin , J. , teVelde , A. and Muller , M. 1996 . The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: First results from a three-country field study . Journal of Clinical Oncology , 14 ( 10 ) : 2756 – 2768 .
  • Stang , I. and Mittelmark , M. B. 2009 . Learning as an empowerment process in breast cancer self-help groups . Journal of Clinical Nursing , 18 ( 14 ) : 2049 – 2057 .
  • Stang , I. and Mittelmark , M. B. 2010 . Intervention to enhance empowerment in breast cancer self-help groups . Nursing Inquiry , 17 ( 1 ) : 46 – 56 .
  • Stanton , A. L. , Danoff-Burg , S. and Huggins , M. E. 2002 . The first year after breast cancer diagnosis: Hope and coping strategies as predictors of adjustment . Psycho-Oncology , 11 ( 2 ) : 93 – 102 . doi: 10.1002/pon.574
  • Tabachnik , B. G. and Fidell , L. S. 2006 . Using multivariate statistics (5th ed.) , Boston, MA: Pearson Education .
  • Tian , Q. , Price , N. D. and Hood , L. 2012 . Systems cancer medicine: Towards realization of predictive, preventive, personalized and participatory (P4) medicine . Journal of Internal Medicine , 271 ( 2 ) : 111 – 121 . doi: 10.1111/j.1365-2796.2011.02498.x
  • Tuinman , M. A. , Gazendam-Donofrio , S. M. and Hoekstra-Weebers , J. E. 2008 . Screening and referral for psychosocial distress in oncologic practice - Use of the Distress Thermometer . Cancer , 113 ( 4 ) : 870 – 878 .
  • van Uden-Kraan , C. F. , Drossaert , C. H. C. , Taal , E. , Shaw , B. R. , Seydel , E. R. and Van de Laar , M. A. F. J. 2008 . Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia . Qualitative Health Research , 18 ( 3 ) : 405 – 417 .
  • Vissers , W. , Hutschemaekers , G. , Keijsers , G. , Van der Veld , W. and Hendriks , G. J. 2010 . Utility of measuring remoralization in addition to symptoms in efficacy research: A preliminary study . Psychotherapy Research , 20 ( 5 ) : 611 – 618 .
  • Vissers , W. , Keijsers , G. P. J. , van der Veld , W. M. , de Jong , C. A. J. and Hutschemaekers , G. J. M. 2010 . Development of the Remoralization Scale: An extension of contemporary psychotherapy outcome measurement . European Journal of Psychological Assessment , 26 ( 4 ) : 293 – 301 .
  • Vodermaier , A. and Millman , R. D. 2011 . Accuracy of the Hospital Anxiety and Depression Scale as a screening tool in cancer patients: A systematic review and meta-analysis . Supportive Care in Cancer , 19 ( 12 ) : 1899 – 1908 . doi: 10.1007/s00520-011-1251-4
  • Waldrop , D. P. , O’Connor , T. L. and Trabold , N. 2011 . Waiting for the other shoe to drop”: Distress and coping during and after treatment for breast cancer . Journal of Psychosocial Oncology , 29 ( 4 ) : 450 – 473 . doi: 10.1080/07347332.2011.582638
  • Walker , J. , Postma , K. , McHugh , G. S. , Rush , R. , Coyle , B. and Strong , V. 2007 . Performance of the Hospital Anxiety and Depression Scale as a screening tool for major depressive disorder in cancer patients . Journal of Psychosomatic Research , 63 ( 1 ) : 83 – 91 . doi: 10.1016/j.jpsychores.2007.01.009
  • Wiljer , D. , Urowitz , S. , Frasca , E. , Nyhof-Young , J. , Secord , S. and Walton , T. 2010 . The role of a clinician-led reflective interview on improving self-efficacy in breast cancer survivors: A pilot study . Journal of Cancer Education , 25 ( 3 ) : 457 – 463 .
  • Zigmond , A. S. and Snaith , R. P. 1983 . The Hospital Anxiety and Depression Scale . Acta Psychiatrica Scandinavica , 67 ( 6 ) : 361 – 370 .
  • Zimmerman , M. A. 1995 . Psychological empowerment: Issues and illustrations . American Journal of Community Psychology , 23 ( 5 ) : 581 – 599 .
  • Zimmerman , M. A. and Warschausky , S. 1998 . Empowerment theory for rehabilitation research: Conceptual and methodological issues . Rehabilitation Psychology , 43 ( 1 ) : 3 – 16 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.