747
Views
24
CrossRef citations to date
0
Altmetric
Original Articles

The Role of Helplines in Cancer Care: Intertwining Emotional Support with Information or Advice-Seeking Needs

, BPsych (Hons), PhD, , BM, BMedSci, , , BA, PhD, , MBBS, BA, MD, DLSHTM, MRCP, FRCGP, FmedSci & , BA, MA, PhD

REFERENCES

  • Bonito, A., Horowitz, N., McCorkle, R., & Chagpar, A.B. (2013). Do healthcare professionals discuss the emotional impact of cancer with patients? Psycho-Oncology, 29(2), 2046–2050. doi:10.1002/pon.3258.
  • Boudioni, M., McPherson, K., Mossman, J., Boulton, M., Jones, A.L., King, J., … Slevin, M.L. (1999). An analysis of first-time enquirers to the CancerBACUP information service: Variations with cancer site, demographic status and geographical location. British Journal of Cancer, 79, 138–145.
  • Boulton, M., Boudioni, M., Mossman, J., Moynihan, C., Leydon, G.M., & Ramirez, A. (2001). ‘Dividing the desolation’: Clients views on the benefits of a cancer counselling service. Psycho-Oncology, 10, 124–136.
  • Braun, V., & Clark, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.
  • Byers, R., Vezina, A., & Campbell, H. (2002). Measuring the performance of telephone information services: A literature review. Canada: Canadian Cancer Society (on behalf of Centre for Behavioural Research and Program Evaluation, National Cancer Institute of Canada).
  • Chamber, S.K., Girgis, A., Occhipinti, S., Hutchison, S., Turner, J., Morris, B., & Dunn, J. (2011). Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer helplines. European Journal of Cancer Care (English Language Edition), 21(2), 213–223.
  • Cox, K., Wilson, E., Heath, L., Collier, J., Jones, L., & Johnston, I. (2006). Preferences for follow-up after treatment for lung cancer: Assessing the nurse-led option. Cancer Nursing, 29(3), 176–187.
  • Czaja, R., Manfredi, C., & Price, J. (2003). The determinants and consequences of information seeking among cancer patients. Journal of Health Communication, 8, 529–562.
  • Dean, A., & Scanlon, K. (2007). Telephone helpline to support people with breast cancer. Nursing Times, 103(42), 30–33.
  • Department of Health. (1998). Information for health: An information strategy for the modern NHS 1998-2005. A national strategy for local implementation. London, UK: National Health Service Executive.
  • Department of Health. (2003). Developing NHS direct: A strategy document for the next three years. London, UK: Department of Health.
  • Department of Health. (2010). The National Cancer Survivorship Initiative. London, UK: Author.
  • Fallowfield, L., & Jenkins, V. (1999). Effective communication skills are the key to good cancer care. European Journal of Cancer, 35, 1592–1597.
  • Finney Rutten, L.J., Arora, N.K., Bakos, A.D., Aziz, N., & Rowland, J. (2005). Information needs and sources of information among cancer patients: A systematic review of research. Patient Education and Counseling, 57, 250–261.
  • Green, J.T. N. (2009). Qualitative methods for health research (2nd ed.). London, UK: Sage.
  • Hardyman, R., Hardy, P., Brodie, J., & Stephens, R. (2005). It's good to talk: Comparison of a telephone helpline and website for cancer information. Patient Education and Counseling, 57(3), 315–320.
  • Hojat, M. (2007). Empathy in patient care: Antecedents, development, measurement, and outcomes. New York, NY: Springer.
  • Holland, J.C., Breitbart, W.S., Jacobsen, P.B., Lederberg, M.S., Loscalzo, M.J., & McCorkle, R. (2010). Psycho-oncology (2nd ed.). New York, NY: Oxford University Press.
  • Jefford, M., Black, C., Grogan, S., Yeoman, G., White, V., & Akkerman, D. (2005). Information and support needs of callers to the Cancer Helpline: The Cancer Council Victoria. European Journal of Cancer Care (English Language Edition), 14, 113–123.
  • Lelorain, S., Brédart, A., Dolbeault, S., & Sultan, S. (2012). A systematic review of the associations between empathy measures and patient outcomes in cancer care. Psycho-Oncology, 21, 1255–1264.
  • Leydon, G.M., Boulton, M., Moynihan, C., Jones, A., Mossman, J., Boudioni, M., & McPherson, K. (2000). Cancer patients’ information needs and information seeking behaviour: in depth interview study. British Medical Journal, 320, 909–913.
  • Leydon, G.M., Ekberg, K., & Drew, P. (2013). “How can I help?” Nurse call openings on a cancer helpline and implications for call progressivity. Patient Education and Counseling, 92, 23–30.
  • Leydon, G.M., Ekberg, K., Drew, P., & Kelly, M. (2013). Optimizing ethnic monitoring for telephone based health care: A case study of a cancer helpline. Brithish Medical Journal (Open), 3, 23–30. . doi:10.1136/bmjopen-2013-002676.
  • Manning, D.L., & Quigley, P. (2002). Understanding the needs of people using a cancer information service in Northern Ireland. European Journal of Cancer Care (English Language Edition), 11, 139–142.
  • Montazeri, A., Haghighat, S., Vahdani, M., Jarvandi, S., & Harirchi, I. (1999). Evaluation of a national breast cancer information service: The Iranian experience. Supportive Care in Cancer, 7(3), 154–157.
  • Moynihan, C. (1998). Theories of masculinity. Brithish Medical Journal (Clinical Research Edition), 317, 1072–1075.
  • Ong, L.M. L., Visser, M.R. M., Lammes, F.B., & de Haes, J.C. J. M. (2000). Doctor–patient communication and cancer patients’ quality of life and satisfaction. Patient Education and Counseling, 41, 145–156.
  • Roberts, C.A., & Aruguete, M.S. (2000). Task and socioemotional behaviors of physicians: A test of reciprocity and social interaction theories in analogue physician-patient encounters. Social Science and Medicine, 50, 309–315.
  • Ross, T. (2007). Prostate cancer telephone helpline: Nursing from a different perspective. British Journal of Nursing, 16(3), 161–165.
  • Silverman, D. (2006). Interpreting qualitative data (3rd ed.). London, UK: Sage.
  • Takayama, T., Yamazaki, Y., & Katsumata, N. (2001). Relationship between outpatients’ perceptions of physicians’ communication styles and patients’ anxiety levels in a Japanese oncology setting. Social Science and Medicine, 10, 1335–1350.
  • Telephone Helplines Association. (2009). Telephone helplines directory 2008-2009. London, UK: Author.
  • Venn, M.J., Darling, E., Dickens, C., Quine, L., Rutter, D.R., & Slevin, M.L. (1996). The experience and impact of contacting a cancer infomation service. European Journal of Cancer Care (English Language Edition), 5, 38–42.
  • Wahlberg, A.C., Cedersund, E., & Wredling, R. (2003). Telephone nurses’ experience of problems with telephone advice in Sweden. Journal of Clinical Nursing, 12, 37–45
  • Zachariae, R., Pedersen, C.G., Jensen, A.B., Ehrnrooth, E., Rossen, P.B., & von der Maase, H. (2003). Association of perceived physician communication style with patient satisfaction, distress, cancer-related self-efficacy, and perceived control over the disease. British Journal of Cancer, 88, 658–665.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.