In their own words: A qualitative study of the psychosocial concerns of posttreatment and long-term lung cancer survivors

References

• Aberle, D. R., Adams, A. M., Berg, C. D., Black, W. C., Clapp, J. D., Fagerstrom, R. M.,… Sicks, J. D. (2011). Reduced lung-cancer mortality with low-dose computed tomographic screening. New England Journal of Medicine, 365(5), 395–409. doi:10.1056/NEJMoa1102873
   PubMed Web of Science ®Google Scholar
• American Society of Clinical Oncology. (2014). Retrieved from http://www.asco.org/practice-research/cancer-survivorship
   Google Scholar
• Ayanian, J. Z., Zaslavsky, A. M., Arora, N. K., Kahn, K. L., Malin, J. L., Ganz, P. A.,… Harrington, D. P. (2010). Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium. Journal of Clinical Oncology, 28(27), 4154–4161. doi:10.1200/JCO.2009.27.3268
   PubMed Web of Science ®Google Scholar
• Belle Isle, L., Plescia, M., La Porta, M., & Shepherd, W. (2010). In conclusion: Looking to the future of comprehensive cancer control. Cancer Causes Control, 21(12), 2049–2057. doi:10.1007/s10552-010-9666-7
   PubMed Web of Science ®Google Scholar
• Bonnie J. Addario Lung Cancer Foundation. (n.d). Homepage. Retrieved from lungcancerfoundation.org/
   Google Scholar
• Brown, C., & Cataldo, J. (2013). Explorations of lung cancer stigma for female long-term survivors. Nursing Inquiry, 20(4), 352–362. doi:10.1111/nin.12024
   PubMed Web of Science ®Google Scholar
• Brown Johnson, C. G., Brodsky, J. L., & Cataldo, J. K. (2014). Lung cancer stigma, anxiety, depression, and quality of life. Journal of Psychosocial Oncology, 32(1), 59–73. doi:10.1080/07347332.2013.855963
   PubMed Web of Science ®Google Scholar
• Buseh, A. G., & Stevens, P. E. (2007). Constrained but not determined by stigma: Resistance by African American women living with HIV. Women & Health, 44(3), 1–18.
   Web of Science ®Google Scholar
• Caring Ambassadors Program. (n.d). Homepage. Retrieved from http://lungcancercap.org/
   Google Scholar
• Carlsen, K., Jensen, A. B., Jacobsen, E., Krasnik, M., & Johansen, C. (2005). Psychosocial aspects of lung cancer. Lung Cancer, 47(3), 293–300. doi:10.1016/j.lungcan.2004.08.002
   PubMed Web of Science ®Google Scholar
• Cataldo, J. K., & Brodsky, J. L. (2013). Lung cancer stigma, anxiety, depression and symptom severity. Oncology, 85(1), 33–40. doi:10.1159/000350834
   PubMed Web of Science ®Google Scholar
• Cataldo, J. K., Jahan, T. M., & Pongquan, V. L. (2012). Lung cancer stigma, depression, and quality of life among ever and never smokers. European Journal of Oncology Nursing, 16(3), 264–269. doi:10.1016/j.ejon.2011.06.008
   PubMed Web of Science ®Google Scholar
• Cataldo, J. K., Slaughter, R., Jahan, T. M., Pongquan, V. L., & Hwang, W. J. (2011). Measuring stigma in people with lung cancer: psychometric testing of the cataldo lung cancer stigma scale. Oncology Nursing Forum, 38(1), E46–E54. doi:10.1188/11.ONF.E46-E54
   PubMedGoogle Scholar
• Centers for Disease Control and Prevention. (2015). Quit smoking. Retrieved from http://www.cdc.gov/tobacco/quit_smoking/index.htm
   Google Scholar
• Chambers, S. K., Dunn, J., Occhipinti, S., Hughes, S., Baade, P., Sinclair, S.,… O'Connell, D. L. (2012). A systematic review of the impact of stigma and nihilism on lung cancer outcomes. BMC Cancer, 12, 184. doi:10.1186/1471-2407-12-184
   PubMed Web of Science ®Google Scholar
• Chapple, A., Ziebland, S., & McPherson, A. (2004). Stigma, shame, and blame experienced by patients with lung cancer: Qualitative study. British Medical Journal, 328(7454), 1470. doi:10.1136/bmj.38111.639734.7C
   PubMed Web of Science ®Google Scholar
• Charmaz, K. (2014). Constructing grounded theory. Thousand Oaks, CA: Sage.
   Google Scholar
• Conlon, A., Gilbert, D., Jones, B., & Aldredge, P. (2010). Stacked stigma: Oncology social workers' perceptions of the lung cancer experience. Journal of Psychosocial Oncology, 28(5), 587–587. doi:Pii 926032153
   Web of Science ®Google Scholar
• Denzin, N. K., & Lincoln, Y. S. (2005). The Sage handbook of qualitative research. Thousand Oaks, CA: Sage.
   Google Scholar
• Devitt, B., Hatton, A., Baravelli, C., Schofield, P., Jefford, M., & Mileshkin, L. (2010). What should a support program for people with lung cancer look like? Differing attitudes of patients and support group facilitators. Journal of Thoracic Oncology, 5(8), 1227–1232. doi:10.1097/Jto.0b013e3181e004b2
   PubMed Web of Science ®Google Scholar
• Earle, C. C. (2006). Failing to plan is planning to fail: improving the quality of care with survivorship care plans. Journal of Clinical Oncology, 24(32), 5112–5116. doi:10.1200/JCO.2006.06.5284
   PubMed Web of Science ®Google Scholar
• Edwards, B. K., Noone, A. M., Mariotto, A. B., Simard, E. P., Boscoe, F. P., Henley, S. J.,… Kohler, B. A. (2014). Annual report to the nation on the status of cancer, 1975–2010, featuring prevalence of comorbidity and impact on survival among persons with lung, colorectal, breast, or prostate cancer. Cancer, 120(9), 1290–1314.
   PubMed Web of Science ®Google Scholar
• Else-Quest, N. M., LoConte, N. K., Schiller, J. H., & Hyde, J. S. (2009). Perceived stigma, self-blame, and adjustment among lung, breast and prostate cancer patients. Psychology & Health, 24(8), 949–964. doi:10.1080/08870440802074664
   PubMed Web of Science ®Google Scholar
• Fenton-Abrose, L. (2012, August 14th). Cat lovers deserve to die. [Web log comment.] Retrieved from http://www.lungcanceralliance.org/blog/cat-lovers-deserve-to-die-2/#sthash.jNUvpwky.dpuf/
   Google Scholar
• Ganz, P. A., Casillas, J., & Hahn, E. E. (2008). Ensuring quality care for cancer survivors: Implementing the survivorship care plan. Seminars in Oncology Nursing, 24(3), 208–217. doi:10.1016/j.soncn.2008.05.009
   PubMedGoogle Scholar
• Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Pretince Hall.
   Google Scholar
• Gonzalez, B. D., & Jacobsen, P. B. (2012). Depression in lung cancer patients: The role of perceived stigma. Psycho-Oncology, 21(3), 239–246. doi:10.1002/pon.1882
   PubMed Web of Science ®Google Scholar
• Gritz, E. R., Sarna, L., Dresler, C., & Healton, C. G. (2007). Building a united front: Aligning the agendas for tobacco control, lung cancer research, and policy. Cancer Epidemiology Biomarkers & Prevention, 16(5), 859–863. doi:10.1158/1055-9965.Epi-07-0342
   PubMed Web of Science ®Google Scholar
• Hamann, H. A., Ostroff, J. S., Marks, E. G., Gerber, D. E., Schiller, J. H., & Lee, S. J. C. (2014). Stigma among patients with lung cancer: A patient-reported measurement model. Psycho-Oncology, 23(1), 81–92. doi:10.1002/pon.3371
   PubMed Web of Science ®Google Scholar
• Harry, B., Sturges, K., & Klingner, J. (2005). Mapping the process: An exemplar of process and challenge in grounded theory analysis. Educational Researcher, 34, 3–13.
   Google Scholar
• Herek, G. M., Capitanio, J. P., & Widaman, K. F. (2002). HIV-related stigma and knowledge in the United States: prevalence and trends, 1991–1999. American Journal of Public Health, 92(3), 371–377.
   PubMed Web of Science ®Google Scholar
• Hesse-Biber, S. (2010). Qualitative approaches to mixed methods practice. Qualitative Inquiry, 16(6), 455–468.
   Web of Science ®Google Scholar
• Hewitt, M., Greenfield, S., & Stovall, E. (2005). From cancer patient to cancer survivor: Lost in transition. Washington, DC: National Academies Press.
   Google Scholar
• Hoffman, K. E., McCarthy, E. P., Recklitis, C. J., & Ng, A. K. (2009). Psychological distress in long-term survivors of adult-onset cancer: Results from a national survey. Archives of Internal Medicine, 169(14), 1274–1281. doi:10.1001/archinternmed.2009.179
   PubMed Web of Science ®Google Scholar
• Holland, J. C., Kelly, B. J., & Weinberger, M. I. (2010). Why psychosocial care is difficult to integrate into routine cancer care: stigma is the elephant in the room. Journal of the National Comprehensive Cancer Network, 8(4), 362–366.
   PubMed Web of Science ®Google Scholar
• Hruschka, D. J., Schwartz, D., John, D. C. S., Picone-Decaro, E., Jenkins, R. A., & Carey, J. W. (2004). Reliability in coding open-ended data: Lessons learned from HIV behavioral research. Field Methods, 16(3), 307–331.
   Google Scholar
• Knapp-Oliver, S., & Moyer, A. (2012). Causal attributions predict willingness to support the allocation of funding to lung cancer treatment programs. Journal of Applied Social Psychology, 42(10), 2368–2385. doi:DOI 10.1111/j.1559-1816.2012.00945.x
   Web of Science ®Google Scholar
• Lebel, S., Castonguay, M., Mackness, G., Irish, J., Bezjak, A., & Devins, G. M. (2013). The psychosocial impact of stigma in people with head and neck or lung cancer. Psycho-Oncology, 22(1), 140–152. doi:10.1002/pon.2063
   PubMed Web of Science ®Google Scholar
• LeCompte, M. D., Preissle, J., & Tesch, R. (1993). Ethnography and qualitative design in educational research, 2nd edition. San Diego, CA: Academic Press.
   Google Scholar
• LoConte, N. K., Else-Quest, N. M., Eickhoff, J., Hyde, J., & Schiller, J. H. (2008). Assessment of guilt and shame in patients with non-small-cell lung cancer compared with patients with breast and prostate cancer. Clinical Lung Cancer, 9(3), 171–178. doi:10.3816/CLC.2008.n.026
   PubMed Web of Science ®Google Scholar
• Lung Cancer Alliance. (n.d.). Homepage. Retrieved from http://www.lungcanceralliance.org/blog/tag/no-one-deserves-to-die/
   Google Scholar
• Lung Cancer Alliance. (n.d.). Retrieved from http://lungcanceralliance.org/get-help-and-support/lca-services/phone-buddy/
   Google Scholar
• Mauthner, N. S., & Doucet, A. (2003). Reflexive accounts and accounts of reflexivity in qualitative data analysis. Sociology, 37(3), 413–431.
   Google Scholar
• McAfee, T., Davis, K. C., Alexander, R. L., Jr., Pechacek, T. F., & Bunnell, R. (2013). Effect of the first federally funded US antismoking national media campaign. The Lancet, 382(9909), 2003–2011. doi:10.1016/S0140-6736(13)61686-4
   PubMed Web of Science ®Google Scholar
• Mishler, E. (1990). Validation in inquiry-guided research: The role of exemplars in narrative studies. Harvard Educational Review, 60, 415–442.
   Web of Science ®Google Scholar
• Padgett, D. K. (2008). Qualitative methods in social work research (Vol. 36). Thousand Oaks, CA: Sage.
   Google Scholar
• Raleigh, Z. T. (2010). A biopsychosocial perspective on the experience of lung cancer. Journal of Psychosocial Oncology, 28(1), 116–125. doi:10.1080/07347330903438990
   PubMed Web of Science ®Google Scholar
• Richards, L. (2005). Handling qualitative data: A practical guide. Thousand Oaks, CA: Sage.
   Google Scholar
• Riessman, C. K. (1994). Qualitative studies in social work research. Thousand Oaks, CA: Sage.
   Google Scholar
• Schonfeld, N., & Timsit, J. F. (2008). Overcoming a stigma: The lung cancer patient in the intensive care unit. European Respiratory Journal, 31(1), 3–5. doi:10.1183/09031936.00126307
   PubMed Web of Science ®Google Scholar
• Surveillance, Epidemiology, & Program. (2015). Prevalence database: SEER 9, 36 Yr Limited Duration Prevalence on 1/1/2011. National Cancer Institute, DCCPS, Surveillance Research Program, Data Modeling Branch.
   Google Scholar
• U.S. Department of Health and Human Services. (2014). The health consequences of smoking: 50 years of progress. A Report of the Surgeon General. Atlanta, GA: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health.
   Google Scholar
• U.S. Cancer Statistics Working Group. (2014). United States cancer statistics: 1999–2011. Incidence and mortality web-based report. Retrieved from http://www.cdc.gov/uscs.
   Google Scholar
• U.S. Preventive Services Task Force. (2014, September). Recommendation summary. http://www.uspreventiveservicestaskforce.org/Page/Topic/recommendation-summary/lung-cancer-screening
   Google Scholar
• Weiner, B. (1993). On sin versus sickness. A theory of perceived responsibility and social motivation. American Psychologist, 48(9), 957–965.
   PubMed Web of Science ®Google Scholar
• Zabora, J., BrintzenhofeSzoc, K., Curbow, B., Hooker, C., & Piantadosi, S. (2001). The prevalence of psychological distress by cancer site. Psycho-Oncology, 10(1), 19–28.
   PubMed Web of Science ®Google Scholar
• Zebrack, B. (2000). Cancer survivors and quality of life: A critical review of the literature. Oncology Nursing Forum, 27(9), 1395–1401.
   PubMedGoogle Scholar