437
Views
6
CrossRef citations to date
0
Altmetric
Original Articles

Dusted Community: Piloting a Virtual Peer-to-Peer Support Community for People with an Asbestos-Related Diagnosis and Their Families

, BPsych (Hons 1), , BSc (Psych), PhD, , LLB & , BSc (Hons), PhD

REFERENCES

  • Arber, A., & Spencer, L. (2013). ‘It's all bad news’: The first 3 months following a diagnosis of malignant pleural mesothelioma. Psycho-Oncology, 22(7), 1528–1533. doi:10.1002/pon.3162
  • Barak, A., Boniel-Nissim, M., & Suler, J. (2008). Fostering empowerment in online support groups. Computers in Human Behavior, 24(5), 1867–1883. doi:10.1016/j.chb.2008.02.004
  • Bateman, D. (2013, . August 6). Townsville family in fear as NBN workers leave asbestos-lined pit open in their front yard for months The Courier-Mail. . Retrieved from http://www.couriermail.com.au/news/queensland/townsville-family-in-fear-as-nbn-workers-leave-asbestoslined-pit-open-in-their-front-yard-for-months/story-fnihsrf2-1226691654251
  • Baum, F., MacDougall, C., & Smith, D. (2006). Participatory action research. Journal of Epidemiology and Community Health, 60(10), 854–857. . doi:10.1136/jech.2004.028662
  • Becker, K.L. (2013). Cyberhugs: Creating a voice for chronic pain sufferers through technology. Cyberpsychology, Behavior, and Social Networking, 16(2), 123–126. . doi:10.1089/cyber.2012.0361
  • Bottorff, J.L., Oliffe, J.L., Halpin, M., Phillips, M., McLean, G., & Mroz, L. (2008). Women and prostate cancer support groups: The gender connect? Social Science & Medicine, 66(5), 1217–1227. . doi:10.1016/j.socscimed.2007.11.018
  • British Lung Foundation. (2009). Survey of mesothelioma patients and their carers. London, UK: Author.
  • British Lung Foundation. (2013). Survey of people affected by mesothelioma 2013. London, UK: Author.
  • Budgen, A. (2004). Asbestos: a clear and present danger—a UK perspective. Lung Cancer, 45(Suppl. 0), S77–S79. . doi:10.1016/j.lungcan.2004.04.017
  • Carbone, M., Emri, S., Dogan, A.U., Steele, I., Tuncer, M., Pass, H.I., & Baris, Y.I. (2007). A mesothelioma epidemic in Cappadocia: Scientific developments and unexpected social outcomes. Nature Reviews Cancer, 7(2), 147–154. . doi:10.1038/nrc2068
  • Clayson, H. (2007). The experience of mesothelioma in Northern England . (Unpublished doctoral dissertation), The University of Sheffield.
  • Clayson, H., Seymour, J., & Noble, B. (2005). Mesothelioma from the patient's perspective. Hematology/Oncology Clinics of North America, 19(6), 1175–1190. . doi:10.1016/j.hoc.2005.09.003
  • Clayson, H., Seymour, J., & Noble, B. (2006). 71 Patients’ and carers’ experience of mesothelioma. Lung Cancer, 54 (Suppl. 1), S18. . doi:10.1016/S0169-5002(07)70147-2
  • Corney, R.H. (1990). Sex differences in general practice attendance and help seeking for minor illness. Journal of Psychosomatic Research, 34(5), 525–534. . doi:10.1016/0022-3999(90)90027-2
  • Delgermaa, V., Takahashi, K., Park, E.K., Le, G.V., Hara, T., & Sorahan, T. (2011). Global mesothelioma deaths reported to the World Health Organization between 1994 and 2008. Bulletin of the World Health Organization, 89(10), 716–724, . 724A–724C. doi:10.2471/BLT.11.086678
  • Diandini, R., Takahashi, K., Park, E.-K., Jiang, Y., Movahed, M., Le, G.V., … Kim, R. (2013). Potential years of life lost (PYLL) caused by asbestos-related diseases in the world. American Journal of Industrial Medicine, 56(9), 993–1000. . doi:10.1002/ajim.22206
  • Dooley, J.J., Wilson, J.P., & Anderson, V.A. (2010). Stress and depression of facing death: Investigation of psychological symptoms in patients with mesothelioma. Australian Journal of Psychology, 62(3), 160–168. . doi:10.1080/00049530903510757
  • Eisenberger, N.I. (2013). Social ties and health: a social neuroscience perspective. Current Opinion in Neurobiology, 23(3), 407–413. . doi:10.1016/j.conb.2013.01.006
  • Ginossar, T. (2008). Online participation: A content analysis of differences in utilization of two online cancer communities by men and women, patients and family members. Health Communication, 23(1), 1–12. . doi:10.1080/10410230701697100
  • Granieri, A., Tamburello, S., Tamburello, A., Casale, S., Cont, C., Guglielmucci, F., & Innamorati, M. (2013). Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers. Neuropsychiatric Disease and Treatment, 9, 1193–1202.
  • Harrison, J., Maguire, P., & Pitceathly, C. (1995). Confiding in crisis: Gender differences in pattern of confiding among cancer patients. Social Science & Medicine, 41(9), 1255–1260. . doi:10.1016/0277-9536(94)00411-L
  • Hawley, R., & Monk, A. (2004). Malignant mesothelioma: Current practice and research directions. Collegian, 11(2), 22–26. . doi:10.1016/S1322-7696(08)60451-5
  • Hoey, L.M., Ieropoli, S.C., White, V.M., & Jefford, M. (2008). Systematic review of peer-support programs for people with cancer. Patient Education and Counseling, 70(3), 315–337. . doi:10.1016/j.pec.2007.11.016
  • Hong, Y., Peña-Purcell, N.C., & Ory, M.G. (2012). Outcomes of online support and resources for cancer survivors: A systematic literature review. Patient Education and Counseling, 86(3), 288–296. . doi:10.1016/j.pec.2011.06.014
  • Hughes, N., & Arber, A. (2008). The lived experience of patients with pleural mesothelioma. International Journal of Palliative Nursing, 14(2), 66–71.
  • Im, E.-O. (2011). Online support of patients and survivors of cancer. Seminars in Oncology Nursing, 27(3), 229–236. . doi:10.1016/j.soncn.2011.04.008
  • Jamrozik, E., de Klerk, N., & Musk, A.W. (2011). Asbestos-related disease. Internal Medicine Journal, 41(5), 372–380. . doi:10.1111/j.1445-5994.2011.02451.x
  • Kazan-Allen, L. (2005). Asbestos and mesothelioma: Worldwide trends. Lung Cancer, 49(Suppl. 1), S3–S8. . doi:10.1016/j.lungcan.2005.03.002
  • Kindler, H.L. (2011). Surgery for mesothelioma? The debate continues. Lancet Oncology, 12(8), 713–714. . doi:10.1016/S1470-2045(11)70179-6
  • Kinnane, N., & Milne, D. (2010). The role of the Internet in supporting and informing carers of people with cancer: a literature review. Supportive Care in Cancer, 18(9), 1123–1136. . doi:10.1007/s00520-010-0863-4
  • Marinaccio, A., Binazzi, A., Cauzillo, G., Cavone, D., Zotti, R.D., Ferrante, P., … Tumino, R. (2007). Analysis of latency time and its determinants in asbestos related malignant mesothelioma cases of the Italian register. European Journal of Cancer, 43(18), 2722–2728. . doi:10.1016/j.ejca.2007.09.018
  • Mo, P.K. H., Malik, S.H., & Coulson, N.S. (2009). Gender differences in computer-mediated communication: A systematic literature review of online health-related support groups. Patient Education and Counseling, 75(1), 16–24. . doi:10.1016/j.pec.2008.08.029
  • Moore, S., Darlison, L., & Tod, A.M. (2010). Living with mesothelioma. A literature review. European Journal of Cancer Care, 19(4), 458–468. . doi:10.1111/j.1365-2354.2009.01162.x
  • Musk, A.W., & de Klerk, N.H. (2004). Epidemiology of malignant mesothelioma in Australia. Lung Cancer, 45(Suppl. 0), S21–S23. . doi:10.1016/j.lungcan.2004.04.010
  • Niklinski, J., Niklinska, W., Chyczewska, E., Laudanski, J., Naumnik, W., Chyczewski, L., & Pluygers, E. (2004). The epidemiology of asbestos-related diseases. Lung Cancer, 45(Suppl. 0), S7–S15. . doi:10.1016/j.lungcan.2004.04.008
  • Nowak, A.K., Stockler, M.R., & Byrne, M.J. (2004). Assessing quality of life during chemotherapy for pleural mesothelioma: Feasibility, validity, and results of using the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire and Lung Cancer Module. Journal of Clinical Oncology, 22(15), 3172–3180. . doi:10.1200/jco.2004.09.147
  • Park, E.-K., Takahashi, K., Jiang, Y., Movahed, M., & Kameda, T. (2012). Elimination of asbestos use and asbestos-related diseases: An unfinished story. Cancer Science, 103(10), 1751–1755. . doi:10.1111/j.1349-7006.2012.02366.x
  • Peto, J., Matthews, F.E., Hodgson, J.T., & Jones, J.R. (1995). Continuing increase in mesothelioma mortality in Britain. Lancet, 345(8949), 535–539. . doi:10.1016/S0140-6736(95)90462-X
  • Reid, A., Berry, G., de Klerk, N., Hansen, J., Heyworth, J., Ambrosini, G., … Musk, A.W. (2007). Age and sex differences in malignant mesothelioma after residential exposure to blue asbestos (crocidolite)*. CHEST Journal, 131(2), 376–382. . doi:10.1378/chest.06-1690
  • Ribi, K., Bernhard, J., Schuller, J.C., Weder, W., Bodis, S., Jörger, M., … Stahel, R.A. (2008). Individual versus standard quality of life assessment in a phase II clinical trial in mesothelioma patients: Feasibility and responsiveness to clinical changes. Lung Cancer, 61(3), 398–404. . doi:10.1016/j.lungcan.2008.01.013
  • Robinson, B.M. (2012). Malignant pleural mesothelioma: an epidemiological perspective. Annals of Cardiothoracic Surgery, 1(4), 491–496.
  • Safe Work Australia. (2010). Mesothelioma in Australia: Incidence 1982 to 2005. Deaths 1997 to 2006. . Canberra, ACT, Australia: Safe Work Australia.
  • Savicki, V.M. (2000). Computer mediated communication: Gender and group composition. CyberPsychology & Behavior, 3(5), 817–826. . doi:10.1089/10949310050191791
  • Stayner, L., Welch, L.S., & Lemen, R. (2013). The worldwide pandemic of asbestos-related diseases. Annual Review of Public Health, 34, 205–216. addinfo:10.1146/annurev-publhealth-031811-124704
  • Sweeney, K., Toy, L., & Cornwell, J. (2009). Mesothelioma. British Medical Journal, 339, 511–512. addinfo:10.1136/bmj.b2862
  • Treasure, T., & Sedrakyan, A. (2004). Pleural mesothelioma: Little evidence, still time to do trials. Lancet, 364(9440), 1183–1185. addinfo:10.1016/S0140-6736(04)17108-0
  • Wagner, G.R. (2007). The fallout from asbestos. Lancet, 369(9566), 973–974. addinfo:10.1016/S0140-6736(07)60472-3
  • Wells, T., Falk, S., & Dieppe, P. (2004). The patients’ written word: A simple communication aid. Patient Education and Counseling, 54(2), 197–200. addinfo:10.1016/S0738-3991(03)00213-1
  • World Health Organization. (2010). Elimination of asbestos-related diseases . (Fact sheet N°343 ed.). Geneva, Switzerland: Author.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.