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Original Articles

“Cancer Sucks,” and Other Ponderings by Adolescent and Young Adult Cancer Survivors

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REFERENCES

  • Adams , S. H. , Newacheck , P. W. , Park , M. J. , Brindis , C. D. and Irwin , C. E. 2007 . Health insurance across vulnerable ages: Patterns and disparities from adolescence to the early 30s . Pediatrics , 119 ( 5 ) : 1033 – 1039 .
  • Adolescent and Young Adult Oncology Progress Review Group . 2006 . Closing the gap: Research and care imperatives for adolescents and young adults with cancer. A report of the Adolescent and Young Adult Oncology Program Review Group , Bethesda , MD : National Institutes of Health, National Cancer Institute, and Livestrong Young Adult Alliance .
  • Alfano , C. M. and Rowland , J. H. 2009 . “ The experience of survival for patients: Psychosocial Adjustment ” . In Handbook of cancer control and behavioral science: A resource for researchers, practitioners, and policymakers , Edited by: Miller , S. M. , Bowen , D. J. , Croyle , R. T. and Rowland , J. H. 413 – 430 . Washington , DC : American Psychological Association .
  • Arnett , J. J. 2000 . Emerging adulthood: A theory of development from the late teens through the twenties . American Psychologist , 55 ( 5 ) : 469 – 480 .
  • Bellizzi , K. M. , Smith , A. W. , Schmidt , S. , Keegan , T. H. M. , Zebrack , B. , Lynch , C. F. and …Shnorhavorian , M. 2012 . Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult . Cancer , 118 ( 20 ) : 5155 – 5162 .
  • Bleyer , W. A. 2002 . Cancer in older adolescents and young adults: Epidemiology, diagnosis, treatment, survival, and importance of clinical trials . Medical and Pediatric Oncology , 38 ( 1 ) : 1 – 10 .
  • Butow , P. N. , Palmer , S. , Pai , A. , Goodenough , B. , Luckett , T. and King , M. 2010 . Review of adherence-related issues in adolescents and young adults with cancer . Journal of Clinical Oncology , 28 ( 32 ) : 4800 – 4809 .
  • Clinton-McHarg , T. , Carey , M. , Sanson-Fisher , R. , Shakeshaft , A. and Rainbird , K. 2010 . Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: A critical review . Health and Quality of Life Outcomes , 8 : 25
  • Costanzo , E. S. , Ryff , C. D. and Singer , B. H. 2009 . Psychosocial adjustment among cancer survivors: Findings from a national survey of health and well-being . Health Psychology , 28 ( 2 ) : 147 – 156 .
  • Denzin , N. K. and Lincoln , Y. S. 1998 . Collecting and interpreting qualitative materials , Thousand Oaks , CA : Sage .
  • Dyson , G. J. , Thompson , K. , Palmer , S. , Thomas , D. M. and Schofield , P. 2012 . The relationship between unmet needs and distress amongst young people with cancer . Supportive Care in Cancer , 20 : 75 – 85 .
  • Haase , J. E. and Phillips , C. R. 2004 . The adolescent/young adult experience . Journal of Pediatric Oncology Nursing , 21 ( 3 ) : 145 – 149 .
  • Harlan , L. C. , Lynch , C. F. , Keegan , T. H. M. , Hamilton , A. S. , Wu , X. , Kato , I. and …Potosky , A. L. (2011). Recruitment and follow-up of adolescent and young adult cancer survivors: The AYA HOPE Study . Journal of Cancer Survivorship , 5 305 – 314 .
  • Jones , B. L. , Volker , D. L. , Vinajeras , Y. , Butros , L. , Fitchpatrick , C. and Rossetto , K. 2010 . The meaning of surviving cancer for Latino adolescents and emerging young adults . Cancer Nursing , 33 ( 1 ) : 74 – 81 .
  • Keegan , T. H. M. , Lichtensztajn , D. , Kato , I. , Kent , E. , Wu , X. , West , M. M. and …Smith , A. 2012 . Unmet adolescent and young adult cancer survivors information and service needs: A population-based cancer registry study . Journal of Cancer Survivorship: Research and Practice , 6 : 239 – 250 .
  • Kent , E. , Parry , C. , Montoya , M. J. , Sender , L. S. , Morris , R. A. and Anton-Culver , H. 2012 . ‘You’re too young for this’: Adolescent and young adult perspectives on cancer survivorship . Journal of Psychosocial Oncology , 30 ( 2 ) : 260 – 279 .
  • Miedema , B. , Hamilton , R. and Easley , J. 2007 . From ‘invincibility’ to ‘normalcy’: Coping strategies of young adults during the cancer journey . Palliative and Supportive Care , 5 ( 1 ) : 41 – 49 .
  • Miles , M. B. and Huberman , A. M. 1994 . Qualitative data analysis: A sourcebook of new methods (2nd ed.) , Thousand Oaks : Sage .
  • Mor , V. , Allen , S. and Malin , M. 1994 . The psychosocial impact of cancer on older versus younger patients and their families . Cancer , 74 : 2118 – 2127 .
  • Parker , P. A. , Baile , W. F. , De Moor , C. and Cohen , L. 2003 . Psychosocial and demographic predictors of quality of life in a large sample of cancer patients . Psycho-Oncology , 12 : 183 – 193 .
  • Patient-Centered Outcomes Research Institute . 2012 . Methodological standards and patient-centeredness in comparative effectiveness research: The PCORI perspective . Journal of the American Medical Association , 307 ( 15 ) : 1636 – 1640 .
  • Pollock , B. H. , Krischer , J. P. and Vietti , T. J. 1991 . Interval between symptom onset and diagnosis of pediatric solid tumors . Journal of Pediatrics , 119 : 725 – 732 .
  • Selby , J. V. , Beal , A. C. and Frank , L. 2012 . The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda . Journal of the American Medical Association , 307 ( 15 ) : 1583 – 1584 .
  • Skarstein , J. , Dahl , A. A. , Laading , J. and Fossa , S. D. 2002 . ‘Patient satisfaction’ in hospitalized cancer patients . Acta Oncologica , 41 ( 7/8 ) : 639 – 645 .
  • Stava , C. J. , Lopez , A. and Vassilopoulou-Sellin , R. 2006 . Health profiles of younger and older breast cancer survivors . Cancer , 107 ( 8 ) : 1752 – 1759 .
  • Strauss , A. and Corbin , J. 1990 . Basics of qualitative research: Grounded theory procedures and techniques , London , UK : Sage .
  • Thompson , K. , Palmer , S. and Dyson , G. J. 2009 . Adolescents and young adults: Issues in transition from active therapy into follow-up care . European Journal of Cancer , 13 ( 3 ) : 207 – 212 .
  • Yi , J. and Zebrack , B. 2010 . Self-portraits of families with young adult cancer survivors: Using photovoice . Journal of Psychosocial Oncology , 28 ( 3 ) : 219 – 243 .
  • Zebrack , B. , Chesler , M. and Kaplan , S. 2010 . To foster healing among adolescents and young adults with cancer: What helps? What hurts? . Supportive Care in Cancer , 18 ( 1 ) : 131 – 135 .
  • Zebrack , B. J. 2008 . Information and service needs for young adult cancer patients . Supportive Care in Cancer , 16 : 1353 – 1360 .

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