Prevalence and Predictors of Distress in Posttreatment Adult Leukemia and Lymphoma Survivors

REFERENCES

• Adler, N.E., Page, A., & National Institute of Medicine (US). Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting. (2008). Cancer care for the whole patient: Meeting psychosocial health needs. Washington, DC: National Academies Press.
   Google Scholar
• Agresti, A., & Finlay, B. (2009). Statistical methods for the social sciences (4th ed.). Upper Saddle River, NJ: Pearson Prentice Hall.
   Google Scholar
• Antoni, M.H., Wimberly, S.R., Lechner, S.C., Kazi, A., Sifre, T., Urcuyo, K.R., … Guellati, S. (2006). Reduction of cancer-specific thought intrusions and anxiety symptoms with a stress management intervention among women undergoing treatment for breast cancer. American Journal of Psychiatry, 163(10), 1791.
   PubMed Web of Science ®Google Scholar
• Avis, N.E., & Deimling, G.T. (2008). Cancer survivorship and aging. Cancer, 113(12 Suppl), 3519–3529. doi: 10.1002/cncr.23941
   PubMed Web of Science ®Google Scholar
• Aziz, N.M. (2007). Cancer survivorship research: State of knowledge, challenges and opportunities. Acta Oncologica, 46(4), 417–432.
   PubMed Web of Science ®Google Scholar
• Black, E.K., & White, C.A. (2005). Fear of recurrence, sense of coherence and posttraumatic stress disorder in haematological cancer survivors. Psycho-Oncology, 14(6), 510–515.
   PubMed Web of Science ®Google Scholar
• Blank, T.O., & Bellizzi, K.M. (2008). A gerontologic perspective on cancer and aging. [Review]. Cancer, 112(11 Suppl), 2569–2576. doi: 10.1002/cncr.23444
   PubMed Web of Science ®Google Scholar
• Carlson, L.E., Waller, A., & Mitchell, A.J. (2012). Screening for distress and unmet needs in patients with cancer: Review and recommendations. Journal of Clinical Oncology, 30(11), 1160–1177.
   PubMed Web of Science ®Google Scholar
• Cella, D.F. (1987). Cancer survival: Psychosocial and public issues. Cancer Investigation, 5(1), 59.
   PubMed Web of Science ®Google Scholar
• Commission on Cancer. (2012). American College of Surgeons Commission on Cancer, 2012. Cancer Program Standards 2012: Ensuring Patient-Centered Care.
   Google Scholar
• Demierre, M.-F., Tien, A., & Miller, D. (2005). Health-related quality-of-life assessment in patients with cutaneous T-cell lymphoma. Archives of Dermatology, 141(3), 325–330.
   PubMed Web of Science ®Google Scholar
• Enns, A., Waller, A., Groff, S.L., Bultz, B.D., Fung, T., & Carlson, L.E. (2013). Risk factors for continuous distress over a 12-month period in newly diagnosed cancer outpatients. Journal of Psychosocial Oncology, 31(5), 489–506.
   PubMed Web of Science ®Google Scholar
• Erikson, C., Salsberg, E., Forte, G., Bruinooge, S., & Goldstein, M. (2007). Future supply and demand for oncologists: Challenges to assuring access to oncology services. Journal of Oncology Practice, 3(2), 79–86. doi: 10.1200/JOP.0723601
   PubMedGoogle Scholar
• Ferrell, B.R., Dow, K.H., & Grant, M. (1995). Measurement of the quality of life in cancer survivors. Quality of Life Research, 4(6), 523–531.
   PubMed Web of Science ®Google Scholar
• Greenberg, D.B., Kornblith, A.B., Herndon, J.E., Zuckerman, E., Schiffer, C.A., Weiss, R.B., … Holland, J.C. (1997). Quality of life for adult leukemia survivors treated on clinical trials of Cancer and Leukemia Group B during the period 1971–1988: Predictors for later psychologic distress. Cancer, 80(10), 1936–1944. doi: 10.1002/(SICI)1097-0142(19971115)80: 10<1936::AID-CNCR10>3.0.CO;2-Z [pii]
   PubMed Web of Science ®Google Scholar
• Hewitt, M.E., Greenfield, S., Stovall, E., & National Cancer Policy Board (US). Committee on Cancer Survivorship: Improving Care and Quality of Life. (2006). From cancer patient to cancer survivor: Lost in transition. Washington, D: The National Academies Press.
   Google Scholar
• Hodgkinson, K., Butow, P., Hunt, G.E., Pendlebury, S., Hobbs, K.M., Lo, S.K., & Wain, G. (2007). The development and evaluation of a measure to assess cancer survivors’ unmet supportive care needs: The CaSUN (Cancer Survivors’ Unmet Needs measure). Psycho-Oncology, 16(9), 796–804. doi: 10.1002/pon.1137
   PubMed Web of Science ®Google Scholar
• Hoffman, K.E., McCarthy, E.P., Recklitis, C.J., & Ng, A.K. (2009). Psychological distress in long-term survivors of adult-onset cancer: Results from a national survey. Archives of Internal Medicine, 169(14), 1274–1281. doi: 169/14/1274 [pii] 10.1001/archinternmed.2009.179
   PubMed Web of Science ®Google Scholar
• Holland, J.C., & Bultz, B.D. (2007). The NCCN guideline for distress management: A case for making distress the sixth vital sign. Journal of the National Comprehensive Cancer Network, 5(1), 3–7.
   PubMedGoogle Scholar
• Horowitz, M., Wilner, N., & Alvarez, W. (1979). Impact of event scale: A measure of subjective stress. Psychosomatic Medicine, 41(3), 209–218.
   PubMed Web of Science ®Google Scholar
• Jacobsen, P.B., & Wagner, L.I. (2012). A new quality standard: The integration of psychosocial care into routine cancer care. Journal of Clinical Oncology, 30(11), 1154–1159.
   PubMed Web of Science ®Google Scholar
• Joseph, S. (2000). Psychometric evaluation of Horowitz's Impact of Event Scale: A review. Journal of Traumatic Stress, 13(1), 101–113.
   PubMed Web of Science ®Google Scholar
• Kaiser, N.C., Hartoonian, N., & Owen, J.E. (2010). Toward a cancer-specific model of psychological distress: Population data from the 2003–2005 National Health Interview Surveys. Journal of Cancer Survivorship, 1–12.
   Google Scholar
• Lobb, E.A., Joske, D., Butow, P., Kristjanson, L.J., Cannell, P., Cull, G., & Augustson, B. (2009). When the safety net of treatment has been removed: Patients’ unmet needs at the completion of treatment for haematological malignancies. Patient Education and Counseling, 77(1), 103–108. doi: 10.1016/j.pec.2009.02.005
   PubMed Web of Science ®Google Scholar
• Marcus, A.C., Garrett, K.M., Cella, D., Wenzel, L., Brady, M.J., Fairclough, D., … Kluhsman, B.C. (2010). Can telephone counseling post treatment improve psychosocial outcomes among early stage breast cancer survivors? Psycho-Oncology, 19(9), 923–932.
   PubMed Web of Science ®Google Scholar
• Mols, F., Aaronson, N.K., Vingerhoets, A.J. J. M., Coebergh, J.-W. W., Vreugdenhil, G., Lybeert, M.L. M., & van de Poll-Franse, L.V. (2007). Quality of life among long-term non-Hodgkin lymphoma survivors. Cancer, 109(8), 1659–1667. doi: 10.1002/cncr.22581
   PubMed Web of Science ®Google Scholar
• National Cancer Institute. (2011). Office of Cancer Survivorship Overview.
   Google Scholar
• National Coalition for Cancer Survivorship. (1999). Practice guidelines for the management of psychosocial distress. Oncology (Williston Park), 13(5a), 113–147.
   PubMed Web of Science ®Google Scholar
• Norton, T.R., Manne, S.L., Rubin, S., Carlson, J., Hernandez, E., Edelson, M.I., … Bergman, C. (2004). Prevalence and predictors of psychological distress among women with ovarian cancer. Journal of Clinical Oncology, 22(5), 919.
   PubMed Web of Science ®Google Scholar
• Parry, C., Kent, E.E., Mariotto, A.B., Alfano, C.M., & Rowland, J.H. (2011). Cancer survivors: A booming population. Cancer epidemiology, biomarkers & prevention: A publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology, 20(10), 1996–2005. doi: 10.1158/1055-9965.EPI-11-0729
   PubMed Web of Science ®Google Scholar
• Parry, C., Lomax, J.B., Morningstar, E.A., & Fairclough, D.L. (2012). Identification and correlates of unmet service needs in adult leukemia and lymphoma survivors after treatment. Journal of Oncology Practice, 8(5), e135–e141.
   PubMedGoogle Scholar
• Parry, C., Morningstar, E., Kendall, J., & Coleman, E.A. (2011). Working without a net: Leukemia and lymphoma survivors’ perspectives on care delivery at end-of-treatment and beyond. Journal of psychosocial oncology, 29(2), 175–198.
   PubMed Web of Science ®Google Scholar
• Screening for colorectal cancer: U.S. Preventive Services Task Force recommendation statement. (2008). Annals of Internal Medicine, 149(9), 627–637.
   PubMed Web of Science ®Google Scholar
• Stanton, A.L. (2006). Psychosocial concerns and interventions for cancer survivors. Journal of Clinical Oncology, 24(32), 5132–5137.
   PubMed Web of Science ®Google Scholar
• Stanton, A.L. (2012). What happens now? Psychosocial care for cancer survivors after medical treatment completion. Journal of Clinical Oncology, 30(11), 1215–1220.
   PubMed Web of Science ®Google Scholar
• Stanton, A.L., Ganz, P.A., Kwan, L., Meyerowitz, B.E., Bower, J.E., Krupnick, J.L., … Belin, T.R. (2005). Outcomes from the Moving Beyond Cancer psychoeducational, randomized, controlled trial with breast cancer patients. Journal of Clinical Oncology, 23(25), 6009–6018.
   PubMed Web of Science ®Google Scholar
• Stanton, A.L., Ganz, P.A., Rowland, J.H., Meyerowitz, B.E., Krupnick, J.L., & Sears, S.R. (2005). Promoting adjustment after treatment for cancer. Cancer, 104(11 Suppl), 2608–2613.
   PubMed Web of Science ®Google Scholar
• Stein, K.D., Syrjala, K.L., & Andrykowski, M.A. (2008). Physical and psychological long-term and late effects of cancer. Cancer, 112(11 Suppl), 2577–2592.
   PubMed Web of Science ®Google Scholar
• Sundin, E.C., & Horowitz, M.J. (2002). Impact of Event Scale: Psychometric properties. The British Journal of Psychiatry, 180(3), 205–209. doi: 10.1192/bjp.180.3.205
   PubMed Web of Science ®Google Scholar
• Weiss, T. (2004). Correlates of Posttraumatic Growth in Married Breast Cancer Survivors. Journal of Social and Clinical Psychology. doi: 10.1521/jscp.23.5.733.50750
   Web of Science ®Google Scholar
• Wenzel, L.B., Donnelly, J.P., Fowler, J.M., Habbal, R., Taylor, T.H., Aziz, N., & Cella, D. (2002). Resilience, reflection, and residual stress in ovarian cancer survivorship: A gynecologic oncology group study. Psycho-Oncology, 11(2), 142–153. doi: 10.1002/pon.567[pii]
   PubMed Web of Science ®Google Scholar
• Wenzel, L.B., Fairclough, D.L., Brady, M.J., Cella, D., Garrett, K.M., Kluhsman, B.C., … Marcus, A.C. (1999). Age-related differences in the quality of life of breast carcinoma patients after treatment. Cancer, 86(9), 1768–1774. doi: 10.1002/(SICI)1097-0142(19991101)86: 9<1768::AID-CNCR19>3.0.CO;2-O [pii]
   PubMed Web of Science ®Google Scholar
• Zabora, J., Blanchard, C.G., Smith, E.D., Roberts, C.S., Glajchcn, M., Sharp, J.W., … Smith, P.M. (1997). Prevalence of psychological distress among cancer patients across the disease continuum. Journal of Psychosocial Oncology, 15(2), 73–87.
   Web of Science ®Google Scholar
• Zabora, J., BrintzenhofeSzoc, K., Curbow, B., Hooker, C., & Piantadosi, S. (2001). The prevalence of psychological distress by cancer site. Psycho-Oncology, 10(1), 19–28. doi: 10.1002/1099-1611(200101/02)10: 1<19::AID-PON501>3.0.CO;2-6 [pii]
   PubMed Web of Science ®Google Scholar
• Zebrack, B., Yi, J., Petersen, L., & Ganz, P.A. (2008). The impact of cancer and quality of life for long-term survivors. Psycho-Oncology, 17(9), 891–900.
   PubMed Web of Science ®Google Scholar